bringing attention to sds anthony’s journeyfiles.constantcontact.com/d4d2438b001/5bd532d7... ·...

BRINGING ATTENTION TO SDS Anthony’s Journey by Gina & Christian Del Ré Anthony and his big brother, Nicholas, were officially drafted as part of the College of Staten Island’s Men's Soccer Team, the CSI Dolphins. Anthony was chosen by an organization called Team Impact. Children with life-threatening illnesses and fighting big battles are inspiring the lives of young men who want to be a part of his life and have an "impact" to help bring happiness and awareness to his rare disease. Nicholas, being the sibling, is treated just as special and important. The boys were immediately greeted by every person on the team individually, were brought onto the field to practice, and introduced during the start of the game. When we got to the field, every single player lined up to greet all of us at the gate and were clapping for the boys, like they were celebrities. The bond they already have with the guys is incredible. Anthony knows their names and numbers and we have even begun going to the other college sports games along with the men on the soccer team. This partnership has done more for them then they realize, but we as parents are eternally grateful. The coach has already scheduled an SDS Awareness night for next season where the college will help in raising awareness and funds for SDSF!! http://www.silive.com/sports/index.ssf/2017/10/inspirational_athlete_five-yea.html

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BRINGINGATTENTIONTOSDS

Anthony’sJourneybyGina&ChristianDelRé

Anthonyandhisbigbrother,Nicholas,wereofficiallydraftedaspartoftheCollegeofStatenIsland’sMen'sSoccerTeam,theCSIDolphins.AnthonywaschosenbyanorganizationcalledTeamImpact.Childrenwithlife-threateningillnessesandfightingbigbattlesareinspiringthelivesofyoungmenwhowanttobeapartofhislifeandhavean"impact"tohelpbringhappinessandawarenesstohisraredisease.Nicholas,beingthesibling,istreatedjustasspecialandimportant.Theboyswereimmediatelygreetedbyeverypersonontheteamindividually,werebroughtontothefieldtopractice,andintroducedduringthestartofthegame.Whenwegottothefield,everysingleplayerlineduptogreetallofusatthegateandwereclappingfortheboys,liketheywerecelebrities.Thebondtheyalreadyhavewiththeguysisincredible.Anthonyknowstheirnamesandnumbersandwehaveevenbegungoingtotheothercollegesportsgamesalongwiththemenonthesoccerteam.Thispartnershiphasdonemoreforthemthentheyrealize,butweasparentsareeternallygrateful.ThecoachhasalreadyscheduledanSDSAwarenessnightfornextseasonwherethecollegewillhelpinraisingawarenessandfundsforSDSF!!http://www.silive.com/sports/index.ssf/2017/10/inspirational_athlete_five-yea.html

Page 2: BRINGING ATTENTION TO SDS Anthony’s Journeyfiles.constantcontact.com/d4d2438b001/5bd532d7... · by Gina & Christian Del Ré Anthony and his big brother, Nicholas, were officially

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“I’mNotaHero…I’mJustaMom.”ThiswasmyresponsewhenIreceivedaphonecallfromthelocalnewsstationinOctoberexplainingthatIhadbeennominatedasan“EverydayHero”formyeffortsinraisingawarenessforthebonemarrowregistryandShwachman-DiamondSyndrome.AlthoughIwasnervoustobeinterviewedandtohavethestorybeairedonthenews,IknewthatthisopportunitywasanothermeanstoexplainSDSandencouragepeopletojointhebonemarrowregistryaspotentialdonors.AllSDSpatientsneedacureandsomeofthemneedbonemarrowdonorstosurvive—soI’llcontinuetofundraise,designt-shirtstoraiseawareness,andhostandvolunteeratbonemarrowdrives!http://www.kfvs12.com/story/36692004/everyday-hero-jenni-wachter

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