2016 fshd connect - treatment - fshd society€¦ · we invite you to sponsor the fsh society’s...
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SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
2016FSHDCONNECT
ResearchConnectNovember10-11
PatientConnectNovember11-12
NationalGalaNovember11
WestinCopleyPlaceHotel10HuntingtonAvenueBoston,Massachusettswww.fshsociety.org
SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
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“WebelievetherewillbeacureonedayforoursonNoah,andweknowtheFSHSocietywillplayahugeroleinfindingit.”—KristenandDanLinsky
Greetings!WeinviteyoutosponsortheFSHSociety’s2016FSHDConnectConference.Thisyear,forthefirsttime,wehavecombinedourtwosignaturemeetingsintoasingle,three-daysuper-conference.OureventsbeginonNovember10withResearchConnect(formerlytheInternationalResearchConsortiumWorkshop).Opentoactiveresearchprofessionalsfromaroundtheworld,theworkshopisthepremierannualplatformforclinicians,medicalresearchers,andbasicscientiststopresentanddiscussnewdevelopmentsinFSHmusculardystrophyresearch,reinforcecollaborativeefforts,andfacilitatenewinitiatives.ResearchConnectculminatesonthemorningofNovember11withamoderateddiscussiontoassessthecurrentstateofthefieldandsetprioritiesforthecomingyear.
OntheafternoonofNovember11,weseguetothePatientConnectconference,whichbringstogetherhundredsofpatientsandfamilymemberswithtopresearchers,doctors,andhealthexperts.ContinuingthroughNovember12,thisgatheringprovidesadayandahalfofimmersivelearningandcommunitybuilding.Thisyear’smeetingwillfeaturetalksbyleadersinthefieldofFSHD,includingreportsfrommajorclinicalandresearchcenters,industry,question-and-answerpanelsessions,andeducationalworkshops.
OrganizedtomarktheFSHSociety’s25thAnniversary,FSHDConnectisthefirsttimesomanyresearchers,clinicalexperts,patients,familymembers,caregivers,andadvocacygroupswillconveneinoneplace.Tocelebratethismilestone,theFSHSocietywillhostitsinauguralnational“CureFSHDGala”ontheeveningofFriday,November11.Youwon’twanttomissthisimaginativetributeto25yearsofbreakthroughresearch,withinspiringtributes,awardsandaperformancebyrenownedpianistStevenBlier.
Insponsoring2016FSHDConnect,yourorganizationwillgainrecognitionasaninvaluablecommunitypartnerbyaWho’sWhooftheFSHDfield—researchandclinicalleaders,risingstars,majordonors,internationalfundingagencies,patients,andfamilies.
Welookforwardtohavingyoujoinusasasponsoronthishistoricoccasion.Thankyou!
DanielP.Perez JuneKinoshitaPresident&CEO ExecutiveDirector
SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
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FSHDConnectOverviewTheFSHSociety'sannualmeetingforFSHDPatients,Clinicians,andResearchers
ResearchConnectNovember10-11,2016
PatientConnectNovember11-12,2016
CureFSHDGalaEveningofNovember11,2016
TheFSHSociety’sannualinternationalresearchconferenceandpriority-settingworkshop.
Thursday,November108:00a.m.–6:00p.m.Scientifictalksandpostersessions.
Friday,November118:00a.m.–12:45p.m.Researchpriority-settingworkshop.
Organizers:DanielP.Perez,President&CEO,FSHSociety.Co-Chairs:StephenJ.Tapscott,MDPhD;SilvèrevanderMaarel,PhD;KathrynWagner,MDPhD.
Whoshouldattend:basic,translational,andclinicalresearchersfromacademiaandindustry;fundingagencies.
Expectedattendance:100-120
Ournetworkingconferencebringstogetherpatients,families,clinicians,andresearchers.
Friday,November111:00p.m.–5:00p.m.Aworld-classfacultypresentsthelatestinourunderstandingofgenetics,diagnosis,symptoms,progression,clinicaltrialreadiness,therapeutictargets,andongoingclinicaltrials.Q&Atolearnfrompatients.
Saturday,November128:00a.m.–5:00p.m.Patient-focusedworkshopsonavarietyoftopicsonmanagingFSHD-relatedhealthconditions,livingandthrivingwithFSHD,becominganempoweredpatient.
Whoshouldattend:FSHDpatients,familymembers,clinicians,researchersfromacademia,andindustry;advocacyorganizations.
Expectedattendance:200-250
TheFSHSociety’sinauguralnationalgala.Cocktailreception,banquet,musicalperformance.
Friday,November116:30p.m.–10:00p.m.
Animaginative,science-themedeveningtocelebratethescientificachievementsoftheFSHSocietyandhonortheresearchers,clinicians,majordonors,andpatientswhoaretransformingthelandscapeforFSHDpatientsaroundtheworld.
ConcertperformancebyrenownedpianistStevenBlierandguestvocalist.
Whoshouldattend:patients,families,friends,researchers,clinicians;leadersinresearch,medicine,biotech,andphilanthropy.
Expectedattendance:150-200
EarlyBirdRegistration*byFriday,September30:Academic,nonprofit,government,$180;graduatestudent,postdoctoralresearcher,$90;corporate,$300.
Registration*byFriday,November4:Academic,nonprofit,government,$250;graduatestudent,postdoctoralresearcher,$150;corporate,$400.
* Registrationfeewaivedforpresenters.
Registeratwww.fshsociety.org/fsh-events/2016-international-research-consortium-workshop/
EarlyBirdRegistrationbyFriday,September30:Peradult,$190(member);$245(non-member);peryoungadult,$115(age12–18);andnochargeforchildrenunder12.Familyratefor3+attendees,$495(member);$560(non-member).
RegistrationbyFriday,November4:Peradult,$245(member);$300(non-member);peryoungadult,$175(age12–18);andnochargeforchildrenunder12.Familyratefor3+attendees,$595(member);$660(non-member).
Membership:$50
Registeratwww.fshsociety.org/fsh-events/2016-fshd-connect-conference/
EarlyBirdRegistrationbyFriday,September30:Galaticket,$150;VIPticket,$350.
RegistrationbyFriday,November4:Galaticket,$200;VIPticket,$400.
Tablehostsandsponsordeadlineforinclusionineventinvitation:August26.
DeadlineforinclusioninGalaprogram:October20.
Registeratwww.fshsociety.org/fsh-events/fsh-society-national-gala/
SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
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SponsorshipPackagesforAllThreeEvents:ResearchConnect(IRC),PatientConnect,andGala
SPONSORSHIPLEVELS
SPONSORSHIPBENEFITS
$25,000Platinum
8IRCpasses,8PatientConnectpasses,and3VIPtables(seatingfor24)Keynotespeakersponsor:Logoonprogramcovers;mentioninkeynotespeechintroduction,pressreleases,website,socialmedia;logoprojectedateventandtablehostattheGala.Opportunitytoprovidegiveawayattheevents.
$15,000Gold
6IRCpasses,6PatientConnectpasses,and2VIPtables(seatingfor16)OptionA:Musicalperformancesponsor:Logooninsideprogramcovers;mentioninperformanceintro,pressreleases,website,socialmedia;logoprojectedateventandtablehostattheGala.
6IRCpasses,6PatientConnectpasses,and2VIPtables(seatingfor16)OptionB:Accesssponsor:(financialaidfor10individualstoattendPatientConnect)Logooninsideprogramcover,pressreleases,website,socialmedia;logoprojectedateventandtablehostattheGala.
$10,000Silver
4IRCpasses,4PatientConnectpasses,and1VIPtable(seatingfor8)25thanniversaryfilmsponsor:Logooninsideprogramcover;mentioninpressreleases,website,filmcredit,socialmedia;logoprojectedateventandtablehostattheGala.
$5,000Bronze
2IRCpasses,2PatientConnectpasses,andVIPseatingfor4OptionA:"CelebratingScience”CureFSHD Galadécorsponsor:Logoinprogrambookandonbanquettables,mentioninpressreleases,website,socialmedia.
2IRCpasses,2PatientConnectpasses,andVIPseatingfor4OptionB:PortraitProjectsponsor:Sponsorprofessionalportraitphotosofpatientstoraiseawareness.Logoinprogrambook;mentioninpressreleases,website,andonselectedpatientportraits;non-exclusivelicensetouseselectedportraits.
$2,500Supporter
1IRCpass,1PatientConnectpass,andVIPseatingfor2OptionA:CoffeeBreaksponsor:Logoinprogramandatcoffeebreaktables;mentioninpressreleases,website,socialmedia.
1IRCpass,1PatientConnectpass,andVIPseatingfor2OptionB:PatientConnectBreakoutsessionsponsor:Logoinprogramsandinbreakoutsessionroomsandhandouts;mentioninpressreleases,website,socialmedia.
PageTotal:
SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
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LunchSymposiumSponsorships
SPONSORSHIPLEVELS SPONSORSHIPBENEFITS
$5,000LunchSymposiumSponsorNovember10
2IRCpassesandVIPseatingfor2attheGalaSponsoralunchpanel*onNovember10gearedtoanaudienceofacademicandindustryresearchers,andadvocacyorganizations.Logooninsideprogramcoverandonboxedlunches.
$5,000LunchSymposiumSponsorNovember11
2IRCpassesandVIPseatingfor2attheGalaSponsoralunchpanel*onNovember11gearedtoanaudienceofacademicandindustryresearchers,andadvocacyorganizations.Logooninsideprogramcoverandonboxedlunches.
$5,000LunchSymposiumSponsorNovember12
2PatientConnectpassesandVIPseatingfor2attheGalaSponsoralunchpanel*onNovember12gearedtoanaudienceofpatientsandfamilies,andFSHDadvocacyorganizations.Logooninsideprogramcoverandonboxedlunches.
* Subjecttoapprovalbyconferenceorganizingcommittee.
PageTotal:
SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
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IndividualEventSponsorships
SPONSORSHIPLEVELS
SPONSORSHIPBENEFITS
$5,000LevelResearchConnectSponsor
6IRCpassesNameorlogooneventpodiumandinsideprogramcover;mentioninpressreleases,website,socialmedia.
$5,000LevelPatientConnectSponsor
6PatientConnectpassesNameorlogooneventpodiumandinsideprogramcover;mentioninpressreleases,website,socialmedia.
$5,000LevelGalaSponsor 1VIPtable(seatingfor8)Nameorlogooneventpodiumandinsideprogramcover;mentioninpressreleases,website,socialmedia.
$2,500LevelResearchConnectSponsor
4IRCpassesNameorlogoinsideprogram,mentioninpressreleases,website,socialmedia.
$2,500LevelPatientConnectSponsor
4PatientConnectpassesNameorlogoinsideprogram,mentioninpressreleases,website,socialmedia.
$2,500LevelGalaSponsor VIPseatingfor4NameorlogoinsideGalaprogram,mentioninpressreleases,website,socialmedia.
$1,500LevelResearchConnectSponsor
2IRCpassesNameorcompanylistinginsideprogram.
$1,500LevelPatientConnectSponsor
2PatientConnectpassesNameorcompanylistinginsideprogram.
$1,500LevelGalaSponsor VIPseatingfor2Nameorcompanylistinginsideprogram.
PageTotal:
SPONSORSHIPKIT
Contact:JuneKinoshita,ExecutiveDirector,june.kinoshita@fshsociety.orgFSHSociety,450BedfordStreet,Lexington,MA02420USA(781)301-6649
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SponsorApplicationDEADLINES:August26forinclusioninGalainvitation.October20forinclusioninprogrambook.
Toreserveyoursponsorship,COMPLETEPAGES4-7ofthisdocumentandreturnthemvia:
• Mailto:Attn:FSHDConnect,FSHSociety,450BedfordStreet,Lexington,MA02420.
• Emailto:june.kinoshita@fshsociety.org
OrcalltheFSHSocietydirectlyat:(781)301-6042tohavethepaymentprocessedonyourbehalf.
YourOrganization:____________________________________________________________________________
YourName:________________________________________________Title:_____________________________
Address: ____________________________________________________________________________________
City,State,Zip:_______________________________________________________________________________
Phone:_____________________________Email:__________________________________________________
I/Wewillattend____#ofpeople.Ourpartywillrequire____wheelchair/scooterseatingspaces.
SUBTOTALPP4-6:
Iwouldlike____additionalGalatickets@$150,totaling
Iwouldlike____additionalVIPtickets@$350,totaling
Pleaselistthenamesofyouradditionalguests:_____________________________
____________________________________________________________________
____________________________________________________________________
I/Wewouldliketomakeagiftintheamountof:
Mygiftisinhonorof:__________________________________________________
TOTAL:
EnclosedismycheckpayabletotheFSHSociety.
Pleasecharge: Visa MasterCard AMEX
Card#:______________________________________________ExpirationDate:________SecurityCode:________
Questions?Pleasecontactjune.kinoshita@fshsociety.orgTheFSHSocietyisa501(c)(3)non-profitorganization.
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