cbcn outreach december 2015...centre public library in charlottetown, prince edward island. this...

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From: CBCN [email protected] Subject: CBCN Outreach December 2015 Date: December 1, 2015 at 9:41 AM To: [email protected] Stay Connected December 2015 Outreach Stay up-to-date on the latest breast cancer news & events! Help support CBCN! Join the Giving Tuesday movement on December 1 Giving Tuesday is a movement dedicated to giving back, taking place the day after Cyber Monday. It is a day where charities, companies, and individuals join together to share commitment, rally for favourite causes, and think about others. After you score some amazing deals on Black Friday and Cyber Monday, help support your favourite charity on #GivingTuesdayCa ! By making a donation to the Canadian Breast Cancer Network, you are supporting Canadians affected by breast cancer. You are helping CBCN, a national organization founded and directed by survivors, to ensure the best quality of life for those affected by this disease. After your donation, be sure to find us on Facebook and Twitter . Use the #GivingTuesdayCa hashtag to show your support and raise awareness for the movement and for CBCN! CBCN in action CBCN represents the perspective of Canadians living with metastatic breast cancer at an international conference From November 5 to 7, CBCN participated at the third International Consensus Conference for Advanced Breast Cancer (ABC3) in Lisbon, Portugal. CBCN presented an abstract on the outcomes of our Waiting for Treatment report, highlighting inequities in access to new metastatic treatments. The presentation allowed CBCN to initiate great dialogue around the

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Page 1: CBCN Outreach December 2015...Centre Public Library in Charlottetown, Prince Edward Island. This glossary was produced by Pauktuutit Inuit ... on confirming truths and debunking myths

From: CBCN [email protected]: CBCN Outreach December 2015Date: December 1, 2015 at 9:41 AMTo: [email protected]

Stay Connected

December2015

OutreachStay up-to-date on the latest breast cancer news & events!

Help support CBCN!Join the Giving Tuesday movement on December 1Giving Tuesday is a movement dedicated to giving back, taking place the day after CyberMonday. It is a day where charities, companies, and individuals join together to sharecommitment, rally for favourite causes, and think about others. After you score some amazing deals on Black Friday and Cyber Monday, help support yourfavourite charity on #GivingTuesdayCa! By making a donation to the Canadian BreastCancer Network, you are supporting Canadians affected by breast cancer. You are helpingCBCN, a national organization founded and directed by survivors, to ensure the bestquality of life for those affected by this disease. After your donation, be sure to find us on Facebook and Twitter. Use the#GivingTuesdayCa hashtag to show your support and raise awareness for the movementand for CBCN!

CBCN in actionCBCN represents the perspective of Canadians living with metastaticbreast cancer at an international conferenceFrom November 5 to 7, CBCN participated at the third International Consensus Conferencefor Advanced Breast Cancer (ABC3) in Lisbon, Portugal. CBCN presented an abstract onthe outcomes of our Waiting for Treatment report, highlighting inequities in access to newmetastatic treatments. The presentation allowed CBCN to initiate great dialogue around the

Page 2: CBCN Outreach December 2015...Centre Public Library in Charlottetown, Prince Edward Island. This glossary was produced by Pauktuutit Inuit ... on confirming truths and debunking myths

metastatic treatments. The presentation allowed CBCN to initiate great dialogue around theissue of accessibility and affordability of innovative medicines globally, and CBCN wasthrilled to have our abstract selected and recognized as the best presentation in the patientadvocacy stream by the European School of Oncology (ESO) and the conference itself.

To view our published abstract in November 2015 edition of The Breast journal, pleasevisit http://www.thebreastonline.com/issue/S0960-9776(15)X0008-7.

At ABC3, CBCN had a unique opportunity to lead global discussions around the needs ofmetastatic breast cancer patients and we look forward to continuing to spearhead globaldiscussions on the treatment and care of metastatic breast cancer patients and theirfamilies.

Sharing the Kaggutiq Inuit Cancer GlossaryCBCN board member Judy Donovan Whitty (left) waspleased to present a copy of the Kaggutiq Inuit CancerGlossary to Trina O'Brien Leggott of the ConfederationCentre Public Library in Charlottetown, Prince EdwardIsland. This glossary was produced by Pauktuutit InuitWomen of Canada and CBCN has appreciatedparticipating in an advisory role for this project.Additional copies of this resource are available at http://pauktuutit.ca/health/cancer-project/kaggutiq-inuit-cancer-glossary/.

Learn & connectLooking for information about clinical trials?Visit http://itstartswithme.ca/ and learn more about clinical trials, who can participate, howthey work, and whether or not participating in a clinical trial is right for you.

Busting the myths around the palliative approach to careDo you believe that palliative care is most appropriate for patients who will likely die withinweeks? Actually, this is a myth. Find out about this and other misconceptions aboutpalliative care at http://cbcn.ca/index.php?pageaction=content.page&id=2624&lang=en.

December 7 webinar: Coping with cancer during the holidays

Page 3: CBCN Outreach December 2015...Centre Public Library in Charlottetown, Prince Edward Island. This glossary was produced by Pauktuutit Inuit ... on confirming truths and debunking myths

December 7 webinar: Coping with cancer during the holidaysOn December 7 at 6 p.m. Eastern Time, the Canadian Cancer Society presents a webinaron coping with cancer during the holidays.

For many people, the holiday season is a time of joy and a celebration of family, friendshipand tradition. When you or someone you know has cancer, or if you are grieving the loss ofa loved one, this time of year can trigger new and challenging emotions.

In this webcast, you will hear three different perspectives from cancer patients, cancersurvivors and caregivers about how they have coped with cancer during the holidays.Please join us for this special holiday webcast where you can join the conversation bysharing your thoughts and challenges and solutions for coping with cancer during theholidays.

For more information or to register, visit CancerConnection.ca.

PEI-Charlottetown Breast Cancer Support Group holds dinner December7The PEI-Charlottetown Breast Cancer Support Group will meet for dinner, a sing-along, avisit from Kris Kringle and a bit of dancing on December 7 at 6 p.m. All breast cancerpatients and survivors are welcome. Please R.S.V.P. by December 4 to Glenda at 902-894-5454 or Judy at 902-569-3496.

December 15 webinar: Complementary therapies and cancerOn December 15 at 6 p.m. Eastern Time, the Canadian Cancer Society presents a webinaron confirming truths and debunking myths around complementary therapies and cancer.

You may wonder whether using a complementary therapy will help you on your cancerjourney. The current research on these therapies shows evidence for both benefits andrisks. As a result, it's sometimes a struggle to make sense of this evidence and makeinformed decisions about your cancer treatment.

Join this webcast to hear current facts and strategies that can help you make informeddecisions.

For more information or to register, click here.

Volunteer training in Yellowknife February 19 to 21Willow Breast & Hereditary Cancer Support will hold a volunteer trainingworkshop in Yellowknife, Northwest Territories on February 19 to 21, 2016. Thisworkshop is offered in collaboration with NWT Breast Health/Breast CancerAction Group. For more information, please contact Danielle VandeZande,Willow's Director of Support Services & Community Engagement,at [email protected] or 1-888-778-3100.

New website offers targeted breast cancer resources for SaskatchewanresidentsSaskatchewan Breast Cancer Connect has a new website, filled withinformation, resources and support services, catered toSaskatchewan breast cancer patients. Here you'll find the informationand resources that you need to:

educate yourself;find the products that you needconnect with support.

Page 4: CBCN Outreach December 2015...Centre Public Library in Charlottetown, Prince Edward Island. This glossary was produced by Pauktuutit Inuit ... on confirming truths and debunking myths

connect with support.

Please take a few minutes to check out the website: www.saskbreastcancerconnect.org.

Recruiting participants for a study looking at patterns of health behaviorsof cancer survivorsDr. Jennifer Brunet from the University of Ottawa and Dr. Kristina Karvinen from theUniversity of Nipissing are looking for participants who have experienced a cancerdiagnosis and are willing to complete a survey. This study aims to explore how differentlifestyle behaviors relate to one another in adults with a history of cancer. This study alsoaims to gain a better understanding of how socio-demographic, cancer-related, andtheoretical factors relate to lifestyle behaviors. Visit https://qualtricsus2.co1.qualtrics.com/SE/?SID=SV_5bf62LSgALDHR09 for moreinformation about the eligibility criteria and how to participate. This study has been approved by the University of Ottawa Ethics Review Board.

Survey investigates conversations between patients and health careprofessionals upon initial diagnosis of metastatic breast cancerHave you been diagnosed with Stage IV metastatic breastcancer and want to help improve the conversation aboutdiagnosis and treatment between health care professionalsand patients on initial diagnosis? Please consider taking ashort 8 to 12-minute survey about your experience. Allresponses are anonymous. This research is sponsored by the Metastatic Breast CancerAlliance and is being conducted by Dr. Corrine Beaumont.The results will be published on the Metastatic BreastCancer Alliance website. An introduction and the survey are provided at this link: http://bit.ly/1KWgk8w. Theresearchers thank you for your help.

Check out a new interactive advance care planning workbookThe Speak Up Campaign has introduced a new online, interactive advance care planningworkbook at myspeakupplan.ca. This innovative tool uses five steps to help you considerwhat is important to you, help you document your beliefs and wishes, and help you choosea Substitute Decision Maker, someone who would speak for you if you couldn't speak foryourself.

You can move back and forth between the different sections, choose to answer or skipquestions, and record your thoughts and wishes in each section. There are also videos,conversation starters, and resources that explain various terms and treatments.

You can also click on "Save and Continue Later" - which will send a link to your e-mailaddress to allow you to return to the workbook and make changes or additions for up to 30days. Once you've finished, you can download a PDF of your plan to save and share withothers!

Try the interactive workbook today at myspeakupplan.ca. This is an initiative of theCanadian Hospice and Palliative Care Association.

Featured video

Page 5: CBCN Outreach December 2015...Centre Public Library in Charlottetown, Prince Edward Island. This glossary was produced by Pauktuutit Inuit ... on confirming truths and debunking myths

Dr. Dugald Seely

Featured videoOur Featured Video this month is from Dr. Dugald Seelywith the Ottawa Integrative Cancer Centre on howcomplementary therapies can improve quality of life duringtreatment for breast cancer. The OICC is the firstintegrative cancer care and research centre of its kind inEastern Canada. The centre was established to providethe best integrative cancer care, to improve quality of life ofthose touched by this debilitating disease. To learn more about OICC and integrative approaches tocancer treatment, visit www.oicc.ca. To nominate a video for CBCN's Featured Video, email Rebecca at [email protected].

Learn & Connect!

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Canadian Breast Cancer Network331 Cooper Street, Suite 602, Ottawa ON K2P 0G5

Telephone: 1-800-685-8820; Ottawa: 613-230-3044 Fax: 613-230-4424; [email protected]; www.cbcn.ca

Outreach is published 12 times a year by the Canadian Breast Cancer Network. It is available in English orFrench, and is distributed as a text-only e-mail message. The views expressed herein are the views of theauthors and do not necessarily represent the views of CBCN. To be added to the Outreach distribution listor to update your e-mail address, please e-mail Wendy at [email protected]. Send your content submissions

to [email protected].

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Page 6: CBCN Outreach December 2015...Centre Public Library in Charlottetown, Prince Edward Island. This glossary was produced by Pauktuutit Inuit ... on confirming truths and debunking myths

CBCN | 331 Cooper St. | Suite 602 | Ottawa | Ontario | K2P 0G5 | Canada