chronic illness: cystic fibrosis
DESCRIPTION
With this presentation i taught my classmates what Cystic Fibrosis is and how it affects people living with it.TRANSCRIPT
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Cystic FibrosisBy Jennifer Clark
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Why I chose CF
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History of CF
Very New Misdiagnosed 1930s
Swiss pediatrician Dr. Fanconi Celiac Syndrome
Dr. Dorothy Anderson 1940-present
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Causes
Both parents to child CF patients have an abnormal cystic
fibrosis transmembrane conductance regulator (CFTR) gene.
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Symptoms/Signs
Usually begins with simple complications 1st symptom Excessive Coughing – leads to scarred
lungs Clubbing Salt Content Infertility
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Diagnosing CF
Most are diagnosed at birth or before age 2
Sweat Test Genetic Testing
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Treatments
No Cure Vary from person to person – ITP Treatments for lung infections ACTs Breathing Techniques
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Psychological/Social Factors
Can live a normal lifestyle No cure
Genetic mutation is from mother and father
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Relevance to Child Life
Frequent hospital visits Breathing treatments Isolation
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Relevant Information
NO summer camps
Cystic Fibrosis Foundation Great Strides Walk
Bibliotherapy Robyn’s Book Alex: The Life of a Child
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References
About cystic fibrosis. (n.d.). Retrieved from http://www.aboutcysticfibrosis.com/
Cystic fibrosis foundation. (n.d.). Retrieved from http://www.cff.org/