Child Death Review Child Death Review ReportingReporting

From Case Review to Data to From Case Review to Data to PreventionPrevention

Purpose of CDR Case ReportingPurpose of CDR Case Reporting

To systematically collect, analyze and report on:

Child, family, supervisor and perpetrator information

Investigation actions

Services needed, provided or referred

Risk factors by cause of death

Recommendations and actions taken to prevent deaths

Factors affecting the quality of your case review

How Do Teams Use Their CDR How Do Teams Use Their CDR Data?Data?

Local teams present annual findings to community groups to push for local interventions

Teams use data as a quality assurance tool for their reviews

State teams review local findings to identify trends, major risk factors and to develop recommendations

How Do Teams Use Their CDR How Do Teams Use Their CDR Data?Data?

State teams use findings to develop action plans based on their recommendations

Local teams and states use their reports to keep or increase CDR funding

National groups use state and local CDR findings to advocate for national policy and practice changes

Some National Groups showing Some National Groups showing interest in Child Death Review interest in Child Death Review DataData

Consumer Product Safety Commission CDC

Healthy People 2010Child Maltreatment Surveillance/Neglect DefinitionsNational Violent Death Reporting SystemNational Guidelines for Infant Death Investigations

National SAFE KIDS National Council of State Legislators American Prosecutors Research Institute American Academy of Pediatrics Department of Defense Manufacturers, e.g. Door and Window Mfg, National Pool Safety

Council, National Waste Management

Examples of Data Uses at a Examples of Data Uses at a National LevelNational Level

Safe Sleep

State of the StatesState of the States

44 states have a case report tool

39 states publish an annual report with findings and recommendations

18 states have legislation that requires a report on child death

However, there is no consistency among any state case report tools or state reports

A New Case Report SystemA New Case Report System

Funded by Maternal and Child Health Bureau, HRSA, HHS

A 30 person workgroup of 18 states over two years, analyzed 32 existing state case report forms

Developed standard data elements, data dictionary and 31 standardized reports

Using the National MCH Center Using the National MCH Center SystemSystem

Participating

Considering

In Process

The Child Death Review Case Reporting System

From Case Review to Data to Action

Step 1: Complete case review of child death. Step 2: Complete CDR Case Report Online at www.cdrdata.org.

Step 3: Send Report through Web, to servers at MPHI

Step 4: Servers sort and store data and permit access according to state requirements.

Step 5: State and local teams and national CDR download standardized reports and/or download data to create custom reports.

Step 6: Reports and data are used to advocate for actions to prevent child deaths and to keep children healthy, safe and protected.

Standardized Reports – Standardized Reports – National Center LevelNational Center Level

Standardized Reports – Standardized Reports – State and Local LevelState and Local Level

1. Demographics (Ethnicity/Race and Age Group by Sex)

2. Infant Death Information 3. Manner and Cause of Death by Age Group 4. Investigation Information 5. Motor Vehicle and Other Transport Death

Demographics 6. Vehicle Type Involved in Incident and

Position of Child 7. Risk Factors of Young Drivers (Ages 14-21)

Involved in the Crash 8. Motor Vehicle Protective Measures 9. Fire Death Demographics 10. Factors Involved in Fire Deaths 11. Drowning Death Demographics 12. Factors Involved in Drowning Deaths 13. Suffocation or Strangulation Death

Demographics 14. Weapon Death Demographics 15. Safety Features and Storage of Firearms

Used in Incident 16. Owner and Use of Weapon at Time of

Incident 17. Poisoning Death Demographics 18. Factors Involved in Poisoning Deaths

19. Sleep-Related Death Demographics 20. Sleep-Related Deaths by Cause 21. Circumstances Involved in Sleep-Related

Deaths 22. Factors Involved in Sleep-Related Deaths 23. Sleep-Related Deaths by Acts that Caused or

Contributed to Death 24. Acts of Omission/Commission Demographics 25. Acts of Omission/Commission Child Abuse

Information 26. Acts of Omission/Commission Child Neglect

Information 27. Acts of Omission/Commission Assault

Information (Not Child Abuse) 28. Acts of Omission/Commission Suicide

Information 29. Deaths by Manner and Cause by

Preventability 30. Team Prevention Recommendations 31. Review Team Process