himms presentation weiss family

THE WEISS FAMILYPATRICK, MEAGAN & AVERYType 1 Diabetes Management of a Baby and Toddler Through Real-Time Data and Technology

AVERY WEISS, 3 YEARS OLD Diagnosed with Type 1 Diabetes in

February 2014 at age 13 months

No awareness or ability to communicate low or high blood sugars at any point since diagnosis

Preschool was willing to learn Type 1 Diabetes management in order for Avery to stay in school

Within 3 months after diagnosis, Avery had a Continuous Glucose Monitor (Dexcom/CGM) and insulin pump (Medtronic MiniMed)

REQUIREMENT FOR REMOTE MONITORING It is typical for at least one parent of a

Type 1 child to stop working to manage the disease after diagnosis

We utilized Remote Monitoring technologies to allow Avery to return to preschool full-time and both of us to return to work full-time after diagnosis

The Nighscout Project is a community-developed software to allow parents to monitor their child’s blood sugar readings from the CGM via a web browser or smart watch (in real-time)

NIGHTSCOUT SETUP

NIGHTSCOUT WEBSITE

ADDITIONAL OVERNIGHT MONITORING

o Dexcom Share transmits to both of our iPhones

o Will alarm to wake us if Avery’s blood sugar goes too high or low

o Allows us to sleep more normally and not wake every night for a 2 AM blood sugar check (meant to prevent dead-in-bed syndrome)

TECHNOLOGY FOR INSULIN RATES/RATIO ADJUSTMENT