and transition to adulthood · •insurance – state law, mental health parity act . idea 300.43...
TRANSCRIPT
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Autism and
Transition to
Adulthood
Lorri Unumb, Esq. Vice President
State Government Affairs Autism Speaks
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Science
Family Services
Advocacy
Awareness
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Autism and the Law Cases, Statutes, and Materials by Lorri Shealy Unumb & Daniel R. Unumb
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What is Transition?
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What is Transition? • Childhood to Adulthood
• School to Out-of-School
• Diagnosed with Autism
• Into School
• Medicaid Recipient
• Working Environment
• Life with Parents
• Control Affairs
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What Laws Govern Transition?
• Student - IDEA
• Housing – Fair Housing Act, State Law
• Legal Status – State Law
• Medicaid – Medicaid Act/Katie Beckett/TEFRA/EPSDT/State Law
• Employment – ADA
• Insurance – State Law, Mental Health Parity Act
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IDEA 300.43 • (a) Transition services means a coordinated set of activities for a child with a disability
that--
– (1) Is designed to be within a results-oriented process, that is focused on improving the academic and functional achievement of the child with a disability to facilitate the child's movement from school to post-school activities, including postsecondary education, vocational education, integrated employment (including supported employment), continuing and adult education, adult services, independent living, or community participation;
– (2) Is based on the individual child's needs, taking into account the child's strengths, preferences, and interests; and includes--
• (i) Instruction;
• (ii) Related services;
• (iii) Community experiences;
• (iv) The development of employment and other post-school adult living objectives; and
• (v) If appropriate, acquisition of daily living skills and provision of a functional vocational evaluation.
• (b) Transition services for children with disabilities may be special education, if provided as specially designed instruction, or a related service, if required to assist a child with a disability to benefit from special education.
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States with Autism Insurance Reform
2001 - Indiana
2007 - South Carolina 2007 - Texas
2008 - Arizona 2008 - Florida 2008 - Louisiana 2008 - Pennsylvania 2008 - Illinois
2009 - Colorado 2009 - Nevada 2009 - Connecticut 2009 - Wisconsin 2009 - Montana 2009 - New Jersey 2009 - New Mexico
2010 - Maine 2010 - Kentucky 2010 - Kansas 2010 - Iowa 2010 - Vermont 2010 - Missouri 2010 - New Hampshire 2010 - Massachusetts
2011 - Arkansas 2011 - West Virginia 2011 - Virginia 2011 - Rhode Island 2011 - California 2011 - New York
2012 - Michigan 2012 - Alaska 2012 - Delaware
2013 - Minnesota 2013 - Oregon
2014 - Utah 2014 - Nebraska 2014 - Maryland
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Housing Needs
for Adults with Autism
http://vimeo.com/album/2176968/video/9806
8531
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Educational Entitlements
The Individuals with Disabilities Education Act (IDEA)
mandates a public education for all children and makes
schools responsible for providing the supports and services
to make this happen.
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Transition
One of the goals of IDEA is for students to
be prepared for employment and
independent living.
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Adult Services
Where you live and work. There is no entitlement system. Some services are provided through
Medicaid Home and Community-based Services (HCBS)
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What we know about housing –
Survey results
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Housing and Residential Supports
Survey
The physical space
Six out of ten families- believe a single family home
would be most appropriate
Preferred Home Location
64% thought a suburban environment would be most
appropriate
Eight in ten caregivers would like to live within an hour of
the person with ASD
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Survey results from Families and
Caregivers
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Survey results from Families and
Caregivers
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Survey results from people with
ASD
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Survey results from people with
ASD
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Survey results for people with ASD
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Survey results – what have we
learned?
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What are we doing?
Angela Lello, Director of
Housing and Residential
Supports
.
Leslie Long, Director
Adult Services
Dave Kearon,
Assistant Director
Adult Services
Sarah Andrews,
Coordinator
Adults Services
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Housing and Community Living:
Understanding the Needs
• A System not Purposefully Built
– Action is needed
– Complexity creates barriers
– Leadership is critical
– It’s time to listen
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Specific strategy for Housing and
Community Living
Housing and
Community Living
Federal
State
Family Focus
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Federal Objectives
Further Relationships with CMS
Establish Autism Speaks as a key congressional resource on Medicaid for individuals with ASD
Work with Federal partners who have shared concerns
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State Objectives
Develop state-specific strategies
Supplement and enhance existing advocacy
Utilize key relationships with key policy makers to influence systems design
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Family Focused Objectives
Housing and
Residential Tool Kit
Housing Database
Lindked in Group
Online course for
direct support
providers
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Autism Votes
Medicaid Waiver outreach
• Idaho
• Indiana
• Iowa
• Georgia
• Louisiana
• South Carolina
• Massachusetts
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Family Focused Objectives
Housing and Community Living Town Halls
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Working Together
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What Laws Govern Transition?
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What Laws Govern Transition?
• Student - IDEA
• Housing – Fair Housing Act, State Law
• Legal Status (Guardianship, Conservatorship) – State Law
• Medicaid – Medicaid Act/Katie Beckett/TEFRA/EPSDT/State Law
• Employment – ADA
• Insurance – State Law, Mental Health Parity Act
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Autism Speaks
Government
Relations Autism Speaks
– Headquartered
in New York
Autism Speaks
Government
Relations
- Headquartered
in D.C. at 1990 K
Street
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One person can make a
difference, and
everyone should try.
~John F. Kennedy
Never doubt that a small group of
thoughtful, committed citizens can
change the world. Indeed, it’s the
only thing that ever has.
~ Margaret Mead