BYTE Big Data Community Workshop

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BYTE:BYTEBigDataCommunityWorkshopLorenzoBigagli,NationalResearchCouncilofItalyMart Cuquet,UniversityofInnsbruck1December2016,Valencia,SpainBig data roadmap and cross-disciplinary community for addressing societal Externalities@BYTE_EU www.byte-project.euWorkshopagenda11:00 12:15 STRENGTHENINGTHEBYTEBIGDATACOMMUNITYPresentationoftheBBDCGroupworkonitsfuture12:15 13:30 CONTRIBUTINGTOTHEBDVAPresentationsontheBBDCfocusareasfor2016: Smartcities(AnnaMelchor,InnDEA,Valncia) Health(Aggelos Liapis,AthensUniversity,BYTEAB) Environment(GiovanniRumandWenbo Chu,GEOSecretariat)Small groupsdiscussiontointegrateBYTEfindings13:30 13:45 CLOSINGREMARKS@BYTE_EU www.byte-project.euVisionandmissionCivil societyas important as industry,academia andpolicymakersintheEUstrategy forbigdata@BYTE_EU www.byte-project.euBigDataValuecPPPCSOsNGOsNPOsEUBigDataStrategy:fillingthegapBDVATF9SocietalTF5LegalTF3CommunityBigDataCommunity@BYTE_EU www.byte-project.euObjectives EngageNGOs,NPOs,CSOs,thirdsector,localgovernments,tech-transferorganizations ContinueBYTEresearchonsocietalexternalitiesofbigdata,andhowtomakethebestofthem InputandfeedbacktoBDVA,membershipandrelatednetworks@BYTE_EU www.byte-project.euActivities Research/consultationtoidentifysector-specificandgeneralguidelinesaboutcurrentbigdataissues,goodpracticeandtouchpointswithstandardsandmethodologies 3focusareasperyear Inputandvalidation SRIAsocietalimplications ECworkprogramme@BYTE_EU www.byte-project.euBDVASRIA@BYTE_EU www.byte-project.euBigDataPPPinH2020ICT-14-2016-2017:BigDataPPP:cross-sectorialandcross-lingualdataintegrationandexperimentationICT-15-2016-2017:BigDataPPP:LargeScalePilotactionsinsectorsbestbenefittingfromdata-driveninnovationICT-16-2017:BigdataPPP:researchaddressingmaintechnologychallengesofthedataeconomyICT-17-2016-2017:BigdataPPP:Support,industrialskills,benchmarkingandevaluationICT-18-2016:BigdataPPP:privacy-preservingbigdatatechnologies@BYTE_EU www.byte-project.euMembership Opentoindividualsandorganisations 4 envisionedmembershipcategories interestedparty associatemember fullmember ambassador@BYTE_EU www.byte-project.euInterestedpartyDescriptionContactlistIdentifykeyissuesIdentifysectorsofinterestParticipateindiscussionswithpeersOpportunitiesStayinformedandinteractParticipateinconsultationsEngagementLow-level reactiveOccasionalteleconference/meeting@BYTE_EU www.byte-project.euAssociatememberDescriptionContactlistIdentifykeyissuesIdentifysectorsofinterestParticipateindiscussionswithpeersRegularlycontributetofocusareasReviewBBDCoutcomesOpportunitiesStayinformedandinteractParticipateinconsultationsParticipateinresearchandinnovationprojectsEngagementRegularteleconferencesOccasionalmeetingorannualworkshop@BYTE_EU www.byte-project.euFullmemberDescriptionContactlistIdentifykeyissuesIdentifysectorsofinterestParticipateindiscussionswithpeersRegularlycontributetofocusareasReviewBBDCoutcomesCommitresourcestoBBDCactivitiesOpportunitiesStayinformedandinteractParticipateinconsultationsParticipatewithpriorityorlead researchandinnovationprojectsSupportortakepartinBBDCmanagementEngagementRegularteleconferencesOccasionalmeetingorannualworkshopLetterofintent(120h/year 0.75PM)ParticipationinannualrelevantmeetingPotentialBDVAmembership@BYTE_EU www.byte-project.euAmbassadorsLocalcontacts,partnersandinstitutionsContactwithlocalinitiativesObtainlocalinputforthecommunityDisseminateresultsandrepresentthecommunitylocallyOrganisejointco-brandedevents@BYTE_EU www.byte-project.euGroupworkRoam andbrainstorm around 3focuspoints Strategy andsustainability Mission,objectives,activities Advertisingandexpanding thecommunity Venues,contacts,related networks You name it! Communityname andidentity after theendofBYTE@BYTE_EU www.byte-project.euFunding opportunitiesCooperation agreement withanother community(e.g.BDVA)Corporate/Government sponsorshipEUfunding (e.g.H2020)Funding fromMember StatesAnnual membership fee andmember contributionsCrowdfundingConferencefeesStandardization BodiesBusinessAreas (e.g.JointIndustry ProgramsforBigDatainAutomotive,Defense,Oil &Gas,Energy,Transport andother sectors)Servicefees@BYTE_EU www.byte-project.euYou name it!BigDataSocialClubBigDatafor[social]goodBigDataCrewBigDataFellowshipEUBigDataClearingHouse (EUBiDCH) Neutral 3rdpartyEUBigDataTrust(EUBiDT)EUBigDataAdvisory (EUBDA)EUBigDataSocietyEUBigDataAgency@BYTE_EU www.byte-project.euContributingtotheBDVA Focusareasfor2016 Smartcities(AnnaMelchor,SmartCityValencia) Health(Aggelos Liapis,AthensUniversity,BYTEAB) Environment(Wenbo ChuandGiovanniRum,GEOSecretariat) SmallgroupsdiscussiontointegrateBYTEfindingsSmartcitiesThiscasestudyhasfocusedonthecreationofvaluefrompotentiallymassiveamountsofurbandatathatemergesthroughthedigitalisedinteractionofacitysusers,i.e.ofcitizensandbusinesses,withtheurbaninfrastructure.Theeconomiesofdigital,especiallybigdata,favourmonopolisticstructures,whichmayposeathreattothemanySMEsincities.However,opensourceandopenplatforms,opendata,andevenopenalgorithmscrystalliseasashortcutandtechnology-drivenformofliberalisationaccompanyingthebigdatamovementincities,whichhasthepotentialtoleveltheplayingfieldandevenspurmorecreativityandinnovation.Nonetheless,monetisationofbigdataremainsamovingtarget.Investmentsbytheprivatesectorneedtobesecuredbyreductionorcompensationoffutureuncertainties,otherwisethecurrentstateoflackofinvestmentswillremain.Similarly,withtheincreasingpotentialofmachinesthatlearn,oldjobsconsistingofsimpletasks arealsoatrisk.Newskillsarerequiredandwillcreatenewjobs,butnumbersaremostlikelynotequal.Asforthesocialandethicalexternalities,thepotentialofbigdatatobeusedforsocialgoodisimmense,especiallyinthedigitalisingcity.However,therelianceondata-drivenservicesneedsadebateonhowwecanassureenoughequalitywhentherearesomanydifferentreasonswhynotallcitizenswillreapvaluefromdatainequalamounts.Thismaybeduetothedigitaldividewehavebeenawareofforawhilenow,ortoentirelynewchallengesthroughrecenttechnologicalbreakthroughssuchasdeeplearning,whichenablemachinestolearnandtakeoversimpletasks,suchascountingcarsorrecognisingletters.Moreover,trustincomputingmethodsforbigdatamaybehardertoestablishiftheirrationalecannotbeeasilyexplained.Furthermore,businesses,criticalinfrastructures,andlivesmayrelyonbigdataalgorithms.Sincenewsourcesofdatacreatenewwaysthatdatacanbemisused(includingsensitivepersonaldata),thiscasestudyquestionsthesuitabilityofthecurrentlegalframeworkbasedondataownership.Indeed,theshifttowardsbigdatamayimplythatdataaswellasalgorithmstominethedataarerequiredcommoditiestocreatevaluethroughuserexperienceandservices.Finally,politicalexternalitiesincludelosingcontroltobigdataactorsoutsideEurope.Indeed,bigdatabusinessescanimprovetheEuropeaneconomy,butrequireaunifiedEuropeandataeconomywithaccordinglyunifiedpolicies.HealthThiscasestudyhasfocusedontheuseofgeneticdatabyapublichealthdatadrivenresearchorganisation.Overall,thiscasestudyhighlightsanumberofpositivesocietalexternalitiesthatflowfromgeneticresearchandraregeneidentification,whichisfacilitatedthroughtheutilisationofbighealthdata.Concerningeconomicalexternalities,oneimportantresultiscostsavingforhealthcareorganisationsthataregainedthrough moreaccurateandtimelydiagnosesandefficienttreatments.Thisisparticularlyimportantwhendealingwithraregeneticdisordersthatmaynototherwiseattracttheattentionthatdisordersandhealthissuesaffectingthewiderpopulationdo.Inaddition,theutilisationofbigdatainhealthcareproducesanothereconomicexternalityinthatitpotentiallygeneratesrevenueespeciallythroughthedevelopmentofmarketabletreatmentsandtherapies,andtheinnovationofhealthdatatechnologiesandtools.Nevertheless,researchinitiatives,suchastheinstituteofthecasestudy,arenaturallysubjectto financialrestrictionsandcostsavingsmeasuresimplementedbygovernments.Onthesocietalandethicalside,theidentificationofraregeneticdisordersprovidestreatmentopportunitiesforthepatient, as wellasmoreeffectivediagnostictestingforfuturepatientsandagreaterunderstandingofraregeneticdisordersgenerally.Inaddition,analyses of geneticdataenablestreatingclinicianstoprovidearangeofotherhealthcareservicesforfamilymembers,includinggeneticcounselling.Beyondtheinitial purposeforthedatacollection,thereislimitedornoreuseofgeneticdataduetolegalandethicalissues.However,datareusemaybecomeastrongerfocus in thefutureforthepurposeofproducingadditionalbenefitsforpatientsandsociety.Therewilllikelybeanincreaseinfocusonresearchforthepurpose of developingpersonalisedmedicinetreatments,whichfocusesonimprovedtreatmentbasedonpatientdrugmetabolism.Whilstthepositivesocialimpacts of reusinggeneticdataareobvious,ethicalconsiderationswillremainattheforefrontofanypoliciessupportingtherepurposingofgeneticdata,especiallyasitissensitivepersonaldata.Therearepotentialnegativeimpactslinkedtotheutilisationofbigdatainhealthcaresuchasover-medicalisationofan otherwisehealthypopulation;discriminationbasedonthestratificationongenotypeorinrelationtohealthinsurancepolicies;andincidentalfindingsdiscoveredwhendataisanalysed.Forexample,cancergenesmaybediscoveredalongsidetheidentificationofraregenesorothergeneticmutations.Sincehealthdataisbyitsverynaturesensitivedata,thiscasestudyhighlightslegalrisksassociatedwithdataprotectionanddatasecurity.Inparticular,anonymisation isalegalrequirementthatischallengingtoachievewithgeneticdata.Theissueofdataprotectionandinformationprivacy callsforthedevelopmentofadequateprotectionsthatbalancetherighttopersonaldataprotectionwhilstfosteringinnovationinthedigitaleconomy.Althoughdatasecuritypreservationmeasuresensurecompliancewithstandarddataprotectionrequirements,theycanalsohinderfurtherresearch,whichinturn,couldleadtonewdevelopmentsandtreatments.Lastly,threatstointellectualpropertyrightscanariseinrelationtosubsequentusesofbighealthdata,suchasinrelationgenepatenting(andlicensing)ofnewdrugtherapies,orifitweretobeincludedinworksprotectedbycopyright.Concerningpoliticalexternalities,theavailabilityofbigamountsofdatawillenablepoliticianstohavemoreinformationaboutdifferentsituationsinthehealthsectorandthusabetterunderstandingthatmayleadtoimprovetheirdecision-makingandincreasestheinvestmentsinhealthcare.EnvironmentThiscasestudyhasbeenconductedinthecontextofanearthobservationdataportal(GEOSS),aglobal-scaleinitiativeforbetterunderstandingandcontrollingtheenvironment,tobenefitSocietythroughbetter-informeddecision-making.Onthepositiveside,theuseofbigdataiscreditedwithhavingstrongimplicationsontheeconomicgrowth,e.g.seadataforfishingnationsandweatherdatafortourism,forthemeredirecteffectsontheITsectorsuchasopportunitiesforinfrastructure/hardware/datacentres,andrent-sharingpossibilitiesforcomputing.However,bigdatacouldaswellbeseenasathreatbytraditionalservices,forexampleintheweatherforecastingsector.Ouranalysisofsocialandethicalexternalitiesshowstheeffectivenessofdata-intensiveapproachesinimprovingthegovernanceofenvironmentalchallenges,supportingsafeandenvironment-friendlyoperations.Thishasimplicationsontherobustnessoftheenvironmenttorecoverafterstressingevents(resilience),especiallyinurbancontext,aswellasontheactualqualityoflifeandhumanhealth.Ontheotherhand,big-brother-effectandmanipulation,realorperceived,canbeproblematic.Infact,ashumansocietyisanintegralpartoftheenvironment,especiallyinurbancontext,thefearofdataabuse,privacyviolationandthelike,mayhamperparticipationandengagement.Moresubtly,alsoexcessivetrustindata-intensiveapplicationshasbeenhighlightedasapossiblenegativeimplication,inthatitwouldencouragethefalsebelievethatthedynamicsoftheenvironmentcanbecapturedquantitatively,overlookingqualitativeaspectsthat,instead,remainfundamentaltocomprehendit.Withrespecttolegalexternalities,thegrowingrelianceondataintheenvironmentsectoriscertainlyhighlightingmanyshortcomingsofthecurrentlegalframeworks,e.g.onIPR,privacy,andauthorisationtousethedata.Potentialproblemsare moreprominentwhenconsideringdifferentlegislationssuchastheprincipleoffullandopenexchangeofdatathatissimplyinconsistentwithsomeofthecurrentnationalpolicies.Legalsupportforcitizensindata-relatedissuesisarguablygoingtobecomeapublicservice,inthefuture.Besides,incompatibilitiesinthelegalframeworksindifferentcountriesareseenasinhibitorsthatneedtobeadapted,inordertoremovelegalbarriers.Finally,politicalexternalitiesincludeincreasedtransparencyandaccountability,sincechoiceswillhavetobebasedonmeasurableandobservableindicators.However,thereisariskofdependingonexternalsources,particularlyprovidedbybigplayers.Inthisregard,theenvironmentcommunityisconcernedabouttheimpositionofcommercialproductsasdefactostandards,causinganimplicitvendorlock-infortheirmaintenanceandevolution.TheuseofGEOSSmapdataisapotentialsourceofpoliticaltensions,e.g.withregardstodisputedorotherwisesensitiveareas.AsEuropeleadstheinnovationinthespatialsector,theshifttoamoreintensiveuseofdataintheenvironmentsectormayputEuropeinaprimaryroleonthepoliticalscene.@BYTE_EU www.byte-project.euStaytunedhttp://byte-project.eu/byte-community@BYTE_EU www.byte-project.euBBDCcontacts LorenzoBigagli (lorenzo.bigagli@cnr.it),JarlMagnusson(jarl.s.magnusson@dnvgl.com) Coordinationandgeneralorganisation EdwardCurry(edward.curry@insight-centre.org),Umair ulAssan (umair.ulhassan@insight-centre.org) Impactanddevelopment Mart Cuquet (marti.cuquet@sti2.at),Csilla Gdri (godri@niif.hu) Communicationandoutreach RachelFinn(rachel.finn@trilateralresearch.com) Institutionalliaisons(EC,BDVA,etc.)@BYTE_EU www.byte-project.euSeeyousoon ParallelsessiononSocial&Legalaspects 14:45,thissameroom BYTEFinalConference 9February2017,London(TBD) andthank you forjoining!