brain injury association of america: why should you care?

Brain Injury Association of

America:Why Should You

Care?

30 years ago, 50% of all

people with brain injury died at the

scene; death rate is now 22%

TBI in the United States

50,000 Deaths

235,000Hospitalizations

1,111,000Emergency Department Visits

??? Receiving Other Medical Care or No Care

At least 1.4 million

TBIs occur in the United States

each year.*

* Average annual numbers, 1995-2001

From the 2004 CDC Report: TBI in the United States: ED Visits, Hospitalizations, and Deaths

TBI in the United States

The number reported with TBI underestimates the magnitude of the problem because the following are not included: – TBIs treated by private physicians– Individuals who did not seek

medical care

TBI in the US by Cause

Falls, 28%

Motor Vehicle-Traffic, 20%

Struck By/Against, 19%

Assault, 11%

Unknown, 9%

Other, 7%

Pedal Cycle (non MV), 3%

Suicide, 1%

Other Transport, 2%

From CDC:Average annual percents, 1995-2001; ED visits, hospitalizations, and deaths combined

Comparative Incidence

Brain Injury Association of America, 2005

BIAA is fighting for parity in public VR

• Use “Innovation & Expansion” funds for TBI

• Lobby for Specialty Counselors• Implement Cognitive Accommodations• Reward Successful Closures• Fight “Not VR Ready” Mindset

Rehabilitation Services Administration

The TBI Act…

A lesson in perseverance

©NHIF1994

TBI Act Reauthorization

• 5-year Authorization• CDC – Surveillance & Registry linkage • State Grants – American Indian

Consortium added • P&A Grants – Data Coordination• HRSA – Bi-annual Report to Congress

& National Grants of Significance (Projects leading to Policy Development, Service Access, State Capacity Building, Service Quality & Evaluation & Emerging Needs)

TBI Act Appropriations RequestsCDC - $8.715 million

(up from $5.715 in FY 05)

HRSA States - $15.193 million (up from $6.375 in FY 05)

HRSA P&A - $6 million (up from $3 million in FY 05)

Legislative Action Center www.biausa.org

Legend:

At or above 90th National percentile

At or above the 75th percentile but less than the 90th National percentile

TBI Mortality

in Oregon - (1989-1998)

Source: DEPARTMENT OF HEALTH AND HUMAN SERVICESCenters for Disease Control and PreventionNational Center for Injury Prevention and Control

Legend:

At or above 90th National percentile

At or above the 75th percentile but less than the 90th National percentile

Traumatic Brain Injury

in Washington (1989-1998)

Source: DEPARTMENT OF HEALTH AND HUMAN SERVICESCenters for Disease Control and PreventionNational Center for Injury Prevention and Control

Soldiers with TBI• Previous Wars: 20% of

all military casualties sustained a brain injury

• The rate of blast brain injuries in soldiers returning from Iraq and Afghanistan appears to be as high as 50%

http://icasualties.org/oif/

Terri Schiavo

State & Federal Budgets

“Red Ink Rising” The Economist

$$$

Definitions

TBI ABI Both

*

* No Response

Cross Disability or Brain Disorder

BIAA - Prevention/Awareness• Safe World Outdoor

Advertising Campaign• Protect the Stuff You

Care About video PSA• Brain Injury Awareness

Month Kits • Living with Brain Injury

Brochures• Honorary Spokespersons• Wristbands & Decals

Photo courtesy of Suzanne Doswell

BIAA - Research

• NIDRR Assistive Technology Project• NIDRR TBI Model Systems Abstracts &

Inserts• NIDRR Self Employment Project• Double Funding for TBI Model Systems to

$15 million• Achieved Congressional Direction for

Clinical Pharmacology Trials Network• Elevate NCMRR to full Institute status at NIH

BIAA - Education/Information• 1.8 million website visitors, 12,000 I&R

calls & 100,000 TBI Challenge! Newsletters per year

• 1,100 AACBIS certificants; 400 new applicants per year

• 250 Registrants Rehabilitation of Traumatic Brain Injury: The State of the Art

• Brain Injury Business Practices College (December 2005)

• Caregivers Conference (March 2006)

BIAA - Advocacy

• TBI Act Reauthorization and Appropriations

• Social Security Administration “Mental Impairment Listings”

• Rehabilitation Services Administration

• Cognitive Rehabilitation

BIA - State Advocacy• Increased Appropriations for Waiver Services

in Iowa, New Hampshire, and Mississippi

• Waiver authority in New Mexico and Montana

• Medicaid Buy-in (TTWWI) in Connecticut

• State Plan Services in Rhode Island

• More $ for Michigan No Fault

• Mental Health Services in Kentucky

• Community Based Options in Vermont

BIA - State Advocacy• Advisory Councils in Maryland and Ohio

• Designated Licensing Agency in Virginia

• Shaken Baby Legislation in Illinois

• Bike Helmets in New Hampshire

• Special Education for TBI in Oregon

• Consumer Choice in Colorado

• Expanded services in Utah

• Residential options in Connecticut

BIA-Oregon Services:

•Information about brain injury, services, health care and prevention, including in-service educational programs

•Assistance to support groups for survivors and their families

•Policy advocacy for programs and services

•Resource sharing for medical professionals and service providers

•Annual conference•Quarterly newsletter

BIA-Oregon

• There are over 70,000 Oregonians who live with disabilities from traumatic brain injury.

• Help by joining the Brain Injury Association of Oregon's volunteer network.

• Give:– Time– Talent– Treasure

• Are you a member?

Together, we are the only nationwide organization representing 5.3 million

individuals with brain injury, their families and the

researchers, clinicians and professionals who provide

treatment and care.

Together, we are a $15+ million advocacy network that answers 100,000 individual requests for help each year.

Together, we have a 25-year legacy of state and federal policy achievement that generates research, services and support.

Better Together

Better Together

Thank You!

Geoffrey M. LauerNational Director for Affiliate RelationsBrain Injury Association of America8201 Greensboro Drive, Suite 611McLean, VA 22102319-621-7078gmlauer@biausa.org

The 5 Building Blocks for State Brain Injury Services

1) A Strong State Association2) A legislatively appointed State

Advisory Council on Brain Injury3) A TBI Trust Fund or other State

Dedicated Funding4) A Medicaid HCBS Waiver for TBI5) A TBI Registry