Black, Minority Ethnic and Refugee Communities and Dementia

Reflections from Implementing The National Dementia Strategy in London

David TruswellSenior Project Manager

Croydon22%

Sutton & Merton14%

Kingston 12%

Richmond & Twickenham11%

Wandsworth-2%

Waltham Forest4%

Barking & Dagenham-7%

Redbridge17%

Havering24%

Tower Hamlets-2%

City & Hackney-6%

Newham-1%

Lam

beth

-1%

Lewisham0%

Greenwich12%

Bromley21%

Bexley28%

So

uth

wark

-1%

Enfield18%

Camden18% Islington

0%

Haringey10%

Barnet20%

Healthcare for London

Dementia Increase Projections

2005- 2021

Hounslow 8%

Harrow22%

Hillingdon18%

Ealing8%

Brent24%

Ham

mersm

ith &

Fu

lham

14%

Westm

inster

32%K

& C

54%

KEY

>10%

>1% but <10%

No change or decrease

The scale of changing

dementia care needs across London

Percentage increases in the number of people from black and minority groups with dementia by PCT, 2001 to 2021

Taken from Healthcare for London Dementia Service Guide Appendix1: Needs Assessment (2009)

Financial impactPCT Number of people from

BME groups with late onset dementia in 2001

Estimated number of people from BME groups with late onset dementia in 2021

Total Increase Addtional Annual cost at £48,306 per annum ($)

Total Annual Cost by 2021 at £48,306 per annum ($)

Barking & Dagenham 42 302 260 $12,559,560 $14,588,412

City & Hackney 330 562 232 $11,206,992 $27,147,972

Islington 149 252 103 $4,975,518 $12,173,112

Lambeth 392 631 239 $11,545,134 $30,481,086

Lewisham 235 582 347 $16,762,182 $28,114,092

Newham 337 849 512 $24,732,672 $41,011,794

Southwark 242 557 315 $15,216,390 $26,906,442

Tower Hamlets 266 498 232 $11,206,992 $24,056,388

Wandsworth 266 448 182 $8,791,692 $21,641,088

Central London (Overall Dementia Rate

Declining)

2259 4681 2422 $116,997,132 $226,120,386

London Total 7566 16846 9280 $448,279,680 $813,762,876

UK Average cost of residential care in 2011/12 is $48,306 per annum

Why is this a particular concern for black, minority ethnic and refugee (BMER) communities?

1. In London, home to 45% of the total UK black and minority ethnic population, the numbers of those aged 65 and over in the BMER population are expected to triple between 1991 and 2011

2. Within these broad trends there is projected to be a substantial increase of older people in some BMER populations, notably the Indian and African-Caribbean populations, reflecting historic migration patterns into the capital

3. Lack of awareness as well as social and cultural factors militate against help seeking behaviours in BMER populations, especially for mental health problems

4. There is an expectation of discrimination and/or lack of cultural competence from mental health services by BMER populations

5. There are known predisposing health factors e.g. South Asian and African Caribbean groups are at increased risk of developing vascular dementia - the second most common form of the dementia - due to enhanced levels of diabetes and hypertension

6. Professionals’ assumptions about lifestyle and care giving cultural norms of BMER communities may inhibit help-giving behaviour

7. Use of appropriately standardised diagnostic tools in assessments needs to be considered

Stigma

Factors affecting service access

Information

Access to Services & Support

CommunityEngagement

What would organisations working with dementia in BMER communities like to see?

• Raise awareness that will advise and inform relevant regional and national bodies

• Develop an expert reference group for BMER issues and dementia services for London

• Ensure expertise of BMER communities is recognised and valued

• Improve clarity on accountability structures for commissioners

• Improve the role and financial stability of 4th sector organisations (4th Sector = small BMER grassroots groups that struggle to secure funding)

• Larger 3rd sector organisations need to work more closely with the 4th sector

• Improve promotion of the work of providers who demonstrate good practice

System wide benefits of improving focus on BMER groups

Use of Community Services

A & E access Use of

In-patient Services

Rate of access to Residential Care

Carer Use of Health Services

http://www.facebook.com/pages/Resources-for-Dementia-and-Black-Minority-Ethnic-and-Refugee-Communities/122493921131184

This Facebook Page is to provide a networking and information sharing forum for organisations working to support people from Black, Minority and Refugee communities living with dementia and their carers.

Dementia & Minority Ethnic Communities and Dementia Awareness Project

Working across 6 London Boroughs – Westminster, Harrow, Hillingdon, Barnet, Brent, Enfield, Islington

In partnership with major 3rd Sector organisations – Dementia UK and Alzheimer's Society

Establishing contacts with local community organisations – Culture Dementia UK and Chinese National Healthy Living Centre

Developing locally sourced information material and exploring multi-media platforms

Deliberately eclectic

Contact Details

David Truswell

Senior Project Manager, CNWL

David.Truswell@nhs.netMobile: 0779 258 4253

or via Linked-In