autism & technology: gathering parent wisdom on using...
TRANSCRIPT
Page 1
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with
My name is Sue FletcherWatson, and I am a research psychologist based at Edinburgh University, UK, with a particular interest in the study of autism spectrum disorders and using technology with this group. I am running this online survey to investigate how families use technology to support children with autism at home. Before you proceed, you need to understand why the research is being done and what it will involve for you. Please take time to read the following information carefully. Talk to others about the study if you wish. Contact me if there is anything that is not clear or if you would like more information: sue.fletcher[email protected] This survey will gather information from families who have a child with autism, and who already use technology (e.g. computer games, YouTube, apps) to help entertain, educate and otherwise support their child. The goal is to combine the wisdom of these parents to help provide advice to other parents who are thinking about using technology for the first time, or trying something new. The questions on the next few pages will ask you about • You – your gender, where you live (not full address), your age, your education and work background • Your child with autism – their gender, their age, their diagnosis, and a few general questions about their ability level (e.g. language used etc.) • Your technology – what devices do you own (e.g. desktop PC, iPad, Nintendo DS) and what games, apps and software do you have. • Using technology at home – for example: what games and programs does your child like? How did you choose these particular games instead of others? How much do they play? How do you manage their ‘screen time’? We will not ask for any identifying information – e.g. your name, your full address. Using the survey data, I will be writing a document for parents who are new to using technology with their child, which aims to help them make good choices when selecting hardware, software and managing technology at home. If you want, at the end of the survey, you can fill in your email address to receive a copy of this document when it is completed. Ethics approval has been given by the University of Edinburgh. Copies of their comments are available if you wish to see them just email me at sue.fletcher[email protected] Thank you for taking the time to read this Information. If you are happy to proceed please move to the next page and complete the consent form
1. If you are happy to complete this survey, please complete the consent form by responding to each item:
Information about the person responding to the survey, who should be a parent or guardian of a child with autism (or suspected autism).
2. Please tell us your gender
*
About You, The Parent
I have read and understood the survey information on the previous page
gfedc
I understand that all data collected from this survey will be anonymously coded and stored confidentially and securely
gfedc
I am willing to take part in this research survey
gfedc
Male
nmlkj
Female
nmlkj
Would rather not categorise myself
nmlkj
Page 2
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with3. Please let us know where you live.
4. Please let us know your date of birth
5. How old were you when you left full time education?
6. What is your highest level qualification?
7. Please tell us about your current or most recent employment
This section will ask for a bit more information about your child with autism (diagnosed or suspected). If you have more than one child with autism, please answer all the following questions in reference to whichever of your children uses technology most heavily.
*City/Town:
State/Province:
ZIP/Postal Code:
Country:
DD MM YYYY
Date of birth / /
About Your Child with Autism
High school qualification
nmlkj
Vocational qualification
nmlkj
Undergraduate degree
nmlkj
Postgraduate degree
nmlkj
Professional training
nmlkj
Other (please specify)
professional: e.g. doctor, lawyer, teacher, manager
nmlkj
nonmanual skilled: e.g. typist, police officer, fireman
nmlkj
manual skilled: e.g. toolmaker, foreman, ambulance man
nmlkj
partly skilled: e.g. bus conductor, postman
nmlkj
unskilled: cleaners, porters, messengers
nmlkj
unemployed for the majority of adult life
nmlkj
homemaker
nmlkj
sheltered employment
nmlkj
still in full time education
nmlkj
Other (please specify)
Page 3
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with
8. What is your child's gender?
9. What is your child's date of birth?
10. Does your child have an autism diagnosis?
11. Does your child have additional support needs? For example, a learning disability, or additional diagnosis as well as autism
12. Can your child read?
DD MM YYYY
Date of birth / /
Male
nmlkj
Female
nmlkj
Would rather not categorise them
nmlkj
Yes, autism
nmlkj
Yes, Asperger's syndrome
nmlkj
Yes, PDDNOS (pervasive developmental disorder not otherwise specified)
nmlkj
Yes, Social Communication Disorder
nmlkj
No, awaiting diagnosis
nmlkj
No, autism spectrum disorder suspected
nmlkj
Other (please specify)
55
66
Yes
nmlkj
No
nmlkj
If so, please describe what these are
55
66
Yes, fluently
nmlkj
Just learning
nmlkj
No
nmlkj
Page 4
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with13. What is your child's spoken language level? You can tick more than one option
14. Which computer interfaces can your child use without help?
15. Is there anything else you'd like to tell us about your child?
The following sections will ask you for some information about the hardware and software you use regularly with your child at home. We'll ask you whether your child uses various items of technology including iPads, other tablets,
55
66
About Your Technology
Babbling
gfedc
Word approximations (e.g. Ma for Mummy)
gfedc
Single words (e.g. biscuit)
gfedc
Two words together (e.g. want biscuit)
gfedc
Short phrases (e.g. I want a biscuit)
gfedc
Multipart sentences (e.g. When we get home, can I have a biscuit?)
gfedc
Whquestions (e.g. Why don't we have any biscuits?)
gfedc
Complex grammar (e.g. I don't think I'm going to like this biscuit)
gfedc
Using pronouns appropriately (e.g. he, she, you, me, I)
gfedc
Fluent, adultlike speech
gfedc
Please let us know anything else about your child's language that you think is relevant
55
66
Large touchscreen
gfedc
Small touchscreen (e.g. phone)
gfedc
Mouse
gfedc
Keyboard
gfedc
Touchpad
gfedc
Button / joystick controls (e.g. Playstation)
gfedc
Wii remote
gfedc
Kinect / whole body controls
gfedc
Other (please specify)
Page 5
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withtouchscreen phones, desktop or laptop computers and gamers such as a Wii or Playstation. In each case, if you have regular access to that item (it doesn't matter whether you actually own it yourself e.g. a laptop which belongs to your work) we'll then ask for some more detail about what your child does with that piece of hardware. At the end, there'll be an opportunity to tell us about any technology you use that we haven't already asked about.
16. Does your child have regular access to an iPad at home?
17. On average, how much time does your child spend on the iPad each day?
Information about using the iPad
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Page 6
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with18. What are your child's favourite things to do on the iPad? Please tick all that apply
19. Please list the top five apps or functions that your child uses most often and/or enjoys the most
20. Does your child have regular access to a different tablet device (e.g. Samsung Galaxy, Kindle Fire) at home?
One
Two
Three
Four
Five
Information about using your tablet
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Skype
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Yes
nmlkj
No
nmlkj
Page 7
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with21. Please specify the make of tablet you use.
22. On average, how much time does your child spend on the tablet each day?
23. What are your child's favourite things to do on the tablet? Please tick all that apply
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Skype
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Page 8
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with24. Please list the top five apps or functions that your child uses most often and/or enjoys the most
25. Does your child have regular access to an iPhone or iPod Touch at home?
26. On average, how much time does your child spend on the iPhone and iPod each day? If you have an iPhone and iPod, please just combine the time into one total estimate.
One
Two
Three
Four
Five
Information about using the iPhone or iPod
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Page 9
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with27. What are your child's favourite things to do on the iPhone and iPod? Please tick all that apply
28. Please list the top five apps or functions that your child uses most often and/or enjoys the most
29. Does your child have regular access to another brand of touchscreen phone at home?
One
Two
Three
Four
Five
Information about using the touchscreen phone
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Skype / call people
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Yes
nmlkj
No
nmlkj
Page 10
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with30. Please specify the make of phone you use.
31. On average, how much time does your child spend using the phone each day?
32. What are your child's favourite things to do on the phone? Please tick all that apply
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Skype / call people
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Page 11
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with33. Please list the top five apps or functions that your child uses most often and/or enjoys the most
34. Does your child have regular access to a Blackberry at home?
35. On average, how much time does your child spend on the Blackberry each day?
One
Two
Three
Four
Five
Information about using the Blackberry
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Page 12
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with36. What are your child's favourite things to do on the Blackberry? Please tick all that apply
37. Please list the top five apps or functions that your child uses most often and/or enjoys the most
38. Does your child have regular access to a PC (not Mac) desktop or laptop at home?
One
Two
Three
Four
Five
Information about using a PC desktop or laptop
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Call people
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Yes
nmlkj
No
nmlkj
Page 13
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with39. On average, how much time does your child spend on the PC computer each day? If you have a desktop and a laptop, please combine the time into one total estimate.
40. What are your child's favourite things to do on the computer? Please tick all that apply
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Skype
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Page 14
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with41. Please list the top five apps or functions that your child uses most often and/or enjoys the most
42. Does your child have regular access to a Mac desktop or laptop at home?
43. On average, how much time does your child spend on the Mac computer each day? If you have a desktop and a laptop please combine the times into one total estimate.
One
Two
Three
Four
Five
Information about using a Mac desktop or laptop
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Page 15
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with44. What are your child's favourite things to do on the Mac? Please tick all that apply
45. Please list the top five apps or functions that your child uses most often and/or enjoys the most
46. Does your child have regular access to a Wii at home?
One
Two
Three
Four
Five
Information about using the Wii
Play games / apps
gfedc
Watch downloaded films
gfedc
Watch downloaded TV
gfedc
Watch YouTube (or other online video site)
gfedc
Email / message
gfedc
Skype
gfedc
Listen to music
gfedc
Browse the web
gfedc
Communicate using a AAC app
gfedc
Take photos or films, or look at stored photos and home video
gfedc
Use social media (e.g. twitter, facebook)
gfedc
Read / look at books or newspapers
gfedc
Admin (e.g. calender)
gfedc
Shopping
gfedc
Other (please specify)
55
66
Yes
nmlkj
No
nmlkj
Page 16
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with47. On average, how much time does your child spend on the Wii each day?
48. Please list the top five apps or functions that your child uses most often and/or enjoys the most
49. Does your child have regular access to a Nintendo DS at home?
50. On average, how much time does your child spend on the Nintendo DS each day?
One
Two
Three
Four
Five
Information about using the Nintendo DS
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Page 17
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with51. Please list the top five apps or functions that your child uses most often and/or enjoys the most
52. Does your child have regular access to a Playstation at home?
53. On average, how much time does your child spend on the Playstation each day?
54. Please list the top five apps or functions that your child uses most often and/or enjoys the most
55. Does your child have regular access to an XBox at home?
One
Two
Three
Four
Five
Information about using the Playstation
One
Two
Three
Four
Five
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Yes
nmlkj
No
nmlkj
Page 18
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with
56. On average, how much time does your child spend on the XBox each day?
57. Please list the top five apps or functions that your child uses most often and/or enjoys the most
58. Does your child have regular access to a Kinect at home?
59. On average, how much time does your child spend in Kinect activities each day?
Information about using the XBox
One
Two
Three
Four
Five
Information about using the Kinect
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Yes
nmlkj
No
nmlkj
Has access but doesn't use much
nmlkj
020 mins
nmlkj
2040mins
nmlkj
4060mins
nmlkj
1hr2hrs
nmlkj
2hrs4hrs
nmlkj
4hrs+
nmlkj
Page 19
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with60. Please list the top five apps or functions that your child uses most often and/or enjoys the most
61. Does your child have regular access to a dedicated AAC device (e.g. Dynavox, Liberator) at home?
62. Please let us know the make of device you use.
63. How reliant is your child on this device to communicate?
One
Two
Three
Four
Five
Information about your AAC device
Yes
nmlkj
No
nmlkj
The device is the only form of communication used
nmlkj
The device is the main form of communication, but also uses speech / gesture / signs
nmlkj
The device is a supplementary form of communication but not the main one.
nmlkj
The device is not used very much.
nmlkj
Other (please specify)
55
66
Page 20
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with64. If your child regularly uses any other other forms of technology not covered in the previous questions please let us know a bit more here.
Here we'd like to get some more information about how you use technology at home. These are mostly open questions we would love to hear from you in detail here, but if you are in a rush you can skip anything that isn't relevant to you.
65. How do you feel about your child's use of technology?
Name of device
Type of interface (e.g. touchscreen, mouse, keyboard)
How much time does your child use this device per day?
What does your child use this device for?
Managing technology use at home
Strongly agree Agree Neutral Disagree Strongly disagree
I think my child has benefitted from using technology
nmlkj nmlkj nmlkj nmlkj nmlkj
I worry about how much time my child spends using technology
nmlkj nmlkj nmlkj nmlkj nmlkj
I am pleased with the range of technologies my child can access
nmlkj nmlkj nmlkj nmlkj nmlkj
I have had problems with my child being obsessed with technology
nmlkj nmlkj nmlkj nmlkj nmlkj
I think my child is skilled at using technology
nmlkj nmlkj nmlkj nmlkj nmlkj
Technology prevents my child from interacting with other people
nmlkj nmlkj nmlkj nmlkj nmlkj
Technology has made my home life easier
nmlkj nmlkj nmlkj nmlkj nmlkj
I would get more technology for my child if I could afford it
nmlkj nmlkj nmlkj nmlkj nmlkj
I find it hard to choose the right games or activities for my child
nmlkj nmlkj nmlkj nmlkj nmlkj
I think it is important to supervise my child while (s)he plays with technology
nmlkj nmlkj nmlkj nmlkj nmlkj
Page 21
Autism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology withAutism & Technology: gathering parent wisdom on using technology with66. How did you choose the hardware your child uses? e.g. best for autism, recommended by a friend, affordable, etc.
67. How do you choose the software (e.g. apps, games) your child uses? e.g. Friends' recommendations, online reviews, trial and error, my child chooses
68. Have you had to develop ways to manage your child's screentime? e.g. limited to certain times of day, maximum per day, just as a reward, I don't restrict him/her
69. Please tell us any other major positives or negatives you have encountered while using technology with your child.
70. Is there anything else you would like to tell us?
Thank you so much for taking the time to complete this survey. Your responses will be combined with those of other parents from all over the world to help us provide guidance to families who are new to using technology to support their child with autism. If you have any questions you can contact me at: sue.fletcher[email protected]
71. If you would like to receive a copy of the final report when the research project is completed you can enter your email address below. This will not be used for any other purpose.
55
66
55
66
Final page nearly there!
55
66
55
66
55
66
Thank You!