what are we missing?

What Are We Missing?

@DrAttai#ASBrS #Prez

ASBrS Mission

“Committed to continually improving the practice of breast surgery by serving as an advocate for surgeons who seek

excellence in the care of breast patients by providing a forum for the exchange of ideas, and by promoting education, research,

and the development of advanced surgical techniques.”#ASBrS#Prez

What Are We Missing?

#ASBrS#Prez

The Social Media Connection

#ASBrS#Prez

Sharon Grutman

Our Patients Are Online

#ASBrS#Prez

#BCSM Co-Founders

Jody Schoger Alicia Staley

Information Overload

#ASBrS#Prez

Information Overload

#ASBrS#Prez

#ASBrS#Prez

Information Overload

Too Many Choices

#ASBrS#Prez

The World Revolved Around Us

#ASBrS#Prez

The World Revolved Around Us

#ASBrS#Prez

Quality: cure the disease without doing harm along the way

Greenberg CC, Kennedy GD Ann Surg.2014 Jul;206(1):10-12

#ASBrS#Prez

It’s A Different World

#ASBrS#Prez

It’s A Different World

Who Is the e-patient?• Equipped with skills• Enabled and Empowered to

make self-care choices• Engaged in their care• Equal partnership with doc

“Nothing about me without me”

#ASBrS#Prez

Billingham V 1998Through The Patient’s Eyes

#ASBrS#Prez

An Early e-patient

Patient-Centered Care as a QM

#ASBrS#Prez

Institute of Medicine 2001Crossing the Quality Chasm

Patient-Centered Care as a QM

#ASBrS#Prez

Institute of Medicine 2001Crossing the Quality Chasm

Care should be patient-centered: respectful of and responsive to individual patient preference

The patient is the source of control, and the system should be able to accommodate differences in patient preference and

encourage shared decision making

Barriers and Challenges

#ASBrS#Prez

Just Ask!

Just Ask!

Bad Timing

My Work Here is Done…

How Does This Help Me?

Patient-Centered PATIENT

Pharma

Payer

PhysicianResearcher

Program development

#ASBrS#Prez

Slide Courtesy AnneMarie Ciccarella@chemobrainfog

PROBLEM

e-Patient

Pharma

Payer

Physician

Researcher

Program development

#ASBrS#Prez

Slide Courtesy AnneMarie Ciccarella@chemobrainfog

Patients as Partners

Neither is King, Neither is the Sun

Bardes NEJM2012;366: 782-783

#ASBrS#Prez

ASBrS Mission

“Committed to continually improving the practice of breast surgery by serving as an advocate for surgeons who seek

excellence in the care of breast patients by providing a forum for the exchange of ideas, and by promoting education, research,

and the development of advanced surgical techniques.”#ASBrS#Prez

ASBrS PALs

#ASBrS#Prez

ASBrS Initiatives

#ASBrS#Prez

Patient Experience Survey

#ASBrS#Prez

Patient Experience Survey Team

#ASBrS#Prez

Dr. Jeffrey LandercasperASBrS PSQCDr. Eric WhitacreDr. Leonard BerryDr. Jane MendezMarie LaFargueAlicia StaleyThomas WhitacreSamuel LandercasperGundersen Health System IRB

Patient Experience Survey

#ASBrS#Prez

Patient Experience Survey

#ASBrS#Prez

Patient Experience Survey

#ASBrS#Prez

Shared Decision Making

#ASBrS#Prez

Shared Decision Making

#ASBrS#Prez

Shared Decision Making

#ASBrS#Prez

Breast Education Decision Aid Instrument

#ASBrS#Prez

Dr. Rena Kass / Penn StateASBrS Education CommitteeDr. Jane MendezDr. Kristine WiddersDr. Susie SunDr. Jane SchubartDr. Oscar Garcia-Fraga

Nurse BEDI

#ASBrS#Prez

Nurse BEDI

#ASBrS#Prez

Patient Education

#ASBrS#Prez

Breast360.org

#ASBrS#Prez

Breast360.org Team

#ASBrS#Prez

Dr. Richard FineDr. Carrie ThomsDr. Richard AltmanMargaret SchlosnagleMaureen KalilJane SchusterChris Barbee>70 ASBrS MembersASBrS Foundation

#ASBrS#Prez

Guidelines: Facts versus Value Judgments

#ASBrS#Prez

Consensus Conference

#ASBrS#Prez

Clinical Trial Design

#ASBrS#Prez

#ASBrS#Prez

#ASBrS#Prez

#ASBrS#Prez

“In our country, patients are the most underutilized resource, and they have the most at stake. They want to be involved, and they can be involved.”

#ASBrS#Prez

Dr. Charles SafranHouse Ways and MeansSubcommittee on HealthJune 17, 2004

#ASBrS#Prez

Mom and Dad

Linnette

Robert, Ashley,Isabelle and Christine

Thank You

Thank You

#ASBrS#Prez

Maggie, Ana and Melissa Laura Zibecchi NP

Thank You

#ASBrS#Prez

Dr. Robert Wallace Dr. Russell Nauta Dr. Stephen Evans Dr. Colette Magnant

Dr. Daniel Miller Dr. Richard White

Thank You

#ASBrS#Prez

Dr. Richard Fine Dr. Victor Zannis Dr. Shawna Willey Dr. Helen Pass

Dr. Eric Whitacre Dr. Howard Snider Dr. Suzanne Klimberg Dr. Hiram Cody

Thank You

Thank You

#ASBrS#Prez

#ASBrS#Prez

Thank You

#ASBrS#Prez