arc of illinois webinar - thearcofil.org · wife driver mom cook sister referee advocate daughter...
TRANSCRIPT
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PATH To Real Person-Centered
Solutions
Arc of Illinois WebinarFebruary 11, 2020
Kish Pisani, Executive DirectorIllinois Association of Microboards and Cooperatives
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Wife DriverMom CookSister RefereeAdvocate DaughterCoach LearnerDog Mom Friend
Executive DirectorIllinois Association of Microboards & Cooperatives
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Live Stream….
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Our PATH for this webinar….
Person Centered Planning
Tools
Microboards and
Cooperatives
Your PATH
What is IAMC
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What is the Illinois Association of Microboards & Cooperatives (IAMC)?
Our mission is to promote and facilitate the development of Microboards and Cooperatives for the benefit of individuals with disabilities so that they may live fulfilling lives as valued members of their communities.
We carry out this mission by providing information, advocacy, support and training that will assist persons with disabilities and their families/friends to create alternatives that will allow the persons to live self-directed lives through the use of person-centered planning, community supports, and resource management.
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What is the Illinois Association of Microboards & Cooperatives (IAMC)?
Our vision is every person empowered to live a quality life, included in and valued by their communities.
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8
Everyone. Has unique gifts and talents to share.
Everyone deserves dignity, respect and the opportunity for choice with responsibility..
Everyone deserves the right to live in the home of their choice and to have control over their own environment.
Everyone deserves the opportunity to try, to fail, to learn from unsuccessful attempts, and to try again.
Everyone has something to say and deserves the right to be heard by their own means of expression.
Everyone deserves the opportunity to make meaningful contributions to their community through income-producing work, volunteering
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First…..
How to Build a PATH
Start with a solid foundation….
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Person-Centered Thinking is….
Ø Everyday way of thinkingØ Puts the person first (let’s change the language)Ø Focus on a person’s gifts and talents – and acknowledges a
need for supportØ Impacts now and….Ø Foundation for the future and action plans
NOT about functioningNOT about programs or program basedNOT about letting a person “get their way”
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Person-Centered Planning is
A process that uses creative facilitation tools to assist a focus person in development a plan on how they wish to live, work, and contribute to their community while making a plan to make it happen.
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Person-Centered Planning is NOTØ A one-shot meetingØ A form to completeØ Program basedØ A quick fixØ A guarantee for successØ A mandateØ An IEPØ A Personal PlanØ All about outcomes and measurementØ All about barriers and risk factorsØ About daily living skills
NOT
Real
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Person-Centered Planning asks….
HOW CAN THIS PERSON SHOW UP IN COMMUNITY LIFE AS A VALUED FRIEND
AND CONTRIBUTING CITIZEN?
Real
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Dr. Martin Luther King, Jr. said –
“I have a dream.”
He did not say –
“I have an annual plan and quarterly goals and objectives.”
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Person-Centered Planning is not Centered on the SYSTEM!
”Official” Personal Plan in Illinoisü 11 pages of blah, blah, blahü No mention of hopes or dreamsü System Goalsü Outcomes ü Barriersü Positive remarks on life skills
(yay, he can microwave pizza)
Real
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Person-Centered Planning Approaches or Methods
Service-Defined Plans
Ø Individual Education Plan (IEP)Ø Family Support PlanØ Individual Service Plan Ø Treatment Plan Ø Personal Plan (Illinois through ISC, when selected from PUNS list)
Yes, these tools are required, but what if…..
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Person-Centered Planning Approaches or Methods
MAPS (Making Action Plans)
Circles of Support/Relationship
PATH (Planning Alternative Tomorrows with Hope)
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Circles of Relationship
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Circles of Relationship
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Circles of Relationship
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Circles of Relationship
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Circles of Relationship
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Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST
Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST
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Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST
Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST
FRIENDS
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Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST
Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST
FRIENDS
CLUBS, TEAMMATES, ORTHERS IN IDD COMMUNITY, CO-WORKERS
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Circles of Relationship”INNER CIRCLE” NEAREST & DEAREST
Circles of Relationship ”INNER CIRCLE”NEAREST & DEAREST
FRIENDS
CLUBS, TEAMMATES, ORTHERS IN IDD COMMUNITY, CO-WORKERS
PAID-DOCTORS, DSPs, STAFF, CAREGIVERS, BARBER, SUPPORT STAFF, TEACHERS
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Circles of Support
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Circles of Support
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Circles of Support
The Star Raft TM
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Circles of Support
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MAPS (Making Action Plans)
A (graphic) planning process for people and organizations that begins with a story – the history.
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MAPS (Making Action Plans)
MAPS asks:
What gifts can you bring that express
your highest potential and build your community?
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MAPS (Making Action Plans)
1. Hear the STORY2. Honor the DREAM3. Recognize the NIGHTMARE4. Name GIFTS-5. Say WHAT IT TAKES to receive the Gifts6. Agree on Action
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MAPS (Making Action Plans)
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Why the Imagery?Ø Not about art, but about communicationØ We don’t think and dream in wordsØ Recording and sharing uses more of our
brainsØ Think back in history days!Ø What do you remember most, individual
words or imagery?Ø Think about historyØ Does NOT mean words can’t be used
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Why the Imagery?
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Why the Imagery?
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Why the Imagery?
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PATH (Planning Alternative Tomorrows with Hope)
PATH is a creative planning tool that uses both process and graphicfacilitation to create a shared vision of a positive future for individuals,families, teams and whole organizations
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PATH (Planning Alternative Tomorrows with Hope)
PATH draws on people’s capacities to imagine different futures, & to think backwards from a future possibility & tell fruitful stories about how that possibility might come to be.
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PATH (Planning Alternative Tomorrows with Hope)
Identify a North Star and focus on the future
Then…
Backtrack on how to get there using circle members, strengths, and next steps
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PATH (Planning Alternative Tomorrows with Hope)
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PATH (Planning Alternative Tomorrows with Hope)
Ø A PATH is not a Service PlanØ A PATH is not defined or limited by an agency, school or
program
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PATH (Planning Alternative Tomorrows with Hope)
“When it is thoughtfully undertaken, it offers a broad view of the person’s vision for their own life, a vision sometimes developed in collaboration with friends and family members, especially when people have great difficulty communicating”
– Dave & Faye Wetherow
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PATH (Planning Alternative Tomorrows with Hope)
PATH asks:
What can happen because of you and your allies that will
make your life better and build your community?
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PATH (Planning Alternative Tomorrows with Hope)
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Implementing
Person-Centered Solutions
Person-Centered Thinking & Planning
Person-Centered ToolsCircles of Support. | MAPS | PATH
Person-Centered Organizations
• Microboards• Cooperatives• Supported Decision Making• Supported Living• Employment – Supported, Customized, Competitive
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Implementing
Ø Customized Employment – Discovery ProcessØ Creative Housing Ø Supported Decision MakingØ Sibling SupportØ Long-Term PlanningØ Estate Planning
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Implementing
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Implementing
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IAMC’S Person-Centered Solutions
NOT A ”PLACE”
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Microboards What is a Microboard?Ø A formalized Circle of SupportØ Serves one personØ Small (Micro) Board of Directors
created to support the person with the disability
Ø A non-profit corporation (not charity)
Ø A think tank
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
Who’s “On” the Microboard?
Think back to Circles of Support!Ø The person with a disability (focus person)Ø FamilyØ FriendsØ Former teachers/employersØ Co-workersØ Most Microboard members are developed from PATH
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
What does a Microboard do?
ØMicroboard members share their status in the community with the individual by serving on their board.
ØMicroboard members develop a deep knowledge of the individual’s needs, desires, wishes and dreams.
ØMicroboards form a commitment with the individual and their family they support to carry out their work in ways that promote inclusion and self-determination.
ØMicroboards serve as a safeguard for quality supports and fiscal accountability.
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
IAMC’s Role
Ø Start with PATH pre-facilitation coaching and facilitationØ Microboard development – select membersØ Train board members-board developmentØ Assist with bylaws, Board Development, non-profit applicationØ IAMC “member” benefits like Zoom, other resourcesØ Attend meetings
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
Options with Waiver Funding (HCBS) Home and Community Based Services
Home Based Waiver
Go through agency to provide Personal Support WorkerSelf-Directed – you do the hiring, coordination
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
Options with Waiver Funding CILA (Community Integrated Living Arrangement) Funding
1. Agency CILA – traditional model through an agency
2. Own/Rent your own home and have CILA services come to your home through the agency
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
Can a Microboard be my Service Provider Agency?
If have HBSW – Microboard itself can NOT be provider agency. It can assist in managing PSWs, but not pay the PSWs.
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Microboards What is a Microboard?
Ø Serves one personØ Small (Micro) Board of DirectorsØ A non-profit corporation (not
charity)Ø A think tank
Can a Microboard be my Service Provider Agency?• If have CILA funding – Microboard CAN become a licensed
CILA provider. • The microboard will act as the provider of CILA services by
hiring, firing, managing, and paying DSPs. • The process of becoming a licensed CILA provider is quite
cumbersome and complex. • If your microboard does become your CILA provider, you will
own or rent your own home, and it will not be subject to licensing requirements.
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Cooperatives What is a Cooperatives
Ø Sometimes called: “Self Directed Support Corporations”
Ø Not-for-Profit organizationØ Created by three or more
unrelated individuals or their families who come together to share services
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Cooperatives
80% of the Board of Directors must be individuals with disabilitiesWhat does a Cooperative do?
Ø Plan activities for members to have fun together - like movie nights, bowling, etc. plan activities for members to explore jobs – like visiting a pizza parlor, grocery store, vet clinic, etc. to learn about jobs there.
Ø Hire someone who can help members find jobs in the community (if the Cooperative has money)
Ø Coordinate members who have Home Based Support Services to share Personal Support Workers so that everyone has regular workers and substitute workers when needed.
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Cooperatives
A Cooperative brings together individuals who use services and their families, empowering them to direct and control the services they need.
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Cooperatives
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Cooperatives
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Cooperatives
IAMC’s Role
Ø Help organizeØ Facilitate an
organizational PATHØ Assist with bylaws, Board
Development, 501c3 application
Ø Support along the way!
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Your PATHWhat we do –
Ø PATH + MAPS + CIRCLE FACILITATIONØ Organizational PATHØ Microboard DevelopmentØ Cooperative DevelopmentØ PresentationsØ Monthly WebinarsØ Training
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Your PATH
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Become a PATH + MAPS Facilitator
ü Educatorsü Parentsü Siblingsü Advocatesü Friendsü Case Managersü Therapistsü Coaches
PATH + MAPS Facilitator Training is for:
Anyone interested in learning a creative, dynamic, exciting, visual and transformative tool for authentic and real Person-Centered Planning
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Become a PATH + MAPS Facilitator
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Contact Information
Kish Pisani
[email protected]: 630-632-1965
www.iambc.org
@qualitylives
@IllinoisAMC
@illinoisamc