comments on the washington group position paper proposed purpose of an internationally comparable...
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Comments on the Washington Group
Position Paper
Proposed Purpose of an Internationally
Comparable General Disability Measure
Alicia Bercovich
IBGE Brazil
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World Programme of Action concerning Disabled Persons*
Goals To promote the participation of persons with
disabilities in all aspects of life • preventing the onset and consequences of
impairments, • promoting optimal levels of functioning, • equalizing opportunities for participation.
*United Nations, New York, 1983
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Framework
• The International Classification of Functioning and Disability (ICF) is a guide for the measurement design.
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Purposes of the harmonized mensuration of disability
• to provide services, including the development of programs and polices for service provision and the evaluation of these programs and services,
• to monitor the level of functioning in the population,
• to assess equalization of opportunities.
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International relevance and feasibility of implementation
Relevance
o Is the purpose of relatively equal importance across countries with respect to policy?
Feasibility
o Is it possible to collect the proposed information using a comparable general disability measure that includes a small set of census-like questions?
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Evaluation of purposes Relevance and Feasibility
• Provision of Services Relevance (yes) Feasibility (no)
• Monitoring the level of functioning in the population
Relevance (yes) Feasibility (no)
• Assessing equalization of opportunityRelevance (yes) Feasibility (yes)
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Purpose for the measure
• Assessment of equalization of opportunities as the purpose for the first general disability measure to be developed by the WG.
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Benefits • Identification of a broad subpopulation, which can be further
described using detailed information obtained via extended survey sets.
Limitations • the general disability measure developed to suit the proposed
purpose may not suit other purposes• no comprehensive assessment of disability or identification
of the “true” disabled population• Lacking information about mechanisms that facilitate
participation• Groups related to the NGO’s on Disability and other related
Organizations are not encouraging the identification of a large subpopulation of people with disability
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Transition to Measurement
Measuring Activity and Participation
• Willful actions
• Specific tasks
• Organized activity
• Information considered indication of participation
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Some Comments (I)
• Necessity of Harmonization to have meaningful and comparable measures
• Cultural Differences between countries continue to affect comparability
• The need for the Census and Surveys teams tounderstand the purpose
• Training people in the technical and operational teams
• To achieve a concrete set of questions recommended for insertion in Censuses and Surveys
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Some Comments (II)
• Minimum set of Questions recommended• Questions must be operationalized by the
countries according to local characteristics• Pilot tests harmonized and analyzed• Documentation of the results of the tests• Recommendations on Editing and Imputation
of the new variables• Analyzing the results: standardization of a
minimal set of checks to be performed at the country level
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More Comments (III)
• Documentation on the limitations on comparability due to cultural and contextual factors for each one of the participating countries
• Statistical measures on the accuracy of results (to establish comparisons)
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