Clinical Trials or Standard Treatment? Understanding Options for Blood Cancers

Wednesday, March 18, 2015

1:00 PM to 2:00 PM Eastern Time 12:00 PM to 1:00 PM Central Time 11:00 AM to 12:00 PM Mountain Time 10:00 AM to 11:00 AM Pacific Time

Dear Participant, On behalf of The Leukemia & Lymphoma Society (LLS), thank you for registering for the upcoming free telephone/web education program, Clinical Trials or Standard Treatment? Understanding Options for Blood Cancers, with featured speaker John P. Leonard, MD. We are pleased you will join us for this program, supported by grants from Genentech and Biogen Idec; Onyx Pharmaceuticals, an Amgen subsidiary; and Takeda Oncology. Participate in this program by selecting one of two convenient ways: Telephone: Please call toll-free (877) 407-9708 or (877) 407-5795, 15 minutes prior to start time. Computer: Please log into www.cancereducation.com/clinicaltrials 15 minutes prior to start time. Included in this packet you will find:

1. Program Agenda 2. Dr. Leonard’s Biography 3. Program Evaluation: www.LLS.org/tweval or prepaid envelope provided 4. Flyer: Advocacy Flyer and Online Chats 5. Flyer: Information Specialists/TrialCheck® and Copay Assistance Flyer 6. Flyer: Telephone and Web Education Programs and Web Education Videos 7. Flyer: Booklets & Fact Sheets in English and Spanish 8. Brochure: Resources and Support

Presentation slides will be available the day of the program by visiting www.LLS.org/programs. (Under the program title, please click “Read More” to view the slides.) If you need additional program packets, please call toll-free (855) 676-7723. To download or order free educational materials, please visit www.LLS.org/resourcecenter. To access materials in Spanish, please visit www.LLS.org/materiales. For more information about this or other programs and services offered by LLS, please call an LLS Information Specialist toll-free at (800) 955-4572. Information Specialists are master’s level oncology professionals who are available to assist you. We look forward to your participation in this program and thank you for joining us. Sincerely, Elizabeth Kitlas, LMSW Sr. Director, Patient Programs and Education Content The Leukemia & Lymphoma Society

Clinical Trials or Standard Treatment? Understanding Options for Blood Cancers

Agenda

Wednesday, March 18, 2015 1:00 PM to 2:00 PM Eastern Time 12:00 PM to 1:00 PM Central Time 11:00 AM to 12:00 PM Mountain Time 10:00 AM to 11:00 AM Pacific Time

12:45 PM ET Join the Program Dial-in: (877) 407-9708 or (877) 407-5795 Log-in: www.cancereducation.com/clinicaltrials 1:00–1:05 PM ET Welcome and Introductions

Lizette Figueroa-Rivera, MA Senior Manager, Patient and Professional Education Programs The Leukemia & Lymphoma Society

1:05–1:35 PM ET Presentation

John P. Leonard, MD Associate Dean for Clinical Research Weill Cornell Medical College New York, NY Dr. Leonard will:

Identify the role of clinical trials in blood cancer treatment

Explain how clinical trials are designed

Discuss how to determine the best treatment option for patients

Review the importance of talking to the healthcare team about treatment options

1:35–1:55 PM ET Questions and Answers with Dr. Leonard 1:55–2:00 PM ET Summary and Conclusion Lizette Figueroa-Rivera, MA

Clinical Trials or Standard Treatment? Understanding Options for Blood Cancers

Biography

John P. Leonard, MD Associate Dean for Clinical Research Weill Cornell Medical College New York, NY

John P. Leonard, MD, is the Richard T. Silver Distinguished Professor of Hematology and Medical Oncology and

Associate Dean for Clinical Research at the Weill Cornell Medical College in New York. Dr. Leonard is also Vice

Chairman for Clinical Research of the Department of Medicine and Associate Director of the Cancer Center at Weill

Cornell Medical College and NewYork-Presbyterian Hospital, where he also serves as Attending Physician, Chief of the

Lymphoma Service and Director of the Joint Clinical Trials Office. After performing his undergraduate work at Johns

Hopkins University and receiving his medical degree at the University of Virginia School of Medicine in Charlottesville, VA,

he completed his residency in medicine at the New York Hospital–Cornell Medical Center and Memorial Sloan Kettering

Cancer Center in New York, NY. Dr. Leonard went on to complete a fellowship in hematology and oncology at Cornell,

and served as the chief medical resident at the New York Hospital–Cornell Medical Center.

An expert in hematology and oncology, Dr. Leonard’s research has been published in numerous medical journals, and he

has served as a member of the editorial boards of Blood and the Journal of Clinical Oncology—leading international

journals in these fields. He is Chair of the Lymphoma Committee of the Alliance for Clinical Trials in Oncology (formerly

CALGB, ACOSOG, and NCCTG), a multicenter cooperative group and key component of the National Cancer Institute’s

National Clinical Trials Network. Dr. Leonard is an elected member of the American Board of Internal Medicine

subspecialty board for Hematology and has also been elected to membership in the American Society of Clinical

Investigation. He is Chair of the Scientific Advisory Board and Board Member of the Lymphoma Research Foundation and

Board Member of The Leukemia & Lymphoma Society New York City Chapter.

Dr. Leonard’s primary research interest is the development of novel therapeutic strategies for the treatment of lymphoma

and related hematologic malignancies, and he has lectured at major international meetings on these topics. Much of his

work has involved the development of novel therapies for lymphoma, including monoclonal antibodies, other immune-

based treatments, targeted agents, and other innovative approaches. Dr. Leonard has also studied prognostic, imaging,

and survivorship issues for patients with lymphoma.

Clinical Trials or Standard Treatment? Understanding Options for Blood Cancers March 18, 2015

Program Evaluation

Your feedback is important to us and is used to help design future education programs. Complete this form or complete it online at www.LLS.org/tweval to be entered to win a $25 gift card. (See end of form to complete your entry.) Thank you. 1.) Are you a cancer patient/survivor? Yes No If you are not a cancer patient/survivor, what is your relationship? Caregiver Family Member Friend/Concerned Individual Physician Nursing Professional Social Worker Other Healthcare Professional Other

2.) What is your ZIP/postal code? _________________________

3.) Email address: ______________________________________ 4.) As a result of participating in this program, to what extent do you agree with the following statements?

(Select one answer for each.)

Completely Disagree

Somewhat Disagree

Somewhat Agree

Completely Agree

I know the role that clinical trials play in blood cancer treatment

I am knowledgeable about how clinical trials are designed I am knowledgeable about how to determine the best treatment option for myself/patient

I feel prepared to communicate with my healthcare team 5.) I will discuss the following topics presented in this program with the healthcare team (choose all that apply):

Diagnosis Treatment Clinical Trials Side Effects Management Prognosis Long-term Effects Other ________________ None

Please explain: ________________________________________________________________________________________ _____________________________________________________________________________________________________ 6.) Please describe any information you expected to get from this program and did not receive.

_____________________________________________________________________________________________________ _____________________________________________________________________________________________________ 7.) What is the patient’s/survivor’s age?

Under 19 19–30 31–40 41–50 51–60 61–70 71 or older

Clinical Trials or Standard Treatment? Understanding Options for Blood Cancers 8.) What is your age, if you are not the patient/survivor?

Under 19 19–30 31–40 41–50 51–60 61–70 71 or older

9.) What is your gender? Male Female 10.) How long has it been since the patient/survivor was diagnosed?

Less than 30 days 1–3 months 4–7 months 8–11 months 1–3 years 4–7 years 8–10 years 11–20 years More than 20 years N/A

11.) What treatments have you/the patient had?

Chemotherapy Autologous stem cell transplantation Allogeneic stem cell transplantation Single drug therapy (IV, oral or

subcutaneous medication) Radiation therapy Watch & wait Other (please specify) ________________________________

N/A

12.) Are you/the patient enrolled in, considering, or a past participant in a clinical trial?

Enrolled in a clinical trial Considering participation in a clinical trial Have been a participant in a clinical trial N/A Have not considered participation in a clinical trial (please comment) _________________________________________

___________________________________________________________________________________________________ 13.) Following this program, do you feel more prepared to discuss treatment and disease management with members of the

healthcare team?

Yes No N/A

14.) Please give us any additional feedback about this program. _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ Complete this section to be entered to win a gift card. Your information will be used for this purpose only. First Name:______________________________________ Last Name: _______________________________________________ Email Address: ____________________________________________________________________________________________ or complete mailing address, including ZIP/postal code: _________________________________________________________ _________________________________________________________________________________________________________

If you have additional questions following this program, please contact an

LLS Information Specialist toll-free at (800) 955-4572 or infocenter@LLS.org.

Mail this completed form in the self-addressed stamped envelope provided, or send to: AOI Communications, L.P., 1 East Uwchlan Ave., Suite 408, Exton, PA 19341

LLS Advocacy!

If you would like to order this brochure or any other free publications, please call an LLS Information Specialist at (800) 955-4572 or email infocenter@LLS.org. You can also download them at www.LLS.org/resourcecenter.

Para pedir estos u otros libritos gratis, por favor llame a un especialista en información de La Sociedad de Lucha contra la Leucemia y el Linfoma llamando al (800) 955-4572, por correo electrónico a infocenter@lls.org, o puede descargarlos de nuestro sitio Web de LLS a www.LLS.org/espanol. !

The LLS Office of Public Policy is dedicated to removing barriers to quality, affordable, coordinated care for blood cancer patients. We work to shape and drive policies –speeding research and ensuring access to clinical trials and life-saving treatments. Together we can improve the lives of individuals with blood cancers.

Join us today. Visit www.LLS.org/advocacy.

!

Online Chats The Leukemia & Lymphoma Society Online Chats are free, password-protected, two hour livesessions moderated by oncology social workers. The moderator's will help guide discussions as well as provide resources, information, and support.

The chats provide a forum for those impacted by cancer to share experiences and offer mutual support.

To register for one of the chats below, or for more information, please visit www.LLS.org/chat. (Note: A laptop or desktop computer is needed to participate. The chat platform cannot support tablets or Smartphones.)

Living with NHL

Monday & Wednesday from 8:00 PM – 10:00 PM Eastern Time

Caregivers

Monday from 8:00 PM – 10:00 PM Eastern Time (as of 3/2/15)

Living with Myeloma

Tuesday from 8:00 PM – 10:00 PM Eastern Time

Living with CML

Tuesday & Thursday from 8:00 PM – 10:00 PM Eastern Time

Young Adults Living with Leukemia, Lymphoma & Myeloma

Tuesday from 8:30 PM – 10:30 PM Eastern Time

Living with Acute Leukemia (AL)

Adults- Every 1st & 3rd Thursday from 8:00 PM – 10:00 PM Eastern Time

Parents of Children with AL- Every 2nd & 4th Thursday from 8:00 PM – 10:00 PM ET

Support for the CML Chat provided by Support for the Myeloma and Caregivers Chats provided by Takeda Oncology

Support for the NHL Chat provided by

2-12-2015

!

02-13-703-TL1

The Leukemia & Lymphoma Society Online Chats are free, password-protected, two-hour live sessions for non-Hodgkin lymphoma (NHL), chronic myeloid leukemia (CML),myeloma and young adult survivors. Each chat is held weekly and is moderated by anoncology social worker.

The chats bring survivors together to share experiences and offer mutual support. Themoderator's role is determined by the wants and needs of the participants in each group.

To register, or for more information, please visit www.LLS.org/chat.

Sponsored by The Leukemia & Lymphoma Society. CML Chat supported by a grant from Bristol-Myers Squibb.Myeloma and Caregivers Chats supported by grants from Millennium: The Takeda Oncology Company.

TrialCheck® A Clinical Trial Search Service

The Leukemia & Lymphoma Society (LLS) is pleased to offer TrialCheck®, a clinical trial* search tool.

After answering a few short questions, healthcare professionals, patients and caregivers can immediately access listings of clinical trials for leukemia, lymphoma, myeloma and other blood cancers. Search results show clinical trials targeted to a patient’s diagnosis, disease type and stage, and zip code preference.

The service is accessed through the LLS websitewww.LLS.org/clinicaltrials or by calling an LLS Information Specialist at (800) 955-4572.

*A cancer clinical trial is a carefully controlled research study conductedby doctors to improve the care and treatment of cancer patients.

Online Chats

Caregivers Chat Coming Soon!

The Leukemia & Lymphoma Society’s (LLS) Information Specialists provide patients, families and healthcare professionals with the latest information on leukemia, lymphoma and myeloma. Our team consists of master’s level social workers, nurses and health educators who are available by phone Monday through Friday, 9 am to 9 pm (ET).

REACH OUT TO OURINFORMATION SPECIALISTS

For a complete directory of our patient services programs, contact us at

800.955.4572 or www. LLS.org(Callers may request a language interpreter.)

*A cancer clinical trial is a carefully controlled research study conducted by doctors to improve the care and treatment of cancer patients.

Supported by The Leukemia & Lymphoma Society with sponsorship from Celgene Corporation and Takeda Oncology. TrialCheck® powered by eviti® | Clinical Trials.

CO-PAYAssistance ProgramIf it is difficult for you to afford your prescriptiondrug co-pays and other insurance-related expenses, you may be eligible for co-pay assistance from The Leukemia & Lymphoma Society (LLS).

To be eligible for the LLS Co-Pay Assistance Program, patients must havel Prescription drug insurance coveragel A household income that is at or below five times the U.S. Federal Poverty Level as adjusted by the Cost of Living Index (COLI)*l A confirmed blood cancer diagnosis that is covered by the LLS Co-Pay Assistance Program.For a current list of covered diagnoses visit www.LLS.org/copay or call 877.LLS.COPAY(877.557.2672).

Patients, caregivers, pharmacies and healthcare providers can submit co-pay applications at www.LLS.org/copay. For information about other LLS programs and services contact an LLS Information Specialist at800.955.4572 or visit www.LLS.org.

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* Visit www.LLS.org/copay or call 877.557.2672 or 877.LLS.COPAY for a breakdown of household income that is at or below five times the U.S. Federal Poverty guidelines.

Programa de Asistencia paraCOPAGOSSi a usted le resulta difícil costear los copagos de los medicamentos recetados y otros gastos relacionados con el seguro médico, es posible que cumpla los requisitos para recibir asistencia por parte de La Sociedad de Lucha contra la Leucemia y el Linfoma (LLS, por sus siglas en inglés).Para poder recibir ayuda del Programa de Asistencia para Copagos, los pacientes deben tenerl Cobertura de su plan de seguro médico para medicamentos recetados

l Un ingreso familiar que sea igual a, o menor que el valor de cinco veces el nivel federal de pobreza en los Estados Unidos, ajustado por el Índice de Costo de Vida (COLI)*l Un diagnóstico confirmado de cáncer de la sangre que esté cubierto por el Programa de Asistencia para Copagos de LLS.Para recibir una lista actualizada de los diagnósticos cubiertos, visite www.LLS.org/copagos o llame al 877.557.2672.

Comuníquese con un especialista en información de LLS al 800.955.4572 o visite www.LLS.org/espanol para recibir información sobre otros programas y servicios de LLS.

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* Visite www.LLS.org/copagos o llame al 877.557.2672 para obtener un

desglose del ingreso familiar que figura dentro del límite de cinco

veces las pautas federales de pobreza de los Estados Unidos.

PS89 25M Revised 6/12

CO-PAYAssistance Program

If it is difficult for you to afford your prescription

drug co-pays and other insurance-related

expenses, you may be eligible for co-pay

assistance from The Leukemia & Lymphoma

Society (LLS).

To be eligible for the LLS Co-Pay Assistance

Program, patients must have

l Prescription drug insurance coverage

l A household income that is at or below

five times the U.S. Federal Poverty Level as

adjusted by the Cost of Living Index (COLI)*

l A confirmed blood cancer diagnosis that is

covered by the LLS Co-Pay Assistance Program.

For a current list of covered diagnoses visit

www.LLS.org/copay or call 877.LLS.COPAY

(877.557.2672).

Patients, caregivers, pharmacies and healthcare

providers can submit co-pay applications at

www.LLS.org/copay.

For information about other LLS programs and

services contact an LLS Information Specialist at

800.955.4572 or visit www.LLS.org.

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* Visit www.LLS.org/copay or call 877.557.2672 or 877.LLS.COPAY

for a breakdown of household income that is at or below five

times the U.S. Federal Poverty guidelines.

Co-Pay Assistance ProgramThe Leukemia & Lymphoma Society’s Co-Pay Assistance Program helps patients with chronic myeloid leukemia (CML), chronic lymphocytic leukemia (CLL), Hodgkin lymphoma, non-Hodgkin lymphoma, mantle cell lymphoma (MCL), myeloma, and myelodysplastic syndromes (MDS).

For more information, call toll-free (877) 557-2672 or visit www.LLS.org/copay.

Programa de asistencia para copagosEl programa de asistencia para copagos de La Sociedad de Lucha contra la Leucemia y el Linfoma ayuda a pacientes con leucemia mieloide crónica, leucemia linfocítica crónica, linfoma de Hodgkin, linfoma no Hodgkin, linfoma de células del manto, mieloma, y síndromes mielodisplásicos.

Para más información llame gratis a (877) 557-2672 o visite el sitio Web en www.LLS.org/copagos.

Questions to Ask to Make Informed Treatment Decisions

Available in Spanish

Living with Slow-Growing Lymphoma

Pediatric ALL - Update on Treatment and Follow-Up Care

Available in Spanish

Adults Acute Lymphoblastic Leukemia (ALL):

Update on Diagnosis and Treatment

Update on Chronic Myeloid Leukemia

MDS - Diagnosis and Treatment Update

Myeloma-Update on Treatment from the American Society of Hematology (ASH®) Annual Meeting

Telephone and Web Education Programs Upcoming and ongoing programs – www.LLS.org/programs.

If you missed one of our education programs, you can participate online. Visit www.LLS.org/pastprograms to access the programs listed below and more.

For continuing education programs, visit www.LLS.org/professionaled.

For programs available in Spanish, visit www.LLS.org/programas.

For additional information, contact an LLS Information Specialist at 1-800-955-4572 or infocenter@lls.org.

Chronic Myeloid Leukemia (CML): The Role of PCR Testing Cancer Survivorship in Young Adults - Acute Lymphoblastic Leukemia (ALL)

Advances in Blood Cancers: NHL Treatment and Survivorship Advances in Blood Cancers: Making NHL & CLL Treatment Decisions

Advances in Blood Cancers: Update on CML Advances in Blood Cancers: Update on Treatment for Myelofibrosis

Paths to Recovery - Stories from Two Blood Cancer Survivors

The following and additional videos are available at www.LLS.org/educationvideos.

LIVE TELEPHONE/WEB

Diagnosing and Treating Mantle Cell Lymphoma Wednesday March 25, 2015

1:00PM-2:00PM ET Speaker: Sonali M. Smith, MD

Associate Professor, Section of Hematology/Oncology Director, Lymphoma Program

The University of Chicago Chicago, IL

CLL- Current and Emerging Therapies

AML- Update on Diagnosis and Treatment

Mantle Cell Lymphoma - Update on Treatment

02-14-925-TL

Visit www.LLS.org/educationvideos to view these programs.

Visit www.LLS.org/programs or www.LLS.org/professionaled to access upcomingand past free telephone and web education programs. Nurses and social workerscan earn CE credit for many of the programs.

For additional information on this or other education programs and services offeredby The Leukemia & Lymphoma Society, please call an LLS Information Specialisttoll-free at (800) 955-4572 or infocenter@LLS.org.

FREE WEB EDUCATION VIDEOS

Learn about managing fatigue, anxiety, depression,and pain through the experiences of Laura andTodd and their healthcare professionals.

Cancer Survivorship inYoung Adults:

Acute Lymphoblastic Leukemia (ALL)

Supported by a grant from Supported by a grant from

Chronic Myeloid Leukemia (CML)

The Role of PCR Testing

02-15-001-TL

Booklets & Fact Sheets in English and SpanishWe are pleased to provide publications that cover many different blood cancer topics. Rangingfrom disease specific publications to health insurance options and resources to help patientsand their families cope with the financial aspects of cancer care, The Leukemia & LymphomaSociety (LLS) is committed to bringing you the most up-to-date blood cancer information.

If you would like to order these or any other free booklets or fact sheets, please call an LLSInformation Specialist at (800) 955-4572 or email infocenter@LLS.org. You can also downloador order them at www.LLS.org/resourcecenter.

SUPPORTING YOU ANDYOUR LOVED ONES

The Leukemia & Lymphoma Society (LLS)offers free information and services to patients and caregivers affected by blood cancers.One-on-one support with an Information SpecialistInformation Specialists are master’s level oncology social workers, nurses and health educators. They can answer general questions about diagnosis and treatment options, offer guidance, resources and support and assist with clinical-trial searches. Language services are available.

{{ Phone: 800.955.4572 (M-F, 9 a.m. to 9 p.m. EST){{ Email: infocenter@lls.org{{ Live Chat: www.lls.org/informationspecialists

resources and supportfor patients

www.lls.org

La Sociedad de Lucha contra la Leucemia y el Linfoma (LLS, por sus siglas en inglés) ofrece información y servicios gratuitos a pacientes y cuidadores afectados por los distintos tipos de cáncer de la sangre.

Apoyo personalizado con un Especialista en Información

Los especialistas en información son trabajadores sociales, enfermeros y educadores en salud titulados a nivel de maestría y especializados en oncología. Pueden responder a preguntas generales sobre el diagnóstico y las opciones de tratamiento, ofrecer orientación, recursos y apoyo y brindar ayuda en la búsqueda de ensayos clínicos. Se ofrecen servicios de interpretación.

{{ Teléfono: 800.955.4572 (de lunes a viernes de 9 a.m. a 9 p.m., hora del Este)

{{Correo electrónico: infocenter@lls.org{{ Comunicación en vivo (chat):

www.lls.org/especialistas

www.lls.org/espanol

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Disease, Treatment and Support ResourcesLLS provides free support and resources to help you understand your disease and treatment.{{ Disease, treatment and support information:

www.lls.org/diseaseinformation{{ Clinical trials search tool:

www.lls.org/clinicaltrials{{ Online chats and discussion boards:

www.lls.org/getinfo{{ Telephone/Web education programs:

www.lls.org/programs{{ Online videos:

www.lls.org/educationvideos{{ Disease and support publications:

www.lls.org/publications

Financial Assistance and Related ResourcesLLS offers information and programs to help patients understand and pay for their treatment costs. {{ Co-Pay Assistance Program:

www.lls.org/copay{{ Other financial assistance:

www.lls.org/finances

Chapter SupportLLS offers support and services in the United States and Canada through a network of chapters.{{ Resources and support in your community:

www.lls.org/chapterfind{{ Support Groups:

www.lls.org/supportgroups{{ Peer to peer support Patti Robinson Kaufmann

First Connection Program: www.lls.org/firstconnection

{{ Education programs in your community: www.lls.org/chapterprograms Recursos relacionados con la enfermedad,

el tratamiento y el apoyoLLS ofrece apoyo y recursos, sin costo, para ayudarlo a entender su enfermedad y tratamiento.{{ Información sobre la enfermedad, el tratamiento y

el apoyo: www.lls.org/informacion{{Herramienta de búsqueda de ensayos clínicos:

www.lls.org/clinicaltrials (en inglés){{Foros y salas de conversación por Internet:

www.lls.org/getinfo (en inglés){{ Programas educativos por teléfono o por Internet:

www.lls.org/programas{{ Videos por Internet:

www.lls.org/educationvideos (en inglés){{ Publicaciones relacionadas con la enfermedad y

el apoyo: www.lls.org/materiales

Ayuda económica y recursos relacionadosLLS ofrece información y programas para ayudar a los pacientes a entender y pagar los costos del tratamiento. {{ Programa de Asistencia para Copagos:

www.lls.org/copagos{{Otros tipos de ayuda económica:

www.lls.org/asuntoseconomicos

Apoyo a través de las oficinas comunitariasLLS ofrece apoyo y servicios en los Estados Unidos y Canadá a través de su red de oficinas comunitarias.{{Recursos y apoyo en su comunidad:

www.lls.org/contacto{{Grupos de apoyo:

www.lls.org/servicios{{Programa Primera Conexión de Patti Robinson

para facilitar el apoyo de otras personas con cáncer de la sangre: www.lls.org/servicios

{{Programas de educación en su comunidad: www.lls.org/chapterprograms (en inglés)•

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The Leukemia & Lymphoma Society (LLS)offers free information and services to patients and caregivers affected by blood cancers.One-on-one support with an Information SpecialistInformation Specialists are master’s level oncology social workers, nurses and health educators. They can answer general questions about diagnosis and treatment options, offer guidance, resources and support and assist with clinical-trial searches. Language services are available.

{{ Phone: 800.955.4572 (M-F, 9 a.m. to 9 p.m. EST){{Email: infocenter@lls.org{{Live Chat: www.lls.org/informationspecialists

resources and supportfor patients

www.lls.org

La Sociedad de Lucha contra la Leucemia y el Linfoma (LLS, por sus siglas en inglés) ofrece información y servicios gratuitos a pacientes y cuidadores afectados por los distintos tipos de cáncer de la sangre.

Apoyo personalizado con un Especialista en Información

Los especialistas en información son trabajadores sociales, enfermeros y educadores en salud titulados a nivel de maestría y especializados en oncología. Pueden responder a preguntas generales sobre el diagnóstico y las opciones de tratamiento, ofrecer orientación, recursos y apoyo y brindar ayuda en la búsqueda de ensayos clínicos. Se ofrecen servicios de interpretación.

{{ Teléfono: 800.955.4572 (de lunes a viernes de 9 a.m. a 9 p.m., hora del Este)

{{ Correo electrónico: infocenter@lls.org{{ Comunicación en vivo (chat):

www.lls.org/especialistas

www.lls.org/espanol

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Disease, Treatment and Support ResourcesLLS provides free support and resources to help you understand your disease and treatment.{{Disease, treatment and support information:

www.lls.org/diseaseinformation{{Clinical trials search tool:

www.lls.org/clinicaltrials{{Online chats and discussion boards:

www.lls.org/getinfo{{ Telephone/Web education programs:

www.lls.org/programs{{Online videos:

www.lls.org/educationvideos{{Disease and support publications:

www.lls.org/publications

Financial Assistance and Related ResourcesLLS offers information and programs to help patients understand and pay for their treatment costs. {{Co-Pay Assistance Program:

www.lls.org/copay{{Other financial assistance:

www.lls.org/finances

Chapter SupportLLS offers support and services in the United States and Canada through a network of chapters.{{Resources and support in your community:

www.lls.org/chapterfind{{Support Groups:

www.lls.org/supportgroups{{ Peer to peer support Patti Robinson Kaufmann

First Connection Program: www.lls.org/firstconnection

{{ Education programs in your community: www.lls.org/chapterprogramsRecursos relacionados con la enfermedad,

el tratamiento y el apoyoLLS ofrece apoyo y recursos, sin costo, para ayudarlo a entender su enfermedad y tratamiento.{{ Información sobre la enfermedad, el tratamiento y

el apoyo: www.lls.org/informacion{{ Herramienta de búsqueda de ensayos clínicos:

www.lls.org/clinicaltrials (en inglés){{ Foros y salas de conversación por Internet:

www.lls.org/getinfo (en inglés){{ Programas educativos por teléfono o por Internet:

www.lls.org/programas{{ Videos por Internet:

www.lls.org/educationvideos (en inglés){{ Publicaciones relacionadas con la enfermedad y

el apoyo: www.lls.org/materiales

Ayuda económica y recursos relacionadosLLS ofrece información y programas para ayudar a los pacientes a entender y pagar los costos del tratamiento. {{ Programa de Asistencia para Copagos:

www.lls.org/copagos{{ Otros tipos de ayuda económica:

www.lls.org/asuntoseconomicos

Apoyo a través de las oficinas comunitariasLLS ofrece apoyo y servicios en los Estados Unidos y Canadá a través de su red de oficinas comunitarias.{{ Recursos y apoyo en su comunidad:

www.lls.org/contacto{{ Grupos de apoyo:

www.lls.org/servicios{{ Programa Primera Conexión de Patti Robinson

para facilitar el apoyo de otras personas con cáncer de la sangre: www.lls.org/servicios

{{ Programas de educación en su comunidad: www.lls.org/chapterprograms (en inglés) •

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