at the heart of the dialogue improving the patient - professional interaction in decision making...
TRANSCRIPT
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At the heart of the dialogue
Improving the patient - professional interaction in decision making
Janneke Elberse Msc, [email protected]
Athena InstituteVrije Universiteit Amsterdam
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Introduction
Current situation in the Netherlands
– Bottom up– Individual projects– Slowly more involvement government
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Patient participation project
Different initiatives have taken place • Diabetes Foundation• Burn Foundation• Asthma Foundation
Identify and prioritize research topics
Partnership is created between different stakeholders
Special attention for care user group
Dialogue meeting
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Project Heart Foundation
Partnership Shared research agenda Short time span
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Project Heart Foundation
1. Preparation-Initiation
phase
Desk study
Formation “Partnership”
2. Consultation phase
3 focus groups33 parents
3 group interviews7 youngsters
18 interviewsChild cardiologists
5 group interviews21 adolescences
Fee
dbac
k P
artn
ersh
ip
3. Integration-prioritizing
phase
Dialogue Meeting
9 patients18 relatives
13 child cardiologists
4. Analysisphase
Results analyses
Evaluationparticipants
1. Preparation-Initiation
phase
Desk study
Formation “Partnership”
2. Consultation phase
3 focus groups33 parents
3 group interviews7 youngsters
18 interviewsChild cardiologists
5 group interviews21 adolescences
Fee
dbac
k P
artn
ersh
ip
3. Integration-prioritizing
phase
Dialogue Meeting
9 patients18 relatives
13 child cardiologists
4. Analysisphase
Results analyses
Evaluationparticipants
![Page 6: At the heart of the dialogue Improving the patient - professional interaction in decision making Janneke Elberse Msc, Ma Janneke.elberse@falw.vu.nl Athena](https://reader035.vdocuments.us/reader035/viewer/2022070402/56649f265503460f94c3de57/html5/thumbnails/6.jpg)
Dialogue meeting
Presentation Care users’
perspectives
Reflection presentation
by PO
Work sessionProblem→
Research topic
Plenary feedback
Work session
Dialogue research topic list
Prioritizing and mutual
understanding
Reflection presentation
by expert
Presentation experts’
perspectives
Dialogue meeting
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Dialogue meeting Asymmetrical relation between care users and researchers Inclusion strategies applied
Project Heart Foundation
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Project Heart Foundation
Outcomes Clear research topics Participants very enthusiastic Mutual respect created
but Researcher based research topics Inclusion /exclusion care users’ perspectives
Behaviour Verbal interaction
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Identified obstacles
Asymmetrical relation between stakeholder groups leads to exclusion
Lack of sense of urgency
Care users not empowered enough to speak up
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Recommendations
How to improve the dialogue between care users and researchers?• Decrease asymmetry • Increase visibility• Empower care users• Select care users/ researchers• Increase coherency
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Conclusion
Dialogue was a first step in the right direction!
but
Improvement is needed!