e & & j, @n æ j& ni… · syndrome (bmfs). the riewoldt family established maddie’s...

#RIDEFORMADDIE

TOUR DE BURBS CYCLING EXPERIENCE

100 KM RIDEFINISH LINE AT

MARVELSTADIUM

STRAIGHT INTO

MADDIE'S MATCH...

...TODELIVER THE

GAMEDAY

BALL.

Maddie Riewoldt’s Vision was established in June 2015,following the tragic death of Maddie Riewoldt fromAplastic Anaemia, a type of Bone Marrow FailureSyndrome (BMFS). The Riewoldt Family establishedMaddie’s Vision with the primary aim of finding a curethrough medical research. Maddie bravely fought AplasticAnaemia for 5 years. During this time, the familydiscovered how little there was known about the cause ofthis life-threatening illness and that there were very fewtreatment options available. Current therapies are often notwell tolerated by patients and families face options that arevery disruptive to daily life. Over 50% of the 160 youngAustralians diagnosed each year will not survive. To achieve better outcomes, and to ultimately find a curefor BMFS, Maddie’s Vision appointed a highly reputable Scientific Advisory Committee to develop a NationalResearch Strategy. The collective aim, via a competitiveand transparent granting round, is to award funding toresearch projects and people who will discover theimportant breakthroughs required in this area of medicine.Projects are in partnership with national medical researchinstitutes, hospitals and universities across Australia.

THE CAUSE

Maddie’s Vision continues to make amazing inroads.Together with government funds, major events,sponsorships and ongoing support from people such asyourselves, over $10 million dollars in committed funds hasbeen raised since inception in June 2015. Bone Marrow Failure is a rare disease and there is still somuch to discover. The work of Maddie’s Vision is vital, andthe foundations for our medical research program havebeen laid. In some ways, the real work is only justbeginning. Funds raised by all #RideforMaddie participants andsponsors will support the First National AplasticAnaemia/Bone Marrow Failure Syndromes (BMFS) BiobankProject which will be proudly supported by MaddieRiewoldt’s Vision. The aim is to establish a world-class,  Australian biobank of samples for Bone Marrow FailureSyndromes as a critical enabling resource to promote andenhance new national and international research towards acure.

#RIDEFORMADDIE

With your help and support, Maddie’sVision can continue their amazing work.19 research projects are currentlyfunded, led by the top researchers in ourcountry.

#RIDEFORMADDIE

TOURDEBURBS

1DAY

100KM

#RIDEFORMADDIE

#RIDEFORMADDIE

THE AIM:Raise $150,000 to go to buildingAustralia's first bone marrow biobank

Join us on this once-in-a-lifetime 100kmcycling event in an extended and escortedTour de Burbs of Melbourne, starting at StKilda’s Moorabbin Oval and finishing inMarvel Stadium to deliver the Maddie's Matchgame-day ball accompanied by a guard ofhonor.

AMAZING FIERCE

THE DETAILSDATE:April 5th 2020

COST:$500 per rider

#RIDEFORMADDIE

Welcome package, fundraising package andsupportRide into Marvel Stadium to be welcomed priorto Maddie’s Match (St Kilda vs Richmond)MAAP Team riders kit Riding guides and soigneursRiding specific snacks and fuel during the eventProfessional bike support (technical andmechanical)Medical supportTickets to Maddie's Match (St Kilda vsRichmond)Professional Ride and Safety support teamsand vehiclesPost - ride functions at Marvel Stadium3 month subscription to The Sufferfest

INCLUSIONS:

#RIDEFORMADDIE

TO SIGN UP OR DISCUSS SPONSORSHIP, VISIT:

YOUR MADDIE'S VISION CONTACT

MAGGIE LYNCHSENIOR EXECUTIVE ADMINISTRATOR

ADMIN@MRV.ORG.AU0477 003 940

https://www.facebook.com/MaddieRiewoldtsVision/

https://twitter.com/maddiesvision/

https://www.instagram.com/maddiesvision/

For more information on Adventure Abroad, visit:https://www.adventureabroad.com.au

http://mrv.org.au