advancing patient & family centred care across a health care system presented at the 3 rd...
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Advancing Patient & Family Centred Advancing Patient & Family Centred Care across a Health Care SystemCare across a Health Care System
Presented at Presented at
The 3The 3rdrd International Conference on International Conference on Patient and Family Centred CarePatient and Family Centred Care
Seattle, WashingtonSeattle, WashingtonAugust 1August 1stst, 2007, 2007
AuthorsAuthorsAlexandra Harrison, PhD, DirectorAlexandra Harrison, PhD, DirectorPatient Experience Portfolio, Calgary Health RegionPatient Experience Portfolio, Calgary Health RegionAlexandra.Harrison@[email protected]
Janice Popp, MSW, RSW, DirectorJanice Popp, MSW, RSW, DirectorSouthern Alberta Child & Youth Health NetworkSouthern Alberta Child & Youth Health [email protected]@CalgaryHealthRegion.ca
Gail Mackean, PhD, Family MemberGail Mackean, PhD, Family MemberPatient Experience Advisory CommitteePatient Experience Advisory CommitteeCalgary Health RegionCalgary Health Region
Calgary Health RegionCalgary Health Region
• Large integrated healthcare system
in Alberta, Canada
• Responsible: health of population (1.2 million)
Across the continuum of care- Public health, acute care, long term care,
community care
Across the continuum of experience- Pediatrics to Geriatrics, Neonatal to Palliative
LeadershipLeadership
• Vision, Mission, Values Mission - Leaders in Health, A Partner in Care
Values - Caring, Respectful Relationships shown by: Providing patient and family
centred care
• Support from CEO and Board
• Senior Vice President on Executive
FoundationFoundation
• 30 year history in Pediatrics
• Environmental scan – Director’s report
• Principles– Respect, – Communication: Information and Listening– Involvement: Care and Services
StructureStructure
• Patient Experience Portfolio (2005)
• Two areas of Focus– Engaging Patients and Families – Engaging staff
Areas of Family EngagementAreas of Family Engagement
• Involvement in Capital Planning– e.g. Children’s hospital, New south health campus
• More than 40 councils and committees- e.g. longstanding in Pediatrics, new in Safety
How was the handbook developed?How was the handbook developed?
• Led by Patient Experience Portfolio
• Internal & external environmental “scan”– Promising practices elsewhere, including
resources developed– Promising practices locally
• Built on local promising practices– Invited participation of current patient
experience advisors & staff
What’s in the Handbook?What’s in the Handbook?
• Background
• Tips for committees & teams
• Tips for patient experience advisors
• Links to additional resources
Resources for Engaging Resources for Engaging Patients and FamiliesPatients and Families
• Institute for Family-Centred Care
• NHS Institute for Innovation & Improvement
• Dana-Farber/Brigham and Women’s Cancer Centre
Resources for Engaging StaffResources for Engaging Staff
• Planetree
• Institute for Healthcare Communication
Internal PartnershipsInternal Partnerships• Quality and Safety Portfolio
– Patient / Family Safety Council– Brochure on patient and family role in safety
• People and Learning– Competencies– Orientation
• Volunteers
Future PrioritiesFuture Priorities• Family presence - Visiting Hours
• Patient access to their health record– Electronic Health Record
• Consumer health information
• Planetree rollout to all hospitals
• Evaluation
Southern Alberta Child & Youth Southern Alberta Child & Youth Health Network: Health Network:
Promoting Family Centred Care Promoting Family Centred Care across Health Regionsacross Health Regions
Presented byJanice Popp, DirectorJanice Popp, Director
Southern Alberta Child & Youth Health NetworkSouthern Alberta Child & Youth Health Network
[email protected]@calgaryhealthregion.cawww.sacyhn.cawww.sacyhn.ca
The Paradigm Shift…The Paradigm Shift…
From:
• Medical model• Services at the
center• Deficits• Control• Expert model• Information gatekeeping• (-) Support• Rigidity
To:
• Biopsychosocial model• Patient & family at the
centre• Strengths• Collaboration• Partnership model• Information Sharing• (+) Support• Flexibility
What is a Network? What is a Network?
“…a set of autonomous organizations that come together to reach goals that none of them can reach separately.” (Chisholm, 1998, p. xxi)
“…a group of three or more autonomous organizations working together across structural, temporal and geographic boundaries…”
(Huerta, Casebeer, & VanderPlaat, 2006, p. 13)
Characteristics of networks that enableCharacteristics of networks that enablefamily centred carefamily centred care
Networks
– Real world situations– Orientation to a system level– Sensitivity to issues & each
other– Enhances collaboration &
cooperation– Appreciates & honours
differences– Addresses issues around
power– Enables transformative
learning
Family Centred Care
– Child in context of family & community
– Goes beyond health care– Humanity & compassion– Collaborative relationships
are central– Flexible, non-judgemental,
focuses on strengths– Information sharing, invite
participation– Involves a paradigm shift
About SACYHNAbout SACYHN
35 organizations, 4 health regions, half a province, 1 children’s hospital
•Parents
•Ministries that serve children
•Provincial boards and agencies
•Regional authorities
•Universities
•First Nations
•Not-for-profit sector
FCC Goals/Activities of SACYHNFCC Goals/Activities of SACYHN
• Develop and communicate a shared vision and purpose to Develop and communicate a shared vision and purpose to families, communities and organizational stafffamilies, communities and organizational staff
• Create opportunities for positive change and innovation in service Create opportunities for positive change and innovation in service deliverydelivery
• Coordinate services and information as close to home as possible
• Build and sustain inter-regional and cross-sector connections / Build and sustain inter-regional and cross-sector connections / linkageslinkages
• Involve parents and providers in service planningInvolve parents and providers in service planning
• Strengthen community & professional capacity
• Support the use of new technologiesSupport the use of new technologies
Involving parents in network Involving parents in network
governance, policy development, governance, policy development, service planningservice planning
• Steering CommitteeSteering Committee
• Working GroupsWorking Groups
• EvaluationEvaluation
Involving youth in policy Involving youth in policy
development and service planningdevelopment and service planning
Child and Youth Advisory Council (CAYAC)Child and Youth Advisory Council (CAYAC)
• SACYHN videoSACYHN video
• Input into new Alberta Children’s HospitalInput into new Alberta Children’s Hospital (patient rooms, (patient rooms,
landscaping, Christmas decorations, street and cafeteria naming)landscaping, Christmas decorations, street and cafeteria naming)
• Asthma and youth suicide prevention initiativesAsthma and youth suicide prevention initiatives
• Response to Premier’s invitation on how to use the Response to Premier’s invitation on how to use the surplussurplus
• Submission to government roundtable on family Submission to government roundtable on family violence and bullyingviolence and bullying
Building capacity and enhancing Building capacity and enhancing control and independencecontrol and independence
Family & Community Resource CentreFamily & Community Resource Centre
• Connecting families and community Connecting families and community providers to quality information providers to quality information
• Family supportFamily support
• Community Education ServiceCommunity Education Service
• Resource DevelopmentResource Development
Clinical care closer to homeClinical care closer to home
• Outreach Outreach
• TelehealthTelehealth
• Professional Education to build expertiseProfessional Education to build expertise
ReferencesReferences
Chisholm, R. F. (1998). Chisholm, R. F. (1998). Developing network organizations: Learning from practice and Developing network organizations: Learning from practice and theorytheory. Reading, MA: Addison-Wesley.. Reading, MA: Addison-Wesley.
Huerta, T.R., Casebeer, A., & VanderPlaat, M. (2006). Using networks to enhance health Huerta, T.R., Casebeer, A., & VanderPlaat, M. (2006). Using networks to enhance health services delivery: Perspectives, paradoxes and propostions. services delivery: Perspectives, paradoxes and propostions. HealthcarePapers, 7HealthcarePapers, 7(2), pp. (2), pp. 10-26.10-26.
McPherson, C.M., Popp, J.K., & Lindstrom, R.R. (2006). Re-examining the paradox of McPherson, C.M., Popp, J.K., & Lindstrom, R.R. (2006). Re-examining the paradox of structure: A child health network perspective. structure: A child health network perspective. HealthcarePapers, (7)HealthcarePapers, (7)2, pp. 46-52.2, pp. 46-52.
Popp, J. K. et al on behalf of Child and Youth Health Networks of Canada. (2007). Popp, J. K. et al on behalf of Child and Youth Health Networks of Canada. (2007). Inter-Inter-Organizational Networks as a Vehicle for Enhancing Family Centred Care in Child and Organizational Networks as a Vehicle for Enhancing Family Centred Care in Child and Youth Services.Youth Services. Presented at the Family Centred Care in Context 2007 Conference, Presented at the Family Centred Care in Context 2007 Conference, Calgary.Calgary.