midlands newborn networks - welcome to nhs … · section a –antenatal care section b...
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Midlands Newborn Networks
Alex Philpott, SWMNN Education Lead
Jackie Stretton, SWMNN Lead Practice Educator
Kate Branchett. SWMNN Parent Representative
Network Launch of Integrated Comfort
Care Pathway (ICCP) - Overview
• The background to the development of an
ICCP for neonates
• Significant milestones in the development
• An overview of the structure
• Parent consultation and involving stakeholders
• The next steps
Background to ICCP
• Consensus across Midlands to produce
Integrated Comfort Care Pathway Guide for
neonates
– Ensure parity of care
– Allow staff moving between units to be familiar
with single pathway
– Based on recent publications
October 2010
Bid submitted on behalf of
Midlands Newborn Networks
by Mary Passant (Lead Nurse
SWMNN). DH funds received.
Midlands Neonatal Palliative
Care Steering Group Formed.
Scoping exercise begins.
July 2011
Final revisions made
Addition of final
section ‘symptom control’
following publication of ACT
guide (ACT 2011).
Circulated for final consultation.
Alex Philpott, Jackie Stretton
April 2011
A Parents’ online forum survey “What
Parents Want From Professionals?”
undertaken by Kate Branchett (Parent
Representative, Board Member
SWMNN).
Findings incorporated into revised
draft ICCP.
Draft scrutinized at regional
conference events in April and May.
Revised version circulated.
January 2011
ICCP template, based on
St.George’s Pathway, was
shared by Fran Wootton and
Sandra Lawley (SWBHT).
Temple developed to
incorporate BAPM, ACT and
BLISS guidelines. Circulated to
professionals in Midlands for
consultation.
October 2010 January 2011 April 2011 May 2011 July 2011 September 2011 May 2012
January to
May 2012
Case study
reports of
families
benefitting
from greater
choices.
September 2011
Document finalized
and circulated in the
Midlands.
Midlands Newborn Networks ICCP
Introducing The Midlands Neonatal ICCP (2011)
A patient record and care planning tool based upon the national guidance documents (BAPM, ACT, BLISS)
� Front sheet – demographic and personal details
� Section A – Antenatal care
� Section B – Postnatal care
� Section 1 – initial assessment
� Section 2 – end of Life Care plan
� Section 3 - ongoing assessment ( A & B)
� Appendix A – Review of goal 13 (resuscitative care)
� Appendix B – Symptom control (opioids)
Midlands Palliative Care Project Board (2011) Midlands Newborn Networks Integrated Comfort Care Pathway (ICCP) -
Newborn. Combined Midlands Newborn Networks; SWMNN, SSBCNN, CNN, TrentNN. UK
Important Issues for Parents
• Creating memories
• Empathy
• Time and space
• Practical help and understanding
• Sensitivity
• Communication with parents
• Accurate record keeping and communication
• In utero
• Support afterwards
Important Issues for Parents
• Memories became fundamental, as parents could
take only these with them, not the baby they
were expecting:
‘Memories are what you want, you need, to make.
You need to cram a life time of memories in
to the short time you have with your baby…All
parents want is their child, there is no substitute
for that. But as that is not to be, the time they
have together must be as special as possible.’
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