cardiac rehabilitation dataset - isd scotland rehabilitation dataset.pdf · overview &...

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Cardiac Rehabilitation Dataset

These are standards current on 16th May 2007

National Clinical Dataset Development Programme (NCDDP) Support Team Information Services Area 54E Gyle Square 1 South Gyle Crescent Edinburgh EH12 9EB Tel: 0131 275 7053 Email to: [email protected]: www.show.scot.nhs.uk/clinicaldatasets/

mailto:[email protected]

http://www.show.scot.nhs.uk/clinicaldatasets/

Contents Overview & Background.......................................................................................... 4 Overview ................................................................................................................................. 4 Cardiac Rehabilitation Dataset ............................................................................................... 4 Background to NCDDP ........................................................................................................... 5 Generic Data Standards ......................................................................................................... 5 Clinical Terminology................................................................................................................ 6 Date Recording ....................................................................................................................... 6

1. Patient Details ...................................................................................................... 7 Generic Data Items ................................................................................................................. 7

2. Social Circumstances .......................................................................................... 9 Generic Data Items ................................................................................................................. 9 2.1 Home Support Circumstances .......................................................................................... 9 2.2 Mobility Status................................................................................................................. 10 2.3 Activities of Daily Living Status ....................................................................................... 11 2.4 Transport Access ............................................................................................................ 11

3. Referral Information........................................................................................... 12 Generic Data Items ............................................................................................................... 12 3.1 Cardiac Rehabilitation Initiating Event ............................................................................ 12 3.2 Date of Cardiac Rehabilitation Initiating Event................................................................ 13 3.3 Referral Source {Cardiac Rehabilitation} ........................................................................ 13 3.4 Significant Medical History {Cardiac Rehabilitation} ....................................................... 14

4. Risk Factor Assessment.................................................................................... 16 Generic Data Items ............................................................................................................... 16 CHD Core Data Standards ................................................................................................... 16 4.1 Triglyceride Level............................................................................................................ 17 4.2 Family History of Coronary Heart Disease...................................................................... 17 4.3 Cigarettes Smoked per Average Day ............................................................................. 18 4.4 Hyperlipidaemia .............................................................................................................. 18 4.5 Fruit and Vegetable Portions per day ............................................................................. 19 4.6 Oily Fish Portions per week ............................................................................................ 19 4.7 Spreading Fats and Oils type Used ................................................................................ 20 4.8 Salt at the Table.............................................................................................................. 20 4.9 Waist Circumference....................................................................................................... 21 4.10 Alcohol Intake per Average Week................................................................................. 21 4.11 Diabetes Management.................................................................................................. 22

5. Secondary Prevention Medication.................................................................... 23 Generic Data Items ............................................................................................................... 23

6. Other Medication................................................................................................ 24 6.1 Other Medication Prescribed {Cardiac Rehabilitation}.................................................... 24

7. Investigations ..................................................................................................... 25 CHD Core Data Standards ................................................................................................... 25 7.1 Record of Investigation ................................................................................................... 25 7.2 Reason for No Investigation............................................................................................ 26 7.3 Myocardial Perfusion Imaging Results {Cardiac Rehabilitation} .................................... 26 7.4 Coronary Angiography Management Decision {Cardiac Rehabilitation}......................... 27


8. Rehabilitation Programme Details.................................................................... 28 8.1 Rehabilitation Needs Assessed {Cardiac Rehabilitation}................................................ 28 8.2 Rehabilitation Phase {Cardiac Rehabilitation} ................................................................ 28

9. Rehab Assessments .......................................................................................... 30 9.1 Exercise – Risk Stratification {Cardiac Rehabilitation}.................................................... 30 9.2 Shuttle Test (Investigation) ............................................................................................. 31 9.3 Shuttle Test Results........................................................................................................ 31 9.4 Six-Minute Walk Test (Investigation) .............................................................................. 32 9.5 Six-minute Walk Test Results ......................................................................................... 32 9.6 Understanding of Condition by Patient {Cardiac Rehabilitation}..................................... 32 9.7 Psychological Status {Cardiac Rehabilitation} ................................................................ 33 9.8 Quality of Life Measure ................................................................................................... 34

10. Multi Disciplinary Team (MDT) Interventions................................................. 35 10.1 Reason for No Intervention ........................................................................................... 35 10.2 Exercise Intervention {Cardiac Rehabilitation}.............................................................. 35 10.3 Exercise Maintenance................................................................................................... 36 10.4 Disease Management Advice ....................................................................................... 37 10.5 Medication Advice......................................................................................................... 37 10.6 Relaxation Therapy {Cardiac Rehabilitation} ................................................................ 38 10.7 Stress Management Advice {Cardiac Rehabilitation} ................................................... 38 10.8 Tobacco and Nicotine Consumption Advice {Cardiac Rehabilitation}........................... 39 10.9 Dietary Advice {Cardiac Rehabilitation} ........................................................................ 40 10.10 Alcohol Consumption Advice {Cardiac Rehabilitation}................................................ 40 10.11 Relationship Advice .................................................................................................... 41 10.12 Training in Basic Life Support ..................................................................................... 41 10.13 Attendance Barriers .................................................................................................... 42

11. Specialist Interventions ................................................................................... 43 11.1 Referred for Specialist Intervention............................................................................... 43

Appendix 1 - Working Group................................................................................. 45

Appendix 2 - Consultation Distribution List ........................................................ 46


Overview & Background

Overview The National Advisory Committee for Coronary Heart Disease (NACCHD) commissioned the development of a Cardiac Rehabilitation dataset for NHS Scotland to ensure common information standards for implementation across all clinical settings in which people are undergoing Cardiac Rehabilitation. A Cardiac Rehabilitation Dataset Clinical Working Group was established in February 2005 to progress this work, supported by the National Clinical Dataset Development Programme (NCDDP) Support Team based in Information Services Division (ISD).

The Cardiac Rehabilitation Dataset will:

Define common data items recommended for collection in a wide variety of clinical settings

Support the exchange of patient information between healthcare providers

Support the consistent recording of patient information throughout NHS Scotland

It is envisaged that the Cardiac Rehabilitation Dataset will be recorded as a whole within single clinical systems. The dataset contains data items from the national Coronary Heart Disease (CHD) Core and Generic Data Standards, which have previously been developed through the NCDDP and are freely available in Clinical Datasets section of the web based Health and Social Care Data Dictionary. We are now asking for feedback from the wider clinical community in order to ensure that this dataset is fit for purpose and ready for inclusion in the national Health and Social Care Data Dictionary. We invite all interested organisations and individuals to take part in this consultation by completing the attached Consultation Response Form and then returning it to [email protected]. Comments on all or any part of the document are welcome. Some background information on the NCDDP and the Cardiac Rehabilitation Dataset development can be found below. If you have any further queries, please go to our website or contact [email protected].

Cardiac Rehabilitation Dataset The membership of the Cardiac Rehabilitation Working Group is shown in Appendix 1. This group agreed the inclusion of individual data items using the following criteria: 1. Is the data item required by all those involved in the rehabilitation of patients suffering

from coronary heart disease? 2. Will it prevent unnecessary duplication of recording?


http://www.datadictionary.scot.nhs.uk/




Once consultation is compete the Cardiac Rehabilitation Dataset will be submitted to the NCDDP Programme Board for formal approval as a national standard, and then passed to the eHealth National Clinical Information Steering Group for endorsement. Once approved the Cardiac Rehabilitation Dataset will be freely and widely available through publication in the Health and Social Care Data Dictionary. Where possible the dataset is UK compatible. It is expected that the Cardiac Rehabilitation Dataset will be implemented within existing and emerging national clinical information systems and commercially procured national products, as well as being available to commercial developers to ensure the ability of their systems to support national information requirements.

Background to NCDDP The National Clinical Dataset Development Programme (NCDDP) supports clinicians to develop sets of interoperable national datasets to facilitate the implementation of the integrated care records across NHS Scotland. These standards will: • Support direct patient care, by reflecting current best practice guidance • Facilitate effective communication between health care professionals • Improve data quality and support secondary data requirements where possible including

data to support clinical governance • Be freely and widely available through publication in the web based Health & Social Care

Data Dictionary • Incorporate agreed national clinical definitions and implement national terminology • Be UK compatible where possible The programme was established by the Chief Medical Officer in 2003 to support clinicians developing national clinical data standards, initially to support the national priority areas. These standards are an essential element of the Electronic Health Record, a central aim of the National e-Health Strategy. More information can be found on our website.

Generic Data Standards Data standards which are relevant to all patients and are used across specialties, disciplines and settings have already been developed by wider Generic Data Standards clinical working groups and approved as national data standards for NHS Scotland. The Cardiac Rehabilitation Dataset working group identified several generic data items for inclusion in their standards. These data item’s name and definition are listed in this document for information. The detail of these existing standards are published on the web based Health and Social Care Data Dictionary or by contacting [email protected]. We are currently developing the third phase of Generic Data Standards, which is currently being consulted upon. If you would like to participate in the Generic Data Standards Phase 3 consultation, please contact [email protected].








Clinical Terminology The strategic standard for clinical terminology in NHS Scotland is SNOMED-Clinical Terms. This means that clinical information systems will record clinical data using this international standard. It is intended that the NCDDP Support Team will develop recommended SNOMED CT specifications as part of the data standards and datasets it supports. This work will be commenced once SNOMED CT tools become available.

Date Recording It is good record-keeping practice always to identify the date of recording of any clinical information. It is expected that all clinical information systems should include ‘date stamping’ as standard functionality; therefore the Cardiac Rehabilitation Dataset does not deal with this issue. In many clinical situations, the date of an event, investigation, etc. is required for clinical purposes and should be visible to the health care professional. This date may not be the same as the date on which the data are entered onto the system. In these instances the system must allow the health care professional to enter whichever date is appropriate. These issues must be addressed during system specification and development. The Cardiac Rehabilitation Dataset does not include standards for recording dates, though the date format for storage and management within a system should conform to the Government Data Standards Catalogue format: CCYY-MM-DD. However, this does not preclude entry or display of data on the user interface using the traditional DD-MM-CCYY format.


http://www.isdscotland.org/isd/collect2.jsp;jsessionid=4D6B7C00CF11FBA38676F209BAC56B2E?pContentID=1265&p_applic=CCC&p_service=Content.show&

1. Patient Details

Generic Data Items Data Item Definition CHI Number The Community Health Index (CHI) is a population

register, which is used in Scotland for health care purposes. The CHI number uniquely identifies a person on the index.

Health Record Identifier A Patient Health Record Identifier is a code (set of characters) used to uniquely identify a patient within a health register or a health records systems e.g. PAS.

Structured Name An ordered sequence of person name elements such as title, forename(s) and family name.

Person Birth Date The date on which a person was born or is officially deemed to have been born, as recorded on the Birth Certificate.

Person Death Date The date on which a person died or is officially deemed to have died, as recorded on the Death Certificate.

Person Current Gender A statement by the individual about the gender they currently identify themselves to be (i.e. self-assigned).

Person Marital Status An indicator to identify the legal marital status of a person

Address (BS7666) A collection of data describing the addressing of locations

Postcode The code allocated by the Post Office to identify a group of postal delivery points.

UK Telephone number A number, including any exchange or location code, at which a person or organisation can be contacted in the UK by telephonic means

Associated Person* People who have a significant involvement or relationship with the client/patient (e.g. main carer, next of kin, key holder, emergency contact, etc). This includes professionals who are not involved in the care of the client/patient e.g. accountant, lawyer. *

Associated Person Role* A description of the particular involvement(s) with/ function(s) fulfilled by an associated person towards the client/patient*

Specified General Practitioner* A doctor who has a certificate of satisfactory completion of GP training or equivalent. The specified GP is an individual GP within the patient/client’s registered practice who needs to be identified for a particular role they fulfil.*

Registered GP Practice Code General Medical Practitioners provide general medical services to the population either in partnership with other GMPs or on a single-


handed basis. The term GP practice covers both partnerships and single-handed practices. Each GP practice in Scotland is identified by a unique GP practice code. The practice code is a four-digit code plus a check digit with ranges of codes allocated to each Health Board (SMR)

Ethnic Group (Self Assigned) A statement made by the service user about their current ethnic group

Note: The above data items have already been approved and are available in the Health & Social Care Data Dictionary. *This item is undergoing development as part of Generic Data Standards Phase 3 may change.




2. Social Circumstances

Generic Data Items Data Item Definition Dwelling Type Dwelling Type is a description of the physical structure in

which someone lives. Employment Status Indicates the person’s economic position in the labour market

in terms of whether he or she is currently employed in paid work, seeking employment or, either by choice or age or other restriction, not economically active

Note: The above data items have already been approved and are available in the Health & Social Care Data Dictionary. Note: The following data items are likely to become NCDDP Generic Data Standards and as such might be subject to minor amendments in the future.

2.1 Home Support Circumstances Definition: A summary of any support available to the patient or the support the patient provides to others when in their own home. Format: 3 characters Codes and values: Code Value Sub

Code Sub Value Explanatory Notes

00 No support Patient lives alone 01 Live-in carer Patient lives with someone who

is able to care for them 02 Carer for other Patient lives with person who

relies on them for care A Social Care Patient has help from an

outside agency B Meals on wheels C Home help

03 External support

D Other 98 Other 99 Not known

Further information:




Where a patient is an inpatient, understanding of their home circumstances is important in assessing their suitability for discharge home, whether any additional support needs to be put in place prior to discharge or whether alternative arrangements need to be made. Recording guidance: Systems must allow for the recording of multiple options.

2.2 Mobility Status Common Name: Mobility Definition: The degree to which the patient is mobile and what aids, if any, they require to achieve this level of mobility. Format: 3 characters Codes and values: Code Value Sub

code Sub Value Explanatory

Notes A Walks without

walking aids

B Walks with walking aids

00 Independent

C In wheelchair A Walks without

walking aids


01 Supervision required

C In wheelchair A Walks without

walking aids Patient requires physical assistance for example, transfer from a chair


02 Requires physical assistance

C In wheelchair 03 Not mobile 99 Not known

Further information: Walking aids include walking stick, zimmer frame, rollator, etc. Wheelchair includes manual and electrically operated wheelchairs. Assessment should be based upon the best level of mobility that the person can usually achieve. For example, whilst a person may choose to use an electric wheelchair in certain circumstances but they are generally able to be independently mobile with a walking aid, then record their mobility status as the latter.


2.3 Activities of Daily Living Status Common name: Activities of Daily Living, ADL Status, ADL Definition: A record of the extent to which the patient is independent in activities of daily living (ADL). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 Independent Patient is independent in all activities of daily

living 01 Independent in basic ADL, requires

assistance with extended ADL Basic activities of daily living include washing, dressing, grooming, bathing and toileting. Extended activities of daily living include cooking, housework and shopping

02 Requires assistance with all ADLs Basic activities of daily living include washing, dressing, grooming, bathing and toileting. Extended activities of daily living include cooking, housework and shopping

98 Other 99 Not known

2.4 Transport Access Definition: The means of transport used by the patient in order to access care services. This includes aspects of the mode of transport and dependency upon another person. Format: 2 characters Codes and values: Codes Values 00 Own private transport, self-driven 01 Own private transport, driven by someone else 02 Private transport driven by other 03 Public transport – bus, train, underground, tram, etc 04 Transport by taxi 05 Requires hospital transport 96 Not applicable 98 Other 99 Not known

Related data items: Attendance Barriers Further information:


It is important to know about the patient’s access when planning service delivery. It will help to identify where alternative arrangements need to be made for patients and budgetary considerations, for example the cost of taxis. Recording guidance: Systems must allow for the recording of multiple options.

3. Referral Information

Generic Data Items Data Item Definition Date of Referral* The date on which a referral is made to a care service or

professional* *This item is undergoing development as part of Generic Data Standards Phase 3 and may change.

3.1 Cardiac Rehabilitation Initiating Event Common name: Initiating event, Reason for cardiac rehabilitation Definition: A record of the main reason why the patient has been referred or recruited for cardiac rehabilitation. Format: 2 characters Codes and values: Codes Values Explanatory Notes 01 Myocardial infarction 02 Unstable Angina 03 Angina 04 CABG Coronary Artery Bypass Graft 05 PCI Percutaneous Coronary Intervention 06 Heart Failure 07 Heart Transplant 08 Valve Disease 09 Valve Replacement 10 Arrhythmia Includes Cardiac Arrest 11 Implantable Device Includes Pacemaker and Implantable

Cardioverter Defibrillator 12 Congenital Heart Disease 98 Other 99 Not known

Related data items: Date of Cardiac Rehabilitation Initiating Event Recording guidance:


Only one initiating event should be recorded. This should be the main event that precipitated the need for cardiac rehabilitation. Note: This standard will be updated when a new definition of Acute Coronary Syndrome is available.

3.2 Date of Cardiac Rehabilitation Initiating Event Common name: Date of Initiating Event {Cardiac Rehabilitation} Definition: A record of the date of the event that was the main cause of the current referral to the cardiac rehabilitation programme. Format: 10 characters (CCYY–MM–DD) Codes and values: N/A Recording guidance: Where there is no definitive date of event, the date of diagnosis should be used for example, heart failure. Related data items: Cardiac Rehabilitation Initiating Event

3.3 Referral Source {Cardiac Rehabilitation} Definition: The type of organisation, service, professional or other individual making a referral to the cardiac rehabilitation programme. Format: 2 characters Codes and values: Codes Values 00 Primary Care 01 Secondary Care 02 Other Cardiac Rehabilitation Programme 98 Other 99 Not known

Related data items: Date of Referral


3.4 Significant Medical History {Cardiac Rehabilitation}

Definition: Statement given by the patient, carer, or recorded in the patient’s case record or on the referral document pertaining to an illness, injury, associated health care problem or treatment relevant to cardiac rehabilitation experienced by the patient at any time in the past. Format: 3 characters Codes and values: Code Values Sub code Sub value Explanatory Notes 00 None

A Myocardial Infarction B Unstable Angina C Stable Angina Pectoris D Heart Failure E Cardiac Arrest F Arrhythmia G Congenital Heart Disorder H Valve Disease I Peripheral Vascular Disease

01 Cardiovascular conditions

J Cerebrovascular Disease A Chronic Kidney Disease B Chronic Lung Disease C Arthritis D Diabetes

02 Other conditions

E Hypertension A Thrombolysis B CABG C PCI D Heart Transplant E Valve Repair / Replacement F Implantable Devices: Pacemaker G Implantable Devices: CRT Cardiac

Resynchronization Therapy

H Implantable Devices: ICD Implantable Cardioverter Defibrillator

I Implantable Devices: CRT-D Cardiac Resynchronization Therapy Defibrillators

03 Treatments

J Other Implantable Devices 98 Other (specify)

Recording guidance: System must allow for the recording of multiple options. Where ‘Other’ (specify) is recorded, further detail of the significant condition should be recorded in a free text box.


Note: This standard will be updated when a new definition of Acute Coronary Syndrome is available.


4. Risk Factor Assessment

Generic Data Items Data Item Definition Current Tobacco Consumption Status Tobacco consumption at date of contact Weight Weight in kilograms taken without shoes or

outdoor clothing Height Height in metres - measured without shoes Body Mass Index Body Mass Index (BMI) = weight/height²

(kg/m²) Current Alcohol Drinking Status Record of the individual’s current alcohol

consumption in relation to prevailing guidelines, with reference to any past excessive alcohol consumption

Current Physical Activity Status All movements in everyday life, including work, recreation, exercise, and sporting activities (World Health Organization definition of physical activity). http://www.who.int/topics/physical_activity/en/).

Systolic Blood Pressure Systolic Blood Pressure measured using a technique and equipment approved by the British Hypertension Society

Diastolic Blood Pressure Diastolic Blood Pressure measured using a technique and equipment approved by the British Hypertension Society

Note: The above data items have already been approved and are available in the Health & Social Care Data Dictionary.

CHD Core Data Standards Data Item Definition Serum Total Cholesterol Level A fasting or non-fasting serum total cholesterol

level Hypertension A record of whether or not a patient is already

receiving treatment (drug, dietary, or lifestyle) for hypertension, or has a record of BP > 140/90 on two occasions prior to admission.

Diabetes Mellitus A record of whether or not the patient has a confirmed diagnosis of diabetes mellitus currently requiring treatment, including diet modification



http://www.who.int/topics/physical_activity/en/





4.1 Triglyceride Level Definition: A record of the patient’s triglyceride level (mmol/L). Format: 4 numeric (nn.nn) (mmol/L) Codes and values: N/A Attributes: Fasting status

Random Fasting

Related data items: Record of Investigation Serum Total Cholesterol Level

4.2 Family History of Coronary Heart Disease Main source of standard: MINAP / SCI-CHD (ACS) Definition: Identifies a family history of premature CHD in a first degree relative by diagnosis Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 No 01 Yes Identifies a family history of premature CHD by diagnosis

(First degree relative - father/brother before 55, mother/sister before 65).

99 Not known Further information: The family history is considered to be significant when a male relative’s first CHD event occurred before the age of 55, or a female relative’s first CHD event occurred before 65. Twin studies have shown that death from CHD is largely influenced by genetic factors with a positive family history being associated with a 75% increase in risk in men, and an 84% increase in women. In men a paternal history of CHD increases their risk to 1.4 and to 1.85 when both parents are affected. Women in whom both parents had CHD are at a still higher risk. (British Heart Foundation / European guidelines on cardiovascular disease prevention in clinical practice)


4.3 Cigarettes Smoked per Average Day Definition: A record of the number of cigarettes the patient smokes per average day. Format: 3 numeric (nnn) Codes and values: N/A Related data items: Current Tobacco Consumption Status Further information: The average number of cigarettes smoked per day will usually be an estimate (often an under-estimate), therefore the absolute number is of limited meaning, but it does indicate how heavy a smoker the person is and allows trend analysis. Sequential records of the average number of cigarettes smoked per day can help to illustrate any progress made by the patient in reducing the amount smoked in line with smoking cessation / rehabilitation efforts.

4.4 Hyperlipidaemia Definition: A record of whether or not the patient has a confirmed diagnosis of hyperlipidaemia. Format: 2 characters Codes and values: Codes Values 00 No 01 Yes 99 Not known

Related data items: Serum Total Cholesterol Level

Triglyceride Level Further information: Hyperlipidaemia is an abnormality of the patient’s lipid profile, Hyperlipidaemia is the term used to denote raised serum levels of one or more of the lipids: total cholesterol (TC), low-density lipoprotein cholesterol, or triglycerides (TG), or both TC and TG (combined hyperlipidaemia). (Ref www.prodigy.nhs.uk/guidance)


4.5 Fruit and Vegetable Portions per day Definition: The average number of fruit and vegetable portions the patient consumes per day. Format: 2 numeric Codes and values: N/A

Related data items: Oily fish portions per week

Spreading fats and oils type used Salt at the table

Further information: A dietician may not necessarily carry out this assessment. Increasing consumption of fruit and vegetables can significantly reduce the risk of many chronic diseases. It has been estimated that eating at least 5 portions of a variety of fruit and vegetables a day could reduce the risk of deaths from chronic diseases such as heart disease, stroke, and cancer by up to 20%. 5aday.nhs.uk (from WHO recommendations ‘Diet, nutrition and the prevention of chronic diseases’). One portion of fruit is, for example a slice of melon, or 2 satsumas. One portion of vegetables is, for example, 3 tablespoonfuls of cooked carrots or peas or sweetcorn, or 1 cereal bowl of mixed salad. (Ref http://www.5aday.nhs.uk/default.aspx)

4.6 Oily Fish Portions per week Definition: The average number of portions of oily fish the patient eats per week. Format: 2 numeric Codes and values: N/A

Related data items: Fruit and vegetable portions per day

Spreading fats and oils type used Salt at the table Further information: A dietician may not necessarily carry out this assessment. Eating at least 1-2 servings of oily fish per week will help to maintain good levels of the long chain omega-3 fatty acids. (Ref www.eufic.org). Oily fish includes sardines, salmon, pilchard, mackerel, herring, trout or fresh tuna (Ref www.healthyliving.gov.uk/). A portion of oily fish is about 140g ( Ref www.eatwell.gov.uk)


http://www.eufic.org/

http://www.healthyliving.gov.uk/

4.7 Spreading Fats and Oils type Used Definition: The type of spreading fats and oils that the patient uses. Format: 2 characters Codes and values: Code Value Explanatory Notes 00 None 01 Saturated fats e.g. butter, lard, fats that are hard at room

temperature such as Stork or Echo 02 Polyunsaturated fats e.g. sunflower, corn, soya. 03 Monounsaturated fats e.g. olive oil, rapeseed oil. Spreads that contain

vegetable oils 98 Other e.g. Stanol margarines such as Benecol or Flora

ProActiv 99 Not known

Related data items: Fruit and vegetables portions per day Oily fish portions per week

Salt at the table Further information: A dietician may not necessarily carry out this assessment. Advice for post MI and for reducing cardiac risk is the reduction in saturated fat with the partial replacement by unsaturated fats. Most patients will use combinations of different fat source spreads and fats. Advice for fat is individualised depending on weight, social circumstances, and preferences. Recording guidance: System must allow for the recording of multiple options .

4.8 Salt at the Table Definition: A record of whether or not the patient adds salt to their food at the table, i.e. after cooking. Format: 2 characters Codes and values: Codes Values 00 Never 01 Occasionally 02 Frequently 99 Not known


Related data items: Fruit and vegetables portions per day Oily fish portions per week Spreading fats and oils type used Further information: A dietician may not necessarily carry out this assessment. Patients should be encouraged to avoid adding salt to their food at the table / after cooking. This excludes salt substitutes.

4.9 Waist Circumference Definition: Waist circumference measured half way between costal margin and iliac crest (cm). Format: 4 numeric (nnn.n) Codes and values: N/A Further Information: Waist circumference is a convenient and simple measure which is unrelated to height, correlates closely with BMI and the ratio of waist to hip circumference, and is an approximate index of intra-abdominal fat mass and total body fat. Furthermore, changes in waist circumference reflect changes in risk factors for cardiovascular disease. There is an increased risk of metabolic complications for men with a waist circumference >= 102cm and women with a waist circumference >= 88cm. (WHO Diet, nutrition and the prevention of Chronic Diseases’ 2003) This data item may be subject to change following consultation on a generic basis.

4.10 Alcohol Intake per Average Week Common name: Alcohol Intake Definition: The amount of alcohol consumed by a patient, measured in units, per average week. Format: 3 numeric (nnn) Codes and values: N/A Related data items: Current Alcohol Drinking Status Further information: A unit of alcohol 1 unit = 8g of alcohol e.g. a half pint of 3.5% beer or lager, or one 25ml measure of spirits. A small (125ml) glass of average strength (12%) wine contains 1.5 units. Refer to Sign 74 Annex 1: Alcohol content of some beverages Living in Britain 2002, published 2004 http://www.statistics.gov.uk/cci/nugget.asp?id=829


http://www.statistics.gov.uk/cci/nugget.asp?id=829

Whilst the number of units consumed per week should usually be regarded as an estimate (often an under-estimate), recording of a numerical value has a number of uses: to assess whether a person’s consumption is within prevailing recommended consumption limits and to measure changes in consumption over time.

4.11 Diabetes Management Main source of standard: derived from MINAP / SCI-CHD (ACS) Definition: The type(s) of management of a patient’s diabetes Format: 2 characters Codes and values: Codes Values Explanatory Text 00 None 01 Dietary control 02 Oral hypoglycaemic 03 Insulin 04 Not yet established Newly diagnosed diabetes for which definitive

management has not yet been established 99 Not known

Related data items: Diabetes Mellitus Further information: Patients with diabetes may be managed by more then one type of treatment, e.g. both oral hypoglycaemic and insulin. Recording guidance: Systems must allow for the recording of multiple options.


5. Secondary Prevention Medication

Generic Data Items Data Item Definition Specific Medication Record Record of whether or not a specific

medication was prescribed for an individual as recommended in specific clinical guidelines.

Reason Specific Medication Not Prescribed Record of the reason why a specific medication was not prescribed





6. Other Medication

6.1 Other Medication Prescribed {Cardiac Rehabilitation} The NCDDP will shortly be commencing a piece of work to agree a national approach on the recording of medication. In partnership with HEPMA (Hospital Electronic Prescribing and Medicines Administration) this will establish medication data standards which will be published within Generic Data Standards Phase 4. The table below lists the drugs that the working group felt are important in Cardiac Rehabilitation. Code Value Sub Code Sub Value

A Oral B Sub Lingual

01 Nitrate

C Percutaneous 02 Calcium Channel Blocker 03 Nicorandil 04 Warfarin 05 Digoxin

A Thiazide B Loop

06 Diuretic

C Aldosterone Antagonist 98 Other 99 Unknown


7. Investigations

CHD Core Data Standards Data Item Definition Peak Serum Creatinine Kinase The highest serum creatinine kinase level

in a series of measurements (units) Peak Serum Troponin The highest serum troponin level in a

series of measurements (units) Troponin Assay Specification of the type of troponin assay

used Exercise Tolerance Test Results A high level report on the ETT investigationEchocardiogram Results A record of the findings of an

echocardiography investigation, with reference to abnormalities, which may be related to ischeamic heart disease and/or valcular disease


7.1 Record of Investigation Common name: Investigation Definition: A record of whether or not an investigation has been planned or carried out, Format: 2 characters Codes and values: Codes Values 00 No 01 Yes 02 Planned 99 Unknown

Related data items: Investigation Results Recording guidance: This data item can be made specific to a particular investigation by replacing the word ‘investigation’ with the name of the particular investigation. For example Record of Myocardial Perfusion Imaging.




7.2 Reason for No Investigation Definition: Explanation for why an investigation was not performed where it might be expected to be performed, e.g. when clinical guidelines recommend it should be performed. Format: 2 characters Codes and values: Code Value Explanatory Notes 01 Contraindicated Generally acknowledged clinical contraindication to

performing investigation exists 02 Not indicated No clinical indication for investigation 03 Clinical decision Clinical judgement of inappropriateness of investigation in

an patient due to their specific set of circumstances 04 Not available Investigation is not available for that case 05 Not applicable 06 Patient declined Patient chose not to have investigation 99 Unknown

Recording guidance: This data item can be made specific to a particular investigation by replacing the word ‘investigation’ with the name of the particular investigation.

7.3 Myocardial Perfusion Imaging Results {Cardiac Rehabilitation} Common name: MPI Results, Thallium results Definition: High level report on the findings of MPI (Thallium) investigation. Format: 2 characters

Codes and values:

Code Value Sub Code

Sub Value Explanatory Notes

00 Normal A With reversible ischaemia 01 Abnormal B With irreversible ischaemia

02 Inconclusive (temporary report) – awaiting confirmation

Initial interpretation of MPI inconclusive and confirmation awaited through formal report

03 Inconclusive – treat as IHD

Formal MPI report confirmed as inconclusive – patient to be managed as if having ischaemic heart disease

98 Other


99 Not known Recording guidance: ‘Inconclusive (temporary report) – awaiting confirmation’ should only be recorded on a temporary basis and should be updated as either ‘normal’, ‘abnormal’ or ‘inconclusive – treat as IHD’ once a formal report is available.

7.4 Coronary Angiography Management Decision {Cardiac Rehabilitation} Common name: Coronary Angio Decision Definition: High-level report on the management decision made as an outcome of an abnormal coronary angiography investigation. Format: 2 characters Codes and values: Code Value Explanatory Notes 00 None No decision made 01 Management undecided Management plan still to be decided, further

investigation required. 02 Medical management 03 PCI Percutaneous Coronary Intervention / Angioplasty 04 Cardiac surgery 99 Not known


8. Rehabilitation Programme Details

8.1 Rehabilitation Needs Assessed {Cardiac Rehabilitation} Common name: Rehab Needs Assessed Definition: A record of whether or not the patient’s cardiac rehabilitation needs have been assessed for a particular phase or element of the rehabilitation programme. Format: 2 characters Codes and values: Codes Values 00 No 01 Yes 99 Unknown

Further information: An assessment may be undertaken during any or all phases or elements of cardiac rehabilitation. Recording guidance: This data item should be used for all phases or elements of rehabilitation as appropriate.

8.2 Rehabilitation Phase {Cardiac Rehabilitation} Common name: Rehab Phase Definition: The phase of cardiac rehabilitation in which the patient is participating. Format: 2 characters Codes and values: Codes Values 01 Phase 1 02 Phase 2 03 Phase 3 04 Phase 4

Sub-data items: Start Date End Date Recording guidance:


This data item is intended to allow the dataset to apply to all phases of rehabilitation. Once the phase is selected the system should relate all appropriate items to this particular phase. It is recommended that the date that the patient’s cardiac rehabilitation phase began and the date on which it was completed are recorded.


9. Rehab Assessments

9.1 Exercise – Risk Stratification {Cardiac Rehabilitation} Main source of standard: National Audit of Cardiac Rehabilitation Project Definition: A record of the patient’s risk stratification for exercise. Format: 2 characters Codes and values: Codes Values 00 Low 01 Moderate 02 High

Related data items: Exercise Status Further information: Stratification of risk for disease progression (Ref www.cardiacrehabilitation.org.uk) LOWEST RISK MODERATE RISK HIGHEST RISK No significant LV dysfunction (EF > 50%) No resting or exercise-induced complex dysrhythmias Uncomplicated MI; CABG; PCI - absence of CHF or signs/symptoms indicating post-event ischaemia Normal haemodynamics during exercise and recovery Asymptomatic including absence of angina with exertion or recovery Functional capacity > 7.0 METs* Absence of clinical depression Lowest risk classification is assumed when each of

Moderately impaired left ventricular function (EF = 40-49%) Signs/symptoms including angina at moderate levels of exercise (5-6.9 METs) or in recovery Moderate risk is assumed for patients who do not meet the classification of either highest risk or lowest risk

Decreased LV function (EF <40%) Survivor of cardiac arrest or sudden death Complex ventricular dysrhythmias at rest or with exercise MI or cardiac surgery complicated by cardiogenic shock. CHF, and/or signs/symptoms of post-procedure ischaemia Abnormal haemodynamics with exercise (especially flat or decreasing systolic blood pressure or choronotropic incompetence with increasing workload) Signs/symptoms including angina pectoris at low levels of exercise (< 5.0 METS) or in recovery Functional capacity < 5.0 METS* Clinically significant depression


the risk factors in the category is present

Highest risk classification is assumed with the presence of any one of the risk factors included in this category

9.2 Shuttle Test (Investigation) Definition: A record of whether or not a patient has undergone a Shuttle Walking Test to assess their functional capacity. Format: 2 characters Codes and values: Codes Values 00 No 01 Yes 02 Planned 03 Contraindicated 96 Not indicated 97 Patient declined 99 Not known

Related data items: Shuttle Test Results Further information: The Shuttle Walking Test was developed for patients with respiratory disease but has recently been used to assess functional capacity before and after cardiac rehabilitation in patients who have undergone cardiac surgery or pacemaker insertion, and in patients with chronic heart failure. The Shuttle Walking Test is a low cost low tech alternative to exercise testing that informs the rehabilitation team on a suitable exercise programme and appropriate training heart rate, and allows assessment of progress during cardiac rehabilitation without the need for cardiac technicians, physicians or expensive equipment (Ref SIGN 57)

9.3 Shuttle Test Results Definition: A record of the distance in whole metres travelled by the patient during a Shuttle Walking Test. Format: 4 numeric (nnnn) meters Codes and values: N/A Related data items: Shuttle Test (Investigation)


9.4 Six-Minute Walk Test (Investigation) Definition: A record of whether or not the patient has undergone a six-minute walk test. Format: 2 characters Codes and values: Codes Values 00 No 01 Yes 02 Planned 03 Contraindicated 96 Not indicated 97 Patient declined 99 Not known

Related data items: Six minute walk test results

9.5 Six-minute Walk Test Results Definition: A record of the distance in whole metres the patient travelled in six minutes of walking. Format: 4 numeric (nnnn) meters Codes and values: N/A Related data items: Six Minute Walk Test (Investigation)

9.6 Understanding of Condition by Patient {Cardiac Rehabilitation} Common name: Patient Understanding, Understanding Main source of standard: SIGN 57 Definition: A record of the extent to which the patient understands their condition as assessed by the care professional. Format: 2 characters Codes and values: Codes Values 01 Poor understanding 02 Fair understanding 03 Good understanding 99 Not known


Related data item: Disease Management Advice Further information: Rehabilitation staff should identify and address health beliefs and cardiac misconceptions in patients with coronary heart disease (SIGN 57). Tools to assist with evaluating and improving understanding can be used to establish good understanding of their condition e.g. the York Angina Beliefs questionnaire.

9.7 Psychological Status {Cardiac Rehabilitation} Definition: A record of the patient’s psychological status as determined by a health care professional that is not a qualified clinical psychologist. Format: 2 characters Codes and values: Code Value Explanatory Text 00 No problems Patient does not have any psychological problems 01 Anxiety This includes clinically significant anxiety post event as

assessed by a health professional using valid screening tools (e.g. HADS)

02 Depression This includes clinically significant depression post event as assessed by a health professional using valid screening tools (e.g. HADS)

03 Cognitive problems This refers to the presence of cognitive difficulties post event. This includes common difficulties with concentration and memory but occasionally also executive function.

04 Relationship problems

This refers to the impact of the event on the patient’s close personal relationships.

05 Previous history of mental health issues

This includes previous psychiatric problems likely to impact on rehabilitation such as prior treatment for depression, anxiety and suicidal ideation

98 Other This includes clinical entities such as panic attacks or post traumatic stress disorder but also more complex psycho-social problems requiring psychological assessment and formulation

99 Not known Attributes: Severity

Mild Moderate Severe

Further information: Psychological distress is common following a cardiac event and often resolves with appropriate rehabilitation. Cognitive problems are also a common early problem, particularly after cardiac surgery, where they are likely to resolve within the first 2 months. This data item


informs on whether these issues are present and relevant to the patient’s rehabilitation, but also indicates whether, in more severe or persistent cases, the patient needs to be referred on to a qualified clinical psychologist. Persistent psychological distress and poor social support are powerful predictors of outcome following MI, independent of the degree of physical impairment. Psychological distress is also an important predictor of hospitalisation costs following a cardiac event, with distressed patients accruing four times the costs of non-distressed patients (SIGN 57) Recording guidance: System must allow for the recording of multiple options.

9.8 Quality of Life Measure Common name: QoL Measure, QoL Definition: A record of which quality of life assessment tool, if any, has been used to assess the patient Format: 2 characters Codes and values: Codes Values Explanatory notes 00 Not measured 01 SF36 36 Item Short Form Health Survey

(Ref www.rand.org/health/surveys/sf36item/) 02 SF12 12 Item Short Form Health Survey

(Ref www.rand.org/health/surveys/core/12item.html) 03 CLASP Cardiovascular Limitations and Symptoms Profile 04 EQ-5D EuroQol (Ref www.euroqol.org/web/) 98 Other 99 Not known

Recording guidance: System must allow for the recording of multiple options.


10. Multi Disciplinary Team (MDT) Interventions

10.1 Reason for No Intervention Definition: Explanation for why an intervention was not performed where it might be expected to be, e.g. when clinical guidelines recommend it should be performed. Format: 2 characters Codes and values: Code Value Explanatory Notes 01 Contraindicated Generally acknowledged clinical contraindication exists

e.g. severe co-morbidity 02 Not indicated No clinical indication for intervention 03 Clinical decision Clinical judgement of inappropriateness of intervention in

an individual patient due to their specific set of circumstances.

04 Not available Intervention is not available 96 Not applicable 97 Patient declined Patient chose not to have intervention 99 Not known

Recording guidance: This data item can be made specific to a particular intervention by replacing the word ‘intervention’ with the name of the particular intervention.

10.2 Exercise Intervention {Cardiac Rehabilitation} Common name: Exercise Definition: A record of the type(s) and intensity of exercise intervention the patient is undergoing. Format: 3 characters Codes and values: Code Value Sub Code Sub Value 00 None

A Hospital 01 Group Exercise B Community A Hospital B Community

02 Individual Exercise

C Home 03 Walking

Individual Group

04 Advice only

Written


Audio visual aids 05 Patient declined 96 Not indicated 98 Other 99 Not known

Attributes: Intensity

Low Moderate High

Sub-data items: Frequency (number of sessions per week): 2 numeric Number of sessions completed: 2 numeric (Ref SIGN 57 The formal exercise component of cardiac rehabilitation should be offered at least twice a week for a minimum of eight weeks) Related data items: Reason for no intervention Further information: Structured exercise as a therapeutic intervention is central to cardiac rehabilitation. Daily exercise should also be encouraged as part of an ‘active living’ philosophy (SIGN 57) Recording Guidance: System should allow for the recording of multiple options

10.3 Exercise Maintenance Definition: A record of how the patient is maintaining their exercise beyond the initial intervention programme. Format: 2 characters Codes and values: Code Value Explanatory Notes 00 None 01 Cardiac Support

Group A cardiac support group that includes an exercise class

02 Council led A council leisure and exercise facility 03 Private A members only leisure and exercise facility 04 Patient Activity e.g. an outdoor activity such as hill walking 05 Patient declined 96 Not Indicated Not fit for this type of activity 98 Other 99 Not known

Attributes: Intensity


Low Moderate High

Related data items: Reason for No Intervention Recording Guidance: Systems should allow for the recording of multiple options

10.4 Disease Management Advice Common name: Disease Advice Definition: A record of whether any education and advice regarding disease management is given to a patient by a health professional, and by what method(s). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audio visual aids Includes educational video, DVD, etc 05 The Heart Manual, Angina Plan or similar cardiac manual based on

cognitive behavioural principles 06 Patient declined 98 Other 99 Not known


10.5 Medication Advice Definition: A record of whether any education and advice regarding medication is given to a patient by a health professional, and by what method(s). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets


04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known

Related data items: Reason for No Intervention Further information: Advice includes a discussion or information on indications for medication; it’s proper use and side effects. This advice may be given by a pharmacist or by another health professional. Recording guidance: System must allow for the recording of multiple options .

10.6 Relaxation Therapy {Cardiac Rehabilitation} Definition: A record of whether any relaxation therapy is given to a patient by a health professional, and by what method(s). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known


10.7 Stress Management Advice {Cardiac Rehabilitation} Common name: Stress Management Definition: A record of whether any stress management advice is given to a patient by a health professional, and by what method(s). Format: 2 characters Codes and values: Codes Values Explanatory Notes


00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known


10.8 Tobacco and Nicotine Consumption Advice {Cardiac Rehabilitation} Common name: Smoking Cessation Advice Definition: A record of the tobacco and nicotine consumption advice given by a health professional Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known

Related data items: Reason for No Intervention Further information: Oral and written advice may include direction to health promotion resources services such as http://www.ashscotland.org.uk/quit/index.html, Smokeline on 0800 84 84 84; http://www.hebs.scot.nhs.uk/topics/smoking/. Current recommended guidance: Ref: NHS Health Scotland and ASH Scotland (2004) Smoking Cessation Guidelines for Scotland: 2004 Update http://www.hebs.scot.nhs.uk/services/pubs/pdf/smokingCES2004.pdf Recording guidance: More than one type of advice may be given therefore multiple selections should be possible.


http://www.ashscotland.org.uk/

http://www.hebs.scot.nhs.uk/topics/smoking/

http://www.hebs.scot.nhs.uk/tobacco/professional/

10.9 Dietary Advice {Cardiac Rehabilitation} Common name: Dietary Advice Definition: A record of whether any dietary advice is given to a patient by a health professional, and by what method(s). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known

Related data items: Reason for no intervention Recording Guidance: Systems should allow for the recording of multiple options

10.10 Alcohol Consumption Advice {Cardiac Rehabilitation} Common name: Alcohol Advice Definition: A record of the alcohol consumption advice by a health professional (who is not part of a specialist alcohol treatment service). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known

Related data items: Reason for No Intervention


Further information: Oral and written advice may include direction to health promotion resources such as national alcohol helpline, Drinkline (0800 917 8282) or http://www.patient.co.uk/showdoc/26738981/Refer to SIGN Guideline 74: “Management of harmful drinking and alcohol dependence in primary care http://www.sign.ac.uk/pdf/sign74.pdf Recording guidance: More than one type of advice may be given therefore multiple selections should be possible.

10.11 Relationship Advice Definition: A record of whether any relationship advice is given to a patient by a health professional, and by what method(s). Format: 2 characters Codes and values: Codes Values Explanatory Notes 00 None 01 Individual A one to one intervention with the patient 02 Group An intervention delivered in a group setting 03 Written e.g. patient information leaflets 04 Audiovisual Aids Includes educational video, DVD, etc 05 Patient declined 98 Other 99 Not known

Further information: The discussion with the patient would centre on resuming sexual activity and would include the possibility of erectile dysfunction. As it is well recorded that relationships can be strained immediately after any big life event, this would also be discussed with the patient.

10.12 Training in Basic Life Support Definition: A record of whether the patient and / or carer have been trained in basic life support Format: 3 characters Codes and values: Code Value Sub Code Sub Value 00 Not offered 01 Yes A Patient


http://www.patient.co.uk/showdoc/26738981/

http://www.sign.ac.uk/pdf/sign74.pdf

B Carer A Patient 03 Declined B Carer

99 Not known Recording guidance: System must allow for the recording of multiple options.

10.13 Attendance Barriers Definition: The reason(s) why the patient could not attend some, or all, of their cardiac rehabilitation programme. Format: 2 characters Codes and values: Code Value Explanatory Notes 00 None 01 Returned to work 02 Health issues Includes co morbidities and interventions 03 Access difficulties This includes the problem of programme location and

transport 97 Patient declined 98 Other Includes left the area, holiday maker etc 99 Not known

Related data items: Transport Access Recording guidance: System must allow for the recording of multiple options.


11. Specialist Interventions

11.1 Referred for Specialist Intervention Definition: A record of any non-routine specialist intervention(s) to which the patient has been referred for reasons unrelated to the original referral for cardiac rehabilitation and over and above the routine input from the cardiac rehabilitation team. Format: 2 characters Codes and values: Code Value Explanatory Notes 01 Physiotherapist Referred to a physiotherapist for a non-cardiac

reason 02 Occupational Therapist Referred to a occupational therapist for a non-

cardiac reason 03 Dietician Referred for specialist dietetic input 04 Clinical Psychologist Referred for specialist psychological treatment 05 Social Work This includes home help 06 Cardiologist Referred back to a cardiologist for ongoing

cardiac problems 07 Community Nursing Referred to community nursing for a non cardiac

reason 08 Specialist Vocational

Advice Advice about returning to work

09 Self Help Group 10 Secondary Prevention

Clinic Referred to a secondary prevention clinic in primary care

11 Sexual Dysfunction Advice Referred to GP, specific sexual dysfunction clinic or specialist organisations such as Relate

98 Other 99 Not known

Attributes: Accepted Declined Further information: This field is intended to capture the non-routine needs of cardiac rehabilitation patients and associate extra resource issues. Recording guidance: System must allow for the recording of multiple options.


Appendix 1 - Working Group Membership of Cardiac Rehabilitation Working Group Name Position Organisation Dr Iain Todd (Chair) Consultant in Cardiovascular

Rehabilitation Astley Ainslie Hospital, NHS Lothian

Dr Paul MacIntyre Consultant Cardiologist Royal Alexandra Infirmary, NHS Argyll & Clyde

Catherine Mondoa Cardiac Rehabilitation Nurse Stirling Royal Infirmary, NHS Forth Valley

Paul Docherty Technical Analyst Have a Heart Paisley, NHS Argyll & Clyde

Yvonne McBride Cardiac Rehabilitation Nurse NHS Greater Glasgow Dr Christine Rodger Consultant Physician Monklands Hospital, NHS

Lanarkshire Linda Lockhart MCN Manager NHS Dumfries and

Galloway Marion Flood Project Manager Have a Heart Paisley, NHS

Argyll & Clyde Joanne Semple Senior Physiotherapist

Southern General Hospital, NHS Greater Glasgow

Lynne Buttercase Operational Project Manager SCI Coronary Heart Disease Programme, Clinical Technology Centre, NHS Tayside

Janet McKay CHD MCN Support Nurse NHS Ayrshire and Arran Sue Payne Clinical Lead, CHD and Stroke

Programme Information Services Division

Ann Ward Dataset Development Support Manager, NCDDP

Information Services Division

Felicity Naughton Dataset Facilitator, NCDDP Information Services Division


Appendix 2 - Consultation Distribution List Chief Executives Medical Directors National Advisory Committees • National Advisory Committee on CHD • National Advisory Committee on CHD - Data & IT Sub-group • National Advisory Committee on CHD - MCN subgroup • National Advisory Committee on Stroke CHD Key Stakeholders • Managed Clinical Networks • NHS Quality Improvement Scotland • Scottish Cardiac Society • Scottish Intercollegiate Guidelines Network (SIGN) • SCI-Bronze Steering Group • Scottish Clinical Information Management in Practice • Cardiac Rehabilitation Interest Group Scotland • CCI Primary Care Collaborative • Chest Heart and Stroke Scotland • CHD & Stroke Programme, Information Services • British Association for Cardiac Rehabilitation (BACR) • British Heart Foundation NCDDP Stakeholders • British Dietetic Association • Clinical eHealth Leads • Community Nursing Network (CNN) • Electronic Community Health Information Project (eCHIP) • Health & Social Care Information Centre, Datasets Development Programme (England) • Improving Mental Health Information Programme • Information Services Division, NSS • Information Standards Group • NHS Board Directors of Public Health • NHS Health Scotland • NHS Quality Improvement Scotland • NHS24 • Open Scotland Information Age Framework (OSIAF) • Royal College of Paediatrics and Child Health • Royal College of General Practitioners (Scotland) • Royal College of Nursing (Scotland) • Royal College of Physicians • Royal College of Physicians and Surgeons Glasgow


• Royal College of Physicians, London • Royal College of Surgeons • Scottish Clinical Information Management Practice (SCIMP) • Scottish eHealth Nursing Forum • Scottish Executive Centre for Change and Innovation • Scottish Executive Data Standards Branch • Scottish Intercollegiate Guidelines Network • Scottish Executive Health Department • UK Data Standards Forum • Voluntary Health Scotland NCDDP Reference & Working Groups • NCDDP Board • NCDDP Support Team • CHD Core Data Standards • Heart Failure Dataset • Electrophysiology Dataset • Stroke Core Data Standards


cardiac rehabilitation dataset - isd scotland rehabilitation dataset.pdf · overview &...

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