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    APPENDIX I

    COVER SHEET

    Reflections on the care of a patient with palliative care needs

    Name : Ms.R.Anu Sarannya

    Register Number : 08131302

    Centre : JEEVODAYA HOSPICE INSTITUTE OF PALLIATIVE CARE

    Date : 19.12.13

    I declare that this is wholly my work, except where acknowledged specifically, as the

    published or unpublished work of others

    Signature:

    Ms.Anu Sarannya

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    APPENDIX II

    CCEPC Registration Number : 08131302

    SECTION A

    Introduction:

    a) What is the nature of your work?

    I dont work at present as I am doing my master degree in nursing (medicalsurgical department) first year. My professional work is caring for the sick in the

    hospital, providing basic care needed for carrying on the life comfortably and

    qualitatively. I was interested in attending the course as was taking care of cancer

    patients in our speciality hospital and planning to take oncology nursing for my

    speciality in my M.sc(N) II year.

    SECTION B

    Case summary:

    1. What was the diagnosis?Name:Mrs.X

    Age:54 years

    Education:M.A (English literature)

    Occupation:lecturer

    Diagnosis: Left side breast cancer with metastasis to lung and brain.

    Habits:

    Bad habit: Nil Diet history: non vegetarian, 3 meals per day, has food allergy to brinjal. Sleep history: She used to sleep 6 hours per night. During her hospital stay she

    was having sleep disturbance because of hospitalisation and fear of impending

    death.

    Elimination pattern: Her urine output is in positive balance, she is havingconstipation as she is bed ridden.

    Hobbies:she used to do gardening in her home during her leisure times

    Menarche history:attained menarche at the age of 13 years, had irregular menstrual

    cycle.

    Obstetric history:

    No of pregnancy:3 No of abortion:1 No of live delivery:2 Mode of delivery: LSCS History of breast feeding: didnt give breast feeding for both the children

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    Menopausal history:attained menopause at the age of 40 years , had severe menorrhagia

    before the onset of menopause.

    Family history: Her sister had the history of breast cancer, undergone mastectomy 10

    years before. Her family members do not have the history of any communicable disease

    like tuberculosis, chicken pox etc.

    Social history:she is a shy person who doesnt communicate much with other people.She maintains good interpersonal relationship with the near and dear ones.

    Socio economic history: she is from a middle socio economic status. She is one of the

    bread winners of the family. She is living in her own house, in Chennai. Her house has all

    the facilities like adequate ventilation, drainage, water system etc. The community area in

    which she lives has all the facilities like market, hospital, transport etc within reach.

    Emotional history: She doesnt have adequate emotional maturity. She is very sensitive.

    She doesnt have adequate coping .She doesnt have adequate decision making capacity.

    She used to cry for simple problems.

    2. Enumerate all the important clinical features, including physical findings?Findings Remark

    OBJECTIVE FEATURES

    Inverted nipple Axillary and supraclavicular

    lymphnode enlargement

    Use of accessory muscles Grade 1 clubbing

    Emotional feature: the clientbecame depressed hearing to her

    health status, she also broke out in

    tears hearing to her diagnosis

    SUBJECTIVE FEATURES

    Severe headache Breathing difficulty Neuropathic pain radiating toneck

    and left hand

    Suicidal ideation

    Due to increase in size of tumourcell in the breast

    Due to Lymphnode metastasis

    Due to breathing difficulty Due to prolonged hypoxia andincreased oxygen demand to theextremities

    Due to fear about death andunfinished chores of work in life

    Due to brain metastasis Due to lung metastasis Due to compression of nerve bythe growing tumor

    Due to economic burden that maybe caused to the family members in

    spending for the treatment

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    3. What investigation did you do and why?Table showing the investigation

    Investigations done Reason why the investigation was doneSerum cancer markers(CA-15-3)

    Chest x-ray

    PET scan

    Fine needle aspiration cytology(Biopsy)

    MRI

    Pulmonary function test

    To diagnose the cancer

    To r/o lung cancer, evidence of metastasis

    to the ribs or vertebrae.

    To know the extent of malignancy

    To confirm the presence of malignant cell

    histopathologically.

    To confirm the depth and extend ofspread of malignancy.

    To know the changes in lung capacity.

    4. What treatment and other management plans did you consider and why?I.Chemotherapy:

    - Cisplatin(Alkalyting agent)

    - Vincristine(Anti microtubule agent)

    - Paclitaxel(Anti microtubule agent)

    II. Radiation therapy-IMRT(Intensity Modulated Radiation Therapy)

    III. Dyspnoea management:

    - Mechanical ventilator-vcv mode,PEEP-7 cm H2O,sedative-Inj.midazolam

    - Inj.Deriphylline

    -Neb.levolin 1ml bd

    -Breathing and coughing exercise

    -patient in Fowlers position

    IV. Pain management:

    Inj.tramadol 50mg iv bd Inj.fortwin 30 mg iv bd Inj.dexamethasone 4mg iv bd

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    4. What was the result? Was the result expected / anticipated?

    The result related to symptom management was expected.Patients symptoms

    got reduced to some extent. But the patient was very much anxious and depressed. Her

    psychological and social aspect is affected as she is in ICU and was not allowed to see her

    relatives.

    5. Who else did you involve or consult in the care of this patient? Neurologist Pulmonologist Radiologist Nurse Physiotherapist Counsellor Dietician Family members Spiritual leaders

    6. Were their contributions helpful? If yes, how?Yes. Their contribution was very useful in confirming and treating the patient

    appropriately.

    SECTION C

    1. If you have to see and manage the same patient once again, how will youproceed with the management?

    DISEASE MANAGEMENT:

    Surgery with adjuvant therapy to improve patient survival. Chemotherapy with focussed medications that are having less side

    effects.

    Radiation therapy with pain relief management.

    SYMPTOM MANAGEMENT:

    Psychosocial

    careSymptom

    control

    Disease

    management

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    Would avoid intubation and mechanical ventlation as to provide a quality care to thepatient.

    Would give priority to patient preferred treatment. Would give maximum pain management interventions with patient controlled

    analgesia. Would allow the patient attenders to spend the time with the patient. Would provide necessary aiding materials to improve the self confidence.

    o Hair loss(due to radiation and chemotherapy)-wig ,scarf provision to cover theexposure of scalp

    Treatment Rationale

    Inj. Dexamethazone 32mg iv stat & 16mg bd

    Inj.Tamoxifen (Hormone blocking agent)

    Tab.Trastuzumab (Herceptin),

    Tab.deriphylline 100mg bd

    Tab.lorazepam 1mg p.o p.r.n

    Tab.morphine 10mg 4thhourly

    Tab.vomikind bd

    Tab.Sodium valproate 100 mg bd

    Neb.duolin 1ml bd

    To reduce tissue sweeling

    and relieve nerve

    compression

    To block oestrogen receptor

    that stimulates the cancer cell

    growth

    To block the growth of

    cancer cells

    To reduce breathing difficulty

    To reduce anxiety

    To reduce pain

    To reduce nausea and

    vomiting

    To prevent episodes of

    convulsions

    To relieve breathingdifficulty

    PSYCHOSOCIAL CARE:

    Pulmonary and neuro rehabilitation therapy. Supportive care-help the patient and family members to cope up with

    their disease and treatment by teaching various coping strategies.

    spirituality Include the family member also in the care of client along with health

    care professional. Allow the family members to interact with the patient for some time.

    http://en.wikipedia.org/wiki/Trastuzumabhttp://en.wikipedia.org/wiki/Trastuzumab
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    Referral for hospice care is important in planning for comfortable anddignified end of life care for the patient and family.

    2. What other issues will you consider in the same patient?-Physical issue -pain radiating to hand, back & neck due to compression.

    -side effects of radiation

    -Psychological issue- anxiety and fear, social isolation and spiritual isolation.

    3. Be specific about the issues and mention why you would like to bring thechanges?

    Physical issues:Weakness of left hand and severe pain in theback, hand may be due to nerve compression. If the nerve

    compression continues there is possibility of the person fromlosing his functional capacity of the area that may affect the

    quality of life of the patient so it should be taken into

    consideration and managed accordingly.

    Psychological issues: she has verbalised suicidal ideation, iwould like to bring the change by giving adequate counselling

    because if not concentrated it may result in ending of her life by

    herself, which is more painful for her family members than

    dying of cancer.

    Social issues: She is isolating herself from the surrounding, iwould like to bring change in it by improving the interaction

    and interpersonal relationship because when she is isolating

    herself from others it may increase the probability of increasing

    the psychological pain and suicidal thoughts.

    4. Summarise briefly what you have learned from managing this patient,reflecting on his /her care, in the light of your learning from this course.

    By providing the care to this patient

    -I gained adequate knowledge about the breast cancer and its

    complications.

    -I improved my communication skill in how to break the bad news.

    -I was able to provide care by classifying it under physical,

    psychological, social and spiritual.

    -I completely understood the treatment strategies involved in the

    management of the client with such condition.

    -I understood that the pain management is the main in the patient with

    the advanced cancer.

    5. Your personal insight about the way in which the patient was managed.

    My personal insight about the way the patient was managed is that, thepatient even when treated adequately for the symptoms his social needs, psychological well

    being and quality of life was not taken care as the patient was in ICU.

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    6.Your professional knowledge and skills regarding the following:

    a) Physical care: Wound care Skin care Provide comfortable measures and position. Provide supportive care of daily living activities such as mouth care,

    bed bath etc.

    Pain assessment and management such as hot application, massage etc Encourage the patient to do active and passive exercise [ deep

    breathing exercise, range of motion exercise]

    Nutrition, bowel management.b) Psychosocial care:

    Counselling the patient Encouraging the client to interact with the all people. Educating about the personal care and health progress. Encourage the patient to ventilate the wishes.

    c) Spiritual care: Involving the patient in praying daily in the morning. Motivate the patient to think positively. Telling the patient some spiritual stories Teaching meditation and yoga. Motivating the patient to participate in spiritual meets.

    d) Issues of communication with patient and family: Language barriers As the patient and family member will be emotionally upset,they mayexhibit it in the form of depression or anger

    The patient when hearing the bad news they will be denying to acceptit

    Breaking the bad news when not with the appropriate words maydivert the patient towards suicidal thoughts also.

    e) Ethical issues if present:

    Autonomy-patient refused MRI scan. Collision was present-they family members doesnt want the diagnosisto be revealed to the patient.

    Doctrine of double effect-consent from the relatives was got beforestarting the sedative(Inj.Midazolam)

    7. How will you influence policy and innovations in your field of work based on thiscase reflection?

    Will change the policy if possible that, the relatives can be allowed tobe with the patient at the end minutes.

    Patient controlled analgesia-Inj.morphine can be practised in hospitalsetup.

    Add palliative care as an essential chapter in Bsc programme.

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    APPENDIX III

    REFERENCE:

    BOOK:

    John Link Breast Cancer Survival Manual: A Step-by-Step Guidefor the Woman with Newly Diagnosed Breast Cancerpublished 1998.

    Lillie Shockney Navigating Breast Cancer: A Guide for the NewlyDiagnosedPrinted 2007Pages: 107

    Brunner and suddarths.text book of medical surgical nursing. 12thedition.lippincott.670-678.

    Ettinger DS (2008).lung cancer & other pulmonary neoplasam.23rdedition.philadelphin saunders.1456-1465.

    Lewis. Medical surgical nursing.7thedition.mosby.613-617. CIMS

    JOURNAL:

    European journal on cancer- Borras jm.et.al Policy statement onmultidisciplinary cancer care6thDecember 2013.

    Journal on cancer education-Nwoqu.c.et.al PromotingCancer Control Trainingin Resource Limited Environments 2013 November 17

    th

    . Journal on wound care-Probst.S.et.al Coping with an

    exulcerated breast carcinoma 2013 July 22nd.

    NET REFERENCE:

    American cancer society (2013)http://www.cancer.org/acs/group/content/@epidemiology.

    American Journal of Hospice and Palliative Medicinehttp://www.sagepub.com/journalsProdDesc.nav?prodId=Journal201797

    BMC Palliative Carehttp://www.biomedcentral.com/bmcpalliatcare/

    European Journal of Palliative Care [TOC,A]http://www.ejpc.eu.com/ejpchome.asp

    http://www.goodreads.com/author/show/42447.John_Linkhttp://www.cancer.org/acs/group/content/@epidemiologyhttp://www.cancer.org/acs/group/content/@epidemiologyhttp://www.sagepub.com/journalsProdDesc.nav?prodId=Journal201797http://www.sagepub.com/journalsProdDesc.nav?prodId=Journal201797http://www.biomedcentral.com/bmcpalliatcare/http://www.biomedcentral.com/bmcpalliatcare/http://www.ejpc.eu.com/ejpchome.asphttp://www.ejpc.eu.com/ejpchome.asphttp://www.ejpc.eu.com/ejpchome.asphttp://www.biomedcentral.com/bmcpalliatcare/http://www.sagepub.com/journalsProdDesc.nav?prodId=Journal201797http://www.cancer.org/acs/group/content/@epidemiologyhttp://www.goodreads.com/author/show/42447.John_Link