C/ Sol, 26 (Apartado de Correos 189), 14500. Puente Genil (Córdoba).España www.tourette.es www.psicotourette.com

saludjurado@hotmail.com

RESULTS

• Increase of abilities and psycho-social resources for: ȃ Facing stress and conflict resolution in different circumstances. ȃ Decrease Anxiety and Depression in children with TS and their parents. ȃ More Participation in activities of integrative recreation. ȃ Obtaining Disability Certificates.

• Involvement of the educational community (schools, high schools, universities) to attend the needs of students with TS.

• Spaces for TS awareness and education.

METHODS

Live and on-line activities, free of charge to participants:

• Psychological cognitive-behavioral interventions for children and adults with TS. ȃ Workshops and individual session.

• Psycho-educational workshops for patients and families.

• Integral Care Service for Students. ȃ Personalized reports. ȃ Counseling to schools, high schools and universities.

• Reports and Legal Counseling for Disabilities Declarations.

• Family relief and integrative recreation.

• Awareness and Education on TS : ȃ Organization of university events and congresses. ȃ Collaboration with studies and research. ȃ Documentation production. ȃ Dissemination on the media and social network.

Evaluation of results:

• Specific registers and questionnaires.• Pre/post Psycho-diagnostic Evaluations. • Annual reporting.

OBJETIVES

To improve the health, quality of life and integration of people with TS, and their families, aiming at improving support and resources necessary to fulfill their rights and needs in different contexts (school, home, work, recreation, care)

and to reduce the impact of stress on tics and other disorders.

LIVING WITH TOURETTE SYNDROME

• A pioneer Program developed over 10 consecutive years by the Interdisciplinary Team of ASTTA.

• General Coordinator : Salud Jurado Chacón, President of ASTTA.

• Beneficiaries: ȃ Directs: People with TS of all ages and their families. ȃ Indirects: Students, voluntary workers, professionals of Educational communities, health and social care services.

• Recognition of the Program: ȃ Incorporated into the Health Promotion Programs and the Manuals for Students with Specific Developmental Needs

Government of Andalusia. ȃ Used as a model for programs for children with Rare Diseases.

• Conclusion: Living with TS Program contributes to increase the psycho-social and educational support to improve the health and quality of life, decrease symptoms and limitations, and improve the integration, visibility and empowerment of people with TS and their families.

Alejandra Frega Vasermanas Diana Vasermanas Brower

Psychologists - Honorary Members of ASTTA

Educational and Psycho-social Intervention Model created by Andalusian Association of Tourette Syndrome Patients and Associated Disorders -ASTTA -

“Ten years experience of the Living with Tourette Syndrome Program”

1st World Congress on Tourette Syndrome & Tic Disorders