annual report and accounts 2016/17

ANNUAL REPORT AND ACCOUNTS 2016/17

ACCOUNTS Year ended 31 March 2017

The Encephalitis Society is the operating name of the Encephalitis Support Group Registered Charity Number: 1087843

Charitable Company registered in England and Wales Number: 04189027

Annual Report and Accounts 2016/17 3 2 Encephalitis Support Group (Operating as the Encephalitis Society)

CONTENTS

PAGEDIRECTORS’ AND TRUSTEES’ ANNUAL REPORT Company Information .............................................................................................................................................................................. 4Charity Objectives ........................................................................................................................................................................................6Chair’s Report .................................................................................................................................................................................................8Achievement and Performance ........................................................................................................................................................10Structure, Management and Governance .................................................................................................................................. 14Financial Review and Policies ............................................................................................................................................................ 16Responsibility of Trustees .......................................................................................................................................................................17

INDEPENDENT EXAMINER’S REPORT ..................................................................................................................................... 19

STATEMENT OF FINANCIAL ACTIVITIES AND INCOME AND EXPENDITURE ACCOUNT ...................20

BALANCE SHEET ....................................................................................................................................................................................... 21

STATEMENT OF CASHFLOWS ........................................................................................................................................................ 22

NOTES TO FINANCIAL STATEMENTS ................................................................................................................................ 23–35

Encephalitis Society thank you for your support in 2016/17 which means people affected by encephalitis received the expert support and advice they so desperately need. To find out more about our life-saving support activities and research work and learn more about how to get involved, please visit [email protected]

OUR ADVISORS

INDEPENDENT EXAMINER:

Adrian Rodaway, BA, FCA, DChA HPH Chartered Accountants 54 Bootham York YO30 7XZ

SOLICITORS:

HAGUE & DIXON Bank House 1 The Square Stamford Bridge York YO41 1AG

BANKERS:

CAF BANK HSBC 25 Kings Hill Avenue 27 Market Place West Malling Malton Kent YO17 7LU ME19 4JQ

INVESTMENTS:

REDMAYNE-BENTLEY LLP 9 Bond Court Leeds LS1 2JZ

COMPANY INFORMATION

TRUSTEES’ REPORT

The Trustees present their Annual Report with the financial statements of the charity for the year ended 31 March 2017.

REFERENCE AND ADMINISTRATIVE DETAILS

FULL NAME OF CHARITY: Encephalitis Support Group (operating as the Encephalitis Society)

COMPANY REGISTRATION NUMBER: 04189027

REGISTERED CHARITY NUMBER: 1087843

REGISTERED OFFICE OF THE CHARITY: 32 Castlegate, Malton, North Yorkshire, YO17 7DT

Annual Report and Accounts 2016/17 54 Encephalitis Support Group (Operating as the Encephalitis Society)

DIRECTORS AND TRUSTEES

The Directors of the charitable company (the charity) are its Trustees for the purposes of charity law. The Trustees and officers serving during the year and since the year end were as follows:-

APPOINTED RESIGNED

Tim Spring CHAIR October 2007

David Ripper SECRETARY November 2012

Leigh Palmer TREASURER March 2001

Trystan Jones November 2013 January 2017

Dr. Benedict Michael November 2013

Caroline MacIntosh November 2014

Adele MacKinlay January 2015

Andrew Vander Meersch CHAIR July 2016 February 2017

Fiona Twycross July 2016

COMPANY SECRETARY: David Ripper

CHIEF EXECUTIVE OFFICER: Dr. Ava Easton, PhD

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CHARITY OBJECTIVES C

OUR PURPOSE AND ACTIVITIES


OUR OBJECTIVES By 2027 we aim to:• annually raise over £5 million from a diverse range of sustainable and ethical sources• have 50% of the general population aware of encephalitis in 10 countries• be meeting the individual needs of 80,000 people our support services• fund four internationally based research studies• be the go-to organisation for over 100,000 professionals worldwide.

OUR VALUES Our core beliefs as a charity, shape our culture and reflect our work.

PASSIONATE We are passionate about what we do and the difference this makes in the lives of others.

EMPOWERING We empower people to access support and together we find meaningful solutions to their difficulties.

TRUST We are talented experts, informed by medical professionals and inspired by people who experience encephalitis.

TRANSPARENT We will be open, honest and transparent in our decision making and how we deal with people.

ACCESSIBLE We make it easy for people to access information about our work and the services we provide. We connect people together to share experiences and support each other.

LISTENING We help people reach a better understanding of encephalitis, their situation and the options open to them.

OUR VISION is a world aware of encephalitis, its consequences and the support available.

OUR MISSION is to increase global awareness of encephalitis, saving lives and building better futures.

OUR AIM is to improve the quality of life of all people affected, directly and indirectly, by encephalitis by:• providing support and information

• raising awareness

• promoting and collaborating on research.

I HAVE SEEN A

REMARKABLE TRANSFORMATION

OF THE CHARITY

“The Board of Trustees is pleased to be able to report on another successful year. However, whilst we remain confident in our ability to support people affected by directly and indirectly by encephalitis, we should acknowledge that 2016/17 has been a difficult year for the charity sector and few charities have not been adversely affected by the challenging economic climate and the increasing regulation.

During my time with the Society, I have seen a remarkable transformation of the charity and am proud that our strategy is now evidence based, well informed and focussed on achieving our vision of a world aware of encephalitis and the support available. As the encephalitis experts, we are continuing to reshape our work to achieve a more effective and efficient organisation and are committed to moving forward.

Our flagship awareness campaign, World Encephalitis Day on February 22, 2017 reached over 40 million people through traditional and social media and saw more than 50 global landmarks and buildings lit red. Buildings which were illuminated included Niagara Falls, the Millennium Bridge in Gateshead, the fountains at Trafalgar Square, Triplet Bridges in Bolivia, the Fountain of Two Rivers in Modena, Italy, the Swan Bell Tower, Perth, and Blackpool Tower.

Thank you to all our volunteers and staff for their dedication and commitment. We are also so very fortunate to have an amazing group of supporters, including members, trusts, corporate supporters and medical professionals whose generosity makes our life-changing work possible.

I end my welcome on a truly positive and exciting note. Although not in this financial reporting period I am proud to announce that the Encephalitis Society are now ‘Charity of the Year: with an income of under £1 million’. We won this award at the Charity Times Awards 2017 and this recognition by our peers means the world to our passionate team who go the extra mile to help people affected every day.

I am proud to be Chair of this amazing organisation and look forward to continuing our journey in 2017/18.”

Tim Spring

Chair


CHAIR’S REPORT C

ACHIEVEMENTS AND PERFORMANCE


WHAT IS ENCEPHALITIS? Encephalitis is inflammation of the brain usually caused by infection or by our own immune system erroneously attacking the brain. Encephalitis is indiscriminate showing no respect for age, sex, nationality or culture. It is estimated there are in the region of 500,000 people a year across the globe are affected with the often deadly brain inflammation (Jmor, et al, 20081) – one person every minute. Capture–recapture models suggest an incidence of encephalitis, in England alone, to be 5.23 cases/100,000/year, although the authors suggest the models’ indicated incidence could be as high as 8.66 cases/100,000/year (Granerod et al, 20132). This intimates that the incidence of encephalitis is considerably higher than previously estimated, and could result in up to 6000 new cases per year in England alone – 16 cases every day. Therefore, Encephalitis should be a greater priority for clinicians, researchers, and public health officials.

Mortality remains high (10-30%) even with treatment (Chaudhuri and Kennedy, 20013). With improvements in drug therapy and intensive care treatments more people are surviving than in the past. This means that many people are left with an acquired brain injury, the degree and severity of which will vary. People often have cognitive, physical, emotional, behavioural and social problems because of encephalitis.

The brain injury that follows is often a hidden disability which can be, among other things, responsible for mental health issues, family breakdown, loss of employment, education, independence, confidence and self-esteem. The nature of such a hidden disability often means people’s needs are not met or recognised. Specialist clinical, therapeutic, rehabilitative interventions and support are needed to help the person adjust to, and cope with, such difficulties. Families also provide a major part of the care needed. This is sometimes to the detriment of their own lives resulting in stress and associated disorders, family breakdown, and social isolation.

WHAT DO WE DO? The Encephalitis Society reaches out internationally and is the only organisation of its kind in the world dedicated to supporting people affected. The Society provides support and information to all people affected by encephalitis, directly or indirectly, and to a variety of professionals and organisations from health, social care and education. In a 2014 evaluation, part of our support service was described as

“…highly valued by all that use it”

Our support is provided via telephone, email, Skype, online chat, social networking, letters or meetings.

“This information will go a long way…. most people have no idea about this. They were faced with a situation they could not handle…our burden has been lightened from the first day of contact with the Encephalitis Society”. J, Member

We organise weekends for children and young people, families, and adult retreats, as well as regional meetings for support and information. These opportunities enable people to get together in a supportive environment.

“I literally cannot speak highly enough for the help that we have received in a relatively short space of time from the Encephalitis Society. Having just returned from a family weekend at Bendrigg, I’m completely humbled by the level of care and attention that everyone received as well as amazed by the sheer awesomeness of each and every family in attendance. Five stars does not do you guys justice, each and every one of you are absolute legends! Thank you from the bottom of our hearts ” Nick, Encephalitis Society Member

We have also developed a global volunteer scheme called Team Encephalitis and in year one we have recruited and trained 48 volunteers, of which over 10 are international. Our volunteers specialise in helping us achieve our core objectives of support, information and awareness.

KEY FIGURES IN NUMBERS

INCOME £692,186EXPENDITURE £619,592

NET INCOME BEFORE INVESTMENTS £72,594UNRESTRICTED RESERVES £174,571

(as recommended by New Philanthropy Capital)

76% of our expenditure was spent on our charitable objectives.

So for every £1 donated 76p was spent on Support, Awareness and Research.

SUPPORT• Our membership grew to 10,615 with members in over 60 countries.

• We held events with over 967 people connecting with one another reducing isolation and increasing confidence.

• We had 1516 contacts through our support service and neuropsychology service directly.

• We launched Dr Ava Easton’s book ‘Life After Encephalitis’ to critical acclaim including from The Lancet Neurology.

AWARENESS

• We had 14,254 followers on our social media accounts.

• World Encephalitis Day – 22nd February reached over 40 million people in more than 180 countries.

• Our website was used by 122,647 people from over 60 countries with 382,019 pageviews in total.

RESEARCH

• We participated and collaborated in over 19 research studies including two Randonmised Control Trials.

• We launched a call for our own PhD fellowship into recovery and rehabilitation and subsequently partnered with the University of Liverpool.

• We held an Encephalitis Conference for Medical, Scientific, and Academic professionals with 85 attendees.

1 Jmor, F., Emsley, H., Fischer, M., Solomon, T. and Lewthwaite, P. 2008. The incidence of acute encephalitis syndrome in Western industrialised and tropical countries. Virology Journal, 5, 1-13

2 Granerod, J., Cousens, S., Davies, N. W. S., Crowcroft, N. S. and Thomas, S. L. 2013. New estimates of incidence of encephalitis in England. Emerging Infectious Diseases, 19, 1455-1462.

3 Chaudhuri, A. and Kennedy, P. G. E. 2001. Diagnosis and treatment of viral encephalitis. Postgraduate Medical Journal, 78, 575-583

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The Encephalitis Society has a comprehensive resource of evidence-based information comprising factsheets, books, booklets, leaflets, DVDs and newsletters. This information is available in hard copy and also electronically from the Society’s website www.encephalitis.info. In addition, our information is disseminated in various other ways such as speaking at, and exhibiting material at, a range of conferences and events. 2016/17 saw the continuation of our pioneering dedicated adult neuropsychology in-house service, offering our first clinical service to our members.

The Society works on raising awareness through arranging conferences, workshops and seminars for professionals, providing tailor-made training packages for health, education and social care professionals and establishing links to, and collaborations with, other organisations. In addition, the launch of World Encephalitis Day on 22nd February in 2014 has seen the Society reach millions of people annually. In February 2017 we reached over 40 million people with our #Red4Wed campaign that saw buildings and monuments lit up red across the world.

Prior to this Century, research into encephalitis lagged behind that of other diseases. Encephalitis was seen as a relatively rare condition, about which little could be done. The Encephalitis Society has striven to change this and is proactive in the field of research, particularly in respect of its outcomes and social consequences which, unlike the medical and psychological fields, has remained of secondary importance.

We promote, conduct and assist with research into encephalitis by appointing leading medical and health care professionals to the Society’s Scientific Advisory Panel, conducting research and working in partnership with other researchers and research institutions. The Society also awards grants for research into encephalitis and holds annual competitions for interested medical students, junior physicians, and researchers.

“In my own field of brain injury rehabilitation the patients most frequently referred for cognitive rehabilitation are those with traumatic brain injury but after that the diagnostic group most seen are survivors of encephalitis.” Professor Barbara A Wilson, OBE

The Society works in partnership with other neurological charities at national level to address concerns and campaign for improved services. Dr Easton is an Honorary Fellow at The University of Liverpool, and an Ambassador for The European Brain Council. We work closely with other organisations, for example The Child Brain Injury Trust, The International Encephalitis Consortium, The Autoimmune Encephalitis Alliance and The Lancet Neurology. The Society also provides data for, and consultation on, a range of national initiatives.

The Society is considered a key player in the field of brain injury and a foremost expert in encephalitis and its consequences. Professor Angela Vincent, University of Oxford recently stated:

“I work with many charities but the work you do is incredible”.

FUTURE PLANS The past two decades has demonstrated to us that encephalitis is a complex syndrome and often the first indicator of new and emerging infections. In recent years it has been shown that in-depth laboratory testing can reduce the rate of ‘unknown’ encephalitides drastically and that in many cases these ‘unknowns’ are rare forms of auto-immune encephalitis. This combined with fears that global warming and continued globalisation will result in the spread of various types of encephalitis – the recurrent epidemics of West Nile virus throughout the United States and more recently other infections such as the Zika virus are beginning to be reported as having links to a range of neurological sequelae, including encephalitis, being cases in point. It then becomes clear that the work of the Society is far from over and demands for our services are likely to increase. Our strategic plan is our handbook to prioritise our work, whilst also enabling us to clearly report upon not only the outcomes of our work, but also the impact they have for our beneficiaries and people affected by encephalitis throughout the world. It is reviewed and revised annually.


ACHIEVEMENTS AND PERFORMANCE CONTINUED

GOVERNING DOCUMENT The Encephalitis Support Group registered as a charity on 25 February 1995. On 28th March 2001, it was incorporated as a company limited by guarantee and re-registered with the Charity Commission on 2nd August 2001. On 27 May 2003 it began operating as the Encephalitis Society. It is governed by its Articles of Association which were amended and adopted in November 2016.

TRUSTEES The Board of Trustees is responsible for the overall governance, policy and strategic direction of the Society. The Board meets four times a year with the Senior Management Team. The Trustees are volunteers and many have personal experience of encephalitis. The Board recruits to skills-gaps whereby professionals and others with an interest in encephalitis who can meet those areas of need, are invited to take a Board position.

Dr Ava Easton is the Chief Executive of The Encephalitis Society, having worked for the Society and in the field of encephalitis since 2000; Phillippa Chapman, Director of Operations since 2012 and Julia Clark Director of Income Generation (new position in 2016). Together they make up the Senior Management Team. You can see the full Board of Trustees and Staff Team here: www.encephalitis.info/Pages/Category/our-trustees

RECRUITMENT AND TRAINING OF THE TRUSTEESProspective Trustees initially attend Board meetings as observers. Along with a Trustee buddying system, each new Trustee is provided with access to an online induction microsite which includes briefings on key responsibilities, objects of the Society and its vision and mission, the structure and workings of the Society, its staff and volunteers. The Society organises a one-day training event each year for all the Trustees to update their knowledge about their role and responsibilities as charity Trustees and Company Directors. The Trustees also attend conferences, seminars and other related learning opportunities.

Due to the limited number of interested specialists in encephalitis the Board have agreed that Trustees can remain on the Board, following a review at Board level, for over nine years. We currently have two Board members that fall into this category.

All Trustees, Staff, consultants and volunteers undergo a Disclosure and Barring check at an Enhanced Level.

PAY POLICY FOR SENIOR STAFFThe Trustees and Senior Management Team comprise the key management personnel of the charity in charge of directing and controlling, running and operating the charity on a day to day basis. All Trustees give their time freely and no Trustee received remuneration in the year. Details of Trustees’ expenses and related party transactions are disclosed in Note Nine to the accounts. The pay of staff is reviewed annually and normally increased in line with average

earnings. The Trustees have bench-marked against pay levels in other comparable organisations to ensure that pay levels are fair.

MEMBERS OF THE MANAGEMENT COMMITTEE Members of the management committee, who are directors for the purpose of company law and Trustees for the purpose of charity law, who served during the accounting period and up to the date of this report are set out on page four.

RELATED PARTIES None of the Trustees receive remuneration or other benefits from their work with the charity. Any connection between a Trustee or Senior Manager of the charity with a contractual relationship to a related party must be disclosed to the full Board of Trustees. In the current year no such related party transactions were reported.

EMPLOYEES The Encephalitis Society has a staff of 7 full time (37 hours per week) and 4 part-time (ranging from 20 to 30 hours per week) employees (9.8 full-time equivalents). The Encephalitis Society aims to be an organisation where employees enjoy working and feel supported and developed. The Society makes contributions of 6% to a pension scheme for all its employees and supplies all its driver-employees with a free local parking permit. The Society also provides access to an Employee Assistance Programme. The Society aims to deliver positive programmes for training and personal development for its employees,

with the objectives of maintaining high standards of service provision and opportunities for employee development. Employees are kept fully informed about and involved in the Society’s strategy and objectives.

VOLUNTEERS The Society has 4 regular office volunteers who help with administration and office maintenance and a further 84 active volunteers (including Ambassadors, Vice Presidents, Professional Panel and Team Encephalitis Volunteers). The Society values the volunteers and their work, and has dedicated volunteer policies in order for the volunteers to feel safe and appreciated while volunteering for the Society. Training opportunities are available to the volunteers and opportunities for the staff and volunteers to mix and feel part of the same team have been created.

ENCEPHALITIS SOCIETY SCIENTIFIC ADVISORY PANEL An expert Scientific Advisory Panel provides the Society with professional resources. Members of the Panel include highly regarded experts from neurological, neuropsychological, neuropsychiatric, neuro-immunology, paediatric, therapeutic and other relevant fields. The Panel meets annually to exchange information and progress research initiatives. Members of the Panel also assist with enquiries of a complex clinical nature.

VIPS/AMBASSADORS We are very privileged to have as our President Professor Barbara Wilson, OBE. Professor Wilson is joined by six Vice-Presidents: Richard Lockwood, Baroness Anne McIntosh of Pickering, Kika Markham, Tom Naylor-Leyland, and Tiggy and Robert Sutton. Our Ambassadors are actor and artist Mathew Bose, Double Olympic gold-medal winning swimmer Rebecca Adlington OBE, Features Editor at The Guardian Simon Hattenstone, BBC News Presenter, Charlotte Leeming, Presenter and Author, Tonia Buxton and two International Ambassadors, New York Post Journalist and Author of Brain on Fire, Susannah Cahalan, and Soprano and Britain’s Got Talent semi-finalist, Aliki Chrysochou. These appointments and support can help us in drawing attention to a condition which has a devastating effect on the lives of those it touches.

WORKING WITH CORPORATES The Encephalitis Society receives support from a range of pharmaceutical and other companies with an interest in encephalitis as part of a diverse fundraising strategy involving people fundraising for us and people donating their own money, together with support from charitable trusts. The support provided by companies has made an important contribution to our work on behalf of people affected by encephalitis. To see our corporate partner visit: www.encephalitis.info/meet-our-corporate-partners. The Encephalitis Society is committed to upholding our reputation of independence, impartiality and transparency in all that we do. We recognise the importance of working collaboratively with all

stakeholders to ensure we do our best to meet the needs of people affected by encephalitis and their families. However, the views of the charity are always reached independently and are based on informed and balanced evidence.

MEMBERSHIPMembership is open to anyone with an interest in the Society’s work both nationally, internationally, and professionally. Membership for the year was 10,615 at April 2016 (2016: 10,492 2015: 4213 2014: 3487: 2013: 1393; 2012: 793). We strive to make our services freely available to everyone who needs them, regardless of personal circumstance, and to this end we do not charge a membership fee.

STRUCTURE, GOVERNANCE AND MANAGEMENT


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PUBLIC BENEFIT STATEMENT The Trustees have complied with their duty to have due regard to the guidance on public benefit published by the Charity Commission. This report describes our charitable work and this in turn illustrates how the charity delivers public benefit.

INVESTMENT POLICY The Encephalitis Society are tasked by the Charity Commission to act prudently with our public money. The Board of Trustees took the decision that the most prudent course of action for the Society was to invest inactive charitable income. The Society has chosen a portfolio of investment that can be liquidated in 24/48 hours and is monitored on a monthly basis to protect public money. These portfolios contain unrestricted and at times dormant restricted income. It is the policy of the Board of Trustees to work towards a 100% ethical portfolio which currently stands at 60%.

RESERVES POLICY The Trustees of the Encephalitis Society, as a Board, resolve to pursue a policy of establishing and maintaining a contingency reserve fund sufficient to meet six months’ unrestricted expenditure. To achieve this the fund would be £190,962 (Unrestricted Expenditure £381,924). This fund can be identified as the Contingency Fund in designated funds and currently stands at £193,514.

RISK MANAGEMENT The Trustees have considered in-depth a range of risks relevant to the Society. These include the changing political environment, damage to reputation caused by bad publicity, damage caused by individuals, failures in administration, loss of computer data and the possibility of an insufficient number of Trustees. These risks are regularly reviewed in September each year. The most significant ongoing risk is the problem of sustainability and securing project, capital and core funding. The Trustees operate with a 10-year strategic plan. This along with internal policies and procedures that reflect current legislation and sector good practice all operate in support of reducing risk and minimising harm to both stakeholders and the Society in general.

The Trustees (who are also the directors of Encephalitis Support Group for the purposes of company law) are responsible for preparing the Trustees Annual Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the Trustees to prepare financial statements each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the Trustees are required to:

• select suitable accounting policies and then apply them consistently;

• observe the methods and principles in the Charities SORP;

• make judgments and estimates that are reasonable and prudent;

• state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements;

• prepare the financial statements on a going concern basis unless it is inappropriate to presume that the charitable company will continue in operation.

The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and to enable them to ensure that the financial statements comply with the Companies Act 2006. The Trustees are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

This report has been prepared in accordance with the special provisions of Part 156 of the Companies Act 2006 relating to small companies and the Statement of Recommended Practice – Accounting and Reporting by Charities.

Approved by the Board of Trustees on 21st October 2017 and signed on its behalf by:

Tim Spring Chair

FINANCIAL REVIEW AND POLICIES


The overall results for the year is a net income of £122,923. The Balance Sheet at 31 March 2017 shows total retained funds of £797,724. This includes restricted funds of £324,640. A breakdown of restricted funds, showing movements in the year by project and closing balances at 31 March 2017 and the reasons the funds are restricted is shown in Note 17.

RESPONSIBILITIES OF THE TRUSTEES

FOR THE YEAR ENDED 31 MARCH 2017

I report on the accounts of the charitable company for the year ended 31 March 2017, which are set out on pages 20 to 35.

This report is made solely to the charitable company’s trustees, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006 and the charitable company’s trustees as a body in accordance with section 154 of the Charities Act 2011. My independent examiner’s work has been undertaken so that I might state to the charitable company’s trustees those matters I am required to state to them in an independent examiner’s report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the charitable company, the charitable company’s members as a body and the charitable company’s trustees as a body for my independent examiner’s work, for this report, or for the opinions I have formed.

RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER

The trustees (who are also the directors of the company for the purposes of company law) are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed. The charity's gross income exceeded £250,000 and I am qualified to undertake the examination by being a qualified member of the Institute of Chartered Accountants in England and Wales.

Having satisfied myself that the charity is not subject to audit under company law and is eligible for independent examination, it is my responsibility to:

• examine the accounts under section 145 of the 2011 Act;

• to follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and

• to state whether particular matters have come to my attention.

BASIS OF INDEPENDENT EXAMINER’S REPORT

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a ‘true and fair view’ and the report is limited to those matters set out in the statement below.

INDEPENDENT EXAMINER’S STATEMENT

In connection with my examination, no matter has come to my attention:

1. which gives me reasonable cause to believe that in any material respect the requirements:

a) to keep accounting records in accordance with section 386 of the Companies Act 2006; and

b) to prepare accounts which accord with the accounting records, comply with the accounting requirements of section 396 of the Companies Act 2006 and with the methods and principles of the Statement of Recommended Practice: Accounting and Reporting by Charities have not been met; or

2. to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Adrian Rodaway BA, FCA, DChA HPH Chartered Accountants 54 Bootham York YO30 7XZ

21st October 2017


INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY)


ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY) STATEMENT OF FINANCIAL ACTIVITIES AND INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 MARCH 2017

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY)BALANCE SHEET AS AT 31 MARCH 2017

Year ended Year ended Note General Designated Restricted 31 March 31 March Fund Funds Funds 2017 2016 £ £ £ £ £

Income and endowments from:Donations and legacies 2 291,086 291,086 15,759 306,845 153,832Charitable activities 3 10,766 – 130,844 141,610 131,381Other trading activities 4 222,210 – 3,354 225,564 184,239Investments 5 18,167 – – 18,167 23,848

Total 542,229 – 149,957 692,186 493,300

Expenditure on: 6Raising funds (1,795) – 79,635 77,840 68,226Charitable activities 383,719 14,752 143,281 541,752 590,857

Total 381,924 14,752 222,916 619,592 659,083

Net income/(expenditure) and net movement in funds before losses on investments 160,305 (14,752) (72,959) 72,594 (165,783)

Net gains/(losses) on investments 50,329 – – 50,329 (22,982)

Net income/(expenditure) 210,634 (14,752) (72,959) 122,923 (188,765)

Transfers between funds 16,17 (36,063) 73,563 (37,500) – –

Net movement in funds 174,571 58,811 (110,459) 122,923 (188,765)

Reconciliation of funds: Total funds brought forward – 239,702 435,099 674,801 863,566

Total funds carried forward £174,571 £298,513 £324,640 £797,724 £674,801

The notes on pages 23 to 35 form part of these financial statements.

Note 2017 2016 £ £ £ £

Fixed assets:Tangible assets 13 11,647 13,061Investments 12 470,632 482,458

482,279 471,519

Current assets:Stocks 11,323 12,598Debtors 14 27,837 19,992Cash at bank and in hand 301,066 212,094

340,226 244,684

Liabilities:CREDITORS: amounts failing duewithin one year 15 24,781 41,402

Net current assets 315,445 203,282

Total net assets £797,724 £674,801

The funds of the charity:

Unrestricted funds 16 Undesignated 174,571 – Designated 298,513 239,702Restricted Funds 17 324,640 435,099

Total charity funds £797,724 £674,801

In the Directors’ and Trustees’ opinion the Charitable Company was entitled under section 477 of the Companies Act 2006 (‘the Act’) to exemption from the audit of its accounts for the year ended 31 March 2017. No notice from members requiring an audit has been deposited under section 476 of the Act in relation to its accounts for the financial period. The Directors and Trustees are responsible for ensuring that the Charitable Company keeps accounting records which comply with section 386 of the Act and for preparing accounts which give a true and fair view of the state of affairs of the Charitable Company as at the end of each financial period and of its incoming resources and its application of resources for each period in accordance with the requirements of sections 394 and 395 of the Act and which otherwise comply with its requirements, so far as applicable to the Charitable Company.

The accounts have been prepared in accordance with the special provisions of the Companies Act 2006 applicable to small companies and the Charities SORP (FRS 102).

Approved by the Board of Directors and Trustees on 21 October 2017 and signed on its behalf by:

T Spring L Palmer Director and Trustee Director and Trustee



ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY)STATEMENT OF CASHFLOWS FOR THE YEAR ENDED 31 MARCH 2017

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY)NOTES TO FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2017

Note 2017 2016 £ £

Cash flows from operating activities:Net cash provided by/(used in) operating activities 21 38,472 (144,244)

Cash flows from investing activities:Dividends, interest and rents from investments 18,167 23,848Purchase of property, plant and equipment (5,821) (8,469)Purchase of investments (114,330) (268) Sales of investments 152,484 –

Net cash provided by investing activities 50,500 15,111

Change in cash and cash equivalents in the reporting period 88,972 (129,133)

Cash and cash equivalents at the beginning of the reporting period 212,094 341,227 Cash and cash equivalents at the end of the reporting period 301,066 212,094


1. ACCOUNTING POLICIES

Legal entity Encephalitis Support Group is regulated by the Charities Commission (1087843), limited by guarantee and is registered in England and Wales. The address of the registered office and principal place of business is 32 Castlegate, Malton, North Yorkshire, YO17 7DT.

Basis of preparation The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.

The Charitable Company constitutes a public benefit entity as defined by FRS 102.

Reconciliation with previous Generally Accepted Accounting Practice In preparing the accounts, the Directors and Trustees have considered whether in applying the accounting policies required by FRS 102 and the Charities SORP FRS 102 a restatement of comparative items was needed. No restatements were required. In accordance with the requirements of FRS 102 a reconciliation of opening balances and net income/(expenditure) for the year is provided with the net income/(expenditure) under previous GAAP adjusted for the presentation of investment gains/(losses) as a component of reported income.

Reconciliation of reported net income £

Net expenditure as previously stated 165,783

Adjustment for losses on investments now treated as a component of net expenditure 22,982

2016 net income as restated 188,765

Going Concern The Charitable Company has cash resources and has no requirement for external funding. The Directors and Trustees have a reasonable expectation that the Charitable Company has adequate resources to continue in operational existence for the foreseeable future. They continue to believe the going concern basis of accounting appropriate in preparing the annual financial statements.

Income recognition Incoming resources represents income received in the form of grants, donations, and fundraising events.

Voluntary income is received by way of donations, legacies and gifts. With the exception of legacies these are accounted for in the Statement of Financial Activities at the time of receipt.

Legacies are included in the Statement of Financial Activities where probate was granted prior to the Balance Sheet date and where receipt was in the year or took place shortly after the year end. Other legacies notified are not accrued when there are uncertainties of the value and timing of the receipt.

The value of services provided by volunteers has not been included.

Grants, including grants for the purchase of fixed assets, are recognised in full in the Statement of Financial Activities in the year in which they are receivable.

Expenditure and irrecoverable VAT Resources expended are recognised in the period in which they are incurred. Resources expended include attributable VAT which cannot be recovered.

Support costs include central functions such as general management, information technology and human resources and have been allocated to activity cost categories (Awareness, Research, Member Support gt Information, Fundraising and Governance) on a basis consistent with the use of resources and size of department. Support costs do not, in themselves, constitute an activity, instead they enable output creating activities undertaken.

Pension costs The company operates a defined contribution pension scheme. Contributions payable for the year are charged to the profit and loss account.

Fixed Assets Depreciation is provided at the following annual rates in order to write off the cost of each asset over its estimated useful life:-

Office equipment and furniture 25% straight line basis Leasehold property improvement 20% straight line basis

All capital expenditure in excess of £500 is capitalised as tangible fixed assets and all expenditure is transferred from restricted funds to the unrestricted general fund including depreciation.


1. ACCOUNTING POLICIES continued

Stock Stock is valued at the lower of cost or market value.

Fund accounting

Unrestricted funds Unrestricted funds are donations and other incoming resources

receivable or generated for the objects of the Charity without further specified purpose and are available as general funds.

Unrestricted funds are identified as £473,804 on the balance sheet. The Trustees follow the New Philanthropy Capital recommended policy for unrestricted funds which does not include designated funds for specific purposes. Therefore our current unrestricted funds are £174,571.

Designated funds Designated funds are unrestricted funds earmarked by the Board

of Trustees for specific purposes.

Restricted funds Restricted funds are to be used for specific purposes as laid down by the donor. Expenditure which meets these criteria is charged to the fund, together with a fair allocation of management and support costs.

Investments Investments are valued at market value at the year end. All movements in value from investment changes or revaluation are recognised in the Statement of Financial Activities.

Debtors Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

Cash at bank and in hand Cash at bank and cash in hand includes cash and short term highly liquid investments with a short maturity of three months of less from the date of acquisition or opening of the deposit of similar account.

Creditors and provisions Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in a transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

Financial instruments The Charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.

Operating leases Rentals payable under operating leases are charged against income on a straight line basis over the lease term.

2. DONATIONS AND LEGACIES

ENCEPHALITIS SUPPORT GROUP (OPERATING AS THE ENCEPHALITIS SOCIETY)NOTES TO FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2017 CONTINUED

E N F

2017 2016 £ £

Gift and donations 46,347 51,745Gift Aid 19,736 26,758 Legacies and bequests 150,000 11,812Gift in Kind 21,513 22,477Corporate income (donations) 69,249 41,040 £306,845 £153,832

3. CHARITABLE ACTIVITIES

2017 2016 £ £

Services provided/contributions - meetings 10,955 12,693Grants received The Kirkby Foundation 8,000 2,400Roald Dahl grant – 3,400Eden Dora Trust – 5,000Marsh Christian Trust – 300Gledswood Charitable Trust – 1,000Freemasons’ Grand Charity – 3,000The Richard Kirkman Trust 500 500Virgin Unite Foundation – 10,000The Souter Charitable Trust – 1,000Jack Brunton Charitable Trust – 1,000Sobell Foundation 5,000 5,000Private Donor 48,480 46,000Adamson Trust – 500Jane Tomlinson Appeal – 500Children ln Need – 9,888Austin & Hope Pilkington Trust – 3,000Skipton Building Society – 2,000Roger Vere Foundation – 200Simply Health – 10,000Private Donor – 1,000PF Charitable Trust – 5,000Earl Fitzwilliam Charitable Trust – 2,500Pixel Fund – 2,500Baily Thomas Charitable Fund – 1,500Ryedale District Council (689) 1,500Sovereign Healthcare 1,000 –Sir Jules Thorn 750 –Molly Croysdale Charitable Trust 350 –Hospital Saturday Fund 2,000 –Lockwood Foundation 25,000 –Jimmy Savile Charitable Trust 5,000 –Friendly Hand - Retreat 13,000 –St Austell Brewery 500 –Jane Hodge Foundation 2,500 –DCR Allen Charitable Trust 5,000 –Leach Fourteenth Trust 1,000 –Awards for All 10,000 –John & Cecilia Gordon Charitable Trust 500 –Malton CIC 500 –Boshier Hinton 2,000 –Ryedale Lions 100 –Ryedale Council 164 –

£141,610 £131,381



E N F

2017 2016 £ £

Fundraising 167,795 £158,180Merchandise 13,347 £7,777Corporate income (services) 42,150 17,200Training room hire 2,272 1,082

£225,564 £184,239

4. OTHER TRADING ACTIVITIES

5. INVESTMENTS

2017 2016 £ £

Bank interest 313 2,624Investment income 17,854 21,224

£18,167 £23,848

2017 2016 £ £

Raising fundsFundraising 6,440 8,265 Staff Costs 43,052 39,847Outsourced services 5,823 404Bank charges & finance fees 6,578 5,393Merchandise (adjusted for stock) 11,003 9,581Investment fees 4,944 4,736

£77,840 £68,226

Charitable activitiesMembers activities 29,411 72,188Research – 23,453Publicity/Awareness 33,463 18,692Publications and printing 14,438 36,704Postage and office supplies 19,174 15,196Telephone/internet 4,088 4,529Information technology 32,024 21,464Affiliation fees 2,978 3,099Rent, rates & other premises costs 24,003 25,141Repairs and renewals 4,617 4,659Sundry expenses 516 1,065Staff Costs 274,948 279,533Training costs 4,959 7,139Staff travel, accommodation & subsistence 32,454 27,820Volunteer travel, accommodation & subsistence 7,440 6,555Outsourced services 14,808 3,529Recruitment 23,148 4,485Depreciation 7,234 17,966Trustees expenses 4,818 5,741Accountancy, audit &. legal fees 6,412 11,132Bank charges & finance fees 819 767

£541,752 £590,857

6. ANALYSIS OF TOTAL EXPENDITURE



E N F

Member Support & Support Awareness Research Information Fundraising Governance Costs Total £ £ £ £ £ £ £

Fundraising 929 – 8 5,503 – – 6,440Merchandise – – – 11,003 – – 11,003Investment fees – – – – 4,944 – 4,944Members Activities 7,869 4,053 29,811 3,267 456 3,267 48,723Research –Publicity/Awareness 12,289 965 461 436 – – 14,151Publications & Printing 5,680 1,696 6,018 1,044 – – 14,438Postage & Office Supplies 9,567 443 5,086 2,625 189 1,264 19,174Telephone & Internet 393 112 2,434 537 75 537 4,088Information Technology 14,177 772 8,157 4,713 515 3,690 32,024Affiliation fees 528 492 710 956 36 256 2,978Rent and other premises cost 3,040 943 11,978 4,507 849 4,507 25,824Repairs & Renewals 599 88 799 612 279 420 2,797Sundry Expenses 48 14 313 65 11 65 516Staff Costs 67,103 12,243 133,038 66,183 4,828 34,605 318,000Training costs 847 125 2,427 880 83 597 4,959Staff Travel/Accom 10,292 2,057 13,561 4,386 1,835 323 32,454Vol - Travel/Accom 367 3,235 3,566 228 44 – 7,440Outsourced services 5,639 484 4,763 7,111 323 2,311 20,631Recruitment – – 1,200 7,548 14,400 – 23,148Depreciation 1,049 326 2,531 1,556 217 1,555 7,234Governance including travel & training – – – 13 4,805 – 4,818Legal & accountancy 797 247 2,038 1,442 706 1,182 6,412Bank charges & investment fees 44 – 48 6,577 727 – 7,396

Total 141,257 28,295 228,947 131,192 35,322 54,579 619,592

*Support cost Allocation 10,081 3,127 24,338 14,950 2,083

Total costs £151,338 £31,442 £253,285 £146,142 £37,405

7. SUPPORT COSTS * Support Costs are the definition used by the Charity Commission and do not refer to The Encephalitis Society’s Member support activities.

See note on page 19.

10. STAFF COSTS AND NUMBERS

9. REMUNERATION AND EXPENSES OF TRUSTEES

None of the Trustees received any remuneration or benefits by virtue of being a Trustee of the Charity. Travel and subsistence expenses were reimbursed to and accommodation paid for on behalf of 7 Trustees (2016 8) totalling £3,239 (2016 £4,673).

11. TAXATION

The company is accepted as a charity for tax purposes and is exempt from tax on its income or gains to the extent that they are applied for charitable purposes.

8. NET INCOMING RESOURCES FOR THE YEAR

2017 2016 £ £

The net incoming resources are stated after charging:Depreciation 7,235 17,966Independent examiner’s remuneration – external review 1,200 1,200 – other financial services 2,400 5,280

2017 2016 £ £

Wages and salaries 279,228 278,899Social security costs 24,965 25,601 Pension costs 13,807 14,880

£318,000 £319,380

The average monthly head count was 10 staff (2016 9).No employee received emoluments in excess of £60,000.The key management personnel of the Charity comprise the Trustees and Senior Management Team. The total employee benefits of the key management personnel of the Charity were £114,140.

2017 2016 £ £

Market value at 1 April 2016 458,458 481,172Additions 114,330 268Disposals (146,267) –Net unrealised investment gain/(loss) 44,111 (22,982)

Market value at 31 March 2017 £470,632 £458,458

Comprising:Listed investment - United Kingdom 148,152 155,891Other United Kingdom investments 322,480 302,567

£470,632 £484,484

The Trustees consider that there were no material individual holdings in the year which require disclosure.

12. INVESTMENTS



E N F

Leasehold Plant and improvements machinery to building etc. Total £ £ £Cost or valuation At 1 April 2016 60,844 64,624 125,468 Additions in year – 5,821 5,821

60,844 70,445 131,289Depreciation At 1 April 2016 53,782 58,625 112,407Charge for year 2,667 4,568 7,235

At 31 March 2016 56,449 63,193 119,642

Net book valueAt 31 March 2017 £4,395 £7,252 £11,647

At 31 March 2016 £7,062 £5,999 £13,061

13. TANGIBLE FIXED ASSETS

15. CREDITORS: amounts falling due within one year

2017 2016 £ £

Trade creditors 6,384 16,651Accruals and deferred income 5,970 16,365Taxation and social security 3,811 2,514Other creditors 8,616 5,872

£24,781 £41,402

Deferred income: movement in yearDeferred income brought forward 10,365 50Released in the year (10,365) (50)Deferred in the year 1,150 10,365

Deferred income carried forward £1,150 £10,365

Deferred income represents £1,150 deposits for the 2017 Family Weekend Event (2016 £10,365 for the 2016 Retreat Weekend Event).

14. DEBTORS

2017 2016 £ £

Other debtors 27,837 19,992

27,837 19,992

16. UNRESTRICTED FUNDS

1 April Incoming Outgoing Gains on 31 March 2016 Resources Resources investments Transfers 2017 £ £ £ £ £ £

Undesignated – 542,229 381,924 50,329 (36,063) 174,571Designated Contingency reserve 154,629 – – 38,885 Building Liabilities Fund 46,188 – 14,752 36,063 67,499Liverpool Fellowship – – – 37,500 37,500New premises purchase 38,885 – – (38,885) –

239,702 – 14,752 – 73,563 298,513

£239,702 £542,229 £396,676 £50,329 £37,500 £473,084

Contingency Reserve Designated fund to reflect the trustee’s reserves policy of six months unrestricted expenditure.

Building Liabilities Fund Designated funds raised to establish and maintain the Encephalitis Society building/offices including rent and rates.

Liverpool Fellowship Funding of a PhD rsearch fellowship.

New Premises A fund towards the costs of acquiring new premises in the future.



E N F

17. RESTRICTED FUNDS

1 April Incoming Outgoing 31 March 2016 Resources Resources Transfers 2017 £ £ £ £ £The Research Fund 117,753 4,113 9,868 (37,500) 74,498Friendly Hand – 13,000 13,000 – –October Club 277,805 – 73,762 – 204,043The Molly Croysdale Charitable Trust – 350 350 – –The Kirkby Foundation (2014) 200 – 200 – –Boshier Hinton – 2,000 – – 2,000Private donor 18,643 48,480 50,279 – 16,844Roger Vere Foundation 200 – 95 – 105Simply Health 10,000 – 5,653 – 4,347Private Donor 248 – 248 – –Sobell Foundation 3,750 5,000 5,000 – 3,750Pixel Fund 2,500 – 714 – 1,786Earl Fitzwilliam Charitable Trust 2,500 – – – 2,500St Austell Brewery – 500 500 – –Kirkby Foundation (2016) – 8,000 8,000 – –Baily Thomas Charitable Trust 1,500 – – – 1,500Ryedale Council – 164 164 – –Sovereign Healthcare – 1,000 1,000 – –Sir Jules Thorn – 750 750 – –Hospital Saturday Fund – 2,000 2,000 – –Jane Hodge Foundation – 2,500 12 – 2,488DCR Allen Charitable Trust – 5,000 – – 5,000Leach Fourteenth Trust – 1,000 – – 1,000Lockwood Foundation – 25,000 25,000 – –Jimmy Savile Charitable Trust – 5,000 5,000 – –Awards for All – 10,000 5,821 – 4,179John & Cecilia Gordon CT – 500 – – 500Malton CIC – 500 500 – –Ryedale Lions – 100 – – 100World Encephalitis Day – 15,000 15,000 – –

£435,099 £149,957 £222,916 (£37,500) £324,640

The Research Fund To fund and facilitate research into encephalitis.

Friendly Hand Funding towards the Retreat.

The October Club To fund our Communications Coordinator and an in-house Neuropsychologist.

The Molly Croysdale Charitable Trust Funding towards our support service.

The Kirkby Foundation (2014) Funding towards the replacement of the front door and windows at The Encephalitis Society offices and also capital equipment.

Boshier Hinton Funding towards the Family Weekend.

Private donor Funding towards Team Encephalitis, the creation of a global network of volunteers.

Roger Vere Foundation Funding towards My Brain & Me - narrative portal and DVD.

Simplyhealth Funding towards My Brain & Me - narrative portal and DVD.

Private donor Funding to cover the costs of two hearing loops and accessories.

Sobell Foundation Funding towards the support and information service.

Pixel Fund Funding towards My Brain & Me - narrative portal and DVD

Earl Fitzwilliam Fund Funding towards My Brain & Me - narrative portal and DVD

St Austell Brewery Funding towards My Brain & Me - narrative portal and DVD.

Kirkby Foundation (2016) Funding towards My Brain &. Me - narrative portal and DVD and also the Gilly game and DVD and Gilly soft toys.

Baily Thomas Charitable Fund Funding towards My Brain & Me - narrative portal and DVD

Ryedale Council A grant towards the replacement of the front door.

Sovereign Healthcare Funding towards our provision of support and information.

Sir Jules Thorn Funding towards our provision of support and information.

Hospital Saturday Fund Funding towards our provision of support and information.

Jane Hodge Foundation Funding towards My Brain & Me - narrative portal and DVD.

DCR Allen Charitable Trust Funding towards My Brain & Me - narrative portal and DVD.

Leach Fourteenth Trust Funding towards My Brain & Me - narrative portal and DVD.

Lockwood Foundation Funding towards our provision of support and information.

Jimmy Savile Charitable Trust Funding towards our provision of support and information.

Awards for All Funding towards the new server amd towards refurbishment of the building.

John & Cecilia Gordon CT Funding towards My Brain & Me - narrative portal and DVD.

Malton CIC Funding for our annual Community Open Day.

Ryedale Lions Funding towards the Family Weekend.

World Encephalitis Day Funding towards World Encephalitis Day.


18. ANALYSIS OF NET ASSETS BETWEEN FUNDS


E N F

Tangible Net Current Fixed Assets Investments Assets 2017 2016 £ £ £ £ £Fund balances at 31 March 2017 are represented by:

Unrestricted Funds – – 174,571 174,571 –Restricted Funds – 300,000 24,640 324,640 435,099Designated funds 11,647 170,632 75,884 258,163 239,702

£11,647 £470,632 £275,095 £757,374 £674,801

19. ANALYSIS OF NET ASSETS BETWEEN FUNDS

As at 31 March 2017 the charitable company had future minimum lease payments under non-cancellable operating leases as follows:

21. RECONCILIATION OF NET MOVEMENT IN FUNDS TO NET CASH FLOW FROM OPERATING ACTIVITIES

20. RELATED PARTY TRANSACTIONS

There were no related party transactions in the year that require disclosing.

22. TRANSFERS BETWEEN FUNDS

It was agreed by the Trustees in the year that the designated New Premises Purchase Fund balance of £38,885 would be transferred to the designated Contingency Reserve Fund.

It was agreed by the Trustees in the year that the designated Building Liabilities Fund would be increased to £67,500 (to cover three years’ contracted liabilities) via a transfer of £36,063 from unrestricted undesignated funds.

It was agreed by the Trustees in the year that £37,500 would be transferred from the restricted Research Fund to the designated Liverpool Fellowship Fund to fund a research fellowship.

23. PENSION CONTRIBUTIONS

The Charity operates a defined contribution pension scheme. The assets of the scheme are held separately from those of the Charity in an independently administered fund. Contributions for the year totalled £13,807 (2016 £14,880). At the balance sheet date included in other creditors is £1,532 (2016 £869) of pension contributions to be paid over to the

24. VOLUNTEERS

We are fortunate to have 48 Team Encephalitis Volunteers that specialise in support, awareness and information roles. They play a vital role in the work we do in providing direct support to families, raising awareness through campaigns such as World Encephalitis Day and providing accredited information to all audiences. We have the support of volunteers through our Scientific Advisory Panel, Ambassadors, Trustees and Presidents and Vice Presidents, who help provide expert advice and guidance to the work of the Society.

At 31 March At 31 March 2017 2016 £ £

Operating leases which expire:Not later than one year 17,472 16,675Later than one year and not later than five years 17,472 16,675Later than five years 23,036 20,844

£57,980 £54,194

The amount of non-cancellable operating lease payments recognised as an expense during the reporting period was £17,472 (2016 £16,675).

At 31 March At 31 March 2017 2016 £ £

Net income/(expenditure) for the reporting period 122,923 (188,765)Adjustments for: Depreciation charges 7,235 17,966(Gains)/losses on investments (50,328) 22,982Dividends, interest and rents from investments (18,167) (23,848)Decrease in stocks 1,276 1,721(Increase)/decrease in debtors (7,845) 6,288(Decrease)/increase in creditors (16,622) 19,412 Net cash provided by/(used in) operating activities £38,472 £(144,244)

Cash at bank and in hand 301,066 212,094

Total cash and cash equivalents 301,066 212,094

The Encephalitis Society32 Castlegate, Malton, North YorkshireYO17 7DT, United Kingdomwww.encephalitis.info

FUNDRAISING TEAM+44 (0) 1653 [email protected]

SUPPORT TEAM+44 (0) 1653 [email protected]

ADMIN+44 (0) 1653 [email protected]

PRESIDENTProfessor Barbara A Wilson OBE

VICE PRESIDENTSRichard LockwoodKika MarkhamBaroness Anne McIntoshTom Naylor-LeylandTiggy SuttonRobert Sutton

AMBASSADORSRebecca Adlington OBEMathew BoseTonia BuxtonSusannah CahalanAliki ChrysochouSimon HattenstoneCharlotte Leeming

@encephalitis /encephalitissociety The_Encephalitis_Society_ /company/the-encephalitis-society

Youtube.com/EncephalitisSociety

The Encephalitis Society is the operating name of the Encephalitis Support Group Registered Charity Number: 1087843 Charitable Company registered in England and Wales Number: 04189027

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annual report and accounts 2016/17

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