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ABCs OF DNA: Helping Patrons Unravel the Mystery of Genetic Information

Information ResourcesResource URL Resource Description

MedlinePlushttps://medlineplus.gov/

Includes several health topic pages on genetic related information such as genetic conditions, genetic testing. Also text word search includes a variety of genetic/genomic information.

Genetics Home Referencehttps://ghr.nlm.nih.gov/

This is a consumer resource to find information about health conditions with a genetic component as well as learning more about genetics.

National Human Genome Research Institutehttps://www.genome.gov/

This is one of the NIH institutes. Lots of information for both professionals and the public including education, ethics, and research.

All of Us Research Programhttps://allofus.nih.gov/

NIH provides information about the All of Us Research Program addressing the goals and the concerns regarding the public’s participation and the role it plays in the Precision Medicine Initiative.

My Family Health Portraithttps://familyhistory.hhs.gov/FHH/html/index.html

The family health history tool provided by the Surgeon General.

Does it Run In the Family? http://www.geneticalliance.org/publications/fhhtoolkit

A toolkit from the Genetic Alliance to help gather information regarding family health history.

Choosing Wisely http://consumerhealthchoices.org/catalog/making-smart-decisions-about-genetic-testing-acmg/

The American College of Medical Genetics and Genomics and Choosing Wisely campaign collaborated to encourage the general public to dialogue with their doctors regarding genetic testing.

GINA Help (privacy)http://ginahelp.org/

For information about the Genetic Information Non-discrimination Act.

Carolyn Martin, Consumer Health Coordinator, martinc4@uw.edu Bobbi Newman, Community Engagement and Outreach Specialist, bobbi-newman@uiowa.edu

Resource URL Resource DescriptionPersonal Genetics Education Projecthttp://www.pged.org/

Unlocking Life’s Codehttps://unlockinglifescode.org/

Genetic Literacy Projecthttps://www.geneticliteracyproject.org/

Genetic Alliancehttp://www.geneticalliance.org/

Center for Genetics and Societyhttp://www.geneticsandsociety.org/

Council for Responsible Geneticshttp://www.councilforresponsiblegenetics.org/

Learn Geneticshttp://learn.genetics.utah.edu/

Genes in Lifehttp://www.genesinlife.org/

A sampling of websites to learn more about genetics regarding health, societal issues, research, and ethics.

GeneEdhttps://geneed.nlm.nih.gov/

Developed and maintained by the National Library of Medicine (NLM) and the National Human Genome Institute (NHGRI), this resource is for students and teachers in grades 9 - 12 to learn genetics.

Genetic Traits in Harry Potterhttps://www.nlm.nih.gov/exhibition/harrypottersworld/education/index.html

The popular NLM traveling exhibit, Harry Potter’s World, includes a lesson plan on the genetic inheritance of the book’s characters

The Story of Youhttps://www.youtube.com/watch?v=TwXXgEz9o4w

Video introduction about genetics

What is All of Us?https://www.youtube.com/watch?time_continue=21&v=XfPfdWdxDIU

Video about the National Institutes of Health (NIH) All of Us Research Program

Carolyn Martin, Consumer Health Coordinator, martinc4@uw.edu Bobbi Newman, Community Engagement and Outreach Specialist, bobbi-newman@uiowa.edu