arizona statewide independent living council (az silc) the disability empowerment center suite 214...

ArizonaArizona Statewide Independent Living Statewide Independent Living

Council (AZ SILC)Council (AZ SILC)The Disability Empowerment CenterThe Disability Empowerment Center

Suite 214Suite 214

5025 E Washington Street5025 E Washington Street

Phoenix, AZ 85034Phoenix, AZ 85034

602/262-2900, voice/TTY602/262-2900, voice/TTY

www.azsilc.org

AZ SILCAZ SILC

SILC Staff:

• Tony DiRienzi

Executive Director

tony@azsilc.org

• Linda Jane Austen

Director of Administration linda@azsilc.org

AZ SILCAZ SILC

SILC, with the support of the AZ Department of Health Services,

will conductworkshops

around the state related to Emergency Services and

Functional Needs. .

AZ SILCAZ SILC

The purpose of this presentation

is to acquaint you with

SILC and provide

an introduction to the content

of our

Functional Needs

Workshops.

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Workshop topics:

• What are Functional Needs?

• Who has Functional Needs?

• How Functional Needs Impact the Planning for and Delivery of Emergency Services.

• Best Practices

AZ SILCAZ SILCSILC is an AZ Governor’s advisory council and non profit organization, whose members:

• Are a majority of people with a disability,

• Represent the diversity of AZ,

• Assess and advocate for issues related to Independent Living.

AZ SILCAZ SILC

Independent Living is essentially

about theCivil Rights

of People with Disabilities.

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The goal of Independent Living

is to ensure that people with disabilities

have equal access to live and participate

in theircommunity.

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People with Disabilities

are the majority

of the

Functional Needs Population

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Integral to

Independent Living

is addressing

the Functional Needs

of people.

AZ SILCAZ SILCThere are 5 major categories of Disabilities

• Mobility,

• Sensory,

• Cognitive,

• Mental, and

• Multiple.

AZ SILCAZ SILC

The Functional Needs population

is a broad spectrum

of individuals that use

a wide range of

interventions

to independently accomplish

Activities of Daily Living.

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Activities of Daily Living

(ADLs)

are used to

describe and indicate

the functional level

of individuals.

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ADLs include:

• Walking

• Personal Hygiene

• Dressing

• Self Feeding

• Toileting

• Communicating

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An individual’s ability to accomplish

ADLsis used as a criteria

to measure their independence.

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Equipment, services,

and/or

pharmaceuticals

are interventions

used to support

Functional Needs.

AZ SILCAZ SILC

Equipment includes:

• Audio output electronic devices,

• Consumable Medical Supplies

(CMS, e.g. catheters),

• Durable Medical Equipment (DME, e.g. wheelchairs),

• Video telephones.

AZ SILCAZ SILC

Services include:

• American Sign Language (ASL) interpreters

• Computer Assisted Real-time Translation (CART),

• Personal Attendant Services (P.A.S.),

• Service Animals (e.g. dogs).

AZ SILCAZ SILC

Pharmaceuticals include:

• Insulin,

• Cardiac/Pulmonary,

• Psychotropic,

• Neurologic, and

• Antibiotic.

AZ SILCAZ SILC

People with

Functional Needs

do not have

“Special Needs”.

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The concept of

“Special”

discriminates

and

segregates.

AZ SILCAZ SILC

Understanding the concept of

Accessibility

will prevent

discriminatory practices

and promote

inclusive services.

AZ SILCAZ SILC

Accessibility

describes the degree

to which

a service or environment

is equally available to

as many people as possible.

AZ SILCAZ SILC

Major Attributes of Accessibility:

• Easy to use, enter, reach, apply,

• Being at hand when needed,

• Easy to meet, interact with, communicate with, or contact.

AZ SILCAZ SILC

Planning and implementing

supports for

Functional Needs

will greatly reduce

the stress on emergency services’

assets and resources.

AZ SILCAZ SILC

A Best Practice

is to involve

People with Functional Needs

in the

planning process.

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AZ SILCAZ SILC

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Functional Categories:• Onset

Prenatal/BirthAcquired

• DurationTemporaryProgressivePermanent

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Each category is subdivided into

various subcategories. Each subcategoryis subdivided into various subgroups.

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Mobility is the most visible because of anatomical characteristics or DME:

• Crutches,• Oxygen Concentrators, • Prosthetics,• Scooters,• Walkers,• Wheelchairs, etc.

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Mobility Subcategories:

• Non Ambulatory

• Partially Ambulatory

• Ambulatory

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Mobility Subgroups:

• Non AmbulatoryParalysisArthritisNeurologicalMultiple Amputations

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Mobility Subgroups:

• Partially AmbulatoryCardiac/Pulmonary,Temporary Medical Conditions (e.g. broken leg),

Pregnant Women, andAging.

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Mobility Subgroups:

• AmbulatoryParalysis of Arms/HandsAmputations of Arms/Hands

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There are specific

Emergency Preparedness

issues

related to all

categories

AZ SILCAZ SILCEmergency service issues related to mobility include:

• Evacuation

• Triage

• Transportation

• Sheltering (not only architectural but, also equipment)

• Reunification

AZ SILCAZ SILCFor Emergency Service Personnel:

• Do not assume what a person can or cannot do,

• Always speak directly to person, not to companion or interpreter, and

• Critical questions to ask,What is your Functional Need?How can I best assist you?

AZ SILCAZ SILC

Emergency Service Personnel:

• If an individual has a service animal,

• Please ask,Is this a service animal?What has this animal been trained to do?

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Individuals may use service animals in all Functional categories:

• Mobility,• Sensory,• Cognitive,• Mental, and• Multiple.

AZ SILCAZ SILC

How Service Animals are used:

• Wheelchair users – pulling, retrieving,

• People who are blind – way finding,

• Neurological – alert & protect,

• Cognitive – orientation to environment,

• Mental –prevent self injury, wake up.

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Emergency Services Personnel:

• Do not separate owner and animal,

• Not a pet, it’s a working animal, highly trained,

• Do not stroke, touch or give animal food without permission of owner.

AZ SILCAZ SILC

Service Animals (cont’d)

• Harness indicates animal is working, it is on duty,

• If you need to handle the animal use a leash, NOT THE HARNESS,

• Animal must be in a harness or on a leash, but need not be muzzled.

AZ SILCAZ SILC

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To participate in a

Functional Needs

workshop and

table top exercise

contact either:

Tony DiRienzi tony@azsilc.org

Linda Jane Austen linda@azsilc.org