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Communication

2019 ERN Hospital Managers’ meeting 16-17 May 2019

Paris

How to communicate on the ERNs to an external audience (in conferences or events)? (1)

Video testimony through the EU Protects campaign: « Meet Europe's ordinary heroes »

https://europa.eu/euprotects/content/homepage_en

How to communicate on the ERNs to an external audience (in conferences or events)? (2)

ERN brochure

ERN introductory video clip

(Update planned in 2019) https://ec.europa.eu/health/ern_en

https://ec.europa.eu/health/ern/videos_en

How to provide healthcare professionals with communication tools on the ERNs for their patients?

Package addressed to patients and their doctors

[Flyer + video clip + poster]

All EU languages available + NO

Clip’s dubbing planned in 2019

How to remain informed on the developments of the ERNs? (1)

ERN news published on

the Europa website :

https://ec.europa.eu/health/ern_en

« Latest updates »

How to remain informed on the developments of the ERNs? (2)

forthcoming (new) ERN newsletter

Published around every 4 months, from June 2019 (TBC)

Includes:

- News on the last developments of the ERN community

- An Interview to one ERN key player

- Good practices from the ERN community

- Useful links and events

Target:

- the ERN community

- External stakeholders interested in the ERNs and rare diseases field

Upon on-line subscription

Connect to the ECP – collaborative platform for the ERN community

https://webgate.ec.europa.eu/ern/

How to keep in contact with other Hospital managers?

1) Sign in to continue

or create an EU login account

2) Select the « network » you want to enroll in: « ERN Hospital managers »

There is one « network » for each ERN, for the BoMS, the ITAG, the Project managers, the ERN Hospital managers.

Each « network » offered a reserved space for internal exchange among the members of that network.

All the "Networks" have the same functionalities.

"Plaza" is a common space to all the « networks »: you automatically access to it if you are registered under one of the other networks.

To select the network « ERN Hospital managers »:

• From the Homepage, select the network by clicking on the Request access button.

• The second page act as a confirmation to access the network. Choose Yes or No then Submit.

The administrator of this network (DG SANTE) will accept your request for access.

3) Start using the functionalities of the platform

You can: - post news under "All activities" - create a discussion under "Forum" (created only by the Administrator) - upload/download documents under "Library" (only the Administrator can create sub-folders, all members can upload or download) - create an event under "Agenda"

Library

« Plaza »:

- it is a "network" like the others, with the same functionalities

- you can access it if you are already member of one other "Network"

- the content is visible for all "Networks" (all ERNs and BoMS)

- you are invited to publish content which is relevant to all or a majority of the ERNs/BoMS

Weekly summary of main news

- It is automatically generated by the IT system

- It is published each Monday and flags all the posts published the week before

https://ec.europa.eu/health/ern_en

http://ec.europa.eu/health/ern/toolkit_en

SANTE-ERN@ec.europa.eu

@EU_Health

#ernEU