doctor as designer?

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These slides are adapted from a talk that I gave this year at the 2013 Cusp Conference, which is a conference about the design of everything. It's about my personal journey from medical doctor to medical "designer" and why we as medical professionals must become design thinkers. I was honored to be presenting at the event and it literally was the most amazing conference I have ever attended in my life! Thank you to Dave Mason and the folks at Multiple. http://joycelee.me

TRANSCRIPT

Doctor as Designer?

Joyce Lee, MD, MPH Twitter: @joyclee

http://joycelee.me/

I have no ties to any pharmaceutical companies

I am Pediatrician

Diabetes specialist

and Pediatric Researcher who studies Obesity and Diabetes

I have no formal training as a designer, but

these were my notes from when I was studying for my medical

board exams. Does this count as design?

This is design, right? “A priesthood of folk in black

turtlenecks and designer glasses working on small things.”

So how does this have anything to do with me, a

physician?

I had the great privilege of learning about design thinking while I was on sabbatical last

year at Stanford

https://medium.com/@joyclee

And I started blogging about design thinking and its intersection with health

But this journey started for me as a Personal Design

Experiment

My son “B” has life-threatening food allergies so he has to carry an

epi-pen with him at all times

The doctor gave us a paper allergy action plan to show the teachers how and when to use the pens

But this wasn’t really effective. Could there be something

better?

Pull him out

of school.

Design Idea

Not an option.

Design Idea

Not feasible, I sometimes don’t know when to give the medication and I

am an MD!

Teach 6 yo

signs of

anaphylaxis

& when to

give meds

I was in

Silicon

Valley, so I

made a

youtube

video!

Design Idea

No actually I had B make the movie, just as any good tiger mom would

http://ihavefoodallergies.tumblr.com (see 1st video)

He illustrated and narrated this 1st prototype

I blogged about it

http://goo.gl/984r9R

And it went viral!!

http://goo.gl/w5RRIl http://goo.gl/EVIhgu

DESIGN

SUCCESS!!

http://ihavefoodallergies.tumblr.com (see 1st video)

http://ihavefoodallergies.tumblr.com

And please check out video #2 about handling food and ingredients!

We also

needed a

Low Fi

Version

Design Inspiration:

My Medicine X nametag

So I made these nametags

http://goo.gl/6MwfeT

Which contain vital information

Extra resources, and pictures of the “bad allergens”

How to give the meds using B’s illustrations

Noun Project Icons from Rodrigo Bruno, James Keuning, Sergi Delgado & Jong Hyuk Kwon.

And more detailed information about allergens

Design thinking can solve health problems

My First Design Insight

Design which leverages mobile technology & social media

changes the paradigm of who, what, and how health information is communicated

My Second Design Insight

The old medicine: Paternalistic

Doctor to patient Off-line and in the office

The new medicine: Participatory

Patient to Patient Online and at all hours

Participatory design is therapeutic, and

empowers patients and caregivers

My Third Design Insight

Anyone can “design” a health solution, even a 6 year old boy!

I felt safer, and B learned a lot of fancy words!

“lactalbumin, lactoglobulin, whey…”

The next part of the journey:

“Learning to design is learning to see”

-Oliver Reichenstein

I am used to bad design in healthcare

So I never even questioned the design of the Epi-Pen

The thing is, you don’t know what bad design is, until…

You see good

design

I didn’t realize the bad design of the Epi-Pen

Until I encountered the Auvi-Q

Check out this video: http://www.auvi-q.com/auvi-q-demo

The Auvi-Q made me realize there are some major design

flaws with the Epi-Pen

The needle

is opposite

to the cap,

which is

counter-

intuitive

The Most Important Design Flaw

Life or

death is

stressful!

Don’t make

me think!

That causes problems in emergency situations

>15,000 Unintentional injections from Epi-Pens in the US

between 1994-2007

There were

0

500

1000

1500

2000

2500

3000

< 6 yrs 6-12 yrs 18-64 yrs

Total

13-17 yrs >64 yrs

Unintentional Injections with Epinephrine auto-injectors

Simons, 2010

“Wow it’s getting worse with time!”

Greenberg, 2010

“Despite instructions rendered on the package insert, a large number of health care professionals including nurses, paramedics, and physicians inadvertently self-inject while attempting to administer the EpiPen to patients. One recent report chronicles a 6-year experience at a single US poison center that fielded 365 epinephrine injections to the hand.”

Trained health care providers can’t even use the pen properly!

Whoa the

cap &

needle are

at the

same end!

But Auvi-Q found a design solution

It

tells you

what to

do!

And it even guides the user with it’s own version of “Siri”

“Bad Design Causes Injury”

“Good Design Saves Lives!”

Design Insight

Another Epi Pen Design Flaw

It’s an awkward

size, &

doesn’t fit in your

pockets

So people

don’t carry

the pens

with them

It’s thinner

and

shorter &

fits in your

pocket!

But Auvi-Q fixed this problem too

And it

reminds me

when to

refill

“Aesthetics Do Matter for Health”

Design Insight

Revelation: It was designed by two brothers with food allergies!

When I started pulling this blog post together, I went back to the scientific literature to see what it had to say about the design of

the epi pen

I found this article, and I began to see the world through the eyes

of a designer

“patients frequently do not understand how and when to use [the epi-pen].”

Sicherer, 2011

In medicine, we often blame the patient

“patients frequently do not understand how and when to use [the epi-pen].”

Sicherer, 2011

But is it a patient problem or is it a design problem?

Design

flaw:

The needle

is opposite

to the cap

“Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common”

Sicherer, 2011

In medicine, we often blame the patient

“Children had only used their EpiPen device in 29% of recurrent anaphylaxis reactions. This is perhaps unsurprising because a fear of needles/injections is common”

Sicherer, 2011

But is it a patient problem or is it a design problem?

Design

Flaw: It’s confusing to

use in a

scary

emergency

“patients often forget [the device], allow it to expire”

Sicherer, 2011

In medicine, we often blame the patient

But is it a patient problem or is it a design problem?

“patients often forget [the device],

allow it to expire”

Sicherer, 2011

Design

Flaw:It’s too long & wide

& where’s the app to

go w/it?

http://goo.gl/M2Sxs5

A designer would never say,

“It’s the user’s fault”

“Fix the Design and then its no longer

the “Patient’s” problem”

-Joyce Lee, MD, MPH Medical Designer?

“Patient” problems are really

“Design” problems -Joyce Lee, MD, MPH

DEO* (Design Executive Officer?)

*Check out @mgiudice for the def’n of a DEO; she’s the one who told me that I could call myself a DEO :)

Could Doctors have something to learn from Designers?

http://goo.gl/L6yQ0V

As a medical designer (MD), instead of seeing the

world like this:

75%

Wood, 2012

of children fail to meet recommended blood sugar goals in

Type 1 Diabetes

I now see the world like this:

75% of health care providers/systems

fail to help children achieve recommended blood sugar goals in

Type 1 Diabetes

Clinic is a Design Thinking Problem every 15 minutes

http://goo.gl/j9GR1F

Book knowledge is still important, but is probably

not as critical as…

Empathy for our Patients

If we as health care

providers do not think like designers, we will fail in our mission to serve our

patients

B you are a true “design thiker”; thanks for

teaching me so much

Joyce Lee, Medical Designer, DEO

Twitter @joyclee http://joycelee.me/ joycelee.tumblr.com

Thanks to: B, S, and E Hyoung O. Lee, MD, Heeja Lee

Friends, Colleagues, Twitter connections, & @CuspConference for inspiring this talk!

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