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Page 1: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

2007-2008Annual Report

300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3Télécopieur : 514 595-5745 • Courriel : [email protected]

To make a contribution, to become a volunteer or to obtain more copies of this report, please contact us :

Français

Pour obtenir la version française de ce rapport, veuillezcommuniqué avec nous.

Page 2: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Children’s healthresearch

Our new nameand Visual Identity

In November 2007, Jean Tremblay, President of the Foundation for Research into Children's Diseases unveiled the Foundation’s new brand identity. Inspired by its original concept, the Foundation’s new name became the Foundation of Stars. This new name and the new visual identity and signature are supported by the positioning statement “Children’s health research”, reflecting the new realities and dynamics in medical research, whose mission is to prevent genetic and congenital diseases, to reduce the impact of traumas and to treat diseases.

Against a sky blue background, the logo pictures three stars which shape a youngster’s face expressing hope and happiness. The stars symbolize the emotional feelings of children and families who benefit from pediatric research. The stars are bright and filled with the promise of a better future for the children, in a world where the promotion of health, the prevention of diseases and the discovery of new treatments will reduce the suffering of children and the disarray of families of children affected by a disease, a trauma, or a genetic or congenital handicap.

By changing its name, the Foundation builds on the historical fact that, in the mind of Quebeckers the “stars” have long been associated with the

Foundation’s biggest annual event, the Telethon of Stars. The Foundation’s volunteers, scientists and administrators believe that the new name will be easier to remember and will contribute to differentiating the Foundation from other humanitarian causes that address children’s needs.

The Foundation’s new brand identity was created by the brand development agency lg2boutique. According to the agency’s Vice-President and General Manager, Claude Auchu, “The choice of colours is inspired by the children’s world and expresses a feeling of hope with a distinct smiling graphic face. This change of brand identity will support the Foundation of Stars and its volunteers in their fundraising activities and in the promotion of pediatric research.”

Foundation of stars : Children’s Health Research

Page 3: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our History

Our Mission

President’s and the CEO’smessage

Board of Directors

Foundation Staff

Our Events

Financial Highlights

Valerie’s Story

Four Research Centres

Our Partners and Sponsors

Our Service Clubs

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Table of Contents

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B’nai Brith Canada

The voice of the Jewish Community, representing their interests across the country. Since 1875, this organization has achieved major breakthroughs in the fight against anti-Semitism, racism, and human rights.

Knights of Columbus

A lay Catholic movement whose primary goal is to help members in need; pro- mote and manage education, charitable, religious and social endea ours; provide support in times of war or civil disasters.

Civitan

Ordinary citizens, like you and me, who work in communities throughout the world to make neighbourhood life better.

Kinsmen Club

All-Canadian service club made up of active community volunteers. Working together, members enhance the quality of life of their communities by promot-ing service, fellowship, positive values and national pride.

Kiwanis Club

Members respond to the needs of their community by pooling their resources toaddress global issues. Kiwanis Interna-tional truly is “Serving the Children of the World”.

Knights of Pythias

The Fraternal Order of the Knights of Pythias and its members are dedicated to Universal Peace. Pythians promote understanding amongst men of good will as the surest means of attaining peace.

Lions Club

Lions Club provides services for today’syouth. They also work to protect the environment, build homes for disabled persons, as well as for senior citizens.

Optimist Club

Optimist Clubs “Bring out the best in young people”, by organizing com- munity-based work projects that are designed to include youths. By believ-ing in youth and by giving them the necessary tools to fulfill their destiny, Optimists hope to make a better world.

Richelieu Club

Their motto is “Peace and Fraternity”. This service club focuses on members’ personal fulfillment and the promotion of French through the Club’s social, cultural and humanitarian activities.

Rotary

A worldwide organization of business and professional leaders that provides humanitarian services, it encourages high ethical standards in all vocations, and helps build goodwill and peace in the world.

ZontaA global service organization composed of women executives in business and in professions working together, across political and social boundaries, to advance the status of women, throughout the world.

Service Clubs 2007-2008Annual Report

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Page 4: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our History

The Inter-Service Clubs Council assumed the mission of improving the quality of life for children, especially less fortunate chil- dren, through various activities.

Thanks to the efforts of its volunteers, the Council allowed 100,000 children to visit Expo ’67.

35,000 tickets were offered to under-privileged children to attend the Olympic Games. Later, skate-a-thons were organized to fund minor hockey leagues in coopera-tion with the Jean Béliveau Foundation. These are only a few examples which dem-onstrate the important social role fulfilled over time by the service clubs in our com-munity. Their actions aim to do good in their milieu and children have always been at the centre of the missions which they have adopted.

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1967

1977

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1994

1996

Production of the first Telethon in Quebec.Known then as the Telethon of Stars, it aired in French and English on CFCF12. Today, the Telethon is simulcast on CTV Montreal and TQS across Quebec at the beginning of December of each year.

The Telethon of Stars became the Telethon for Research into Children’s Diseases.

A Board of Directors was created. It is com- posed of representatives from the service clubs, regional representatives and ‘at-large’ members who represent the Foundation’s corporate partners.

The Foundation for Research into Children’s Diseases became the Foundation of Stars

2007

Our Key Partners and Sponsors

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Estelle BouladierJulie BreauVincenzo CiampiGeneviève DionStéphane Di PatriaNormand DorionSylvain FilionMichel GrégoireGraziano IampietroDiane R. LavoieGhislain LeblancMarcel Martineau

Michèle ParentDiane RannoDanielle RaymondFrance RivetMarcel RollandGinette SoucyJohanne TessierStéphane Woodbury

Governors

Life Governors former presidents

HonouraryGovernors

Michel LanteignePeter Sternberg

HonouraryLife Governors

Life Governors

Ivor SchwartzBill SurkisGarry SteinHyman SternfeldJean TremblayTerry WebsterLouis VaillancourtJack Westaway

(Knights of Pythias)(B’nai Brith)(Rotary)(Knights of Pythias)(Kiwanis)(Civitan)(Kiwanis)(Kinsmen)

230 Club et Poste St-Antoine Marie ClaretA. Lassonde Inc. A.E. Blake’s Sales Acosta CanadaAction Solution Radio {Elyps}Adam The CatererAdmaco Équipements de BureauAenos Farm ProductsAEP Canada “Resinite”AIGAlimentation Couche-TardAliments Aliments CardinalAliments Delstar Inc.Aliments Edelweiss FoodAliments Froz-BecAlpina Salami Inc.Alsco Ltée Uniforms et Linge HôtelierAmaco Business MachineAmaro Eau de Source NaturelleAntonopoulos FamilyAONAuberge Royal Versailles AVA-TILBallons GrangerBanque de développement du CanadaBanque Nationale du Canada Banque Royale du CanadaBCE-Bell CanadaBellBell MobilitéBerkline Inc.Bertoldi BMO Groupe Financier BMO Nesbitt BurnsBoulangerie Casse Noisette Inc.Boulangeries PomBOYZBristol Myers SquibbBRP

Café Brossard – QuébecCaisse Desjardins De LorimierCaisse Desjardins de Saint-MichelCamfil FarrCanada Post Canadawide Fruit WholesalersCanadian Technical Tape LtdCantorsCentre hospitalier universitaire de QuébecCentre hospitalier unversitaire de SherbrookeCGIChalet Bar-B-QChenail Fruits Chez Cora {St-Jacques}CHU Sainte-JustineCHU Sainte-Justine FoundationClarkson Conway Inc.Club des Vingt Coca-Cola Bottling Co. Collège AhuntsicCollège André GrassetCollège DawsonComplexe sportif Claude-RobillardCôte St. Luc Bar-B-QCroustilles Yum Yum EnrCTV – Montreal D.A.D.’s BagelsDa Vinci Food ProductsDats Deli EuropeenDistribution Yukon Inc. Domco Tarkett Inc.Dubord / RainvilleDura Plastics LtdEaux Danone Naya École Secondaire Rive-NordÉquipement Pierre ChampignyErnst & YoungEsposito Foods LtdFédération des caisses Desjardins du Québec

Ferme St-Zotique LtéeFiera Capital First West Island ScoutsFonds Achbée Fontaine SantéGibeau Orange JulepGlaxoSmithKline Inc.Groupe Financier DenariusGroupe RoscoH.J. Heinz Company Hershey Canada Home Made Kosher BakeryHôtel NelliganHydro-QuébecJ. Armand Bombardier FoundationJ.J. Marshall Inc.Jacques Olivier FordJolicoeur LtéeKanata Smoke HouseKPMGKrispy Kreme L’AubainerieLes Aliments M & M Les Emballages Carrousel Inc.Les Fermes CavendishLes Rôtisseries St-HubertLes Soupes Campbell LtéeLes Viteries Lalonge & Glass HallLesters Food Ltd lg2Location Brossard Location Dickie MooreLocation GervaisLogistec Loto QuébecMaple Leaf Consumer Foods Marché Plus Halle – Fleur de LysMarché ProvigoMarchés mondiaux CIBCMassage Santé MaintienMcCain Foods Canada

McCarthy TétraultMcKinseyMédias Transcontinental Merck FrosstMeubles Électroménagers ML Monsieur MufflerMontreal Children’s Hospital FoundationMontreal Children’s Hospital Research Institute Montreal PitaMouvement DesjardinsOE, Canon CanadaOgilvy Renault Oliver WymanPasteria LongueuilPâtisserie RollandPeerless ClothingPeinture Micca Pfizer Canada Inc.Placements Banque NationalePlacements Montrusco BoltonPolar Plastic LtdPower Corporation of CanadaPratt & WhitneyPricewaterhouseCoopersProductions CarignanProvigo - LoblawsProvigo Groupe DistributionPutter PicklesQuebec Refrigeration Cie Inc.Quebecor Quincaillerie Métro Rona Laval R.E.A.L. BagelRestaurant du Vieux PortRestaurant Le Bifthèque Restaurant Spago de Sainte-AdèleReynolds Aluminium Royal Canadian Mounted PoliceRoyal Harbour Seafoods RSM RichterSafdie Salade Select Sampson

Samson Bélair Deloitte & Touchesanofi-aventisSaputoScully The World ShowSecur Inc.Société des alcools du QuébecSociété Parc Auto du QuébecSolliposte Inc.Source MedicalSpinelli Lexus ToyotaSt. Viateur BagelStandard LifeSTMSubway Sous-Marins & Salades Sucre Lantic Ltée Swiss Vienna PastryT. Lauzon LtéeT.T.S. Marketing & VentesTD AssuranceTecsultTélé-PageTennaquipTNG Corporation ToshibaTQSTrajet JeunesseTrajet JeunesseTravey Inc. Trois-Rivières Ford/Lincoln UltramarVia RouteVin et PassionVisions D.J. Vitreco Weston / Boulangerie Gadoua Wong Wing Foods

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Fred ApplebeeAndré ArchambaultRéal BédardVictor CayerTed CoqueranDre Dolly DastoorGaétan DrapeauMichel FecteauDavid Guttman

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Roger Hétu Jacques Lussier Richard MalkinIssie NadlerDiane NapierNick PensatoHoward PopligerSheldon PopligerGerald Safran

(Knights of Columbus)(Knights of Columbus)(Civitan)(Knights of Pythias)(Optimist)(Richelieu)(B’nai Brith)(B’nai Brith)(Knights of Pythias)

(Civitan)(Richelieu)(Optimist)(Richelieu)(Civitan)(Zonta) (Optimist)(Lions)(B’nai Brith)

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Jean-Luc BélangerRoy BourqueRobert E. CarrollFernand FaucherMichael FogelFrançois Gérin-LajoieYves LéveilléAndrew MarleauRolland RabyLionel TremblayGerry Weinstein

(Optimist)(Kinsmen)(Kiwanis)(Kinsmen)(B’nai Brith)(Rotary)(Lions)(Kinsmen)(Richelieu)(Lions)(Knights of Pythias)

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Gérard BensaidPierre G. BouchardJacques GroulxJim GuintaRicky HeldMurray KozlickMichael KutzJack Landerman Léopold MignaccaH. William MurphyTony PensatoI. Murray Phillips

(Civitan)(Optimist)(Kinsmen)(Richelieu)(B’nai Brith)(Rotary)(Knights of Pythias)(Lions)(Lions)(Rotary)(Richelieu)(Kinsmen)

Page 5: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our Mission

In 2007, the Foundation celebrated the pro- duction of its 31st Telethon. During that time the Foundation has raised funds which lead to revolutionary medical discoveries which have forever changed the way children’s diseases are treated to give them back their health and their lives!

Thanks to the work of our Founders, thou-sands of partners and a growing number of volunteers, Quebec pediatric researcher’s have accomplished so much and given us may victories to celebrate.

Children’s Health Research: To ensure a healthy future for children by increasing public awareness of the wide impactof children’s diseases and by raising funds to advancepediatric research.

By using innovative, high-density DNA micro-chip technology, researchers have identified a fifth gene of the 15 genes suspected of being responsible for Type 1 Diabetes.

Establishment of the first umbilical cord blood blank in Quebec in 2003. The transfusion of umbilical cord blood allows the replacement of blood cells of those suffering from otherwise incurable diseases, such as certain leukemia’s.

In 45 years, the median life expectancy of children suffering from cystic fibrosis has risen from 4 to 37 years.

Combination therapies have effectively eliminated the transmission of HIV from mother to infant during pregnancy, reducing the transmission rate from over 30% in 1993 to 0% today.

The discovery of new vaccines has dramatically decreased the spread of certain contagious diseases such as meningitis and rubella (German measles.)

Research now allows doctors to save the lives of premature babies weighing as little as 500 grams.

The success rate of pediatric liver, heart and lung transplants has increased markedly and in the case of kidney transplants now exceeds 85%.

There has been a 50% reduction in sudden infant death syndrome.

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Our Research Centres (Continued)

The Centre investigates pain in children, inclu- ding newborns, and how to better manage it. In addition, the Centre is studying pediatric palliative care, which is often considered a taboo subject and is underrepresented in research.

The consequences of pathologic pregnancies can be serious both for the mother and for the baby. For this reason, the CHUS is inves-tigating early screening methods for gesta-tional diabetes and placental insufficiency (echographic study of foetal circulation) to minimize the adverse consequences of these abnormalities on newborns.

A new research theme has been introduced this year: vaccination in newborns, more specifically against specific viruses causing severe gastroenteritis in children.

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One of the primary objectives of the Centre is to increasingly encourage pediatricians to conduct clinical research. Simultaneously, all pediatric residents have to conduct one clinical research project as part of the pedi-atric training program. This year, for exam- ple, these research projects focus on child accident prevention, management of neona-tal respiratory distress, deglutition difficulty in premature infants, and management of anorexia nervosa in adolescent women. These highly focused research projects can rapidly improve children’s health.

Maternal, Infant, Child & Youth Research Network (MICYRN)

In 2006, the National Child and Youth Health Coalition identified a national clinical research network as a top priority. A National Steering Committee, representing a wide breadth of expertise across the spectrum of maternal, infant, child and youth health and health research methods, developed a mandate of this new network to promote, support, and enhance high-quality clinical research nation-wide. By linking perinatal, neonatal, child, and youth health groups from academic health science centres across the country with research activities from across the four CIHR pillars, MICYRN has established an inter-nationally unequalled, multi-disciplinary net- work of researchers, clinicians, and policy experts. MICYRN has the capacity to improve the health of virtually every mother and child in the country through creating an environ-ment of innovation, research efficiency, and effective application of new discoveries to policy and practice. The establishment of MICYRN combined with the opportunities presented by the Clinical Research Initiative (CRI) will

serve to transform the way in which we con- duct maternal and child health research in Canada, and will create an environment of compelling opportunity. MICYRN is actively engaging with existing national research groups in the development and evolution of the network itself. In collaboration with the Children’s Hospital Foundations, the Founda-tion of Stars established a trust for MICYRN in the amount of $490,000 in early October. The funding will be used to assist MICYRN with expenses related to the preparation of the CRI application, salaries, Core and National Coordinating Centre Operating expenses, the MICYRN annual workshop, seed grants for Emerging Teams and Networks, Logo/Identity development and ongoing website develop-ment.

Page 6: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our Research Centres (Continued)A Message from the Presidentand the Chief Executive Officer

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2007

The year ended March 31, 2008 proved to be another record-breaking one for the Foundation, especially as concerns two of our biggest special events. It was also the year that we made one of the most signifi-cant changes since our founding in 1977: a new name and a new logo. Thanks to the expert counsel of the advertising firm lg2, the Foundation for Research into Children’s Diseases has now become the Foundation of Stars. Our new symbol, which we consider to be unique, features a happy face in the center of three stars. Equally significant is that we have also added the tagline: Children’s health research. This new nomenclature will now allow us to address all aspects of the pediatric health spectrum, including disease prevention, not just the curative end, as our previous name suggested. We are convinced that our new “brand” will allow us to more effectively play our leadership role as the most important source of non-governmental funding for pediatric research in Quebec.

Record-breaking special eventsTwo of our most important special events, namely our 21st annual Golf Classic and our 25th Bal des Enfants, set new records. Under the Honourary Chairmanship of Larry Smith, President of the Montreal Alouettes, the Golf Classic held at Laval-sur-le-lac Golf Club set an all-time record raising $251,681 net. Our 25th annual Bal des Enfants, under the extraordinary co- chairmanship of Monique Leroux, then Chief Financial Officer of the Mouvement des caisses Desjardins and Isabelle Hudon, President of the Metropolitan Montreal Chamber of Commerce raised a remarkable $705,330 net. We should also mention that the annual BRP Trek, conducted on the newly launched CAN-AM Spyder 3-wheel motorcycle, also set a new record this year, engendering net revenues of $153,000.

31st Telethon

Once again, thousands of volunteers across Quebec and tens of thousands of generous donors contributed time and money to children’s health research. Notwith-standing, the results of the 31st Telethon were some-what disappointing, down by almost $300,000. A significant part of the decrease is attributable to the fact that for the last two hours of the Telethon, tradi-tionally our best hours, competition between the networks was significant.

However, these results were offset by increased revenues from other activities. As an example, our direct mail campaigns contributed just over $1,000,000 net revenues this year. Thus, we were able to distribute a record-breaking $3,200,000 to the pediatric research

centres at: the Montreal Children’s Hospital, Saint Justine Hospital, the “Centre hospitalier universitaire de Québec” the “Centre hospitalier universitaire de Sherbrooke” as well as to the Maternal, Infant, Child and Youth Research Network, a pan-Canadian research network that helps coordinate the flow of knowledge amongst Canada’s 16 university-based pediatric research centres, including the four located in Quebec. This brings the total amount distributed to pediatric research, since our first Telethon of Stars in 1977, to $56,314,000!

The year aheadFollowing a major organizational audit conducted by outside counsel and armed with a series of recom-mendations, the Executive Committee and the Board of Directors have agreed that new resources must be deployed at the Foundation if we are to continue to reach new heights. In line with this, Victor Drury, who has been the CEO of our Foundation for almost 15 years and under whose leadership over $33,000,000 has been distributed to pediatric research, has expressed a desire to shift his focus from day-to-day management to a greater development thrust for the Foundation. His new focus will primarily include: maintaining and enhancing our relationships with Service Club members, building relationships with corporate partners and, given his experience, the overseeing of the direct mail campaigns and the launching of a planned-giving program at the Foun-dation. It is fully anticipated that, with Victor’s new focus and the deployment of additional human resources, the Foundation will maintain its trajectory towards new heights and continue to have record- breaking years.

Thank YousThe achievements of the Foundation in the past year are all attributable to the generosity of our contribu-tors and partners. We thank them deeply for their confidence in us and for their precious commitment. Our sincere thanks also go to the members of the Board of Directors and our Founding Service Club Governors for their unfailing support. We are privileged to be able to count on their tremendous availability and expertise. Their contributions are greatly appre-ciated. We also wish to express our most sincere gratitude to the staff of the Foundation for the quality of their work and their enthusiasm in meeting the numerous challenges which they face.

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Jean TremblayPresident

Victor M. DruryChief Executive

Officer

The Sainte-Justine Hospital is an established leader in the field of Viral and Immune Disor-ders and Cancers. Its Cord Blood Transplanta-tion is one of the most important in the world, the clinical results are outstanding and its scientists are renowned for their innovative approach to research. This field of research offers an enormous potential for new partner-ships with the industry, which should help speed up research into the causes and individualized

treatment of childhood leukemia and other com-plex pediatric diseases.

Our scientists’ dedication, leadership and innova-tive approach to research constitute the strengths of the CHU Sainte-Justine’s research centre. Funding from The Foundation of Stars is crucial to reaching our objective: to improve maternal and child health.

Centre de recherche du Centre hospitalier universitaire de Québec

During the year 2007-2008, the CHUQ Re- search Centre pursued the restructuring of its general financing strategy. Therefore, the funds received from the Foundation of Stars (approximately 30%) are committed to awards of excellence for Masters level (MSc), doctoral and post-doc students. An average of four M. Sc. degrees, four Ph.D. degrees and two post- doc bursaries are awarded each year. The amounts of bursary per year are $15,000, $19,500 and $30,000 respectively. Support funding is also granted to clinical or funda-mental research scholars (FRSQ, CHRI).

These operating grants contribute mainly to the acquisition of specialized laboratory materials and products, and about 40% of the budget is allocated to the implementation of these young scientists’ research programs. A portion of the amounts paid is used as seed money for pilot projects. The average allowed amount is around $20,000 per year per scholar. A portion of the amount paid is allocated to common clinical research services as a contribution to the research coordination nurse’s salary and to computer and secretariat equipment.

CHUS Centre de rechercheclinique Étienne-Le Bel

This research centre has received major financing to develop animal facilities for neonatal ovine models, and the perinatal research team studying ovines has just been officially recognized. These scientists are conducting several original studies. The first studies to benefit from this infrastruc-ture for their development are the studies on severe troubles in premature infants and newborn babies, and sudden infant death syndrome. Studies on the development and validation of a total natal video-endoscopic surgery will be carried liquid ventilator to treat infant severe acute respiratory distress are also progressing. Research activities on neo- out simultaneously in the new animal facili-ties. While this type of minimally invasive surgery has revolutionized adult surgery, it is still difficult to use with newborns, and much progress remains to be achieved in this area. Finally, studies on the effects of intrauterine exposure to environmental

contaminants in newborns (thyroidal function, brain development) will be pursued on ovine models. The objective is to influence Canadian public health policy concerning the maximum admissible concentrations of toxic chemical substances in the environment.

The CHUS is conducting research into several central nervous system abnormalities. Inflamma-tion is an important mechanism that can lead to infantile cerebral paralysis. The CHU’s research aims at understanding inflammation to prevent and fight cerebral inflammation in newborns.

In-depth research is currently being conducted on biological markers for various diseases asso-ciated with Down syndrome, i.e. copper meta-bolic disorders, Fragile X-Syndrome, which is accom- panied by mental impairment and/or premature death. The research centre is also very active in the field of pediatric stroke.

Page 7: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Presentation ofthe Board of Directors :

PRESIDENTJean TremblayVice President, FinanceBOYZ inc.

PAST PRESIDENTYves LéveilléGeneral ManagerCaisse Desjardins du Haut-Saint-Laurent

VICE PRESIDENT France RivetGroupe Conseil France Rivet

VICE PRESIDENTMichel LanteigneEY Global

TREASURERDiane R. LavoieDirector, Financial ServicesNational Bank of Canada

SECRETARYSheldon PopligerPresidentRecyclage de textilesSomodif

DIRECTORJacques LussierManager Parts and accessories Viau Ford

CHIEF EXECUTIVEOFFICERVictor M. DruryFoundation of Stars

ServiceClub

Institution Institution

NAMENAME

NAMENAME

NAME

NAME

ServiceClub

Réal BédardGérard BensaidDre Dolly Dastoor Jim GuintaMurray Kozlick

Jacques LussierSheldon PopligerGerald Safran Louis VaillancourtJack Westaway

Knights of ColumbusB'nai BrithKnights of PythiasKiwanisKinsmen

Optimist Civitan Zonta RichelieuRotary

Vincenzo CiampiGeneviève Dion

Sylvain FilionMichel LanteigneMichèle Parent

Standard LifeBombardierTransportDomiciliaEY GlobalRadio-Canada

Region

Marcel Martineau Diane R. Lavoie Danielle RaymondGinette Soucy

Beloeil, DirectorSainte-Thérèse, DirectorDorion-Vaudreuil, DirectorLouiseville, Director

Organization

Foundation of StarsCHUQCHUSCHU Sainte-JustineMontreal Children’s Hospital

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Diane RannoFrance Rivet

Peter SternbergGerry Weinstein

AONGroupe ConseilFrance RivetHarvey’s (retired)Nirvana

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Foundation Staff:

Sonia Chatoyan (2002)Director of Special Events

Cynthia De Michele (2008)Assistant Director of Special Events

Victor M. Drury (1993)Chief Executive Officer

Daniel Favreau (1988)Director of Finance & Administration

Suzanne Guitard Ranger (2004)Receptionist & Administrative Assistant

Carole Lalande (1995)Administrative Assistant

Carole McDermott (1997)Responsible, Data Entry

Sylvia Snelgrove (1987)Administrative Assistant

Robert Tavernier (2001)Provincial Directorl

Mireille Vaillant (1998)Administrative Assistant

Pia Verdino (2005)Administrative Assistant

Our Research Centres (Continued)

Executive Committee

Directors representing Service Clubs

Directors at large

Regional Directors

Ex-officio Directors

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CHU Sainte-Justine Research CentreThe Sainte-Justine University Hospital Centre (CHU) celebrated its 100th anniversary in 2007. By dedicating all these years to mo- ther and child’s health, it has become the most important pediatric university hospital centre in Canada. For some 35 years, the CHU Sainte-Justine research centre has been pursuing a unique mission: to acquire cutting- edge knowledge aimed at improving the health and lives of mother and child. The extraordinary advances in genomic research are paving the way to medical treatment which will be better adapted to the patient’s profile, thus allowing for a more targeted response to his or her health problem.

As part of its academic mission, the Sainte- Justine University Hospital Centre prepares the workforce of tomorrow by training more than 400 students a year. Over the last two years, the number of Masters and PhD stu- dents, as well as the number of postdoctoral trainees, has risen by 30%. A proactive program has been implemented to attract and retain top quality students, and to create a stimulating and enriching training environ-ment. For a second year, a scholarship pro- gram has been developed in cooperation with the Foundation of Stars and the Sainte-Justine Hospital Foundation. This has greatly enhanced skill development and allowed for investment in the potential of future scientists. Once again, the Foundation of Star’s annual contribution to the Sainte-Justine research development has made a significant differ-ence. Funds were partially dedicated to scholarship awards to master and doctorate students, and to postdoctoral trainees. Ano- ther amount was used in partnership with the Université de Montréal Research Centre as salary support. Funds awarded by the Foun-dation of Stars are also allocated to clinical research priority areas such as the joint pro- gram with the directorate of medical affairs, clinical research and evaluation of health- care technologies and intervention methods, the development of the applied clinical research unit, and support of restructuring of the six research axes in line with the univer-sity hospital centres of excellence.

Over the past year, the University Hospital Centre (CHU) and the Research Centre have determined six axes of research on which they will base the future development of their activi-ties. The balance between research, academic and clinical priorities is specific to Sainte- Justine and allows for an efficient knowledge transfer from the lab to the patient’s bed.

Research in the area of fetomaternal and neonatal pathologies capitalizes on CHU Sainte-Justine’s unique structure to study embryo, fetal and neonatal anomalies. Also, over the past year, several scientists have distinguished themselves, namely with their research findings on the effects of antidepressants during pregnancy and with the launch of the most important maternal- infant study conducted in Canada on exposure to environmental contaminants during pregnancy and breastfeeding. In addition, the scientists’ expertise in musculoskeletal diseases and move-ment sciences is world-renowned.

These research themes are aimed at promoting multidisciplinary research by connecting funda-mental research, clinical research and rehabilita-tion to knowledge transfer and introduction of clinical innovations for the children’s wellness. The objective is to develop novel, least-invasive treatments to allow children and adolescents to live with minimum physical limitations, and to screen for muskuloskeletal diseases from a young age in order to prevent the recurrence of these diseases in adulthood.

The Brain Diseases axis regroups internationally renowned scientists in the areas of neurosci-ences and developmental psychologies. In the neuroscience area, scientists have been granted numerous important scholarships with the goal to increasing wide-scale approaches to the study of neurodevelopmental diseases such as schizophrenia, autism or mental retardation. Research in the area of child psychopathologies and development, especially the work of the Centre of Excellence for Children’s Well-being – Early Childhood Development, has lead to the production of the first virtual Encyclopedia on Early Childhood Development, which includes over 270 authors from 11 countries.

Supported by a research chair and by significant grants, scientists in the Metabolic Health axis are working to better understand, prevent and resolve major metabolic troubles occurring between the fetal period and early adulthood.

Research on Health Outcomes provides a wide range of transdisciplinary skills to the scientists in other research themes, namely in epidemiology and evaluative research. These research areas are becoming increasingly important in the context of today’s public health concerns. The recent implementation of the Applied Clinical Research Unit will help develop and enhance clinical research within Sainte-Justine.

Victor M. Drury Dr Robert L. FaureDr Jean-Paul PraudDr Guy RouleauDre Jacquetta Trasler

Page 8: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our Events

Special Event funds are generated by activities organized by the Foundation, our major partnersand by our regional volunteers.

31st Telethon

The Telethon is always an event filled with emotion and high sensation. For a thirty-first year, viewers were deeply touched by the patients’ and researchers’ testimonials delivered during the 24-hour Telethon, held December 1 & 2, 2007. The event was co-chaired by Diane Blais and Michel Lanteigne of Ernst & Young, and was hosted on CTV-Montréal by Randy Tieman, Lori Graham, Frank Cavallaro and Mosé Persico and on TQS by Florence K and François-Étienne Paré. The generosity of the viewers and revenues from other events largely compensated for the lowering of revenues resulting from the fierce competition between the various television networks.

25th Step Up for The Children with Standard Life

For the 25th consecutive year, Standard Life has demonstrated its commitment to the Foundation by producing this event and contributing all of the monies raised during this exciting day’s event. In addition, Standard Life assumes all of the related organization and administration costs. In 2007, more than 4,000 runners and walkers met at Jean Drapeau Park, resulting in $385,000 being contributed to the Foundation.

25th Bal des enfants

Entitled the ‘Soirée des enfants et des elles’, the Foundation experi-enced its best ball results ever on October 18, 2008. The event was held at la Tohu and brought together Montreal’s business and social elite, leaders in pediatric research in Quebec, and special guests Jean Charest Premier of Quebec and his wife Michèle Dionne, Laureen Harper, Senator Michael M. Fortier, Mayor Gérald Tremblay and his wife Suzanne Tailleur and more than 650 guests. Monique Leroux, then Chief Financial Officer, Desjardins Group, and Isabelle Hudon, President and CEO of the Board of Trade of Metropolitan Montreal, who co- chaired the event, announced net revenues of $705,330 to be contributed to children’s health research.

During the evening, the following researchers were honoured as recipi-ents of the Foundation’s “Prix d’excellence”: Dr Richard Tremblay (CHU Ste-Justine), Dr Guy Boivin (CHUQ), Dr Huiqi Qu (Montreal Children’s Hospital - MCH), Dr Volkan Seyrantepe (CHU Ste-Justine), Jennifer Hutcheon (MCH), Inga Murawski (MCH), Laura Pickell (MCH), Pascal Lapierre (CHU Ste-Justine), Marie Beauséjour (CHU Ste-Justine), Gaspard

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Our Research CentresMontreal Children’s Hospital

The annual donation received from the Foun-dation of Stars has been crucial to the evolu-tion of the research program at the Montreal Children’s Hospital. During times of economic uncertainty and high competition for limited charity dollars, this donation has allowed our hospital to maintain a vibrant and productive research program.

One cannot overemphasize the significance of this support to the Children’s and its research community. Its importance is illustrated by the fact that over the past three decades, the Foundation donation has comprised between 10 and 15% of the MCH’s budget for direct research activity. It is the Foundation donation which allows us to train future researchers and recruit senior and junior investigators to our site. It is this support which finances essential state-of-the-art laboratory equipment while contributing to the costs of modifying our space facilities to accommodate new funda-mental and clinical research programs. In addi-tion, the Telethon funds also allow us to initiate innovative pilot research projects in prepara-tion for submission to federal and provincial funding agencies for stable on-going financial support.

There have been a number of significant developments at our Center over the past year. Dr. Jacquetta Trasler was appointed as Scientific Director in mid 2007, new strategic goals have been set, and we are further strengthening already excellent research within our center as well as forging key links and initiating research projects between our center and other pediatric research institutes in Quebec and Canada. Over the past year, the Montreal Children’s Hospital has made signifi-cant contributions to the understanding, prevention and treatment of diseases affecting the pediatric population. The Telethon of Stars donation has, in a significant way, contributed to these research findings. Our research themes include prenatal and childhood origins of disease (e.g., respiratory, cardiovascular and eye diseases, growth disorders, diabetes); genetics and cancer; and brain, behaviour and development. Some highlights of research developments at the Montreal Children’s Hospi-tal over the past year are outlined below.

Dr. Constantin Polychronakos was one of the authors of a “red hot research paper” published in Nature which was ranked by Science Watch as the 5th most important medical and scien-tific paper worldwide over the course of 2007. This paper, which has identified new associa-tions between specific genes and type 2

diabetes, has major implications for devising strategies to prevent this form of diabetes.

Research conducted by Dr. Eric Fombonne and communicated at the 6th International Meeting for Autism Research revealed new evidence dispelling the supposed link between mercury and autism thus alleviating concern related to childhood thimerosal – containing vaccines, dental amalgams and methymercury in food. This report followed closely on the heels of a study published by Dr. Fombonne in the Journal of Pediatrics which cleared the Measles Mumps Rubella vaccine as a risk factor for autism.

Dr. Janusz Rak has published a paper in Nature Cell Biology which outlines a new fundamental mechanism of how tumour cells communicate. These findings may change the view on how cancerous tissues work and thus lead to major innovations in treatment.

Dr. Sam Daniel has used Botox injections for saving the life and guaranteeing the quality of life of an infant born with Charge syndrome. This complex disorder affects the ability of the infant to swallow and ultimately leads to a surgical tracheotomy with all its accompany-ing risks of mortality. This was the first time that Botox was used for so young a patient affected with this disorder.

A clinical trial study published by Dr. Larry Lands in the Journal of Pediatrics has demon-strated that the use of Ibuprofen can slow lung disease in children with Cystic Fibrosis.

Dr. Michael Kramer has found that children who were breastfed exclusively for the first three months of life or longer scored nearly six points higher on IQ tests at the age of 6 than children who weren’t breastfed exclusively. These findings have been published in the Archives of General Psychiatry.

In publications in the American Journal of Pediatrics and in Nature Genetics, Dr. Robert Koenekoop has identified two genes respon-sible for Leber’s Congenital Amaurosis, the most common cause of congenital blindness in infants and children. It is hoped that these findings will lead to successful therapies for children affected with this condition.

Dr. Nada Jabado is the senior author of a study published in the Journal of Clinical Oncology which has greatly progressed our understand-ing of pediatric glioblastoma, the most deadly form of brain cancer.

Page 9: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

If you have lived a healthy life and you are an adult,

please give the same chance to a sick child.

To all of our partners and volunteers, no matter what their involvement, the Foundation wishes to thank you sincerely for your support over so many years and we hope to be able to count on your support for many years to come.

Valérie Bernier

««

Our Events

21st Research into Children’s Diseases Golf Classic

Under the honourary chairmanship of Larry Smith, President of the Montreal Alouettes, the 21st edition of the Annual Golf Classic was held at the Club Laval-sur-le Lac. This year’s event produced $251,681 in net revenues. We wish to point out that this success would not have been possible without the collaboration of several partners, including: the Royal Canadian Mounted Police, supported by principal sponsors l’Aubainerie and Denarius Financial Group, and by Power Corporation of Canada, Le Spago, Boyz, Scully the World Show, Vitreco, AIG, Rosco Group, Lexus Laval and several others.

Montandon (CHUQ), Nicolas Bilodeau (CHUQ), Nathalie Samson (CHUS), Raymond Robert (CHUS). Amongst the main partners who contributed to scholarships were Desjardins Group, Ernst & Young, sanofi-aventis, BMO Nesbitt Burns, Bell Canada, CGI Group, Pfizer Canada, Power Corporation, PricewaterhouseCoopers, Standard Life and Ultramar.

The following is a sample: Once again, Domicilia organized a magnificent benefit Dinner for the Foundation and proudly provided us with a cheque for $100,000.

For the 6th consecutive year, AON organized a golf tournament and other activities benefiting the Foundation. It is with much gratitude that the Foundation became the recipient of $60,000.

For its part, Mr. Muffler also organized events in support of our cause.

The Maria Raiche benefit dinner is a not-to-be-missed event each year at the Restaurant du Vieux-Port. In its 24rd year, the Antonopoulos Family provided us with $20,000.

In addition to being involved in the Golf Classic, the Royal Canadian Mounted Police organizes a Spaghetti benefit dinner which this year produced $18,700.

10th BRP President’s Trek

Each year, BRP sponsors a day-long BRP President’s Trek, which in 2007 featured their new three-wheel motorcycle, the CAN-AM Spyder, and set a new record of $153,000.

Numerous other events and activities were organized elsewhere across Quebec by various volunteer partners.

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June 2006. It is the first day of the summer holidays. Valerie is already at a campground with one of her friends, and both girls decide to go to swinging. Valerie is 9 years old. She is very active, adores climbing and playing outside. After a few minutes of play, Valerie has an accident and falls off her swing. She does not fall from high, but her leg is in terrible pain. During the hours which follow, her leg swells and becomes red. She is brought to the Chibougamau Hospital where it is confirmed that her tibia is broken in two places. Because she is still growing, she is transferred to a larger Hospital in Roberval where she is put in a cast from her foot to the top of her thigh. A few weeks later, following an X-ray to check if her bone is healing properly, doctors detect a hole in the bone; it would seem that it is a tumour.

August 4, Valerie and her Nancy mom are at the Maisonneuve-Rosemont Hospital for a biopsy of the bone. August 7, they receive the results, a very, very malignant cancer called the osteosarcoma.

August 27, Valerie begins chemotherapy treatments at the CHU Sainte-Justine.

She and her mother accept that she take part in a research project on the treatments. This implies that she will receive 40 weeks of treatments if she is strong enough. Since she needs a break, in all, she requires 52 weeks of treatments.

November 11, in order to save her life and to stop the progression of the cancer, her left leg is amputated at the ankle. Since then, Valerie has undergone another operation to the leg in order to better adjust its prosthesis.

Valerie’s battle is not over. She will be followed at the Sainte-Justine Hospital until the year 2022. The rate of recurrence of osteosar-coma is extremely high.

Valerie hopes to become a veterinary surgeon when she is older. Today, at 11 years old, noth-ing stands in her way; she loves to dance, sing, draw, the arts, cycling and horseback riding. "If you have lived a healthy life and you are an adult, please give the same chance to a sick child".

"Valerie isn’t afraid of anything in life. From the beginning, I knew she had the strength to get through this", acknowledges her mother Nancy Godbout.

Valérie’s Story

Page 10: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Financial Highlights

20072008STATEMENT OF REVENUE AND EXPENDITUREFOR THE YEAR ENDED MARCH 31, 2008

STATEMENT OF CONTRIBUTIONSFOR THE YEAR ENDED MARCH 31, 2008Donations and fundraising events

Fundraising event costs

Amortization

Interest

Telethon Production Air time Telecommunications Tabulating Other

Administration

Office

Fundraising

Marketing and communication Development and corporate Special events Provincial

Revenue over expenditures before amortization

$ $

Distribution of Fundsto Pediatric ReseachCentres

REVENUE

EXPENSES

Revenue over expenditures

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200520062007

CONTRIBUTIONS

Total

1. Montreal Children’s Hospital Research Institute

2. Saint-Justine’s Hospital Department of Research

3. Centre hospitalier universitaire de Québec* (CHUQ) – Department of pediatric research

4. Centre hospitalier universitaire de Sherbrooke** (CHUS) Department of pediatric research

5. Maternal, Infant, Child and Youth Research Network***

$Total(Since 1977)

24 570 5001 187 5001 187 5001 130 000

5 183 000390 000390 000380 000

100 000--50 00050 000

1 890 000235 000235 000230 000

56 314 0003 000 0003 000 0002 920 0003 200 000

$ $ $ $

24 570 5001 187 5001 187 5001 130 000

2008

1 250 000

400 000

250 000

1 250 000

* Since 1985 ** Since 1999 *** Since 2007

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200

8

Expenditures before amortization

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2 832 351

12 866

448 486

90 566123 1 10140 3441 1 1 109465 129

407 409

73 214

134 426135 7301 14 1 1 7457 487

3 239 729

2 915

6 365 606

1 248 489

5 117 1 1 7

126 439

753 266106 97575 139

122 46416 775

750 593106 97580 854

128 28023 510

5 243 556 4 771 866

2 819 4853 236 814

5 559 855

886 207

4 673 648

98 218

1 939 5152 003 827

Page 11: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Financial Highlights

20072008STATEMENT OF REVENUE AND EXPENDITUREFOR THE YEAR ENDED MARCH 31, 2008

STATEMENT OF CONTRIBUTIONSFOR THE YEAR ENDED MARCH 31, 2008Donations and fundraising events

Fundraising event costs

Amortization

Interest

Telethon Production Air time Telecommunications Tabulating Other

Administration

Office

Fundraising

Marketing and communication Development and corporate Special events Provincial

2 832 351Revenue over expenditures before amortization

12 866

$ $

448 486

90 566123 110

140 344111 109

465 129

407 409

73 214

134 426135 730

114 117

457 487

3 239 729

2 915

Distribution of Fundsto Pediatric ReseachCentres

REVENUE6 365 6061 248 489

5 117 117

126 4395 243 556

EXPENSES

753 266106 975

75 139122 464

16 775

750 593106 97580 854128 280

23 510

4 766 898 4 771 866

2 819 485Revenue over expenditures 3 236 814

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200520062007

CONTRIBUTIONS

Total

1. Montreal Children’s Hospital Research Institute

2. Saint-Justine’s Hospital Department of Research

3. Centre hospitalier universitaire de Québec* (CHUQ) – Department of pediatric research

4. Centre hospitalier universitaire de Sherbrooke** (CHUS) Department of pediatric research

5. Maternal, Infant, Child and Youth Research Network***

$Total(Since 1977)

24 570 5001 187 5001 187 5001 130 000

5 183 000390 000390 000380 000

100 000--50 00050 000

1 890 000235 000235 000230 000

56 314 0003 000 0003 000 0002 920 0003 200 000

$ $ $ $

24 570 5001 187 5001 187 5001 130 000

2008

1 250 000

400 000

250 000

1 250 000

* Since 1985 ** Since 1999 *** Since 2007

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07-

200

8

5 559 855886 207

4 673 648

98 218

Expenditures before amortization 1 939 5152 003 827

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Page 12: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

If you have lived a healthy life and you are an adult,

please give the same chance to a sick child.

To all of our partners and volunteers, no matter what their involvement, the Foundation wishes to thank you sincerely for your support over so many years and we hope to be able to count on your support for many years to come.

Valérie Bernier

««

Our Events

21st Research into Children’s Diseases Golf Classic

Under the honourary chairmanship of Larry Smith, President of the Montreal Alouettes, the 21st edition of the Annual Golf Classic was held at the Club Laval-sur-le Lac. This year’s event produced $251,681 in net revenues. We wish to point out that this success would not have been possible without the collaboration of several partners, including: the Royal Canadian Mounted Police, supported by principal sponsors l’Aubainerie and Denarius Financial Group, and by Power Corporation of Canada, Le Spago, Boyz, Scully the World Show, Vitreco, AIG, Rosco Group, Lexus Laval and several others.

Montandon (CHUQ), Nicolas Bilodeau (CHUQ), Nathalie Samson (CHUS), Raymond Robert (CHUS). Amongst the main partners who contributed to scholarships were Desjardins Group, Ernst & Young, sanofi-aventis, BMO Nesbitt Burns, Bell Canada, CGI Group, Pfizer Canada, Power Corporation, PricewaterhouseCoopers, Standard Life and Ultramar.

The following is a sample: Once again, Domicilia organized a magnificent benefit Dinner for the Foundation and proudly provided us with a cheque for $100,000.

For the 6th consecutive year, AON organized a golf tournament and other activities benefiting the Foundation. It is with much gratitude that the Foundation became the recipient of $60,000.

For its part, Mr. Muffler also organized events in support of our cause.

The Maria Raiche benefit dinner is a not-to-be-missed event each year at the Restaurant du Vieux-Port. In its 24rd year, the Antonopoulos Family provided us with $20,000.

In addition to being involved in the Golf Classic, the Royal Canadian Mounted Police organizes a Spaghetti benefit dinner which this year produced $18,700.

10th BRP President’s Trek

Each year, BRP sponsors a day-long BRP President’s Trek, which in 2007 featured their new three-wheel motorcycle, the CAN-AM Spyder, and set a new record of $153,000.

Numerous other events and activities were organized elsewhere across Quebec by various volunteer partners.

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June 2006. It is the first day of the summer holidays. Valerie is already at a campground with one of her friends, and both girls decide to go to swinging. Valerie is 9 years old. She is very active, adores climbing and playing outside. After a few minutes of play, Valerie has an accident and falls off her swing. She does not fall from high, but her leg is in terrible pain. During the hours which follow, her leg swells and becomes red. She is brought to the Chibougamau Hospital where it is confirmed that her tibia is broken in two places. Because she is still growing, she is transferred to a larger Hospital in Roberval where she is put in a cast from her foot to the top of her thigh. A few weeks later, following an X-ray to check if her bone is healing properly, doctors detect a hole in the bone; it would seem that it is a tumour.

August 4, Valerie and her Nancy mom are at the Maisonneuve-Rosemont Hospital for a biopsy of the bone. August 7, they receive the results, a very, very malignant cancer called the osteosarcoma.

August 27, Valerie begins chemotherapy treatments at the CHU Sainte-Justine.

She and her mother accept that she take part in a research project on the treatments. This implies that she will receive 40 weeks of treatments if she is strong enough. Since she needs a break, in all, she requires 52 weeks of treatments.

November 11, in order to save her life and to stop the progression of the cancer, her left leg is amputated at the ankle. Since then, Valerie has undergone another operation to the leg in order to better adjust its prosthesis.

Valerie’s battle is not over. She will be followed at the Sainte-Justine Hospital until the year 2022. The rate of recurrence of osteosar-coma is extremely high.

Valerie hopes to become a veterinary surgeon when she is older. Today, at 11 years old, noth-ing stands in her way; she loves to dance, sing, draw, the arts, cycling and horseback riding. "If you have lived a healthy life and you are an adult, please give the same chance to a sick child".

"Valerie isn’t afraid of anything in life. From the beginning, I knew she had the strength to get through this", acknowledges her mother Nancy Godbout.

Valérie’s Story

Page 13: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our Events

Special Event funds are generated by activities organized by the Foundation, our major partnersand by our regional volunteers.

31st Telethon

The Telethon is always an event filled with emotion and high sensation. For a thirty-first year, viewers were deeply touched by the patients’ and researchers’ testimonials delivered during the 24-hour Telethon, held December 1 & 2, 2007. The event was co-chaired by Diane Blais and Michel Lanteigne of Ernst & Young, and was hosted on CTV-Montréal by Randy Tieman, Lori Graham, Frank Cavallaro and Mosé Persico and on TQS by Florence K and François-Étienne Paré. The generosity of the viewers and revenues from other events largely compensated for the lowering of revenues resulting from the fierce competition between the various television networks.

25th Step Up for The Children with Standard Life

For the 25th consecutive year, Standard Life has demonstrated its commitment to the Foundation by producing this event and contributing all of the monies raised during this exciting day’s event. In addition, Standard Life assumes all of the related organization and administration costs. In 2007, more than 4,000 runners and walkers met at Jean Drapeau Park, resulting in $385,000 being contributed to the Foundation.

25th Bal des enfants

Entitled the ‘Soirée des enfants et des elles’, the Foundation experi-enced its best ball results ever on October 18, 2008. The event was held at la Tohu and brought together Montreal’s business and social elite, leaders in pediatric research in Quebec, and special guests Jean Charest Premier of Quebec and his wife Michèle Dionne, Laureen Harper, Senator Michael M. Fortier, Mayor Gérald Tremblay and his wife Suzanne Tailleur and more than 650 guests. Monique Leroux, then Chief Financial Officer, Desjardins Group, and Isabelle Hudon, President and CEO of the Board of Trade of Metropolitan Montreal, who co- chaired the event, announced net revenues of $705,330 to be contributed to children’s health research.

During the evening, the following researchers were honoured as recipi-ents of the Foundation’s “Prix d’excellence”: Dr Richard Tremblay (CHU Ste-Justine), Dr Guy Boivin (CHUQ), Dr Huiqi Qu (Montreal Children’s Hospital - MCH), Dr Volkan Seyrantepe (CHU Ste-Justine), Jennifer Hutcheon (MCH), Inga Murawski (MCH), Laura Pickell (MCH), Pascal Lapierre (CHU Ste-Justine), Marie Beauséjour (CHU Ste-Justine), Gaspard

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Our Research CentresMontreal Children’s Hospital

The annual donation received from the Foun-dation of Stars has been crucial to the evolu-tion of the research program at the Montreal Children’s Hospital. During times of economic uncertainty and high competition for limited charity dollars, this donation has allowed our hospital to maintain a vibrant and productive research program.

One cannot overemphasize the significance of this support to the Children’s and its research community. Its importance is illustrated by the fact that over the past three decades, the Foundation donation has comprised between 10 and 15% of the MCH’s budget for direct research activity. It is the Foundation donation which allows us to train future researchers and recruit senior and junior investigators to our site. It is this support which finances essential state-of-the-art laboratory equipment while contributing to the costs of modifying our space facilities to accommodate new funda-mental and clinical research programs. In addi-tion, the Telethon funds also allow us to initiate innovative pilot research projects in prepara-tion for submission to federal and provincial funding agencies for stable on-going financial support.

There have been a number of significant developments at our Center over the past year. Dr. Jacquetta Trasler was appointed as Scientific Director in mid 2007, new strategic goals have been set, and we are further strengthening already excellent research within our center as well as forging key links and initiating research projects between our center and other pediatric research institutes in Quebec and Canada. Over the past year, the Montreal Children’s Hospital has made signifi-cant contributions to the understanding, prevention and treatment of diseases affecting the pediatric population. The Telethon of Stars donation has, in a significant way, contributed to these research findings. Our research themes include prenatal and childhood origins of disease (e.g., respiratory, cardiovascular and eye diseases, growth disorders, diabetes); genetics and cancer; and brain, behaviour and development. Some highlights of research developments at the Montreal Children’s Hospi-tal over the past year are outlined below.

Dr. Constantin Polychronakos was one of the authors of a “red hot research paper” published in Nature which was ranked by Science Watch as the 5th most important medical and scien-tific paper worldwide over the course of 2007. This paper, which has identified new associa-tions between specific genes and type 2

diabetes, has major implications for devising strategies to prevent this form of diabetes.

Research conducted by Dr. Eric Fombonne and communicated at the 6th International Meeting for Autism Research revealed new evidence dispelling the supposed link between mercury and autism thus alleviating concern related to childhood thimerosal – containing vaccines, dental amalgams and methymercury in food. This report followed closely on the heels of a study published by Dr. Fombonne in the Journal of Pediatrics which cleared the Measles Mumps Rubella vaccine as a risk factor for autism.

Dr. Janusz Rak has published a paper in Nature Cell Biology which outlines a new fundamental mechanism of how tumour cells communicate. These findings may change the view on how cancerous tissues work and thus lead to major innovations in treatment.

Dr. Sam Daniel has used Botox injections for saving the life and guaranteeing the quality of life of an infant born with Charge syndrome. This complex disorder affects the ability of the infant to swallow and ultimately leads to a surgical tracheotomy with all its accompany-ing risks of mortality. This was the first time that Botox was used for so young a patient affected with this disorder.

A clinical trial study published by Dr. Larry Lands in the Journal of Pediatrics has demon-strated that the use of Ibuprofen can slow lung disease in children with Cystic Fibrosis.

Dr. Michael Kramer has found that children who were breastfed exclusively for the first three months of life or longer scored nearly six points higher on IQ tests at the age of 6 than children who weren’t breastfed exclusively. These findings have been published in the Archives of General Psychiatry.

In publications in the American Journal of Pediatrics and in Nature Genetics, Dr. Robert Koenekoop has identified two genes respon-sible for Leber’s Congenital Amaurosis, the most common cause of congenital blindness in infants and children. It is hoped that these findings will lead to successful therapies for children affected with this condition.

Dr. Nada Jabado is the senior author of a study published in the Journal of Clinical Oncology which has greatly progressed our understand-ing of pediatric glioblastoma, the most deadly form of brain cancer.

Page 14: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Presentation ofthe Board of Directors :

PRESIDENTJean TremblayVice President, FinanceBOYZ inc.

PAST PRESIDENTYves LéveilléGeneral ManagerCaisse Desjardins du Haut-Saint-Laurent

VICE PRESIDENT France RivetGroupe Conseil France Rivet

VICE PRESIDENTMichel LateigneEY Global

TREASURERDiane R. LavoieDirector, Financial ServicesNational Bank of Canada

SECRETARYSheldon PopligerPresidentRecyclage de textilesSomodif

DIRECTORJacques LussierManager Parts and accessories Viau Ford

CHIEF EXECUTIVEOFFICERVictor M. DruryFoundation of Stars

ServiceClub

Institution Institution

NAMENAME

NAMENAME

NAME

NAME

ServiceClub

Réal BédardGérard BensaidDre Dolly Dastoor Jim GuintaMurray Kozlick

Jacques LussierSheldon PopligerGerald Safran Louis VaillancourtJack Westaway

Knights of ColumbusB'nai BrithKnights of PythiasKiwanisKinsmen

Optimist Civitan Zonta RichelieuRotary

Vincenzo CiampiGeneviève Dion

Sylvain FilionMichel LateigneMichèle Parent

Standard LifeBombardierTransportDomiciliaEY GlobalRadio-Canada

Region

Marcel Martineau Diane R. Lavoie Danielle RaymondGinette Soucy

Beloeil, DirectorSainte-Thérèse, DirectorDorion-Vaudreuil, DirectorLouiseville, Director

Organization

Foundation of StarsCHUQCHUSCHU Sainte-JustineMontreal Children’s Hospital

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Diane RannoFrance Rivet

Peter SternbergGerry Weinstein

AONGroupe ConseilFrance RivetHarvey’s (retired)Nirvana

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Foundation Staff:

Sonia Chatoyan (2002)Director of Special Events

Cynthia De Michele (2008)Assistant Director of Special Events

Victor M. Drury (1993)Chief Executive Officer

Daniel Favreau (1988)Director of Finance & Administration

Suzanne Guitard Ranger (2004)Receptionist & Administrative Assistant

Carole Lalande (1995)Administrative Assistant

Carole McDermott (1997)Responsible, Data Entry

Sylvia Snelgrove (1987)Administrative Assistant

Robert Tavernier (2001)Provincial Directorl

Mireille Vaillant (1998)Administrative Assistant

Pia Verdino (2005)Administrative Assistant

Our Research Centres (Continued)

Executive Committee

Directors representing Service Clubs

Directors at large

Regional Directors

Ex-officio Directors

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CHU Sainte-Justine Research CentreThe Sainte-Justine University Hospital Centre (CHU) celebrated its 100th anniversary in 2007. By dedicating all these years to mo- ther and child’s health, it has become the most important pediatric university hospital centre in Canada. For some 35 years, the CHU Sainte-Justine research centre has been pursuing a unique mission: to acquire cutting- edge knowledge aimed at improving the health and lives of mother and child. The extraordinary advances in genomic research are paving the way to medical treatment which will be better adapted to the patient’s profile, thus allowing for a more targeted response to his or her health problem.

As part of its academic mission, the Sainte- Justine University Hospital Centre prepares the workforce of tomorrow by training more than 400 students a year. Over the last two years, the number of Masters and PhD stu- dents, as well as the number of postdoctoral trainees, has risen by 30%. A proactive program has been implemented to attract and retain top quality students, and to create a stimulating and enriching training environ-ment. For a second year, a scholarship pro- gram has been developed in cooperation with the Foundation of Stars and the Sainte-Justine Hospital Foundation. This has greatly enhanced skill development and allowed for investment in the potential of future scientists. Once again, the Foundation of Star’s annual contribution to the Sainte-Justine research development has made a significant differ-ence. Funds were partially dedicated to scholarship awards to master and doctorate students, and to postdoctoral trainees. Ano- ther amount was used in partnership with the Université de Montréal Research Centre as salary support. Funds awarded by the Foun-dation of Stars are also allocated to clinical research priority areas such as the joint pro- gram with the directorate of medical affairs, clinical research and evaluation of health- care technologies and intervention methods, the development of the applied clinical research unit, and support of restructuring of the six research axes in line with the univer-sity hospital centres of excellence.

Over the past year, the University Hospital Centre (CHU) and the Research Centre have determined six axes of research on which they will base the future development of their activi-ties. The balance between research, academic and clinical priorities is specific to Sainte- Justine and allows for an efficient knowledge transfer from the lab to the patient’s bed.

Research in the area of fetomaternal and neonatal pathologies capitalizes on CHU Sainte-Justine’s unique structure to study embryo, fetal and neonatal anomalies. Also, over the past year, several scientists have distinguished themselves, namely with their research findings on the effects of antidepressants during pregnancy and with the launch of the most important maternal- infant study conducted in Canada on exposure to environmental contaminants during pregnancy and breastfeeding. In addition, the scientists’ expertise in musculoskeletal diseases and move-ment sciences is world-renowned.

These research themes are aimed at promoting multidisciplinary research by connecting funda-mental research, clinical research and rehabilita-tion to knowledge transfer and introduction of clinical innovations for the children’s wellness. The objective is to develop novel, least-invasive treatments to allow children and adolescents to live with minimum physical limitations, and to screen for muskuloskeletal diseases from a young age in order to prevent the recurrence of these diseases in adulthood.

The Brain Diseases axis regroups internationally renowned scientists in the areas of neurosci-ences and developmental psychologies. In the neuroscience area, scientists have been granted numerous important scholarships with the goal to increasing wide-scale approaches to the study of neurodevelopmental diseases such as schizophrenia, autism or mental retardation. Research in the area of child psychopathologies and development, especially the work of the Centre of Excellence for Children’s Well-being – Early Childhood Development, has lead to the production of the first virtual Encyclopedia on Early Childhood Development, which includes over 270 authors from 11 countries.

Supported by a research chair and by significant grants, scientists in the Metabolic Health axis are working to better understand, prevent and resolve major metabolic troubles occurring between the fetal period and early adulthood.

Research on Health Outcomes provides a wide range of transdisciplinary skills to the scientists in other research themes, namely in epidemiology and evaluative research. These research areas are becoming increasingly important in the context of today’s public health concerns. The recent implementation of the Applied Clinical Research Unit will help develop and enhance clinical research within Sainte-Justine.

Victor M. Drury Dr Robert L. FaureDr Jean-Paul PraudDr Guy RouleauDre Jacquetta Trasler

Page 15: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our Research Centres (Continued)A Message from the Presidentand the Chief Executive Officer

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2007

The year ended March 31, 2008 proved to be another record-breaking one for the Foundation, especially as concerns two of our biggest special events. It was also the year that we made one of the most signifi-cant changes since our founding in 1977: a new name and a new logo. Thanks to the expert counsel of the advertising firm lg2, the Foundation for Research into Children’s Diseases has now become the Foundation of Stars. Our new symbol, which we consider to be unique, features a happy face in the center of three stars. Equally significant is that we have also added the tagline: Children’s health research. This new nomenclature will now allow us to address all aspects of the pediatric health spectrum, including disease prevention, not just the curative end, as our previous name suggested. We are convinced that our new “brand” will allow us to more effectively play our leadership role as the most important source of non-governmental funding for pediatric research in Quebec.

Record-breaking special eventsTwo of our most important special events, namely our 21st annual Golf Classic and our 25th Bal des Enfants, set new records. Under the Honourary Chairmanship of Larry Smith, President of the Montreal Alouettes, the Golf Classic held at Laval-sur-le-lac Golf Club set an all-time record raising $251,681 net. Our 25th annual Bal des Enfants, under the extraordinary co- chairmanship of Monique Leroux, then Chief Financial Officer of the Mouvement des caisses Desjardins and Isabelle Hudon, President of the Metropolitan Montreal Chamber of Commerce raised a remarkable $705,330 net. We should also mention that the annual BRP Trek, conducted on the newly launched CAN-AM Spyder 3-wheel motorcycle, also set a new record this year, engendering net revenues of $153,000.

31st Telethon

Once again, thousands of volunteers across Quebec and tens of thousands of generous donors contributed time and money to children’s health research. Notwith-standing, the results of the 31st Telethon were some-what disappointing, down by almost $300,000. A significant part of the decrease is attributable to the fact that for the last two hours of the Telethon, tradi-tionally our best hours, competition between the networks was significant.

However, these results were offset by increased revenues from other activities. As an example, our direct mail campaigns contributed just over $1,000,000 net revenues this year. Thus, we were able to distribute a record-breaking $3,200,000 to the pediatric research

centres at: the Montreal Children’s Hospital, Saint Justine Hospital, the “Centre hospitalier universitaire de Québec” the “Centre hospitalier universitaire de Sherbrooke” as well as to the Maternal, Infant, Child and Youth Research Network, a pan-Canadian research network that helps coordinate the flow of knowledge amongst Canada’s 16 university-based pediatric research centres, including the four located in Quebec. This brings the total amount distributed to pediatric research, since our first Telethon of Stars in 1977, to $56,314,000!

The year aheadFollowing a major organizational audit conducted by outside counsel and armed with a series of recom-mendations, the Executive Committee and the Board of Directors have agreed that new resources must be deployed at the Foundation if we are to continue to reach new heights. In line with this, Victor Drury, who has been the CEO of our Foundation for almost 15 years and under whose leadership over $33,000,000 has been distributed to pediatric research, has expressed a desire to shift his focus from day-to-day management to a greater development thrust for the Foundation. His new focus will primarily include: maintaining and enhancing our relationships with Service Club members, building relationships with corporate partners and, given his experience, the overseeing of the direct mail campaigns and the launching of a planned-giving program at the Foun-dation. It is fully anticipated that, with Victor’s new focus and the deployment of additional human resources, the Foundation will maintain its trajectory towards new heights and continue to have record- breaking years.

Thank YousThe achievements of the Foundation in the past year are all attributable to the generosity of our contribu-tors and partners. We thank them deeply for their confidence in us and for their precious commitment. Our sincere thanks also go to the members of the Board of Directors and our Founding Service Club Governors for their unfailing support. We are privileged to be able to count on their tremendous availability and expertise. Their contributions are greatly appre-ciated. We also wish to express our most sincere gratitude to the staff of the Foundation for the quality of their work and their enthusiasm in meeting the numerous challenges which they face.

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6

Jean TremblayPresident

Victor M. DruryChief Executive

Officer

The Sainte-Justine Hospital is an established leader in the field of Viral and Immune Disor-ders and Cancers. Its Cord Blood Transplanta-tion is one of the most important in the world, the clinical results are outstanding and its scientists are renowned for their innovative approach to research. This field of research offers an enormous potential for new partner-ships with the industry, which should help speed up research into the causes and individualized

treatment of childhood leukemia and other com-plex pediatric diseases.

Our scientists’ dedication, leadership and innova-tive approach to research constitute the strengths of the CHU Sainte-Justine’s research centre. Funding from The Foundation of Stars is crucial to reaching our objective: to improve maternal and child health.

Centre de recherche du Centre hospitalier universitaire de Québec

During the year 2007-2008, the CHUQ Re- search Centre pursued the restructuring of its general financing strategy. Therefore, the funds received from the Foundation of Stars (approximately 30%) are committed to awards of excellence for Masters level (MSc), doctoral and post-doc students. An average of four M. Sc. degrees, four Ph.D. degrees and two post- doc bursaries are awarded each year. The amounts of bursary per year are $15,000, $19,500 and $30,000 respectively. Support funding is also granted to clinical or funda-mental research scholars (FRSQ, CHRI).

These operating grants contribute mainly to the acquisition of specialized laboratory materials and products, and about 40% of the budget is allocated to the implementation of these young scientists’ research programs. A portion of the amounts paid is used as seed money for pilot projects. The average allowed amount is around $20,000 per year per scholar. A portion of the amount paid is allocated to common clinical research services as a contribution to the research coordination nurse’s salary and to computer and secretariat equipment.

CHUS Centre de rechercheclinique Étienne-Le Bel

This research centre has received major financing to develop animal facilities for neonatal ovine models, and the perinatal research team studying ovines has just been officially recognized. These scientists are conducting several original studies. The first studies to benefit from this infrastruc-ture for their development are the studies on severe troubles in premature infants and newborn babies, and sudden infant death syndrome. Studies on the development and validation of a total natal video-endoscopic surgery will be carried liquid ventilator to treat infant severe acute respiratory distress are also progressing. Research activities on neo- out simultaneously in the new animal facili-ties. While this type of minimally invasive surgery has revolutionized adult surgery, it is still difficult to use with newborns, and much progress remains to be achieved in this area. Finally, studies on the effects of intrauterine exposure to environmental

contaminants in newborns (thyroidal function, brain development) will be pursued on ovine models. The objective is to influence Canadian public health policy concerning the maximum admissible concentrations of toxic chemical substances in the environment.

The CHUS is conducting research into several central nervous system abnormalities. Inflamma-tion is an important mechanism that can lead to infantile cerebral paralysis. The CHU’s research aims at understanding inflammation to prevent and fight cerebral inflammation in newborns.

In-depth research is currently being conducted on biological markers for various diseases asso-ciated with Down syndrome, i.e. copper meta-bolic disorders, Fragile X-Syndrome, which is accom- panied by mental impairment and/or premature death. The research centre is also very active in the field of pediatric stroke.

Page 16: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our Mission

In 2007, the Foundation celebrated the pro- duction of its 31st Telethon. During that time the Foundation has raised funds which lead to revolutionary medical discoveries which have forever changed the way children’s diseases are treated to give them back their health and their lives!

Thanks to the work of our Founders, thou-sands of partners and a growing number of volunteers, Quebec pediatric researcher’s have accomplished so much and given us may victories to celebrate.

Children’s Health Research: To ensure a healthy future for children by increasing public awareness of the wide impactof children’s diseases and by raising funds to advancepediatric research.

By using innovative, high-density DNA micro-chip technology, researchers have identified a fifth gene of the 15 genes suspected of being responsible for Type 1 Diabetes.

Establishment of the first umbilical cord blood blank in Quebec in 2003. The transfusion of umbilical cord blood allows the replacement of blood cells of those suffering from otherwise incurable diseases, such as certain leukemia’s.

In 45 years, the median life expectancy of children suffering from cystic fibrosis has risen from 4 to 37 years.

Combination therapies have effectively eliminated the transmission of HIV from mother to infant during pregnancy, reducing the transmission rate from over 30% in 1993 to 0% today.

The discovery of new vaccines has dramatically decreased the spread of certain contagious diseases such as meningitis and rubella (German measles.)

Research now allows doctors to save the lives of premature babies weighing as little as 500 grams.

The success rate of pediatric liver, heart and lung transplants has increased markedly and in the case of kidney transplants now exceeds 85%.

There has been a 50% reduction in sudden infant death syndrome.

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Our Research Centres (Continued)

The Centre investigates pain in children, inclu- ding newborns, and how to better manage it. In addition, the Centre is studying pediatric palliative care, which is often considered a taboo subject and is underrepresented in research.

The consequences of pathologic pregnancies can be serious both for the mother and for the baby. For this reason, the CHUS is inves-tigating early screening methods for gesta-tional diabetes and placental insufficiency (echographic study of foetal circulation) to minimize the adverse consequences of these abnormalities on newborns.

A new research theme has been introduced this year: vaccination in newborns, more specifically against specific viruses causing severe gastroenteritis in children.

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One of the primary objectives of the Centre is to increasingly encourage pediatricians to conduct clinical research. Simultaneously, all pediatric residents have to conduct one clinical research project as part of the pedi-atric training program. This year, for exam- ple, these research projects focus on child accident prevention, management of neona-tal respiratory distress, deglutition difficulty in premature infants, and management of anorexia nervosa in adolescent women. These highly focused research projects can rapidly improve children’s health.

Maternal, Infant, Child & Youth Research Network (MICYRN)

In 2006, the National Child and Youth Health Coalition identified a national clinical research network as a top priority. A National Steering Committee, representing a wide breadth of expertise across the spectrum of maternal, infant, child and youth health and health research methods, developed a mandate of this new network to promote, support, and enhance high-quality clinical research nation-wide. By linking perinatal, neonatal, child, and youth health groups from academic health science centres across the country with research activities from across the four CIHR pillars, MICYRN has established an inter-nationally unequalled, multi-disciplinary net- work of researchers, clinicians, and policy experts. MICYRN has the capacity to improve the health of virtually every mother and child in the country through creating an environ-ment of innovation, research efficiency, and effective application of new discoveries to policy and practice. The establishment of MICYRN combined with the opportunities presented by the Clinical Research Initiative (CRI) will

serve to transform the way in which we con- duct maternal and child health research in Canada, and will create an environment of compelling opportunity. MICYRN is actively engaging with existing national research groups in the development and evolution of the network itself. In collaboration with the Children’s Hospital Foundations, the Founda-tion of Stars established a trust for MICYRN in the amount of $490,000 in early October. The funding will be used to assist MICYRN with expenses related to the preparation of the CRI application, salaries, Core and National Coordinating Centre Operating expenses, the MICYRN annual workshop, seed grants for Emerging Teams and Networks, Logo/Identity development and ongoing website develop-ment.

Page 17: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our History

The Inter-Service Clubs Council assumed the mission of improving the quality of life for children, especially less fortunate chil- dren, through various activities.

Thanks to the efforts of its volunteers, the Council allowed 100,000 children to visit Expo ’67.

35,000 tickets were offered to under-privileged children to attend the Olympic Games. Later, skate-a-thons were organized to fund minor hockey leagues in coopera-tion with the Jean Béliveau Foundation. These are only a few examples which dem-onstrate the important social role fulfilled over time by the service clubs in our com-munity. Their actions aim to do good in their milieu and children have always been at the centre of the missions which they have adopted.

1963

1967

1977

1976

1994

1996

Production of the first Telethon in Quebec.Known then as the Telethon of Stars, it aired in French and English on CFCF12. Today, the Telethon is simulcast on CTV Montreal and TQS across Quebec at the beginning of December of each year.

The Telethon of Stars became the Telethon for Research into Children’s Diseases.

A Board of Directors was created. It is com- posed of representatives from the service clubs, regional representatives and ‘at-large’ members who represent the Foundation’s corporate partners.

The Foundation for Research into Children’s Diseases became the Foundation of Stars

2007

Our Key Partners and Sponsors

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Estelle BouladierJulie BreauVincenzo CiampiGeneviève DionStéphane Di PatriaNormand DorionSylvain FilionMichel GrégoireGraziano IampietroDiane R. LavoieGhislain LeblancMarcel Martineau

Michèle ParentDiane RannoDanielle RaymondFrance RivetMarcel RollandGinette SoucyJohanne TessierStéphane Woodbury

Governors

Life Governors former presidents

HonouraryGovernors

Michel LanteignePeter Sternberg

HonouraryLife Governors

Life Governors

Ivor SchwartzBill SurkisGarry SteinHyman SternfeldJean TremblayTerry WebsterLouis VaillancourtJack Westaway

(Knights of Pythias)(B’nai Brith)(Rotary)(Knights of Pythias)(Kiwanis)(Civitan)(Kiwanis)(Kinsmen)

230 Club et Poste St-Antoine Marie ClaretA. Lassonde Inc. A.E. Blake’s Sales Acosta CanadaAction Solution Radio {Elyps}Adam The CatererAdmaco Équipements de BureauAenos Farm ProductsAEP Canada “Resinite”AIGAlimentation Couche-TardAliments Aliments CardinalAliments Delstar Inc.Aliments Edelweiss FoodAliments Froz-BecAlpina Salami Inc.Alsco Ltée Uniforms et Linge HôtelierAmaco Business MachineAmaro Eau de Source NaturelleAntonopoulos FamilyAONAuberge Royal Versailles AVA-TILBallons GrangerBanque de développement du CanadaBanque Nationale du Canada Banque Royale du CanadaBCE-Bell CanadaBellBell MobilitéBerkline Inc.Bertoldi BMO Groupe Financier BMO Nesbitt BurnsBoulangerie Casse Noisette Inc.Boulangeries PomBOYZBristol Myers SquibbBRP

Café Brossard – QuébecCaisse Desjardins De LorimierCaisse Desjardins de Saint-MichelCamfil FarrCanada Post Canadawide Fruit WholesalersCanadian Technical Tape LtdCantorsCentre hospitalier universitaire de QuébecCentre hospitalier unversitaire de SherbrookeCGIChalet Bar-B-QChenail Fruits Chez Cora {St-Jacques}CHU Sainte-JustineCHU Sainte-Justine FoundationClarkson Conway Inc.Club des Vingt Coca-Cola Bottling Co. Collège AhuntsicCollège André GrassetCollège DawsonComplexe sportif Claude-RobillardCôte St. Luc Bar-B-QCroustilles Yum Yum EnrCTV – Montreal D.A.D.’s BagelsDa Vinci Food ProductsDats Deli EuropeenDistribution Yukon Inc. Domco Tarkett Inc.Dubord / RainvilleDura Plastics LtdEaux Danone Naya École Secondaire Rive-NordÉquipement Pierre ChampignyErnst & YoungEsposito Foods LtdFédération des caisses Desjardins du Québec

Ferme St-Zotique LtéeFiera Capital First West Island ScoutsFonds Achbée Fontaine SantéGibeau Orange JulepGlaxoSmithKline Inc.Groupe Financier DenariusGroupe RoscoH.J. Heinz Company Hershey Canada Home Made Kosher BakeryHôtel NelliganHydro-QuébecJ. Armand Bombardier FoundationJ.J. Marshall Inc.Jacques Olivier FordJolicoeur LtéeKanata Smoke HouseKPMGKrispy Kreme L’AubainerieLes Aliments M & M Les Emballages Carrousel Inc.Les Fermes CavendishLes Rôtisseries St-HubertLes Soupes Campbell LtéeLes Viteries Lalonge & Glass HallLesters Food Ltd lg2Location Brossard Location Dickie MooreLocation GervaisLogistec Loto QuébecMaple Leaf Consumer Foods Marché Plus Halle – Fleur de LysMarché ProvigoMarchés mondiaux CIBCMassage Santé MaintienMcCain Foods Canada

McCarthy TétraultMcKinseyMédias Transcontinental Merck FrosstMeubles Électroménagers ML Monsieur MufflerMontreal Children’s Hospital FoundationMontreal Children’s Hospital Research Institute Montreal PitaMouvement DesjardinsOE, Canon CanadaOgilvy Renault Oliver WymanPasteria LongueuilPâtisserie RollandPeerless ClothingPeinture Micca Pfizer Canada Inc.Placements Banque NationalePlacements Montrusco BoltonPolar Plastic LtdPower Corporation of CanadaPratt & WhitneyPricewaterhouseCoopersProductions CarignanProvigo - LoblawsProvigo Groupe DistributionPutter PicklesQuebec Refrigeration Cie Inc.Quebecor Quincaillerie Métro Rona Laval R.E.A.L. BagelRestaurant du Vieux PortRestaurant Le Bifthèque Restaurant Spago de Sainte-AdèleReynolds Aluminium Royal Canadian Mounted PoliceRoyal Harbour Seafoods RSM RichterSafdie Salade Select Sampson

Samson Bélair Deloitte & Touchesanofi-aventisSaputoScully The World ShowSecur Inc.Société des alcools du QuébecSociété Parc Auto du QuébecSolliposte Inc.Source MedicalSpinelli Lexus ToyotaSt. Viateur BagelStandard LifeSTMSubway Sous-Marins & Salades Sucre Lantic Ltée Swiss Vienna PastryT. Lauzon LtéeT.T.S. Marketing & VentesTD AssuranceTecsultTélé-PageTennaquipTNG Corporation ToshibaTQSTrajet JeunesseTrajet JeunesseTravey Inc. Trois-Rivières Ford/Lincoln UltramarVia RouteVin et PassionVisions D.J. Vitreco Weston / Boulangerie Gadoua Wong Wing Foods

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Fred ApplebeeAndré ArchambaultRéal BédardVictor CayerTed CoqueranDre Dolly DastoorGaétan DrapeauMichel FecteauDavid Guttman

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Roger Hétu Jacques Lussier Richard MalkinIssie NadlerDiane NapierNick PensatoHoward PopligerSheldon PopligerGerald Safran

(Knights of Columbus)(Knights of Columbus)(Civitan)(Knights of Pythias)(Optimist)(Richelieu)(B’nai Brith)(B’nai Brith)(Knights of Pythias)

(Civitan)(Richelieu)(Optimist)(Richelieu)(Civitan)(Zonta) (Optimist)(Lions)(B’nai Brith)

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Jean-Luc BélangerRoy BourqueRobert E. CarrollFernand FaucherMichael FogelFrançois Gérin-LajoieYves LéveilléAndrew MarleauRolland RabyLionel TremblayGerry Weinstein

(Optimist)(Kinsmen)(Kiwanis)(Kinsmen)(B’nai Brith)(Rotary)(Lions)(Kinsmen)(Richelieu)(Lions)(Knights of Pythias)

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Gérard BensaidPierre G. BouchardJacques GroulxJim GuintaRicky HeldMurray KozlickMichael KutzJack Landerman Léopold MignaccaH. William MurphyTony PensatoI. Murray Phillips

(Civitan)(Optimist)(Kinsmen)(Richelieu)(B’nai Brith)(Rotary)(Knights of Pythias)(Lions)(Lions)(Rotary)(Richelieu)(Kinsmen)

Page 18: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

Our History

Our Mission

President’s and the CEO’smessage

Board of Directors

Foundation Staff

Our Events

Financial Highlights

Valerie’s Story

Four Research Centres

Our Partners and Sponsors

Our Service Clubs

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Table of Contents

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B’nai Brith Canada

The voice of the Jewish Community, representing their interests across the country. Since 1875, this organization has achieved major breakthroughs in the fight against anti-Semitism, racism, and human rights.

Knights of Columbus

A lay Catholic movement whose primary goal is to help members in need; pro- mote and manage education, charitable, religious and social endea ours; provide support in times of war or civil disasters.

Civitan

Ordinary citizens, like you and me, who work in communities throughout the world to make neighbourhood life better.

Kinsmen Club

All-Canadian service club made up of active community volunteers. Working together, members enhance the quality of life of their communities by promot-ing service, fellowship, positive values and national pride.

Kiwanis Club

Members respond to the needs of their community by pooling their resources toaddress global issues. Kiwanis Interna-tional truly is “Serving the Children of the World”.

Knights of Pythias

The Fraternal Order of the Knights of Pythias and its members are dedicated to Universal Peace. Pythians promote understanding amongst men of good will as the surest means of attaining peace.

Lions Club

Lions Club provides services for today’syouth. They also work to protect the environment, build homes for disabled persons, as well as for senior citizens.

Optimist Club

Optimist Clubs “Bring out the best in young people”, by organizing com- munity-based work projects that are designed to include youths. By believ-ing in youth and by giving them the necessary tools to fulfill their destiny, Optimists hope to make a better world.

Richelieu Club

Their motto is “Peace and Fraternity”. This service club focuses on members’ personal fulfillment and the promotion of French through the Club’s social, cultural and humanitarian activities.

Rotary

A worldwide organization of business and professional leaders that provides humanitarian services, it encourages high ethical standards in all vocations, and helps build goodwill and peace in the world.

ZontaA global service organization composed of women executives in business and in professions working together, across political and social boundaries, to advance the status of women, throughout the world.

Service Clubs 2007-2008Annual Report

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Children’s healthresearch

Our new nameand Visual Identity

In November 2007, Jean Tremblay, President of the Foundation for Research into Children's Diseases unveiled the Foundation’s new brand identity. Inspired by its original concept, the Foundation’s new name became the Foundation of Stars. This new name and the new visual identity and signature are supported by the positioning statement “Children’s health research”, reflecting the new realities and dynamics in medical research, whose mission is to prevent genetic and congenital diseases, to reduce the impact of traumas and to treat diseases.

Against a sky blue background, the logo pictures three stars which shape a youngster’s face expressing hope and happiness. The stars symbolize the emotional feelings of children and families who benefit from pediatric research. The stars are bright and filled with the promise of a better future for the children, in a world where the promotion of health, the prevention of diseases and the discovery of new treatments will reduce the suffering of children and the disarray of families of children affected by a disease, a trauma, or a genetic or congenital handicap.

By changing its name, the Foundation builds on the historical fact that, in the mind of Quebeckers the “stars” have long been associated with the

Foundation’s biggest annual event, the Telethon of Stars. The Foundation’s volunteers, scientists and administrators believe that the new name will be easier to remember and will contribute to differentiating the Foundation from other humanitarian causes that address children’s needs.

The Foundation’s new brand identity was created by the brand development agency lg2boutique. According to the agency’s Vice-President and General Manager, Claude Auchu, “The choice of colours is inspired by the children’s world and expresses a feeling of hope with a distinct smiling graphic face. This change of brand identity will support the Foundation of Stars and its volunteers in their fundraising activities and in the promotion of pediatric research.”

Foundation of stars : Children’s Health Research

Page 20: Annual Report 2007-2008 - Foundation of Stars · 2007-2008 Annual Report 300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3 Télécopieur : 514 595-5745 † Courriel : telethon@telethon.qc.ca

2007-2008Annual Report

300, Berge-du-Canal, bureau 317, Lachine (Québec) H8R 1H3Télécopieur : 514 595-5745 • Courriel : [email protected]

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