bme health forum end of life care. average number of deaths per year by single year of age
TRANSCRIPT
BME HEALTH FORUM
End of Life Care
Average number of deaths per year by single year of age
0 4 8 12 16 20 24 28 32 36 40 44 48 52 56 60 64 68 72 76 80 84 88 92 96 1001041090
10
20
30
40
50
60
70
80
90
100
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Average number Cumulative percentage of deaths
Num
ber
of
death
s
Cum
ula
tive p
erc
enta
ge o
f death
s
Percentage of all deaths by place of death
2006 2007 2008 2009 2010 2011 2012 2013 2014
-10%
0%
10%
20%
30%
40%
50%
60%
70%
Care Home or HomeHospiceHospital and Other
“End of Life Care”
Commonly used when patients are identified as being likely to die within the next 12 months, including within the next few hours or days.
- Definition is used by the General Medical Council, the National Council for Palliative Care, and The Leadership Alliance for the Care of Dying People
Palliative care
“The active holistic care of patients with advanced progressive illness”.
- National Institute for Health and Care Excellence
BME HEALTH FORUM
The JSNA
Why now? The national agenda
The National End Of Life Care Strategy 2008
NHS England and Department of Health – refresh
NHS England have published their Actions for end of life care 2014-16
National Voices – Every Moment CountsThe Parliamentary and Health Service
Ombudsman – Dying Without Dignity report
The Local Context
Clinical Commissioning Group (CCG) out of hospital strategies: Integrated health and social care, and specialised care planning for people approaching End of Life
CCGs have adopted the Coordinate My Care (CMC) tool to record the treatment and place of death preferences of patients
The JSNA
We have looked at:Hospice data – Trinity and St. John’s (Pembridge
data missing) Deaths in hospitalThe End of Life Care Local Authority profilesEvidence reviewLocal service mappingOffice of National Statistics / Public Health England
dataVOICES survey - experiences of EOLC
Stakeholders
HospicesHospitals Home care servicesGPs Clinical Commissioning GroupsCharities and community organisationsReligious / spiritual organisations
Questions for Discussion today
1. What have been your experiences of EOLC in the UK?
2. What does a good death look like?3. What is the role of the third sector in EOLC?4. What are the BME specific issues around EOLC?5. What barriers might people from BME
communities face to accessing EOLC (Hospices, hospital palliative care teams, district nurses and home care agencies)?
6. How can hospices make their services more accessible to people from BME communities?
