retention: partners make it happen

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Retention:Partners Make

It Happen

March 22, 2012 and March 29, 2011

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

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Welcome & IntroductionGround Rules for Webinar Participation

Welcome This is a “public event.” If you have confidentiality

concerns . . .- Your names appear on-line in the list of webinar

registrants--consider viewing the webinar at a later time, after it is posted at incarecampaign.org, or simply listening to the audio

- All webinars are recorded--do not use identifying information when asking questions

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

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Welcome & IntroductionGround Rules for Webinar Participation

Actively participate and write your questions into the chat area during the presentation

Do not put us on hold Mute your line if you are not speaking (press *6, to

unmute your line press #6) Slides and other resources will be available on our

website at incarecampaign.org

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

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Welcome & IntroductionAgenda

Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins The Importance of Retention, 15 mins Opportunities to Improve Retention, 10 mins Partners in+care Overview, 10 mins

Q & A opportunities throughout webinar

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At the end of this webinar, you will know . . . What is retention and why is it important Some of the challenges to retention and how they

can be overcome How to get involved as a partner in the in+care

campaign

Welcome & IntroductionLearning Topics

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Welcome & IntroductionIntroduce Guests

Michael Hager, NQC

Dr. Anna Huang, HRSA/HAB

John Sapero, Maricopa Co. Ryan White Program Part A [Phoenix, AZ]

Bob Tracy, NQC peer consultant [Saint Paul, MN]

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The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.

In+care Campaign Overview Purpose

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In+care Campaign Overview National Campaign

Regional, state and local

Ryan White grantees and providers; all parts

Partners – people living with HIV/AIDS and their allies

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In+care Campaign Overview 5 Parts

Webinars/Meet Authors

Coaches

QI Projects &Data

Champions

Partners

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In+care Campaign Overview Get the Toolkit

www.incarecampaign.org

+request welcome toolkit

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In+care Campaign Overview

Additional Questions: Contact us a info@incarecampaign.org Visit Web site: www.incarecampaign.org

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In+care Campaign’s Focus on RetentionWhat is Retention?

Stay in care / Return to care

Retention –having a routine for seeing your doctor/health care provider on a regular schedule

Doing this persistently – year-after-year-after-year

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In+care Campaign Focus on RetentionWhere does it fit?

Not in HIV Care Engaged in HIV Care

Unaware of HIV infection

Aware of HIV infection (not in care)

Receiving some medical care but

not HIV care

Entered HIV care but lost to

follow-up

Cyclical or intermittent user

of HIV care

Fully engaged in HIV care

Continuum of Engagement

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1/3 to 2/3 of PLWHA in US are not in regular care

In+care Campaign’s Focus on RetentionRetention – It Needs Our Attention

17-40% of PLWHA who know status are not in regular care

40% of patients newly diagnosed did not see provider within 6 months

Visit www.incarecampaign.org – Resources Tab to review

studies on need for and benefits of retention.

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In+care Campaign Focus on RetentionRisk of Poor Retention

Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.

Why do we need to

be concerned about people not being in regular HIV care?

Less likely to benefit from

HIV drug therapies or to be adherent

Experience more illnesses requiring hospitalization.

Trouble managing transmission risk.

Survival prospects are worse.

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In+care Campaign Focus on RetentionBenefits of Good Retention

Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.

Likely to have better health

outcomes [improved CD4 count, suppressed viral load, fewer hospital admissions or emergency room visits]

Greater life expectancies.

What are the

benefits of being in regular HIV care?

Simply “showing up regularly” can improve

health and survivability.

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In+care Campaign Focus on RetentionWe Need to – Want to Do Better

The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.

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In+care Campaign Focus on Retention

Additional Questions: Contact us a info@incarecampaign.org Visit Web site: www.incarecampaign.org

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Challenges to RetentionWhat Research Tells Us

Retention Challenges• Do not feel sick • “Life” gets in the way

• Other health issues • Little experience with

routine health care• Not enough help

• Clinic/system too complex• Processes are

confusing • Not helpful at clinic

Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.

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Challenges to RetentionWhat Experience Tells Us

Real Life Observations –

• “I’m not so sick. I don’t need to see a doctor, yet.”

• “I know I have an appointment but then I just can’t get there because I don’t have a way to get there.”

• “It just felt weird. They really don’t understand me at my clinic. I didn’t feel comfortable.”

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Challenges to RetentionHow Can They Be Overcome

• Self-care – learning more• Reaching out to others –

peer-support, peer navigators, friends and family

• Tools – a ride, a meal, help with housing

• “Systems” that work with us by working with them

Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.

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Partners in+carePurpose

Successful results in HIV care depend upon partnership between consumers and their providers.

So does the in+care Campaign.

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Partners in+care Overview

Increase Knowledge

Web “Hub”Nat’l+Network WebinarsExchange/Engage

Self CarePeer-to-PeerEngage in QI

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Partners in+care Web Hub

www.incarecampaign.org

Click the Partner Tab

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Partners in+care Web Hub

www.incarecampaign.org

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Partners in+care Webinar Series

Retention: Be the Ones to Make It Happen – March 29 [repeat session]

It Starts with You: Self-care and Retention – April 19

Sharing the Benefits of Care: Reaching Out to Others – May 22

Making Retention Easier: Creating Systems that Work – June 29

Visit www.incarecampaign.org for schedule and information about participating in these webinars.

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Partners in+care What We will Accomplish

Create a network of 1000 consumers ready to be engaged in retention and QI.

Identify 100 consumers ready to become QI leaders.

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Partners in+care What We Will Accomplish

Share what we know so we all get better at:

Seeing our doctor and HIV care providers on a regular basis

Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits

Making sure we all get the full benefit of care and treatment in order to improve our health

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Partners in+care What We Will Accomplish - Next

1. Promote / Recruit Partners

2. Promote / Participate in Webinars

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Partners In+care Campaign

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Sign up to be a Partner!

Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730

incare@NationalQualityCenter.org

incareCampaign.org