cnr-itbride workshop, brussels 2006-12-08 policies and roadmaps for semantic interoperability in the...
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CNR-ITB RIDE Workshop, Brussels 2006-12-08
Policies and Roadmaps for semantic interoperability
in the eHealth domain
Angelo Rossi Mori, eHealth Unit, CNR-ITB
CNR-ITB RIDE Workshop, Brussels 2006-12-08
Policies and roadmapsGOAL:To develop a Roadmap for semantic interoperability for future research and development activities in the context of the eHealth action plan
Communication COM (2004) 356, “eHealth – Making Healthcare Better for European Citizens: An Action Plan for a European e-Health Area”.
to compare the strategies in different jurisdictions, to explore their construction and their limitations, to work out the principles for the development
of a roadmap
CNR-ITB RIDE Workshop, Brussels 2006-12-08
disciplined vs. fuzzy environmentsdisciplined environments diagnostic services (orders and reports),
booking, admission, discharge letter, … systematic interactions, stable workflows inter-operability, standard messages
fuzzy environments human co-operation, clinical communication clinical pathways, datasets, narrative co-operability, document-based approach
CNR-ITB RIDE Workshop, Brussels 2006-12-08
main principlesuccessful ICT solutions should correspond to perceived
communication needs of clinicians and citizens,
rely on clear workflows,
be supported by systemic actionsby healthcare managersand by adequate policies
CNR-ITB RIDE Workshop, Brussels 2006-12-08
IC (T) ?more emphasis on
I nformationC ommunication
less emphasis on T echnology
the context for semantic interoperability what are the interactions ? how far are they systematic ?
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1. Policies and strategiesa. comparative analysis of strategies in
different jurisdictionsb. exploration of limitations of the current
policies and strategies c. role of non-technological factorsd. criteria for roadmap design preliminary activity:
set up an Explanatory Framework
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1a. analysis of strategies comparative analysis of strategies
in different jurisdictions, e.g. : NPfIT in England, ONCHIT in US (and the RHIOs phenomenon) Infoway in Canada, OpenConnect in Australia
+ existing RIDE material+ partners' contributions …
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1b. limitations of current policies identify the limitations
of the current policies and strategies: What was wrong with the process so far ? How to improve the effectiveness of
deployment? How to obtain “a realistic approach and
applicability in clinical settings”?
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1c. non-technological factors regulations, education, economics, involvement of stakeholders, role of public agencies to support the
deployment and the research, ways to involve the research community
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1d. criteria for roadmap design criteria and metrics as an input
to the roadmapping process to satisfy the EU eHealth Action Plan on the deployment; on the processes of change management; on the potential role of authorities
CNR-ITB RIDE Workshop, Brussels 2006-12-08
+ Explanatory Framework work out a common language
to describe policies and strategies a preliminary activity to systematize:
the driving factors for eHealth evolution the evolution of eHealth solutions the layers of interventions
(as an adaptation of the ongoing activities within the eHealth ERA Projectand the EU Stakeholders' Group)
CNR-ITB RIDE Workshop, Brussels 2006-12-08
four layers of interventions L1. basic tools and services to enable other layers
hw, sw, networks, regulations, identification L2. to improve efficiency of operational workflows
booking, prescribing, reporting, ...(message formats, terminologies)
L3. to improve quality of shared care synergy of actors, patient empowerment
(clinical pathways, data sets) L4. to improve governance of healthcare system
structural actions (indicators)
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L1. basic tools and services to enable upper layers Various large jurisdictions are envisaging national
(federal) and regional programmes, to develop coherent inter-sectoral infrastructures (e.g. by eGovernment actions and generic standard, e.g. HTML, XML) and health-specific infrastructures.
In parallel, there is an increasing attention to define and adopt regulations and standards, and to make plans for specific educational activities for the public and healthcare professionals.
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L1. basic tools and services to enable upper layers build the technological infrastructure; set up the proper regulatory framework,
including connectivity, security, privacy; produce or adopt standards and reference
material to achieve semantic interoperability;
set up a certification process on quality and safety of eHealth solutions
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L2. to improve efficiency of operational workflows to improve speed, quality, quantity of procedures
performed with a given amount of resources. stereotypical situations (e.g. on prescriptions,
discharge letters, test reports, …) were the topic for intense activities on interoperability standards in last 15 years
largely independent from the actual patients conditions: most of them do not influence appropriateness of procedures and clinical decisions, i.e., the intrinsic nature of healthcare services is not altered
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L2. to improve efficiency of operational workflows provide services to improve the current
workflow-oriented services provide a basic electronic assistance to
clinicians and managers provide support to Public Health Systems,
on epidemiology, management and planning (derived usage of information).
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L3. to improve quality of shared carerationalisation of the processes
of care provision by a problem-oriented perspective:
support the daily clinical decisions of multiple healthcare professionals and a more effective behaviour of patients and clinicians
with the capture, storage and transmission of specific data items, depending on the particular context within the care plan
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L3. to improve quality of shared care advanced services on information and
knowledge for clinicians services for the empowerment of health
consumers: citizens, patients, their families and caregivers
programs supporting the current care processes
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L4. to improve governance of healthcare system information support
to discover bottlenecks to negotiate among stakeholders to decide for systemic actions
more effective management of services and refinement of medium- and long- term policies, by the analysis of accurate and timely data, directly taken from the routine care processes of each individual patient
increase in quality and better control on resources (appropriateness).
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L4. to improve governance of healthcare system re-engineering care processes
structural actions on the healthcare system to increase quality and appropriateness of care provision
enabling innovative organisational models production and evaluation
of eHealth roadmaps support change management processes
for eHealth deployment
CNR-ITB RIDE Workshop, Brussels 2006-12-08
L3 - CLINICALLY-ORIENTED PROCESSESchronic elderly children patient etc care empowerment .
four layers of interventions
prescribing booking reports managerial EIS etc
L2 - OPERATIONAL WORKFLOWS
L1 – ENABLINGINFRASTRUCTURE
- standards, certification . .
- privacy, security . . . . . . .
- portals . . . . . . . . . . . . . . .
- document sharing, EHR .
- etc . . . . . . . . . . . . . . . . . .
L4 – GOVERNANCEstructural actions
on the healthcare systemdriven by healthcare managers
including eHealth roadmaps, by authorities, alliances
competence centres
CNR-ITB RIDE Workshop, Brussels 2006-12-08
eHealth evolution: driving factors
gradual evolution of ICT market in healthcare
eHealth roadmaps (on deployment and research)
modernisation of healthcare processes
supported by ICT solutions
inter-sectoral activitiestowards Information Society(e.g. eGovernment plans)
L1
L2
L3L4
CNR-ITB RIDE Workshop, Brussels 2006-12-08
eHealth asks for new drivers increasing role
of regional / national authorities(ministries of health and innovation) roadmaps infrastructures and regulations
shift of attention from technological issues (market) to governance and organisation
of the healthcare system
CNR-ITB RIDE Workshop, Brussels 2006-12-08
Roadmaps1. develop specific roadmapping principles
a. criteria to pass from policies to actionsb. reference taxonomy on roadmapping actionsc. metrics to select and prioritize actions
2. for each sub-domain, work out:a. tables of preconditionsb. business implementation pathsc. concrete research tasks
3. synopsis and recommendations
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1a. from policies to actions to work out the possible consequences
of selected policy objectives: from the policy issues
to potential specific goals to systemic actions on the healthcare milieu
to the involved semantic issues next steps:
work out the corresponding actions to promote semantic interoperability
CNR-ITB RIDE Workshop, Brussels 2006-12-08
policy issue 1 - safer decisions, quality of care processes increase influence
on medical errors and on patient's errors, by timely providing adequate knowledge to assist proper decisions
increase the quality of care processes, i.e. declaring and following explicit reference clinical pathways
increase the mutual awareness of what other clinicians are knowing, doing or planning on the patient
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on errors goal - avoid errors
e-prescribing (producing the prescription) database on potential drug interactions, adverse
reactions (formulary) assist patient in performing procedures
instructions to patients (multi-cultural, multi-channel)
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on decisions goal - leverage authoritative clinical
knowledge for clinicians assure quality of routine care provision
reference clinical pathways decision support
assisted access to authoritative knowledge
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on information sharing goal - effectively manage unexpected
contacts (patient mobility) emergency patients, not able to
effectively present their history emergency data set, special needs, problems maintained lists
(active problems, allergies, ongoing medications) incidental access, without a shared plan
(GP and hospital, second opinion) basic patient profile, problem-oriented profile
CNR-ITB RIDE Workshop, Brussels 2006-12-08
policy issue 2 – sustainable evolution of healthcare the increasing cost of healthcare requires
a rationalisation of services provided, without a negative effect on quality of care. continuity of care, patient empowerment accurate governance based on
routine clinical data and suitable indicators, to produce benchmarks and to allow self-assessment of healthcare professionals
CNR-ITB RIDE Workshop, Brussels 2006-12-08
role of ICT solutions vs. the evolution of healthcare sectorgoing towards the upper layers, technological factors become less relevant semantic interoperability is more crucial the major goal becomes the governance
for a sustainable evolution of the healthcare sector
driving forces are shifting from market and ministries of innovation to clinicians and ministries of health
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on care models goal – support new care models: disease
management, long term care support to chronic conditions, frail elderly control of remote devices (home care), support to care managers
patient's folder, problem-oriented profile, context-specific data sets
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on care fragmentation goal - face fragmentation of care provision
planned shared care, with multiple professionals (continuity of care)
shared clinical pathways, cooperative shared plans, context-specific data sets
sharing any type of electronic clinical document (according to any format)
referral letter to pass care mandates between professionals
avoid duplicated tests repository of test results
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on patient behaviour goal - patient empowerment
adequate impact on lifestyle and on compliance to therapy
recalls, alerts, reminders clinical knowledge for patients (multi-channel) Patient Health Record (PHR) clinical pathways and health balance
patient self-assessment, appropriate requests for healthcare facilities / services
simple flow-charts to guide patient's access to appropriate facilities
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on governance goal – improve governance and quality
timely information on healthcare processes and outcomes
datawarehouse and indicators of process and outcome
registries for management and epidemiology
CNR-ITB RIDE Workshop, Brussels 2006-12-08
policy issue 3 – improve access to services
simplification of the paperwork rationalisation of organisational and
administrative processes increase of efficiency of operational workflows
(e.g. prescriptions, booking, reports, …). effective portals, with practical information
and authoritative clinical knowledge
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on efficiency goal – increase efficiency, avoid burden
operational workflows e.g. booking, reminders, prescriptions, reports
continuity over time, maintain history across episodes
immunisations, derived lists (e.g. tests, events, treatments, prescriptions)
simplify administrative processes registration data, e.g. insurance, preferred GP,
exemptions from payments, enrolment in programs (e.g. home care, dialysis, …)
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on appropriate access goal – select the most appropriate
point-of-service (improve patient choice) make information about services more
accessible citizen's portal (multi-cultural, multi-channel),
yellow pages about available healthcare services and facilities
patient self-assessment, appropriate requests for healthcare facilities / services
simple flow-charts to guide patient's access to appropriate facilities
CNR-ITB RIDE Workshop, Brussels 2006-12-08
influence on availability goal – extend availability of healthcare
services primary care centre,
on-call physician, out-of-hours, patients shared among a group of GPs
extended patient profile, sharing the local EPRs
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1b. reference taxonomy we developed a reference taxonomy
expanding the four layers of interventionspotentially involved in a roadmap
the topics enumerated in the taxonomy should be interpreted only as an interlingua to reach an uniform representation of the activities described by the countries, not as a proposal for the actual decisions on the Roadmaps that are actually taken within each jurisdiction
CNR-ITB RIDE Workshop, Brussels 2006-12-08
1c. metrics to select and prioritize actions develop criteria to systematically
assess the features of a candidate action: direct economic factors systemic factors (global benefits) cultural feasibility technological feasibility
in order to define prioritiesand to distribute resources across layers and actions
CNR-ITB RIDE Workshop, Brussels 2006-12-08
2. analysis by sub-domain sub-domains:
semantic interoperability in Electronic Healthcare records,
patient identifiers, eHealth messaging systems, Clinical guidelines business processes.
to work out:a. tables of preconditionsb. business implementation pathsc. concrete research tasks
CNR-ITB RIDE Workshop, Brussels 2006-12-08
2a. tables of preconditions use the reference taxonomy
as a check-list to enumerate the actionsthat are preconditionsfor the deployment of solutionsfor each sub-domain
CNR-ITB RIDE Workshop, Brussels 2006-12-08
2b. business implementation paths clarify the requirements
from the healthcare sectorand develop robust roadmaps,
to enable European industry to set up and follow a strategy for future product creation proceduresbased on innovative technologies, and
to be competitive in international markets
CNR-ITB RIDE Workshop, Brussels 2006-12-08
2c. concrete research tasks from the roadmaps, work out the gaps
requiring specific research efforts to drive RTD plans
for the research institutes and academia to suggest European collaboration
on innovative solutionsamong deployment programsacross Member States
CNR-ITB RIDE Workshop, Brussels 2006-12-08
3. synopsis and recommendations produce a synopsis of the methodology
and of the criteria developed during the RIDE project, as reference material for the production of new roadmaps
produce a set of recommendationsfor developers of national and regional roadmaps