autism crc briefing autism summit
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Cooperative Research Centre for a Better Start and Future for Autism Spectrum Disorders
Professor Sylvia RodgerThe University of QueenslandCo-Chair Autism CRC Bid Team
Cooperative Research Centre for a Better Start and Future for Autism Spectrum Disorders
Proposal for CRC in Autism initiated by AQ & UQ has attracted significant national interest
Scoping & Information Workshop held Brisbane 14 September 2010 with 63 interested participants/organisations including:10 universities4 hospitals/Medical Research Institutes 7 govt/non govt organisations5 federal/state education, health & disability services.
End-users including parents & professionals presented their views on gaps and research needs.
Full support to progress CRC Autism bid. Prospectus was developed based on themes from the day
Progress to date
7 organizations committed to being core participants contributing $50,000-100,000 per annum over 10 years The University of QueenslandQueensland University of TechnologyCurtin UniversityUniversity of Western AustraliaUniversity of New South Wales La Trobe UniversityAutism Queensland
In discussion with other potential participants Participation of end-user organisations (incl. govt
departments) is essential.
End UsersPeople with ASDFamilies/carersProfessionals working with individuals with ASD (e.g.,
teachers, OT, SP, dieticians, paediatricians, psychologists)
Government service providers (health, education, disability, hospitals)
Non-government service providers State autism peak bodies (e.g., AQ, WA Autism, ASPECT)Private providers (AEIOU)Play group Australia
About CRCsSupport medium to long term collaborations (5-10
years) between researchers and end-users Outcomes must be able to be implemented by end users
(plan for implementation and dissemination critical)Funded to address clearly articulated major challenges
of end users.CRCs pursue innovative solutions to these challenges
through R & D deploy these.
CRCs
• Education agenda: CRC will support • PhDs, Postdoctoral fellowships• professional development for end users e.g., CPD for teachers,
health professionals and knowledge translation/dissemination workshops for parents.
• Must demonstrate social and economic outcomes for Australia• Must be able to be implemented by end-users
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Core Program 1: A Better Start
Diagnosis and Biological Underpinnings of ASD
Core Program 3:Finding a Place in
Society
Effective Interventions
for Young People
&Adults with ASD
Core Program 2: Creating a Future
The School Years - Enhancing Student Learning & the Learning
Experience
Core Program 1: A Better Start
Diagnosis and Biological UnderpinningsIdentification of biomarkers with potential to be used in
diagnosisPhenotypes profiledNational surveillance program pilotedNationally endorsed protocol and training for accurate,
efficient and evidence informed diagnostic procedures A program to support period around diagnosis to ensure
seamless integration between diagnostic and early intervention services
Core Program 2: Creating a Future
The School years – Enhancing Student Learning and the Learning experience Nation-wide research into the key elements of
ASD-friendly education programsEducation guided by current brain researchEffective individualised educational support Key elements to support effective transitionsNation-wide use of uniform data collection and
outcome measures Training of teachers and other school staff in ASD-
friendly curriculum and assessment approaches
Tailored supports for young people and adults with ASD Accurate Australian baseline information about adults
outcomesProtocol of vocational assessment for post-school optionsEffective adult programs on social interaction, emotion
regulation & relationshipsEffective programs of support in VET/work sector, higher
educationDevelopment and evaluation of supported and open
employment modelsDevelopment and evaluation of social and community
engagement and independent living programs
Core Program 3: Finding a Place in Society
Enhancing Lives with TechnologyCore program 2 – innovative technology applications in
educationCore program 3 – develop and evaluate employment
programs focusing on technology strengths of some young people with ASD
All core program will investigate use of remote technologies to provide support in regional and remote areas
Innovative technology embedded across core programs
Family concerns addressed in regard to:
• Need for earlier diagnosis and seamless transition to early intervention (Program 1)
• Inclusion of children with ASD-friendly classrooms and awareness raising about ASD in school communities (Program 2)
• Opportunities for participation in VET/tertiary education & employment and community engagement (Core Program 3)
Family supports embedded across core programs
What would service providers gain from involvement in CRC?
Extra funding from Commonwealth to support research and development in key program areas of relevance to ASD
Large nation wide and longitudinal studies Capacity to implement researched interventions
that are evidence based and cost effective.Capacity building: Education of education and
health professionals re latest research findings through dissemination of findings.
How service providers can be involved?
Prospectus Discussion with key personnel/ministers in each
state/territoryAlign with universities/service providers/ peak bodies for
engagement in CRC in each stateLet bid team presenter /member in your state know in
writing.
Participation options include:
Essential Participants: Cash contribution of at least $50,000 per annum (untied)In-kind contributions of at least $300,000per annum for duration of CRC. Direct contribution to the research agenda in its entirety.
Non Essential Participants: Cash contribution suggested $20,000 per annum (negotiable)In-kind contributions for at least 3 years (tied or untied) (preferably duration of the
CRC)Participants to contribute to particular aspects of research agenda Input into education programs arising from CRC Staff/clients directly benefit from engagement in research and information
sessions.
Where to from here?More end-users requiredMeetings of core bid team – program areas identified
and projects specified x 10 years.Recruitment of more industry partnersDevelopment of bid, governance structures, IP,
economic impact statementsBid due July 2011Outcomes known end 2011Start date? 2012.
Professor Sylvia RodgerThe University of QueenslandCo-Chair Autism CRC Bid Team
E-mail: s.rodger@uq.edu.au
Questions/Comments??
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