october 21, 2011
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October 21, 2011
Consortium Web Update
Freedom Baird, MSPatroula Smpokou, MD
newenglandconsortium.org
New Content This Year
newenglandconsortium.org
PKU Toolkit for Teens
newenglandconsortium.org
PKU Toolkit for Teens
newenglandconsortium.org
PKU Toolkit for Teens
newenglandconsortium.org
New Content This Year
newenglandconsortium.org
Readership Over the Past Year
newenglandconsortium.org
Most Common Search Keywords
newenglandconsortium.org
Where Our Readers Are From
newenglandconsortium.org
What They’re Reading
newenglandconsortium.org
How Readers Arrive
newenglandconsortium.org
Why were we popular on June 10th?
newenglandconsortium.org
Revised Acute Illness Protocols
newenglandconsortium.org
Acute Illness Protocols Pageviews
Pages Pageviews
Acute Illness Protocols 1,739
Propionic Acidemia 829
Methylmalonic Acidemia 657
VLCADD 525
MSUD 515
Neonate with Hyperammonemia 491
MCADD 447
Organic Acid Disorders 436
OTC Deficiency 425
Fatty Acid Oxidation Disorders 338
newenglandconsortium.org
Acute Illness Protocols - Goals
Users/audience– ED physicians– Hospitalists– Intensivists– Pediatricians
Setting of care– ED, Floor, ICU
Setting of illness– Acute metabolic decompensation
Patient population– Patients w/ known metabolic disorders
newenglandconsortium.org
Acute Illness Protocols - Goals
Basic information about each disorder– Limited details– Tailored for primary care physician, NOT
geneticist Important aspects of management
– Knowledge– Application (w/ help of metabolic geneticist)
Crucial complications– Specific to each disorder– When to suspect what– What to do
newenglandconsortium.org
Acute Illness Protocols - Tasks
Update– Current practice (management guidelines,
therapies)– Current literature (evidence)
Revision– Practicality– Applicability – Ease of read (bullets, graphs)– Structure– Consistent composition
newenglandconsortium.org
Acute Illness Protocols - Acknowledgements
Dr. Susan Waisbren Dr. Harvey Levy Dr. Jonathan Picker Freedom Baird, MS
newenglandconsortium.org
Transition Toolkit
newenglandconsortium.org
Maternal PKU & Pregnancy Guide
newenglandconsortium.org
New Graphics in the Maternal PKU Guide
newenglandconsortium.org
Maternal PKU & Pregnancy Pageviews
Pages Pageviews
PKU Recipes 546
Maternal PKU & Pregnancy 430
Maternal PKU Research Study 154
PKU Nutrition 103
Healthy PKU Pregnancy 99
“What Can I Eat?” 96
About Maternal PKU 80
Wheat Starch Dough 80
Newborn Baby’s Health 70
PKU Diet & Formula 68
PKU and Genetics 67
PKU Diet Resources 64
newenglandconsortium.org
PKU Recipes are Popular
newenglandconsortium.org
Web Site Goals for the Coming Year
Continue Updating Acute Illness Protocols
An Educators Guide to MCADD, Jenna Wilson, MA
More content by Consortium members, and links to their work and workplaces
newenglandconsortium.org
Thank You!
Dr. Susan Waisbren - Director, Dr. Harvey Levy – Senior Physician, Dr. Patroula Smpokou, Frances Rohr, Vera Anastasoaie, Stephanie Petranides, Freedom Baird
1 Autumn Street, Room 526
Boston, MA 02115
617-355-7346
freedom.baird@gmail.com
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