breathe easy haverfordwest a new support group for people with a lung condition starting in your...
TRANSCRIPT
Breathe Easy Haverfordwest
A new support group for people with a lung condition starting in
your area
First meeting 2.00-4.00pm Tuesday 27 October 2009
WELCOME
Agenda
• Introductions• Breathe Easy Overview & Questions • Membership• Tea • Future Plans
Introductions
Adrian Bailey Development Officer British Lung Foundation, Wales Llys Kearns Jersey Marine Swansea SA1 8QL 01792 455746 [email protected]
Breathe Easy Overview & Questions
Breathe Easy is the British Lung Foundation self help group support network, which aims to provide a network of friends, advisers, events and activities that support and empower people affected by lung disease.
The key objectives that all Breathe Easy groups carry
out are:• To provide mutual support to its members for all people with lung disease, family, friends and carers from all sections of the community
• To provide information and education to its members tthrough organising guest speakers and the provision BLF leaflets / literature
• To promote the Breathe Easy group and the British Lung Foundation
Campaigning
Breathe Easy Week 2009 was a great success for BLF Wales with events held up and down the country to raise awareness about the British Lung Foundation, Breathe Easy and lung disease.
Fundraising
Breathe Easy Group raise money to :• Cover running costs• Support local lung health projects • Contribute to the work British Lung Foundation
Fundraising : a fun activity that also raises your groups local profile
Breathe Easy Llanelli fundraising
Breathe Easy Llanelli took part in a fundraisingabseil at Rhossili Point Members of the group, their friends andfamilies and a numberof volunteers from the localrespiratory team took part
Breathe Easy Merthyr donate Oximeters to local respiratory
team
At their August meeting Chair Mary Lewis presentedDr Anthony Gibson,Consultant at Prince Charles Hospital,with their latest donation:3 pulse oximeters
Social events , Cluster meetings and Annual
Conference
www.lunguk.org
Membership
• Open to all people with lung conditions, friends, carers, supporters and volunteers • Complete membership form • Added to BLF Wales data base • Newsletter + mailings
Tea Break
Future Plans
• Name of Breathe Easy group • Day & time of meeting • Venue • Publicity• Decide on a Meeting Format• Future meeting topics/speakers• Appoint officers• Launch event – official opening
Dates for 6 months
Meet 4th Tuesday of the month
24 November 200922 December 2009
26 January 201023 February 2010
23 March 201027 April 2010
Book guest speakers for 6 months e.g.
Physiotherapist, Pension Service, Home Fire Safety Checks, Care & Repair, Dietitian, Energy Saving, Expert Patients Program, Community Pharmacist , Chest Consultant, Assembly Member, Respiratory Specialist Nurse, Early Supported Discharge, Air Products , Community Transport, CVC Health , Social Care and Well Being Co-ordinator or Broker, CommunityHealth Council ,Occupational Therapist BLF Active or Exercise referral
Appoint officers
When the Chair, Secretary and Treasurer roles are filled you are ready to open your groups bank
account
Help with all your responsibilities is available form the BLF Wales team
BLF Wales Team
Chris MulhollandHead of the British Lung Foundation WalesLorna CrookAdministratorAdrian BaileyDevelopment Officer South Wales Laura TalbotDevelopment Officer for north and mid WalesKate CubbageCommunications Officer
Group Rules & Regulations
Breathe Easy groups are part of the British Lung Foundation, this brings both benefits and responsibilities as the British Lung Foundation is a charity regulated by the Charity Commission (Registered Charity of England and Wales – no. 326730. Charity registered in Scotland – no. SC 03841. )
As part of the charity, Breathe Easy groups must abide by the rules of the British Lung Foundation and the laws governing the charity set out by the Charity Commission. As set out in the:
Breathe Easy Groups’ Handbook
Financial Guidelines
Start-up grant of £250 is available when:
• Officers appointed :Chair, Secretary and Treasurer roles filled• Breathe Easy Group Constitution signed• Regular meeting venue booked• Programme for 6-months set• Bank Account opened