adapting a family counseling intervention for hiv+ men leaving jail/prison research perspective:...
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Adapting a Family Counseling Intervention for HIV+ Men Leaving Jail/Prison
Research Perspective:Olga Grinstead, Ph.D., MPH, UCSF
Community Perspective: Barry Zack, MPH,Centerforce
Incarceration Epidemic in the US
2.1 million Americans are currently incarcerated in jails and prisons; 4.6 million more on probation/parole
US has the highest per capita incarceration rate in the world
65% of prisoners are people of color; 90% are men
1/3 of African-American men 20-29 are involved with the criminal justice system
Incarceration Epidemic in the US
2.1 million people are incarcerated in the United States today
That’s 25% of all people incarcerated worldwide
California has the largest state prison-system (approx. 172,000 prisoners)
Prison Health is Public Health
Low income people of color are at disproportionate risk for incarceration
Prisoners are at disproportionate risk for infectious diseases and other poor health outcomes
9 out of 10 prisoners are eventually released back to their communities
Prison programs represents an opportunity to improve community health
Individuals with a history of incarceration are:
8-10 times more likely to be living with HIV
5x more likely to be diagnosed with AIDS
9-10 times more likely to have Hepatitis C
4-17 times more likely to have active TB
Risk Behaviors Associated with Incarceration
Tattoos done with re-used equipment
Needle sharing for injection drug use
Unprotected sexual intercourse
Prevention in Correctional Settings
Condoms, needles and bleach are contraband in most US prisons
HIV testing and counseling policies in US prisons are inconsistent
Poor medical care includes out-of-date treatment regimens and poor continuity of care after release
Prevention in Correctional Settings
Security is institution’s top priorityCurricula must meet institutional
approval; programs can be suspended or shut down
Challenge of maintaining trust of both prisoners and correctional staff
No privacy and little if any confidentiality for programs or health care
Community/Academic Collaboration
Since 1992 collaborative relationship between UCSF-CAPS and Centerforce, Inc.
Collaborative relationships with Department of Corrections and specific prisons and jails
Ongoing collaboration with prison peer educators
Program of research would not be possible without these collaborative relationships
CAPS-Centerforce Collaborative Projects
Prevention for Incarcerated MenPeer-led HIV Orientation (2,295; 1997)Peer-led Pre-Release Intervention (414; 1999)Health Promotion for HIV+ Prisoners (147;
1999)Project START: Young Men in Prison (522;
2006)SET Re-Entry for HIV+ Men Leaving Prison
(162; 2007)
CAPS-Centerforce Collaborative Projects
Prevention for Women Partners
Love Your Man, Love Yourself (1995-1997)
The HOME Project (2003-2007)
Inside/Out: Real Stories of Men, Women and Life After Incarceration (Video; 1999)
Evolution of our Research Questions
Peer education lead to an increase in testing; Increase in HIV+ people lead to Health
Promotion;How do I tell my partner led to
Visitors / Partners / FamilyBooster and Project STARTAll lead us to family/ecosystem support
community re-entry family reunification access to care and treatment risk reduction
Effective Programs for Incarcerated Community
Address institutional challenges and barriers; know the system, provide practical knowledge
Address structural and institutional as well as individual-level change
Develop population-specific intervention and educational materials
Work toward sustainability and community integration from the beginning
Effective Programs for Incarcerated Community
Participation open to all (combats stigma, promotes social support and connection)
Promote self and community advocacyCover broad scope of topics rather than
focusing solely on stigma-laden issues (HIV and AIDS)
Peer educators offer clear information and population-specific materials and referrals
Effective Research and Evaluation Design
Requires input from the target audience and gatekeepers
Creativity is key: “gold standard” may not be appropriate in all settings with all populations
Definition of realistic and feasible outcomes
Dissemination to all stakeholders who can use the information
SET Project Development
CAPS/Centerforce collaborating since 1993 to develop and evaluate STD/HIV programs for inmates and their families
University of Miami ongoing program of research to explore application and effectiveness of SET
Parallels between HIV+ women leaving residential drug treatment and HIV+men leaving prison led to this collaboration
SET Collaborative Partners
CenterforceUCSF- Center for AIDS Prevention StudiesUniversity of Miami, Center for Family
StudiesCalifornia:
Department of Corrections and Rehabilitation San Francisco County Jail
All collaborative partners are involved in the development, implementation and evaluation of the intervention
Components of Structural Ecosystem Therapy
Joining: Forming a therapeutic alliance
Diagnosis: Assessing the functioning of the system
Restructuring: transforming interactions within the family or ecosystem to support health-enhancing, prosocial behavior
Adaptation of SET
Adaptation of SET to the specific context of prison release and community re-integration
Training from University of Miami (SET model and clinical examples)
Transfer of knowledge from our previous interventions with incarcerated men
Adaptation of SET (Set Re-entry)
What is unique about prisoners/prison interventions?Specific language/knowledgeSpecific situational constraints Specific risks associated with incarceration
and separation from family/partnersInternal Review Board and COC
Intervention had to be modified to take these population specific factors into consideration
FriendsFriends
Family/Family/Family of ChoiceFamily of Choice
Health Health ServiceServiceDeliveryDeliveryInstitutionsInstitutions
ParoleParole
Drug Drug Recovery Recovery ServicesServices
Family’s SocialFamily’s SocialServices & PublicServices & PublicHousingHousing
Children’s Children’s HealthHealthCareCare
MesosystemsMesosystems
MicrosystemsMicrosystems
ExosystemsExosystems
SET-Re-EntrySET-Re-Entry
Soci
al
Soci
al
Serv
ices
Serv
ices
HousingHousing
HIV+ Male
Parolee
SET Re-Entry StudyParticipants were randomized to individual
vs family counseling intervention. Each intervention started inside with 2 sessions and continued for 16 weeks n the community
All participants received the standard of care, the jail/prison transitional case management program.
Recruitment Sites:CA Medical Facility, Vacaville, CaliforniaSan Quentin State Prison,San Francisco County Jail
Eligibility Criteria
18 years of age or olderBeing released to an unrestricted
environmentHIV seropositiveAble to name at least one person who
would work with him in the programBeing released within the study period
SET-R Intervention
At least 2 sessions pre-release: assessment, joining, eco-grams, intervention planning, contacting ecosystem members
Intervention continues 16 weeks post release to modify family/ecosystem structures toward supporting positive behavior change
Outcomes: Risk behavior, Medication adherence
Return to jail or prison
Evaluation Design
Pre-release interviewer administered survey
Survey repeated 4 months post-release (post-intervention)
Survey repeated at 8 and 12 months post-release to assess longer term impact on health and behavior
Medical record reviews
Current Project Status
Pilot study began in February, 2005To test study procedures, acceptability of the
intervention10 participantsFollow-up for 4 months only
Recruitment for main study began July, 2005
Recruitment was completed in April, 2007Currently conducting follow-up surveys
Current Project Status162 individuals were recruited from 3 sites
3 withdrew, 12 were dropped for administrative reasons, and one died before the second survey (To date five participants have died)
Follow-up rates are 90% at the 4 month four month survey, 89% at the 8 month survey and 86% at the 12 month survey to date
50% of participants have completed at least one follow up survey inside prison or jail
Study Sample
Age Mean = 35 years
Transgender 7.4% (12)
Identify as gay or bisexual 29%
Ethnicity 25% defined themselves as Latino
Race African American 57%White 27%Native American 4%Pacific Islander 1%Other 10%
Study Sample
Marital Status Single 66%Married 12%Divorced 14%Separated 9%Domestic partner
6%
Study Sample
Education Less than HS 37%High School/GED
36%Some College 25%College degree 6%
Intervention Study Sample
Years Known HIV Status0 to 2 years 7% (12)2 to 7 years 20% (33)7 to 10 years 25% (41)10 to 20 years 30% (50)Over 20 years 16% (26)
Ecosystem Engagement (“Family arm”)
Total # of Post Release sessions: 576399 (69%) with project counselor only177 (30%) with family or ecosystem
members32% Community Case Manager11% Parole Officer10% Mother7% Wife/Girlfriend7% Boyfriend33% Other (Friend, Physician, CBO staff)
Family and Ecosystem in SET- Re-Entry: Lessons Learned
HIV+ people in prison and jail had few (if any) identified ecosystem support
Identification of family/ecosystem requires: Creative probing to identify ecosystem
members Participant’s freedom to define “family”
Not blood relativeSupport personActive engagement by counselor to identify
contact
Acknowledgements
SET Project funded by NIMH
Special thanks to our Project Officer, Willo Pequegnat
University of Miami and Florida International University: Carleen Robinson, José Szapocznik, Dan Feaster
Centerforce: Barry Zack, Annette Lerma, Katie Kramer, David Caplan, Maggie Dann, Isaiah Hurtado, Kelly Dalzel, Teresa Lee, Nadya Uribe
UCSF Center for AIDS Prevention Studies (CAPS): Olga Grinstead, Kathleen McCartney, Claudine Offer, Allison Futeral, Jackie Ramos
All of our study participants and their families, however defined…
Contact Information
Olga Grinstead, Ph.D., MPHUCSF Center for AIDS Prevention Studies (CAPS)(415) [email protected]
Barry Zack, MPHCenterforce(415) [email protected]