THe WFH graTeFully aCknoWledges THe more THan 900 individuals and organizaTions WHo ConTribuTed To THe Close THe gap Campaign 2012-2014. THe CommuniTy Campaign raised an ouTsTanding $1.9 million!

$500,000 and moreAndré de la Porte Family

Foundation

$250,000–$499,000Hemophilia Center of

Pennsylvania 340B ProgramLaureen A. Kelley

$100,000 – $249,999Association française des

hémophiles*National Hemophilia

Foundation (USA)* Novo Nordisk Haemophilia

Foundation

$50,000 – $99,999Hemophilia Alliance FoundationHemophilia of Georgia, Inc.

$25,000 – $49,999Biogen Idec HemophiliaCanadian Hemophilia Society*Eastern Pennsylvania ChapterIrish Haemophilia Society Ltd.*1 anonymous donor

$10,000 – $24,999340B Factor Program at Akron

Children’s HTCBaxter Healthcare CorporationBayer HealthCarePatsy Carman

Haemophilia Foundation Australia*

Katharine Dormandy TrustLA Kelley Communications, Inc.The Skinner FamilyMinistère de la santé et des

Services sociauxOpticom International Research

ABPhillips 66Lisa SackuvichStichting de Erven LeeuwenhartSwiss Hemophilia Society*

$7,500 – $9,999Haemophilia Foundation of

New Zealand*1 anonymous donor

$5,000 – $7,499Cascade Hemophilia ConsortiumDeutsche

Hämophiliegesellschaft (Germany)*

Héma-QuébecHemophilia Foundation of

MichiganScott and Kim MartinMary M. Gooley Hemophilia

CenterJohn R. TaylorThe Marketing Research

Bureau, Inc.Barbara and Gerard Volk

$2,500 – $4,999Paula H. Bolton-Maggs and

Benjamin Bolton-MaggsCanadian Blood ServicesAnthony K. ChanColorado Chapter of the

National Hemophilia Foundation

CSL Limited (Australia)Cheryl and Tony D’AmbrosioFundación de la Hemofilia

(Argentina)*Assad HaffarHemophilia Foundation of

Greater Florida, Inc.Hemophilia of Iowa, Inc.Netherlands Haemophilia

Society*Adam NewsomeNorwegian Hemophilia Society*Elizabeth A. ParadisGlenn and Beatrice PierceWilliam T. SparrowSwedish Hemophilia Society

(FBIS)*Foundation for America’s Blood

Centers1 anonymous donor

$1,000 – $2,499 Julia M. Alvarez and Alfred

HiermannJohn E. Bournas

THank you!

be part of the vision

campaignBULLETIN

April 2015 / No. 7

$5mover $5 million raised during the Close the gap Campaign

Ute BraunMark BrookerThe Capretto FamilyPaula CobbDiagnostica Stago, Inc. (US)Nancy FlemmingFlorida Hemophilia

AssociationDietje Elisabeth Fransen van

de PutteHaemophilia Association of

Mauritius (HAM)*Haemophilia Foundation

Victoria

Aris Hashim and Zaiwiah Zainuddin

Hemophilia Foundation of Minnesota/Dakotas

Japan Committee for People with Hemophilia

Elizabeth JohnstonCarol K. KasperNigel and Melissa KeyMarion A. KoerperPhillip KucabPhilip and Susan LeRon and Jenny LeesJohn MurphyYasuharu NishidaBrian O’MahonyShannon W. PenberthyRocky Mountain Hemophilia &

Bleeding Disorders Association

Reynaldo and Rosario Sarmenta

The Schnabel FamilyClaudia Schoenig-DiesingDolly Shinhat-RossDavid Silva GómezEric and Marion StolteUK Haemophilia Society*Virginia Hemophilia

FoundationMary Q. Wingate2 anonymous donors

$750 – $999Belgian Haemophilia Society*Wicher de GrootEgyptian Society of

Hemophilia*Gavin FinkelsteinJohn and Penny GisselbeckOtieno Walter MwandaElizabeth MylesKathleen PrattSol RuizAlok SrivastavaJerome TeitelAlain Weill

$500 – $749Association Libanaise de

l’HémophilieJim and Margie BradenGordon ClarkeJesse and Anne-Marie DijkmanPatricia A. DominicFondazione Angelo Bianchi

BonomiDonald and Barbara GoldmanHAPLOS – Hemophilia

Association of the Philippines for Love*

Hemophilia of North CarolinaCraig KesslerBarbara A. KonkleJeanne Lusher, MDShelly A. MattsonRandy MooreÖsterreichischen Hämophilie

Gesellschaft (Austria)Arnoud PlatMan-Chiu PoonJoseph PuglieseMaria M. SalasThomas SanniéSociety for Inherited & Severe

Blood Disorders (Trinidad & Tobago)

The Poepjes FamilyKaren TubridyLeonard A. ValentinoDeon York2 anonymous donors

$250 – $499Megan and Thomas AdediranAikiAntonio J. AlmeidaNeva L. AndersonAxon-comPaula BellDavid BlanchardMartin BoakyeFrancoise BoehlenBrothers HealthcarePatric BrownRuth R. BrownJens BungardtDaniel ButtonJohn and Heather ButtonMargareth Castro OzeloRob ChristieGregory ChristofiAntonietta ColavitaRandall CurtisCzech Society of Hemophilia*Dan DoranBjorn DrebingJeanne FellowsElena GalstianCesar Garrido and Antonia

Luque de GarridoNicholas GoddardBarbara J. GordonHaemophilia Foundation

Australia Capital TerritoryAnn HarringtonOliver HegenerHemophilia Association of

Davao,Inc.Hemophilia Association of the

Capital AreaVanessa HerrickCaroline and Pete HultgrenScott S. Johnson

Peter JonesAshwin KaushalMichael KingSteve KitchenRoshni KulkarniDavid LillicrapHélène LussierJames MarshallSally K. McAlisterHarvey J. McCarterGeorge D. McCoyCraig T. McEwenMarjorie and Ross McLimontMerck & Co., Inc.Robin and Kirk MyersEllis NeufeldM.R. NijzielDeclan NooneOrthopaedic Hemophilia

Treatment CenterDavid Page and Patricia

StewartGreg PricePeter PustoslemsekMargaret V. RagniMarlene RanzAllen and Amy RenzPaul W. RileyBruce RitchieCarlos Safadi MarquezElianna SaidenbergSam SchulmanPier Luigi SolimenoAngel SosaMarlene SpencerCraig Arthur SteinkeAlison M. StreetCandace TerpstraPamela and Brock WiltonKaren WulffYongqiang Zhao6 anonymous donors

$100 – $249Maliheh Afzali NaeeniAkin AkincAsociación Venezolana para la

Hemofilia*Lili Aszodi-FulopTheis BacherMarianna Balakhnina

Geneviève BeauregardThomas BeckerAnacleto R. BenitoPer Arne BergVal D. BiasRémi BoyerSharri BrodiePaulina CamposDarin CarmanLeigh CarpenterRonald H. Cobb

George J. CornettCXGDanish Haemophilia Society*Piet de KleijnFrancine DécaryCarol M. DekernionDonna and William DibleShelby L. Dietrich, MDAnne DuffyThe Ellis FamilyJohn EmmertonEmmanuel FavaloroFederación de Hemofilia de la

República Mexicana*Janel W. FeierabendZev FishmanAngela L. ForsythJohn G. FosterJohn FreedmanElmira GadimovaKaren GeneyJoan C. GillAnne GoodeveDavid GreenAllison GreigSally and Gary GriffithsHarriët HeijboerHemophilia Foundation of

Southern CaliforniaHemophilia of South CarolinaMartin HeuerM. Silvija and Roger HoagChristopher HodgsonKeith HootsHospital Infantil Pediatrico/

Hospital EscuelaDan IgnasRose JacobsonChi Shan Bonnie KhoHee-Soon KimLily KongAllan KucabDana KuhnEdward LaaneBlandine LacroixMartin LampacherGeorg LemmJacopo LeonardiClaudia LevequeSilvia LinariGabriel LottazJohnny N. MahlanguMichael MakrisMaria ManahanAnn ManciniBernard MansonGita MasseyTadashi MatsushitaEveline Pauline Mauser-

BunschotenNicolas MayleDora Ngum Shu MbanyaAnthony McCarthyKieran D. McHughColleen McKayCarol McKennaSalomé MekhuzlaRichard J. MetzAnders MolanderPaul E. MonahanMartha Monteros RincónPaul MooreheadKevin MoranAndreas Mueller-BeckhausKathy J. MulderSukesh C. Nair

Alan NeaigusMarilyn NessW. Warren NewmanBeatrice NolanDeborah NosowskyPeter O’MalleyLeslie C. OygarGianluigi PastaStephanie PinedaLydia PitcherPhillip R. PooveyFlor Loya PorragasDebbie PorterNadège PradinesLisa Sorkin RabinMichel RaymondEduardo ReyMichael RoseDavid RossJennifer RossTimothy RossJuan J. J. Rota ArrietaDawn RotelliniStephen RussellCatherine SabourinHiroyuki SaitoMathieu SanniéIsabel SantamariaMichael SchindelarThomas SchindlEmily and Mark SchmidtJack and Ann SchnabelCynthia SecrestRahajuningsih D. SetiabudyMardelle ShagoolAstrid ShapiroAbdulaziz A. SherifJanet SloanSydney SmidtRobert SmithSociedad Hondureña de

Hemofilia*Janaki SonooJayson StoffmanStephanie StoreyMarion and Charles StuartGary SutherlandAliakbar TchupanChristine ThomasJackie TouzeauIlia TsiklinEdward G.D. TuddenhamCraig UpshawLuis Uribe CockAnita VuksanKaren WenderoffTefu WengFrederick WensingWestern Pennsylvania Chapter,

NHFJerzy Windyga

$130,000largest single donation received in one year

2 newprograms(research program and Cornerstone initiative) introduced

$145Average cost to diagnose one person with a bleeding disorder

Michelle WitkopPaula Zeff13 anonymous donations

$50 – $99 Bradley AndreMaria C. ArangoWendy AronsonSulochana BadagabettuJudy A. BagatoMichael BarryJoan and John BatesAnne BeckerSébastien BédardPaul BedbrookAndy BlackledgePaul BonnerRuud BosBrian BoyerUros BrezavscekFrédérica Y. CassisWaveny CharlesArleigh R. ClemensLeo CopelandCameron CorlettMary CousinsDaniel CredazziHelene H. CrownLorraine De SmetMylène D’FanaLisa DicksonCatharine DowisShireen Du PreezAmy DunnG. DuraisamyMichelle DursunEvelyne Eggs ChapplisNancy L. ErwinClara EspinosaAisha FakeirThelma FerberJosh FergusonMichael A. FournelSandy and William FoxMarc C. FullingtonElizabeth and Christopher

FungLaura García ChangpoDaniel Anibal Garcia DiegoJennifer GarlingeSusanne GillespieGrace GilmoreCatriona GordonMarina GoruppiKerry GrantSuzi GreerArthur and Janet HainesKhalilullah HamdardKen HatfieldLily HeijnenHemophilia Association of the

Philippines Inc. - CebuThomas HendricksonMichael HockeyMelissa HurttDavid InglisRobina E. Ingram-RichAlfonso IorioMarc IslerMohd Zulhilmi Paiz IsmadiEsmaeil Jafari AraghiPaula Denise JamesYuxin (Ellen) JiangCecilia JohnstonAnita JulshamnFaye Katzman

Kate KhairStephen KinsmanDelin KongPeter KouidesFrançois LarocheAdrienne LeePatricia Le-FortJames LockleyCatherine MannoFrancine MénardShane MeottiOscar J. Monteros RincónSatomi MotojimaJose Antonio Munoz PucheLisa MurphyOmar NaimaAnn-Marie NazzaroPatricia C. NeffSuzanne O’CallaghanOgechi OhadomereMarie-Anne OlivierEva OlsenGalafteon G. OlteanAlbert OrriolsLorena PadilhaMarilyn PasserDouglas W. PierceStephen PriceRajiv K. PruthiSarah-Louise QuigWendy QuinnLaura QuintasDoris QuonMoche RazGuido ReberJudith ReesEileen Regier

James P. RiddelBrenda RiskeSoledad Rivero HardoPatrick RobertElaine RockJulie RonaldsonRussell and Carol RoseFrançoise RossiCynthia RothschildSusan J. RussellChristoph SchmidtVictoria SchwagerJack ScottShelley ShawChantakorn ShutidamrongToby SimonAlan SkinnerMike SkinnerJonathan SpencerJanine StauntonMacGregor SteeleCourtney StevensJohn StevensLinda L. SulserSrilatha TangadaSylvia Thomas

Arthur R. ThompsonDawn L. ThorpTomye TierneyDeirdre TuckJohn TuckGary and Nola UnruhSandra Vallin AntunesEllen WhiteDenise WilsonSharyn WishartWing Yen WongCynthia ZamoraAnabella ZavagnoClaire Zellner7 Anonymous donors

$25 – $49Fatmah K. AbdallahManuela AlbisettiSyed AliAbdulKareem M. AlMomenKagehiro AmanoFavero AnicéeAna AntunDenise ArmstrongJacqueline AubryMarilyn AugustRaul Aurelio BordoneArafat AwajanOmolade AwoduMarkus BachhuberNatasha BarryJulie-Anne BellBrad BenneStephen BennettGary M. BensonMeltonian BlakeNeil BoalNellie BootEvan BorsteinAlicia BrardFlorian BrasselAndrew BrewerDavid BrockKai BrokerDonald BrophyCameron BrownPaulette BryantBelinda BurnettDonald J. ButtonAndrés CamposCarlos CamposSebastián CamposRobert T. CardJodie CarisJorge CarneiroShannon CarpenterMarcus CarrHervé ChambostPratima ChowdaryNatashia CocoDesiree Coen HerakLinda ColeCarly ConwayJudi CooperStephanie CoulmanCharlene CowellEnrica CristinaPatrick CrowleyEric CubberleyJon DavisStephanie DevineKimberly EbsworthWinand EerensBeryl Favaloro-DawsonChad Feay

Catharina Jacoba FijnvandraatKevin FisherNeil FrickKatsuyuki FukutakeErnestine FullerJoanne Galati P.T.Woet GianottenAidee GilbraltarMarc Gilgannon

Nicolas GiraudPeggy GlazzardHaemophilia Foundation of

Nigeria*Fiona HallTeresa HallVicky HannemannHarlinda HaroenJennifer HarrisMichael HeimHemophilia Society of

Malaysia*Tanya HillRon HoffmanJoseph HopcraftNicola HopeAnne HurletAleksandra IlijinShannon JacksonKim JacobsenHans-Göran JakobssonLawrence JardineWilliam JeffersonRobert E. JohnsonJanna M. JourneycakeSusan KarpSuresh KatakkarClaudia D. KhayatSoon Ki KimBartholomew KirbyVincent La TerzaAudrey LedruTom LeeDavid MarshallGabriele MartinPrasad MathewAndrew B. MatthewsAnn McCarthySimon McRaeMaia and Robert MeierKarla Bayer MendoncaBonnie MillsAldo MonterosMassimo MorfiniApril MorrisIan MuirLochana NanayakkaraAnnick NdoumbaDaniela NemeTheresa Ukmaka NwaghaNiamh O’ConnellCheryl OenemaDavid OenemaDavid OlesonSandra C. OliveiraMartine Pennetier

Genevieve PietuVictor Manuel Ponce RojasNichakan PoolchaiJerry S. PowellMurielle PradinesLaura PrimianiSylvain ProulxSanj RautBradley RaynerLaurel RegerHarold R. RobertsMarie RoemckeLaura RoldánMaria Serena RussoChristian Alejandro SastreLoraine SastreRichard ScottMing Ching ShenScott ShepherdLeslie Situ FerberSlovenské Hemofilické

Zdruzenie (Slovakia)*Leanne StephensonJean St-LouisAnthony StowersGustaf StrindevallPavel V. SvirinMaryse TamburroYasuhito TanakaElizabeth TawilLisa ThilbeaultPatrick ThomeniusPrasanna Kumar

Thummanahalli SubbannaDuc TranGiuseppe TurchettiMarijke van den BergGrace VazBert VerbruggenSudharma VidyatilakeVietnam Hemophilia

Association*Kyelle Jodi VirgilAnnette von DrygalskiSusanna von OettingenAhoefa VovorPeter VuksanElaine WarnerAlvaro Luiz WolffLyn WongHassan M YaishJohn YorkSounya ZeroualiBaiba Ziemele4 anonymous donors

up to $24Boumelit AbdelkadarMedini AbderrahimAhmed Abdul BariSergio AcostaDeborah AdamkinMarian AhlbergRehab Al BloushiIssa Ibn Abrahim AliSa’eed AlsuleimyyehPremroop AlvaDaniel AndreiRuth AntonioRafael AparicioKarl ArchibaldPablo ArdilesMaria Eugenia Arias CoronaRaul Arita Auxume

25 Campaign volunteers

99196

donors

from countries

Close the Gap campaign 2012-2014

Co-Chairs

Jan Willem andré de la Porte, WFh patron alain Weill, WFh president

honorary CamPaiGn Committee members

rePresentinG WFh Past Presidents

Frank Schnabel, WFH president 1963-1987 Frank schnabel, iii Gina schnabel marie-France Vandamme

Charles Carman, WFH president, 1988-1993 Patsy Carman

brian o’mahony, WFh president, 1994-2004 mark W. skinner, WFh president, 2004-2012

reGionaL Co-Chairs

americas

Patricia dominic, U.s.a. Cesar Garrido, Venezuela Phil Kucab, U.s.a. martha monteros rincón, mexico Carlos safadi márquez, argentina Pam Wilton, Canadaeurope

anne duffy, irelandmiddle east & africa

megan adediran, nigeria magdy el ekiaby, egypt Johnny mahlangu, south africa bradley rayner, south africa aliakbar tchupan, iranAsia & Western Pacific

Gavin Finkelstein, australia aris hashim, malaysia reynaldo sarmenta, Philippines

FUnd & resoUrCe deVeLoPment Committee

Chair

deon yorkeric stolte 2008-2012

50th anniversary honorary Committee

baxter bayer biogen idec hemophilia biotest bPL CsL behring Green Cross

Grifols Kedrion LFb novo nordisk Pfizer sanquin

the WFh is grateful to our corporate partners for their support of the WFh 50th anniversary.

Contributions to the WFh can be made on an ongoing basis

www.wfh.org/donate

Association Marocaine des Hémophiles*

Peter AubryPatricia AvilvaTine BacherAlice BanzeJoy BarrettSelma BarryDalia BashariDiya BassisCharles BaylObdulia BetancourtAshish BhattadStephen L. BlandBeatriz Carla Boggia

TutaglioAmanda BokFayçal BouabellouDonna BradleySam BradleyPer Arne BrånsgårdPatrice BravoJoanna BrodieDustin BursethJudy ButlerGuillermo CampilloDaniel CarisKahurangi CarterMichelle CecilMaria A. CedolaKim Yin ChewSayun ChimpraditManjit ChohanCollen ClarkRobyn ColemanJustine ColongeAnne-Louise CruickshankJohn CurranMatthew DalgleishSandra DavyDania Eliza De La Llata

GómezStephan T. de WaardTimothy DemosBethanne DeuelAbdou Ramane Sambo

DialloMaryse DienLinda DockrillRoya DolatkhahInes Duque AcostaPierre DurgaramRobyn EdwardsPasseri Emilio ValterMaría EnriquezBarbara Faganel KodjikMaria Felix

Chris FennicksCaroline FergusonPatrick Finders-BinjeSarah FordTony FriskKikue FujiiTeruhisa FujiiRicardo Carlos Gaitán

FitchMukesh GarodiaGuilherme GenovezJean-François GiardJulie GibsonAdrian Pilar GilAbeer GildaEdwin GohJosé Manuel Gomez

DuarteEvelyn GrimbergKyme GrollerGladys GuberrezElvira GuillenAmeeta GuptaCraig HaranSteffen HartwigAhmad Hazri HashimSarah HawkMaureen HayesSabine I. HeineJulie and Paul HeinrichAna Lilia HernandezPablo HernandezTere HernandezPatricio Manuel Hidalgo

DillonJessica HirstMichale HoBarbara HodgesGrant HookSean HubbertTomoyuki IgawaMasataka InoueSusan InwoodLisbeth Skjødt IpsenMiguel Izquierdo FrancoJack JeffersonM. Joseph JohnAlexandra JohnsonKlemens KasererJames KennedyZlatko KerkenRomanoz KhomasuridzeAgnes KisakyeTakehisa KitazawaWalid KobisiChafik KouacheKristijan KrajacicM.J.H.A. KruipIlmar KruisSeth KuhlmanThomas Lammers MoranHeidi LaneHeather LauderOswaldo LazalaMartin L. LeePeter LindholmKristina Linnér SwensonAnders LönegårdPaul LongDavid Loveless

Ines LugoJohan LundströmMartha Stella Madrid

BetancourtAnne MäkipernaaSebastian MarangaAlessandro MarchelloBertrand MarchiaroMaribeth MarquardIngrid MårtenzonMalik Masood FareedRema MathewSimbarashe MaziveyiSibongile Frieda MbeleCarl McKayShannon MeeksLuis Melgar AraúzZavier MeottiAlicia MercadoMargaret Melda MichaelRichard MinjaLeonard MintyRaissi Mohamed TaoufikBenigno Montenegro

ReyerCatriona MoriartyMarianne MoslingDiane MunroEsther MuntuSarkuna Devi MurugasanHiroshi Nakashima

Shan N. NarayananRasheed NasrCarol NaveDavid NavehRonnie NelsonMegi NeziriHanh NgoLauren NyhanTania Maria Onzi PietrobelliManuel Santiago

Ordoñez BastidasEadaoin O’SheaLisa PadilhaParesh P. ParmarLinda ParryLeanne PearceJorge Peña SiadoCharity PikitiJane PittadakiVince PomaBishesh Poudyalthe late David PouliotSarah PrestonRosana QuinterosIndrawattee RampaulJoan and Arvin RandleCarol Reddie

Emilie RehelRosalie ReiriSheikh Moin RiazErl RobertsSergio RobledoBarbara RodgersFernando Rodriguez

ChappellYadira Rojas MarcanoGert RudolfTobias RuhlJames E. RwehabwraAislin RyanNaouel SalhiAndrea SamboJohn Francis SarmentaMaria SattiUwe SchlenkrichJohn SchmitkeDelphine SchwartzmannLynley ScottKibet ShikukuNaja Skouw-RasmussenEgidijus SliauzysPamela SmithStephanie SmithDebbie SnavelyChean SophalAna Carolina SotilloHenry SteenkampTheresa StevensKristen M. StewartPatience StirlingJeff S. StonebrakerAri Antonius SudanaEkawat SuwantarojTe Whainoa Te WiataVirginie TerrierPatrice ThomasRachel TiktinskyAnna TollweAhmadou ToureZorica Trajkova AntevskaFendi Antonio Valdez

BisonoMinette Van der VenIngrid Van SteenbergeAart van WingerdenJean-Noel VernanchetKjersti VikenLuz Graciela Villalaz

GarciaJacoba von WiellighHemirau WaretiniDoris WeeVictor WendelGamini WickramasingheNathan WilkesSonji WilkesMayda Tamara Yasychyn

RomeroRay YuA.B.M. YunusLukas ZahrerMowcef ZianiSidki ZouhairBulent ZulfikarGabriele and Karl

Zwiauer4 anonymous donors

Bold: The WFH is especially grateful to supporters who contributed to each year of the campaign.*The WFH is proud to acknowledge the support of our national member organization.Every effort has been made to ensure to accuracy of this list. Please contact us with any errors at acolavita@wfh.org

107Countries received support from the WFH in 2014

778First-time donors