emory family education day 2012 - family advisory presentation (pdf)

CF Family

Advisory Council

Annual Update

Emory CF Education Day

Saturday, February 18, 2012

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Purpose and Overview

The purpose of the CF Family Advisory Council is to work together with the staff to advance the practice of family-centered care. Family-centered care is the belief that healthcare providers and families are partners working together to improve the quality of care for patients. This is accomplished by designing better programs, policies, and procedures that provide the best possible care and meet the needs of the CF patient and their families.

Founded in 2007

Currently 9 parents – 5 from Emory and 4 from Scottish Rite

Social Work liaisons from each care center

Meet monthly

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Past Projects

CF Care Plan

Taking CF to School

Hospital Guide

Family Mentor Program

Lab Notifications – Coming Soon!!!

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What’s Next…

CF Family Connection Events – Spring and Fall

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What’s Next…

CF Family Connection Events – Spring and Fall

Sticky Notes – Quarterly Newsletter

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Quarterly Newsletter

Main Article

Patient Spotlight

CF Superhero

Kids Korner

Recipe

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What’s Next…

CF Family Connection Events – Spring and Fall

Sticky Notes – Quarterly Newsletter

CHOA CF Patients and Families Website Update

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Current Site

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Current Site

* Easier Navigation

* Additional Links

* Reorganize

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What’s Next…

CF Family Connection Events – Spring and Fall

Sticky Notes – Quarterly Newsletter

CHOA CF Website Updates

Adventures in Social Media!

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Not Live…yet?

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Come Meet Us!