successful transition to adulthood
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The University of Toledo Center for Excellence in Autism
Grand Opening Ceremonies!June 9-10, 2011
Successful Transition to Adulthood
From Relevant Interventions to Meaningful Outcomes
• Meant to be a bridge to guide students successfully from the safety and guidance of the school system to the uncertainty and independence of adulthood.
• Often seen as a systemic requirement that must be satisfied whether or not appropriate resources are available.
• Not well defined or researched sufficiently in order to produce outcomes that are valid or relevant to all stakeholders in the process.
• Not begun anywhere near early enough in the lives of students with Autism Spectrum Disorders (ASD).
The Process of Transition is..
2
According to theAutism Society of America…
Today there are 1.5 million people with
Autism
3
In the next decade there will be approximately
4million!
From Relevant Interventions to Meaningful Outcomes
Lifetime Costs to Society
4From Relevant Interventions to Meaningful Outcomes
The Impact of HealthcareIssues on Families
• Less access to many important aspects of healthcare but more reported problems.
• Disparities in access by race, education and geographical location.
• More than half of parents of children with ASD reduce or stop working to care for their children.
• Families without a medical home scored higher on every risk indicator in this study.
5From Relevant Interventions to Meaningful Outcomes
• A number of studies have documented a wide range of findings for those living at home or living independently . As much as 80% of students with ASD were found to be living at home and the majority of those living independently still require financial support.
Living Arrangements
6From Relevant Interventions to Meaningful Outcomes
• IQ only slightly improves chances of successful employment.
• Adults with ASD– experience unemployment or underemployment,– switch jobs more frequently– make less than counterparts and;– much less likely to be employed than typically
developing.
• Some attend college instead of work but very few receive degrees.
Work
7From Relevant Interventions to Meaningful Outcomes
• Leisure pursuits are rarely community-based for adolescents with ASD.
• Almost half of students with ASD report having no friends.
• Adolescents with ASD report WANTING friendships and intimate relationships but may not have the skills to cultivate or maintain them.
Community
8From Relevant Interventions to Meaningful Outcomes
The advent of the adult advocacy community
9From Relevant Interventions to Meaningful Outcomes
Integrated Self-Advocacy CurriculumThe University of Toledo Center for Excellence in Autism
employs 1 of 3 certified ISA Trainers in the country!
For more information contact Valerie Paradiz at val@autismselfadvocacy.com
From Relevant Interventions to Meaningful Outcomes
Integrated Self-Advocacy Curriculum
• Pro-active rather than Re-active• Teaches Autonomy rather than Dependence• Implemented in a group and/or one-to-one• Meaningful and Relevant interventions• Person Centered• Evidence-based
From Relevant Interventions to Meaningful Outcomes
Self Advocacy
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Accurate assessment
of the circumstances
FunctionalSelf-Regulation/
Monitoring Skills + =The ability to
select and implement a reasonable
solution that will meet our needs and allow us to
successfully
Self-Advocate
From Relevant Interventions to Meaningful Outcomes
Three steps to Self-Advocacy
1. Scan for possible challenges in his/her social and sensory environments.
2. Develop a plan to explain accommodations or needs to resolve the challenge.
3. Implement individualized self-advocacy plan.
(Paradiz, 2009)
From Relevant Interventions to Meaningful Outcomes
Additional Competencies
– Entitlements and Civil Rights– Understanding of IEP– Self-disclosure• Partial• Full
– Self-awareness of strengths – Self-awareness of discomforts and tendencies
From Relevant Interventions to Meaningful Outcomes
Self-Advocacy Portfolio
– My Advocacy Scripts
– My Advocacy Action Plans
– My Individualized Education Program (IEP)
– Notes for My Transition Plan or My Individual Service Plan (ISP)
– My Favorite Advocacy Resources, Support People, and Mentors
– My Articles, Commentaries, and Reflections on Topics in Self-Advocacy
Individualized tools and strategies for becoming more independent and effective in day-to-day interactions with environments and people
From Relevant Interventions to Meaningful Outcomes
For More Information:
The University of ToledoCenter for Excellence in Autism
3000 Arlington Avenue, MS 1161Toledo Ohio 43614
419-383-3030autisminfo@utoledo.edu
From Relevant Interventions to Meaningful Outcomes
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