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Queensland University of Technology

CRICOS No. 00213J

Jian Liang1 Tony Sahama1 Renato Iannella1, 2

1 Faculty of Science and Engineering (SEF), Queensland University of Technology (QUT) Brisbane, Australia

2 National E-health Transition Authority (NEHTA)

Brisbane, Australia.

www.qut.edu.au

Impact of the social networking applications for health information

management for patients and physicians

Background Problems Purpose Implementation Future work

2 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Presentation plan

Impact of the social networking applications for health information

management for patients and physicians

Background Problems Purpose Implementation Future work

3 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Background

The Social Network Sites is exploding!

4 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Background One of the most visible trends on the Web is the emergence of Social Network Sites (SNSs), such as Facebook, LinkedIn, and Myspace, which provide online services or platforms that help users build social networks or social relations with others. ①  electronic bonds make

individuals comfortable with their behaviours

②  multiple profiles which are stored in different Social Network Sites (SNSs)

③  maintaining these multiple online social network profiles is cumbersome and time-consuming

Background --Healthcare social networks

5 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

The social-networking revolution is coming to health care through online social networks that enable information sharing, collaboration and communication in the area of personal healthcare data (Domingo, 2010).

①  Enabling healthcare information exchange (HIE)

②  Simulating new social network accounts by sharing profiles

③  Facilitate updates for users by profile synchronisation

④  Maintaining healthcare sphere that can support health information management by patient-controlled integrator.

Background --Social Web Profile (Iannella, 2009)

Most social network users hold more than one profile and utilise them in different ways depending on the digital context.

6 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

A user profile is a document describing an entity with details such as name, gender, avatar picture, but also things like favourite food, interests, or other attributes about one’s education, work, or health.

Healthcare profiles

Impact of the social networking applications for health information

management for patients and physicians

Background Problems Purpose Implementation Future work

7 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Problems

8 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

n  Most of the physician or patient social networks only pay attention to the user’s healthcare profiles which are stored in healthcare social networks.

n  Factors, such as lifestyle, interests, exercise, interpersonal support, work environment, and job risk, can be used to gain a better understanding of a users health background (Walker, Sechrist, & Pender, 1987)

n  An Integrated Profile which contains basic, professional, and health partial profiles together, could meet current online health informatics demands.

General Social Networks: Facebook and Hi 5

Professional Social Networks: LinkedIn and Jobster

Problems

School name Example University

Professional headline

Turbine Engineer

Position Engineering-Gas Turbine Job Description Exposed to loud occupational

noise for at least 5 months per year…

9 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Problems Name: Bob Swallow Email: bSwallow@example.com Interests: Mountain Climbing Sports: Basketball Religious view: Buddhism Favorite Food Burgers & Coca

Height: 175 cm Conditions: Chronic Heart, Tension

Headache Allergies Nut & Peanut

Bob’s complete profile

However, social

network sites are

isolated from others.

Cannot share information

between Facebook and

GoogleHealth.

And……………….!

10 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Problems

Image from pidgintech.com

Height: 175 cm Conditions: Chronic Heart, Tension

Headache Allergies Nut & Peanut

School name Example University

Professional headline

Turbine Engineer

Position Engineering-Gas Turbine Job Description Exposed to loud occupational

noise for at least 5 months per year…

11

Problems (1) Name: Bob Swallow Email: bSwallow@example.com Interests: Mountain Climbing Sports: Basketball Religious view: Buddhism Favorite Food Burgers & Coca

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Facebook

LinkedIn

GoogleHealth

High fat food may pose a big threat of heart disease, but loud noise in the workplace doubles an individual’s risk for heart disease.

Problems (2) --Profile residing in distributed sources (Multiple Profiles)

Social Web Profile (Iannella, 2009)

Maintaining these profiles is cumbersome, time consuming, inefficient, and leads to lost opportunity.

12 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Create new profiles

Update Profiles

Delete Profiles

Impact of the social networking applications for health information

management for patients and physicians

Background Problems Purpose Implementation Future work

13 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Purpose

n  How to obtain a more complete picture of the patients’

background so that health professionals can provide better,

quality and informed health care decisions (e.g., e-Health!).

n  How to simplify the management of patients/users’

multiple profiles (e.g., create, update, delete).

14 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Purpose

Impact of the social networking applications for health information

management for patients and physicians

Background Problems Purpose Implementation Future work

15 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Implementation

We propose a framework for multiple profile management

(MPM) of online social networks and showcase a

demonstrator utilising an open source platform –

Onesocialweb (OSW).

16 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Implementation -----Multiple Profile Manager (MPM)

Social network sites

are isolated from

others.

Need ways to connect

these islands.

17 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Image from pidgintech.com

• “We dream of a world where all social networks are connected and

work together in a way similar to email.”

• “Our projects aims to define a language to bridge these networks

and make it easy for social networks to join a bigger social web.” JID: alice@wonderland.lit Similar to email

© 2010 Vodafone Group - onesocialweb is open sourced under an Apache 2 license

18 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

A framework for multiple profile management of online

social networks and showcase a demonstrator utilising an

open source platform – Onesocialweb (OSW).

19 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Implementation -----Multiple Profile Manager (MPM)

The MPM Framework (Simulation study)

n References:

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy) 20

21 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

MPM Framework

SND

MP

MPM

Users

Read Synchronise Delete

Integrated Profile (IP)

§ Basic Partial Profile

§ Social Partial Profile

§ Professional Partial Profile

§ Health Partial Profile

MPM Framework --IP and MP

Ø Basic Partial Profile

Ø Social Partial Profile

Ø Professional Partial Profile

Ø Health Partial Profile

22 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Integrated Profile (IP)

Multiple Profiles (MP)

Ø Social Profile

Ø Professional Profile

Ø Healthcare Profile

23 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Ø Export the Integrated Profile (IP) including the basic, social, working, and health information data into a file in XML, Excel, or Word formats (Can be imported into other systems/applications).

Ø Print an IP Report which offers doctors a better picture of patients’ background.

The Integrated Profile Report makes it easier for users and their doctors to gain a more complete picture of his background. Therefore it helps health professionals provide better care for patients.

Prototype Export/Print Integrated Profile

24

Login  Dialog  

1

Basic Information

Health Information

Prototype Create HoogleHealth Account

2

1.  MPM Verification An authorisation token will be given to the LinkedMe Server for the access to the IP in MPM. 2.  Send Request Extract Basic and Professional Partial Profiles form the MPM Server.

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

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3

1.  MPM replies with the Basic and Professional vCards.

2.  MPM saves the LinkedMe Multiple Profiles Accounts (MPAs) into the database.

3.  LinkedMe fills out the form automatically by matching the property names (LinkedMe profile vCards).

Prototype Create HoogleHealth Account

Indicates a successful mapping of the profile item between the LinkedMe and the MPM profile. The item will be synchronised to the IP in the MPM.

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

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1

IP Update

Prototype Update Healthcare Profiles

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

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2

MP Synchronise

Indicates the items which have already been updated or synchronised by the MPM Server.

Prototype Update Healthcare Profiles

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy) 28

Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy) 29

ü  Improve healthcare social networks which provide an active platform for storing personal healthcare data, sharing ideas, and debating treatment

options (e.g, HIE).

ü  The proposed MPM can be applied in this healthcare social network

platform to improve patient care (with Information Accountability).

ü  The MPM aimed and successful on simplifying the management of patients’ profiles

ü  And more importantly allow health professionals to obtain a more

complete picture of patients’ backgrounds so that they can make better

medical decisions.

ü  Privacy and Security: an on-going investigations and research based on BYOD and PbD {and "Semantic Profiles” [1] }

30 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Conclusion

Impact of the social networking applications for health information

management for patients and physicians

Background Problems Purpose Implementation Future work

31 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Future work

32 Liang et al 2012., Social Networking Applications, MIE2012 (26~29 August, Pisa,Italy)

Ø  Security and Privacy (BYOD, PbD and Semantic Profiles)

Ø  Individual may hold more than one name, contact address, phone number, etc. Thus, what is needed is the ability for a user to control what partial aspects of the profile they will expose to different SNSs

Ø  Practical and acceptable usability studies

Ø  "Semantic Profiles" (Iannella, 2009a)

The semantic profiles capture the evolving changes of a person’s social context. For example, the healthcare profile properties may capture health conditions and health risks based on a user’s actual discussion group and blog interactions on healthcare social networks such as PatientsLikeMe and Disaboom.

Future work

References 1.  R. Iannella, “Social web profiles,” 1st Asian Workshop on Social Web and Interoperability, 4th Asian Semantic Web

Conference, pp. 7-9 December 2009, Shanghai, China. 2.  D. M. Boyd, and N. B. Ellison, “Social network sites: definition, history, and scholarship,“ Journal of Computer-Mediated

Communication, 2008, pp. 210-230. 3.  H. Liu, “Social network profiles as taste performances,” Journal of Computer-Mediated Communication, 13(1), 2005, pp.

252-275. 4.  L. Eschenauer and A. Weisscher, OneSocialWeb presentation at FOSDEM 2010, Retrieved 2 January, 2011, from

http://onesocialweb.org/developers-presentations.html. 5.  P.Saint-Andre, ed., “Extensible messaging and presence protocol (XMPP),” RFC 3920, 2004. 6.  vCard XML Representation, Retrieved 5 January, 2011, from http://tools.ietf.org/html/draft-ietf-vcarddav-vcardxml-02. 7.  T. Berners-Lee, J. Hendler and O. Lassila, “The semantic web,” Scientific American, 284(5), 2001, pp. 28-37. 8.  M. C. Domingo, “Managing healthcare through social networks,” Computer, 43(7), 2010, pp. 20-25. 9.  G. J. Houben, A. Aerts, L. Aroyo, K. van der Sluijs, B. Rutten and P. D. Bra, “State of the art semantic interoperability for

distributed user profiles,” 2005, Telematica Institut Report. 10.  J. Breslin and S. Decker, “The future of social networks on the Internet: The need for semantics,” IEEE Internet

Computing, 11(6), 2007, pp.86-90. 11.  S. N. Walker, K. R. Sechrist and N. J. Pender, “The health-promoting lifestyle profile: Development and psychometric

characteristics,” Nursing research 36 (1987), pp. 76. 12.  Patient Like Me: http://www.patientslikeme.com/ 13.  J. Liang, R. Iannella, and T. Sahama. Synchronised integrated online e-health profiles. Studies in Health Technology and

Informatics, 168:96–103, 2011. 14.  Sahama, T. and Iannella, R. (2010). “Information Accountability Framework for a Trusted Health Care Systems"; [Health

Informatics Conference, Melbourne, 24 [26 August 2010] 15.  J. Liang, R. Iannella, and T. Sahama (2012). Impact of the social networking applications for health information

management for patients and physicians, XXIV Conference of the European Federation for Medical Informatics (26~29 August), PISA, ITALY (In Press).

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