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Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant Psychiatrist The Michael Rutter Centre

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Page 1: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update

Sarah H Bernard

Consultant Psychiatrist

The Michael Rutter Centre

Page 2: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant
Page 3: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant
Page 4: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Overview

The past What has changed? What else needs to change? How can a highly skilled, effective,

evidenced based mental health service for children and young people with LD be provided?

Page 5: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Background

Biblical times – infanticide….. Society became more caring….. Asylum Education for all….MHA….NHS Move from institutions to community

care De-medicalization Child 1st approach (NSF)

Page 6: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

What we know

Children with LD Are at an increased risk of developing

behavioural/mental health problems Are more likely to have co-morbidities Are more likely to have aversive

psychosocial circumstances Are less likely to receive a service

Page 7: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Recent Developments

CSIP Proxy target Program of activities Increase in provision But…….time of cuts, changes to

commissioning…….

Page 8: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Current situation (London)

Child 1st model EI services being promoted CAMHS vs PND/community paeds IQ lottery Variable assessments Lack of resources for intervention

Page 9: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

What do we need?

Services for all Early identification Awareness of diagnostic

overshadowing Appropriate assessments which

inform intervention Effective liaison with education/social

care

Page 10: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

How might services be delivered?

Identifiable care pathway Adequate resources Appropriate environment Skilled team Community based provision Access to emergency provision IP beds????

Page 11: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Assessment

Comprehensive Involvement of family/carers Involvement of education/social care Psychometrics ASD assessment Access to paediatricians, paediatric

neurologists, genetics…..

Page 12: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Intervention

Behavioural Group work Medication Psychoeducation Home, school, respite

Page 13: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Also

Safeguarding Medicolegal work Transition Training

Page 14: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

What are the Pitfalls?!

Unclear service remit Restrictions from commissioners Gaps in service Lack of planning Lack of respite Inadequate provision of care

pathways for emergencies/crises

Page 15: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Good Practice

Sally. 5yr old. Moderate LD. Recently started at MLD primary schoolIncreasingly distressed. Sleep disrupted. Mild SIBRef to CAMHS. Observed at home and school. Parents interviewedSally interviewedPsychometry. ADIGenetics

Outcome – to discuss

Page 16: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

Less Good Practice

Sally. 5yr old. Moderate LD. Recently started at MLD primary schoolIncreasingly distressed. Sleep disrupted. Mild SIBRef to CAMHS.CAMHS are not commissioned to see children at MLD

schoolsDelays….then passed to education psych……family

advised about how to manage Sally although not observed at home/school.

Sally increasingly distressed. Escalation of SIB with lacerations

Poor sleep, family exhausted…….Ref back to CAMHS…possible depression…..Still not seen…….

Page 17: Child and Adolescent Mental Health (CAMHs) for children and young people with learning disabilities (or lack of them): An update Sarah H Bernard Consultant

A Vision for the Future

Comprehensive services for all children

Timely assessments and interventions No discrimination Effective, respectful multiagency

working