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& Care Giving R e s p e c t P a r t i c i p a t i o n R e s p o n s i v e n e s s C o u r a g e

Director, Caregiving

[email protected]

Bonnie Schroeder

Manager of Community Support & Volunteer,

VON Tri-County, Nova Scotia

[email protected]

Derrick Babin

Agenda

• Background: Who is VON?

• Process/Implementation: What we did?

• Outcomes: What we hope to get it out it?

• Dissemination and Uptake: Our plan to share?

• Successes & Challenges

Who is

VON?

VON Care and Service Model

VON and Caregiving • • www.von.ca • www.caregiver-connect.ca

Caregiving at VON

Practice/ Programs

• Recognize them as partners

• Ensure access to information

• Develop programs

Policy • Champion

caregiving issues in Canada

Research • Facilitate and

share research to inform policy and practice through knowledge creation and exchange

Partnerships • Nurture

partnerships to support the other pillars


VON Caregiving Programs

Support and Information

• Caregiver Connect

• Let’s Talk FASD

Education

• From Stress to Strength Caregiver Series

• Safe Use of Medicines for Family Caregivers of Seniors

Respite

• Breakaway Day Program

• Community Assisted Respite and Enrichment (CARE)

Community Development

• Community Respite through Neighbours Helping Neighbours


French Caregiving Programs

Support and Information

• Aidants en réseau

• Parlons de l’ETCAF

Education • La sollicitude sans le stress

• Médicaments sécuritaires pour les aînés

Respite

• Breakaway Day Program

• Community Assisted Respite and Enrichment (CARE)

Community Development

• Les services de répit dans las communauté grâce à l'aide entre voisins


• VON offers caregiving programs in local communities

across Canada including:

• 27 caregiver support and education programs

• 27 Adult and 5 Alzheimer’s Day Programs

• 24 in home respite programs and 2 children’s respite

• 11 overnight/facility programs

• 23 Palliative Care Programs (nursing and volunteer)

• 13 bereavement care

• 9 sites participate in community/regional caregiver networks

National Statistics on programs


VON Tri-County Community

Support Programs


• Volunteer Visiting (Yarmouth & Digby)

• Palliative and Supportive Care Volunteer

Program (Yarmouth & Digby)

• Breakaway Adult Day Program (Yarmouth)

• Meals in Minutes (Yarmouth)

• Community Cardiovascular Support (Tri-County)

• Caregiver Support Group (Yarmouth, Clare &

Digby)

Resources for Providers

Program Support

• Caregiver Support Best Practice Guideline (2004)

• Adult Day Program Community of Practice

• Program Standards

• Practice Consultation

Professional Development

• Educational opportunities for providers


Caregiving Policy Focus • National Caregiving Strategy

• Caring and Working

• Financial Security

• Compassionate Care

• Tax Credits

• Pensions

• Caregiver Recognition

• Respite (provincial focus)


VON and Caregiving Together • • www.von.ca • www.caregiver-connect.ca

VON Research Dr. Ariella Lang, Research Scientist

Home Care Safety • Focus on Medication Management

• Pan-Canadian Homecare Safety Study: Perspectives from Clients, Family

Members, Caregivers and Providers

• Family members and caregivers are the heart of home care

• Scoping Review on Caregiver Safety

• State of the Knowledge Regarding Safety in Home Care in Canada:

Bereavement Care • Improving the Quality of Bereavement Care to Individuals and Families

Bereavement Care Best Practice Guideline

• Evidence-Informed Primary Bereavement Care

• Perinatal Loss and Parental Grief

VON and Caregiving Together • • www.von.ca • www.caregiver-connect.ca

VON Policy Research Bonnie Schroeder, Director, Caregiving

• Older Workers with Caregiving Responsibilities: A Canadian Perspective on

Corporate Caring (2011)

• Roles, Responsibilities, and Relationships: Exploring the Caregiver – Care

Receiver Dyad (2011)

• Risk Factors & Negative Outcomes (2008)

• Paid Work and Caregiving Responsibilities (2008)

• Engaging Caregivers as Partners of the Health Care Team (2008)

• Respite in Rural and Remote Communities (2008)

• Caregiver Assessment (2006)

• Respite Policy Lens (2005)

• Respite as Outcome (2004)

De

VON Caregiving Partnerships Canadian Caregiver Coalition

Quality End of Life Care Coalition

of Canada

Canadian Patient Safety Institute

Alzheimer’s Society of Canada

The Home Depot

Alliance des femmes de la

francophonie Canadienne

Young Caregivers of Canada


Practice/Program Gaps

• Caregiver Assessment

• Effective Program Interventions – Program Evaluation

• Navigating the System – client and caregiver centred care

• Abuse and Neglect – Caregivers as abusers and victims

• Culturally sensitive programs

• Specific populations – young caregivers, older caregivers,

employed caregivers, mental health caregivers

Practice/Program Gaps


Process/Implementation:

What we did?

• VON Caregiving Director took the lead.

• Selected key programs at the community level

• Invited the following VON sites:

• VON National Caregiving Program

• VON Tri-County, Caregiver Support

• VON Simcoe, Caregiver Support and Respite

• VON Hamilton, Caregiver Support and Education

• VON Hastings, Northumberland, Prince Edward (HNPE),

Caregiver Respite

• 3-4 meetings with the Project Team

Process/Implementation


• VON National Caregiving Program

• Wants to review national care giving strategy and develop a caregiver

assessment protocol for all caregiver programs

• VON Tri-County

• Interested in engaging community partners

• VON Simcoe

• Taking a pass at this time

• VON Hamilton

• Watching the March of Dimes implementation

• VON (HNPE)

• Wants to review and revise caregiver record/documentation record –

linked to caregiver assessment protocol

Implementation Plan


Dissemination and Uptake:

Who will we share with?

• Host national webinar with VON Caregiving Programs

• Host webinar about toolkit with the VON Adult Day

Community of Practice (over 40 VON staff)

• Host a best practice session at the VON AGM June

2012

• Connect with the March of Dimes

Dissemination Plan


Successes & Challenges

• Recruited 4 local VON sites to consider using toolkit as

a planning tool

• Confirmed national director and 2 local VON sites to

implement tools

• Continuing growing relationships across programs to

share best practices

• Sharing advice and support for improving program

effectiveness

• Building relationships with March of Dimes

Successes


• Competing demands

• Time frame

Challenges


Outcomes:

What we hope to get out of it?

• Stay tuned!

Outcomes


I firmly believe we need to

better acknowledge the costs

to care as well as the

contributions caregivers

make to the Canadian

economy, society and health

care system. We need to

work together towards

caregiver-friendly policies.”

~ Judith Shamian, President & CEO

VON Canada, 2010

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