Acknowledgement

There is a large group of people and organizatons responsible for the successful 14th ASCoNConference 2015. I would like to express my deepest grattude to our sponsors DFiD/UKAID,Direct Relief, Livability, SPIRIT, Internatonal Spinal Cord Society (ISCoS), Himalayan BankLimited, Himalayan Brewery Limited and Pernod Ricard for their fnancial or in-kind support.

My special appreciaton goes to all the members of ASCoN Organizing Commitee who made14th ASCoN Conference 2015 a success. A special grattude I give to Mrs. Esha Thapa Dhungana,Executve Director of Spinal Injury Rehabilitaton Centre (SIRC), Mrs. Maggie Muldoon and Mr.Stephen Muldoon of Livability for guiding me throughout from day one tll date. I cannot thankenough to Kate Cofey and Dr. Katrina Collins for their inspiring words, guidance and support. Iwould also like to acknowledge with much appreciaton the crucial role of the staf of SpinalInjury Rehabilitaton Centre (SIRC). Special thanks go to my team mates, Nikita Kayastha, KiranDhungana, Anu Shakya and Suman Hamal and young enthusiastc volunteers, Simona Bajgai,Rinchen Lama and Suvasini Sherchan. I am sure all those late night works are special memoriesto each one of us.

Last but not least, my sincere grattude to all the respected facultes and delegates from Nepaland around the globe for their valuable partcipaton in the 14th ASCoN Conference 2015.

Sincerely,

Archana ShahASCoN Conference CoordinatorSIRC.Date: 17th December, 2015.

3

Table of contents

Acknowledgement.......................................................................................................................................3

Table of contents.........................................................................................................................................4

CHAPTER 1...................................................................................................................................................6

INTRODUCTION...........................................................................................................................................6

CHAPTER 2...................................................................................................................................................9

CHALLENGES................................................................................................................................................9

CHAPTER 3.................................................................................................................................................10

DAY 1: 3RD DECEMBER 2015.....................................................................................................................10

INAUGURAL CEREMONY........................................................................................................................11

ASCoN STAR AWARD.............................................................................................................................11

POLICY SYMPOSIUM..............................................................................................................................12

PAPER PRESENTATIONS.........................................................................................................................13

CHAPTER 3.................................................................................................................................................14

DAY 2: 4TH DECEMBER 2015.....................................................................................................................14

SIRC TOUR..............................................................................................................................................14

WORKSHOPS..........................................................................................................................................14

WHEELCHAIR SPORTS COMPETITION....................................................................................................15

GALA DINNER AND CULTURAL EXCHANGE PROGRAM..........................................................................15

CHAPTER 4.................................................................................................................................................16

DAY 3: 5TH DECEMBER 2015.....................................................................................................................16

MINI SYMPOSIUMS................................................................................................................................16

PREVENTION POSTER COMPETITION.....................................................................................................16

POSTER PRESENTATION.........................................................................................................................18

WORKSHOP ON ABSTRACT WRITING: SPEND AN HOUR RETHINKING ABSTRACT-WRITING..................18

VALEDICTORY CEREMONY ....................................................................................................................19

HANDING OVER THE “ASCON” BATON FOR 15th ASCON CONFERENCE 2016 ......................................19

FEEDBACK FROM PARTICIPANTS FOR DAY 3..........................................................................................19

CHAPTER 5.................................................................................................................................................21

4

INTERNATIONAL SEMINAR ON INJURY AND REHABILITATION MANAGEMENT IN DISASTERS...................21

CHAPTER 6.................................................................................................................................................22

CONCLUSIONS...........................................................................................................................................22

Appendices................................................................................................................................................23

APPENDIX 1: FEEDBACK FROM FACULTIES AND DELEGATES ................................................................23

APPENDIX 2: PROGRAM SCHEDULE.......................................................................................................24

Photo Gallery.............................................................................................................................................35

5

CHAPTER 1

INTRODUCTION

Spinal Injury Rehabilitaton Centre (SIRC, a project of Spinal Injury Sangh Nepal) is a non-proftand a charitable organizaton established in 2002, with an aim of comprehensive rehabilitatonof spinal injured people of Nepal. SIRC is a founding member of the Asian Spinal Cord Network(ASCoN). Member countries take turns to host the annual conference of ASCoN. SIRC hadhosted this conference two tmes in the past and this year yet again SIRC hosted the 14th AsianSpinal Cord Network (ASCoN) Conference from 3-5 December, 2015. The theme of this year’sconference was "Quality of Life and Inclusion afer Spinal Cord Injury.” The conference venuewas Hyat Regency on Day 1 and 3 whereas SIRC facility on Day 2.

The ASCoN Conference is an event that brings people together for engaging diferentstakeholders including government policy making bodies, healthcare professionals, managersand persons with disabilites (Spinal Cord Injury - SCI). During this year’s ASCoN conference, wereviewed existng policies related to rehabilitaton in various countries, engaged persons withdisabilites and SCI in decision making processes to ensure accessibility and strengthened spinalinjury services and human resource development for organizatons and people working in spinalinjury management in the Asia region. We also shared informaton, ideas and knowledge ofbest practces in SCI managementamong members. Dur ing theconference, we conducted mult-disciplinary workshops, scientfcsess io ns , p os ter exh ib ito ns ,preventon poster competton, asports event and a cultural evening.Also, an ASCoN Observership Awardwas awarded for the best paperpresented. The Award with amonetary value of Euros 1000enables the winner to undertake a 2– 4 week observership at an ASCoNTraining Centre in Bangladesh, India,Thailand or Malaysia.

The conference was atended by 220delegates from 19 diferent countries. We are pleased that ASCoN executve commiteemembers from diferent countries, namely, Bangladesh, Malaysia, India, Indonesia, Nepal, SriLanka, Ireland, Thailand, Lao PDR, Korea & Myanmar and diferent renowned internatonal &natonal resource persons enriched the conference through their presence. We are confdentthat through the conference, we encouraged more professionals in Nepal to become interestedin SCI management and rehabilitaton. This was an enriching experience for the healthprofessionals working in this feld.

Country Number of delegates

6

Australia 6

Bangladesh 12

Belgium 1

Canada 4

India 11

Indonesia 2

Ireland 3

Italy 1

Korea 3

Laos 2

Malaysia 1

Myanmar 1

Nepal 149

Netherlands 2

Sri Lanka 3

Sweden 1

Thailand 3

UK 10

USA 5

Total 220

Table 1.1: Number of delegates from 19 diferent countries

On 5th December, we organized a Post-conference “Internatonal Seminar on Injury and

Rehabilitaton management in Disasters”. The main objectve of this Seminar was to have

discussions on disaster coping eforts by diferent bodies in the afermath of the deadly

earthquakes of April 25 and May 12 along with uncountable number of afershocks that have

led to many causalites, disabilites and emotonal disturbances.

Hence, the major highlights of the 14th ASCoN Conference 2015 are as follows:

Scientfc sessions and paper presentatons on Complicaton Management; Urological

Management; Interprofessional/Disciplinary approach for SCI; Recent Advancements in

the Field of SCI management; Community Based Rehabilitaton; Psycho-social

Rehabilitaton and a Free Paper Secton

Discipline specifc and team-based workshops

Session on IDAPP project (ISCoS Database ASCoN Pilot Project)

ASCoN Observership Award for best paper presentaton

7

ASCoN Star Award for a person who has displayed outstanding contributon to SCI

management

Poster Exhibiton and award

Preventon Poster Competton – Art

Policy workshop to support the development of a natonal policy and guideline in

relaton to the design, establishment and standardised operaton of injury and

rehabilitaton service facilites in Nepal

Practcal Workshop on Urodynamics

Mini Symposium 1: Preventon of SCI due to falls/carrying heavy loads on the head; Mini

Symposium 2: PMR development in associaton with Nepalese society of PMR;

Symposium 3: Surgical Management; Symposium 4: ASCoN Consumers to develop

module for www.elearnSCI.org; Symposium 5: Assistve Technology in low income

countries

Launch of ASCoN Psycho-social guidelines

Launch of ISCoS Textbook on comprehensive management of SCI

Launch of SIRC’s patents’ profle book

Wheelchair Sports competton

Tour of the Spinal Injury Rehabilitaton Centre

Cultural Exchange Programme

Internatonal Seminar on Injury and Rehabilitaton management in Disasters. The detailed

report on the conference based on the actvites that took place each day from 3-5 December

2015 is as follows.

8

CHAPTER 2

CHALLENGES

The Earthquakes in Nepal in April/May which resulted in approx. 9,000 deaths and thousands injured

(approx. 400 sustaining Spinal Injury) were also a cause for concern for the ASCoN organisers. With

SIRC, the ASCoN Host inundated with casualites and demand to increase beds to cater for the newly

injured, we were unsure whether the possibility of hostng the 14th ASCoN Conference was stll a reality.

However we were reassured in the early days, following the earthquake, that plans to host the

conference would stll go ahead.

The local organisers need to be congratulated for taking on this mammoth task, partcularly at a tme

when their staf and limited resources were already stretched.

To compound this difculty, an additonal challenge of limited fuel supply (due to the blockade with

India) had adverse afects for the organisers.

9

CHAPTER 3

DAY 1: 3RD DECEMBER 2015

The frst day of the 14th ASCoN

Conference 2015 was held at

Hyat Regency, Boudhha,

Kathmandu. The registraton

started from 8 am untl 9 am.

The conference began with the

session chaired by Dr. Claire

Weeks from Canada and Dr.

Raju Dhakal from Nepal with

the objectve of setng the

scene. The respected speakers of this session included Prof. J.J. Wyndaele from Belgium, Dr.

H.S. Chhabra from India, Dr. Apichana Kovindha from Thailand, Dr. Ruth Marshall from Australia

and Dr. Komal Kamra from India. They spoke on various aspects of SCI, rehabilitaton and

community inclusion of people with SCI.

The second session on ASCoN/ISCoS - Challenges, innovaton and advances was chaired by Prof.

J.J. Wyndaele and Dr. Apichana Kovindha. In this session, Executve Director of SIRC, Mrs. Esha

Thapa Dhungana spoke on disaster management, SCI and SIRC response. Dr. Chhabra, Dr.

Stanley Ducharme and Mr. Stephen Muldoon threw light on ISCoS Database ASCoN Pilot Project

(IDAPP), ASCoN Psycho-social Guidelines and www.elearnsci.org respectvely.

10

INAUGURAL CEREMONY

One of the major highlights of the 14th ASCoN Conference 2015 was the inaugural ceremony of

the conference. Chaired by Mr. Prachanda Bahadur Shrestha, Chairperson of SIRC, the inaugural

session was inaugurated by the newly elected President of Nepal, H.E Bidhya Devi Bhandari by

lightng the lamp. We had

respected representatves from

ISCoS Prof. J . J . Wyndaele ,

representatve from Ministry of

Health and Populaton (MOHP)

D r . B a s u D e v P a n d e y ,

representatve from Livability Mr.

Stephen Muldoon and SIRC

Founder Chairperson Mr. Kanak

Mani Dixit on the dias for the

ceremony.

During the inaugural session, the ASCoN Psycho-social Guidelines, ISCoS Textbook and SIRC

patents’ story booklet ttled MEMOIRS- fractured spines, dreams unbroken were launched in

the presence of H.E Bidhya Devi Bhandari, President of Nepal.

ASCoN STAR AWARD

For the frst tme in the history of ASCoN Conference, this year ASCoN Organizing Commitee

decided to announce the ASCoN Star Award to the person who has displayed outstanding

contributon to SCI management. Valerie Taylor, Founder of Centre for the Rehabilitaton of the

Paralysed (CRP) was awarded with ASCoN Star Award 2015. Valerie Taylor is a Britsh born

physiotherapist and philanthropist, living in Dhaka, Bangladesh. She is the founder and driving

personality of the Centre for the Rehabilitaton of the Paralysed (CRP). Though Britsh by

citzenship, she has spent most of her working life in Bangladesh, treatng and rehabilitatng

poor Bangladeshis sufering from neurological disorders. The Award was a complete surprise to

11

Figure 1.1: The President of Nepal presentng ASCoN Star Award to Valerie Taylor.

all the conference atendees and the award winner herself. ASCoN aspires to contnue

presentng the ASCoN Star Award to deserving persons in coming years.

POLICY SYMPOSIUM

The Policy Symposium was organized by Spinal Injury Rehabilitaton Centre (SIRC) in

collaboraton with Disability and Rehabilitaton Focal Unit - Leprosy Control Division, Ministry of

Health and Populaton (MoHP). The main objectve of the Policy Symposium was to support the

development of a Natonal Policy and Guideline in relaton to the design, establishment and

standardized operaton of injury and rehabilitaton service facilites in Nepal.

MoHP and SIRC have been in discussions since 2014 on how to increase the quality and natonal

coverage of essental injury and rehabilitaton services in a structured and sustainable way. The

conclusion was that as a startng point the goal should be the development of a specifc policy

12

and guideline relatng to the design, establishment and standardized operaton of rehabilitaton

service facilites at a natonal, provincial and district level. This workshop intended to

contribute to this goal and to provide a platorm for stakeholders from Ministry, NGO’s, INGO’s

and regional/internatonal experts to discuss further this important piece of work.

The policy symposium was enriched with the partcipaton of representatves from MoHP-

Nepal, Ireland, India, Thailand, Malaysia, Bangladesh, Myanmar, Indonesia, Laos and Sri Lanka.

PAPER PRESENTATIONS

The ASCoN Organizing Commitee received 49 abstracts (6 for the poster and 43 for oral

presentatons) from professionals around the globe. Among the 43 paper presentatons, 24

abstracts were accepted for the ASCoN Observership Award session. Unfortunately some of the

presenters could not atend the conference. Hence 18 paper presentatons for the award were

scheduled on Day 1 while the other 15 paper presentatons were scheduled on Day 3. Due to

the technical issues at the venue, 4 paper presentatons of award session scheduled for Day 1

were presented on Day 3 too.

13

CHAPTER 3

DAY 2: 4TH DECEMBER 2015

SIRC TOUR

The second day of the conference was organized at Spinal Injury Rehabilitaton Centre (SIRC),

Sanga, Kavre. The day started with an hour long tour of the Centre. The total delegates were

divided into three groups; each group led by one SIRC staf who briefed the delegates about the

Centre’s history, its works, development and future plans.

WORKSHOPS

Total of 9 workshops listed as follows were conducted on day 2 at SIRC.

Workshop Title Workshop Conductor

Goal setng in Spinal Cord Injury Rehabilitaton– Whose goal is it anyway?

Dr. Ruth Marshall, Srijana ManandharSoni Pahiju

IDAPP Workshop: The Beginning of a SpinalInjury Free World Dr. H.S. Chhabra, Chanda Rana

Internatonal Standards Examinaton for theClassifcaton of Spinal Cord Injury Dr. Ronald Reeves, Lisa Harvey

Quality of Life and Inclusion - A NursingPerspectve Fiona Stephenson, Mandira Baniya

Does it mater if my patents like me? Lookingat patent motvaton and rehab outcomes.

Associaton of Nepal OccupatonalTherapist (ANOT)

Physiotherapy management of SCI Prof. Lisa Harvey, Chanda Rana

Monitoring and Evaluaton: The Road toLessons Learned

Dr. Katrina Collins, Durga PrasadBhatarai

Sexuality and Spinal Cord Injury: A Workshopfor Consumers, their Partners and Health CareProviders

Dr. Stanley Ducharme, Shivjeet SinghRaghav

Wheelchair actvity training workshop for SCIpatents

Dr. Wang-Jae Lee, Keshab Sitaula, UdayaAdhikari, Kshetra Gurung

Table 3.1: The workshops conducted on Day 2 of the 14 th ASCoN Conference

14

WHEELCHAIR SPORTS COMPETITION

Two games were organized on Day 2 before the lunch break; Wheelchair Relay Race and Botle

Hitng Competton. Total 30 patents of SIRC competed for the sports competton. The

competton was held on the SIRC premises. The crowded audience was excited and cheering

for the partcipants of the sports competton. The winners were awarded with certfcates, gif

hampers and medals.

GALA DINNER AND CULTURAL EXCHANGE PROGRAM

Afer a formal and technical

learning day on 4th December,

2015, the plan for the evening

was completely contradictory.

It was a party night - Gala

Dinner and cultural exchange

program for all the natonal

and internatonal delegates at

G o k a r n a F o r e s t R e s o r t ,

Gokarna, Kathmandu. It was

indeed a cultural exchange night - from the dresses worn to the performances made.

The evening began with the traditonal religious dance of Shree Manjushree, God of Wisdom by

a Nepali volunteer. This religious performance was followed by two more Nepalese folk dance

performances, a musical drama and a dance both by a group of wheelchair-users (including

SIRC staf and patents).

The second phase of the party was the turn of each country’s representatves to perform on

stage. Remarkably this year, all 19 countries were represented on stage by their respectve

natonalites. There were songs, poems, dances, magic show and what not! With delicious

snacks and dinner, the party was awesome with the DJ session in the end. We worked hard, we

parted harder!

15

CHAPTER 4

DAY 3: 5TH DECEMBER 2015

MINI SYMPOSIUMS

Symposium 1: Preventon of SCI due to falls/carrying heavy loads on the head (Dr. Chhabra)

Symposium 2: PMR development in associaton with the Nepalese Society for PMR (Dr Raju

Dhakal)

Symposium3: Surgical management in associaton with ASSN

Symposium 4: SCI Consumers’ experience from the region; and development of consumer

elearn module (Shivjeet Singh, Shiva Neupane)

Symposium 5: Assistve Technology in low-income countries (Nekram Upadhyay)

PREVENTION POSTER COMPETITION

16

With ISCoS Preventon Commitee’s & ASCoN’s joint Initatve, this year a poster competton on

“Community Awareness for Preventon of SCI” was held. The objectve was to disseminate a

clear message to the community about preventon of SCI in context amongst ASCoN countries.

Message needed to be in a positve frame,

depictng the advantages of preventon of

SCI. A panel of judges from Australia

reviewed the posters. Entries were judged

based on two key factors: The impact the

judges believed the poster will have for

spreading awareness of preventon as

diversity; and the skill and quality

refected in the executon. All posters

were displayed during the symposium on “Preventon of SCI due to falls/carrying heavy loads

on the head” in the 14th ASCoN Conference.

Four posters were given ‘Certfcate of Recogniton’. The best preventon poster overall was

awarded to Ms. Roksana Hoque from Bangladesh.

17

Figure 4.1: Roksana Hoque from Bangladesh being awarded for the best preventon poster

POSTER PRESENTATION

Out of 6 abstracts accepted for the poster presentaton, only 4 were displayed and presented

on Day 3 of the conference. Each presenter spoke for 2.5 minutes. The poster presentaton was

chaired by Dr. Nazirah Hasnan from Malaysia and Chanda Rana from Nepal. Ms. Raveenan

Jindamaneesirikul from Thailand won the award for best poster (ttled “A prospectve study on

efectveness of patent educaton in patents with SCI”). The winner was awarded with USD 100

and a certfcate.

WORKSHOP ON ABSTRACT WRITING: SPEND AN HOUR RETHINKING ABSTRACT-WRITING

This workshop on abstract writng was conducted by Dr. Peter Wing and Dr. Claire Weeks from

Canada. As members of the Scientfc Commitee responsible for screening and grading

abstracts they found “As we reviewed abstracts submited for this year’s meetng we observed

that few people adhere to the guidelines or fully use the suggested structure, and others

experience some difculty. Some papers are research-based and others are more descriptve,

18

requiring diferent approaches to abstract design.” The objectve of this workshop was that

afer this workshop, atendees would be able to:

explain the importance and roles of a good conference abstract

know the components of a relevant background and brief literature review

write clear and meaningful goals, aims and objectves

state the important parts of their methodology

describe the diferences between results and conclusions

understand the importance of adhering to the word-count and other rules.

VALEDICTORY CEREMONY

Mr. Stephen Muldoon, representatve of Livability Internatonal summarized the 3 days

proceedings. The best poster and best preventon poster were announced during this session as

well. The SIRC Board Member respected Mr. Arvind Das Joshi gave his closing remarks by

thanking everyone who made the conference possible.

HANDING OVER THE “ASCON” BATON FOR 15th ASCON CONFERENCE 2016

Following ASCoN traditon, Esha Thapa Dhungana, Executve Director, SIRC, handed over the

ASCoN Baton to Dr. Luh Karunia Wahyuni, representatve of Indonesia for the 15 th ASCoN

Conference 2016. So next year, Indonesia will host the 15th ASCoN Conference 2016 in Jakarta.

FEEDBACK FROM PARTICIPANTS FOR DAY 3

“Fantastc paper presentatons, very interestng variety of topics.”

“Not enough tme and space for poster presentaton.”

“Symposiums - good to get all countries at end to discuss problems and solutons.”

“Preventon poster should be printed in bigger size or show original fle in LCD so

delegates can see.”

“Expected more focus on accessibility of Nepal and the assistve technology on the

context.”

19

20

CHAPTER 5

INTERNATIONAL SEMINAR ON INJURY AND REHABILITATIONMANAGEMENT IN DISASTERS

Emergency management (EM) refers to the management of emergencies concerning all

hazards, including all actvites and risk management measures related to preventon and

mitgaton, preparedness, response and recovery. Following this management contnuum

perspectve as a cycle of preventon, preparaton, emergency response and recovery, the

seminar aimed to provide a platorm to share experiences, capture lessons and ofer

recommendatons that will help ensure that in future disaster scenarios:

Natonal government and non government organisatons and internatonal agencies and

organisatons are prepared to respond to the challenges of providing large numbers of

injured people with appropriate health and rehabilitatve care;

There are systems in place to efectvely and efciently manage and coordinate an

injury/rehabilitaton post disaster response

The seminar was chaired by Dr. Peter Wing and Fiona Stephenson.

21

CHAPTER 6

CONCLUSIONS

22

Appendices

APPENDIX 1: FEEDBACK FROM FACULTIES AND DELEGATES

“Nice venue.”

Technical glitches must be avoided, needs more focus on tme management.”

“Excellent!! Keep up the good work”

“A bit rushed; more tme would be beter.”

“More tme needed for the paper presentatons”

“Some presentatons were difcult to understand due to poor presentaton skills.”

“It would be nice to have the fnal program schedule before the conference.”

“Inauguraton session was well-planned and executed very nicely.”

“Transportaton and communicaton can be improved.”

“Some speeches were in Nepali without explanaton in English, which internatonal

guests did not understand.”

“More technicians required.”

“Select the research paper which is appropriate rather than the study talking about the

details of what have been done.”

“Would be beter if parallel sessions would be not more than 2-3 at a tme.”

“Gala dinner night was delightul.”

“Was an interestng workshop, stll the tme was not enough.”

“Well done! Great organizaton to include everyone in Gala Dinner.”

“Workshop on abstract writng is very helpful.”

“Workshops were very informatve.”

“Great locaton, good food, nice program!”

“Nice performances by wheelchair users during the Gala dinner.”

“It would be good if the stage in dinner was wheelchair accessible.”

“Wheelchair sports: felt a litle rushed.”

“Tour well done! Smaller groups may have been beter so everyone could hear.”

“Extremely good, extraordinary speakers and experiences. Moving!”

“For a country in crisis, the venue seemed too luxurious.”

23

“Overall the tme management could have been stricter.”

“There should have been more economic accommodaton.”

“Correspondence regarding the fnal program and partcipaton could be improved.”

“Pre-conference informaton's can be improved and can be managed in a web page .”

“Info on presenters and presentatons topics needs to be worked out earlier: I propose

online linking and discussions.”

“I would rather encourage hostng these meetngs in universites/schools/ rehab centers

with dormitories where more partcipants can be easily accommodated from the

developing world what the meetng is really meant!"

APPENDIX 2: PROGRAM SCHEDULE

Day 1 Thursday 3rd December 2015Venue: Hyat Regency

8:00 am– 9:00 am REGISTRATION

9:00 am – 10:15 am SESSION 1: SETTING THE SCENECHAIRPERSONS: DR CLAIRE WEEKS; DR RAJU DHAKAL

SCI care past, present and future (Prof Wyndaele)Pre hospital and acute management (Dr Chhabra)Post Acute Rehabilitaton (Dr Apichana)The need for life-long rehabilitaton (Dr Ruth Marshall)Community inclusion and partcipaton (Dr Komal Kamra)

10:15 am – 10:45 am REFRESHMENTS

10:45am – 11:30am SESSION 2: ASCoN/ISCoS CHALLENGES INNOVATION ADVANCES CHAIRPERSONS: PROF WYNDAELE; DR APICHANA

Disaster Management SCI and SIRC Response (Esha Thapa) ISCoS Database ASCoN Pilot Project (Dr Chhabra)ASCoN Psycho-social Guidelines (Stanley Ducharme)www.elearnsci.org (Stephen Muldoon)

11:30 am – 1:05 pm INAUGURATION/PRESIDENTIAL SESSION Chairperson of Inaugural Event: Prachanda Bdr Shrestha Session MC by Esha Thapa Dhungana, Executve Director, SISN &Maggie Muldoon, ASCoN Secretary

24

Acknowledgement of Internatonal Day of Persons with DisabilitesChief Guest: H.E Bidhya Devi Bhandari, President of NepalInvitees on the dais:ISCoS representatve: Prof. J.J. WyndaeleMOHP representatve: Dr. Basu Dev PandeyLivability representatve: Stephen MuldoonSIRC Founder Chair: Kanak Mani Dixit11:30 am: Seatng for Inaugural Ceremony Completed11:45 am: Arrival of H.E Bidhya Devi Bhandari, President of Nepal11:45 am-11:50 am: Welcoming the panel on the dais11:50 am-12:00 pm: Welcome remarks by Kanak Mani Dixit12:00 pm-12:05 pm: Formal inauguraton of the programme12:05 pm-12:10 pm: Remarks by Prof. J.J. Wyndaele12:10 pm-12: 15 pm: Remarks by Stephen Muldoon12:15 pm- 12:20 pm: Remarks by Dr Basudev Pandey12:20 pm-12:35 pm: Launch of ASCoN Psychosocial guidelines; ISCoS text book; SIRC Patents’ Story booklet12:35 pm-12:45 pm: ASCoN Star Award and remarks by winner12:45 pm-12:50 pm: Remarks by H.E. Bidhya Devi Bhandari, President of Nepal12:55 pm-1:05 pm: Closing remarks by Prachanda Bdr Shrestha, Chair of SIRC

1:05 pm – 2:00 pm LUNCH

2:00 pm-5:15 pm PARALLEL SESSIONS Policy Symposium and ASCoN Observership Award

Policy Symposium to support the development of a Natonal Policy and Guideline in relaton to

the design, establishment and standardized operaton of injury and rehabilitaton service

facility’s in Nepal

Closed Symposium, by invitaton only

Time Workshop Content Speaker

2pm-2.10 pm Welcome and introducton to the workshop Describing workshop objectvesIntroducing workshop partcipants and speakers

Ms. Esha Thapa Dhungana

2.10pm-2.25pm

Ministry of Health and Populaton – Why there is a need for a rehabilitaton setup and Ongoing Process to develop a Natonal Policy for Injury and Rehabilitaton service delivery

Dr. Basudev Pandey

2.25pm-2.35pm

The design establishment and standardised operatonof rehabilitaton services within the framework of the Natonal Policy and the Health Systems Strengthening Approach

Mr. Stephen Muldoon

Regional update

25

Queston 1: What rehabilitaton services are available and how are they organised in your country at a natonal and provincial level - what are the gaps?Queston 2: Does your country have a natonal policy and guideline relatng on the design establishment and standardised operaton of an injury and rehabilitaton service facility?

2.35pm-2.45pm

India Dr. H.S. Chabbra

2.45pm-2.55pm

Thailand Dr. Apichana Kovindha

2.55pm-3.05pm

Malaysia Dr. Nazirah Hasnan

3.05pm-3.15pm

Bangladesh Ms. Valerie Taylor

3.15pm-3.25pm

Myanmar Dr. Khin

3.25pm-3.35 Indonesia Dr. Luh

3.35pm – 3.45pm

Laos Dr. Bouathep

3:45pm-3:55 pm

Sri-Lanka Dr. Pinto

COMFORT BREAK

4.05pm - 4.10 pm

Summary of Session 1 Mr Stephen Muldoon

Facilitaton of session 2 Dr Katrina Collins

4.10 pm- 4.25pm

1. What are the processes needed to design and establish services at a natonal and provincial level?

All workshop partcipants

4.25pm – 4.40pm

2. How to standardise operatons and sustain quality to achieve implementaton fdelity in practce?

All workshop partcipants

4.40pm – 4.55 pm

3. How to best fund the establishment of services and sustain funding in the long term

All workshop partcipants

4.55pm-5.15pm

Agreed actons going forward Dr Anil Shrestha

2:00 pm – 5:15pm ASCoN Observership Award

2:00 pm -2:07 pm

Scarf strangulaton: an emerging transport related traumatc spinal cord injury in Bangladesh

Kazi ImdadulHaque, Bangladesh

3 min Q&A

2:10 pm -2:17 pm

Epidemiological Overview of Spinal Cord Injury Cases in Spinal Injury Rehabilitaton Centre Nepal from 2006– 2015

Sheela Gyanwali, Durga PrasadBhatarai, Nepal

3 min Q&A

2:20 pm Prevalence of shoulder pain disability among assistve Bishnu Duta, Nepal

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-2:27 pm device users with paraplegia

3 min Q&A

2:30 pm -2:37 pm

Neurological and functonal recovery of complete traumatc spinal cord injury

KamrunnaherPalash Chandra Saha, FarjanaTaoheed, Sayeed Uddin Helal, Bangladesh

3 min Q&A

2:40 pm -2:47 pm

Rapid implementaton of telemedicine afer earthquake disaster 2015 at Spinal Injury Rehabilitaton Centre, Nepal

Dhakal R, Gurung JB, Gyanwali S, Poudel MK, Nepal

3 min Q&A

2:50 pm -2:57 pm

Prevalence of Urinary Tract Infecton in Individuals with Spinal Cord Injury using a Re-usable Silicone Catheter for Clean Intermitent Catheterizaton

KhunnathanLaopairote, Apichana Kovindha, Thailand

3 min Q&A

3:00 pm -3:07 pm

Psychological impact on children serving as caregiversfor patents with spinal cord injury

Salina Shrestha, SapanaDarnal,Nepal

3 min Q&A

3:10 pm -3:17 pm

Does tele-rehabilitaton improve the quality of care ofpersons living with spinal cord injury in remote areas of India? Current Evidence

Nishu Tyagi, India

3 min Q&A

3:20 pm -3:27 pm

Descriptve study of earthquake related spinal cord injury in Nepal

Poudel MK, Thapa BPJ, Baniya M, Groves C, Nepal

3 min Q&A

3:30pm -3:45pm

Refreshments

3:45 pm -3:52 pm

Scope of Occupatonal Therapy and Physiotherapy in Disaster Preparedness, Response and Recovery: Time to act

Nishu Tyagi, Pallavi Nair, India

3 min Q&A

3:55 pm -4:02 pm

Intermitent catheterizaton practce of people with Spinal Cord Injury and Paraplegia

Mandira Baniya, Nepal

3 min Q&A

4:05 pm -4:12 pm

Holistc approach illustratng the use of CAM in pain and stress management for SCI

Kalra Priyanka, India

3 min Q&A

4:15 pm -4:22 pm

Comparatve study on Detol and liquid soap as a cleaning agent for Intermitent Catheters in SIRC

Srijana Manandhar, Pramila Buyo, Nepal

3 min Q&A

4:25pm -4:32 pm

Status of accessibility for people with spinal cord injury in Nepal

Gyawali, A, Nepal

3 min Q&A

4:35 pm -4:42 pm

One breath count - an alternatve of spirometer for cervical cord patents

Arnab Sinha, India

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3 min Q&A

4:45 pm -4:52 pm

Post rehabilitaton partcipaton restricton of spinal cord injured patents at the Centre for the Rehabilitaton of the Paralysed

Hossain, I, Hossain S, Bangladesh

3 min Q&A

4:55 pm-5:02 pm

Point prevalence of pressure ulcer among the admited patents in a tertary care hospital

IpsitaShee, India

3 min Q&A

5:05 pm -5:12 pm

Evaluaton of the cost for sci patents at a model unit of Natonal Hospital of Sri Lanka

RAC Niroshanie

3 min Q&A

Day 2 Friday 4th December 2015

Venue: SIRC

9:00am – 10:30am Tour of the Spinal Injury Rehabilitaton Centre (SIRC)10:30am – 12:30pm Workshops

1. SCI – Sexuality and Relatonships (Dr Stanley Ducharme) Vocatonal Training Dept2. SCI - Nursing Management (Fiona Stephenson, Mandira Bandiya) Step-down facility3. SCI - Physiotherapy Management (Dr Lisa Harvey, Chanda Rana) Main hall4. SCI – Occupatonal Therapy Management (in conjuncton with ANOT) OT/PT Dept

12:30pm – 2:00pm Lunch and wheelchair sports competton2:00pm – 4:00pm Workshops

5. Wheelchair Training (Wang-Jae Lee, Uday Adikari, Khetra Gurung, Keshab Sitaula ) Mainhall

6. Goal setng in Spinal Cord Injury Rehabilitaton – Whose goal is it anyway? (Ruth Marshall, Srijana Manandhar, Soni Phaju) OT/PT Dept

7. Internatonal Standards Examinaton for the Classifcaton of Spinal Cord Injury (Ron Reeves, Lisa Harvey) Vocatonal Training Dept

8. Road to lessons learned (Dr K Collins, Durga Bhatari) Step-down facility9. ISCoS Database ASCoN Pilot Project (IDAPP)Dr HS Chhabra, Chanda Rana) Social Service

DeptEvening: Gala Dinner and Cultural Exchange Programme 7pm – 11pm Gokarna Forest Resort

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Day 3 Saturday 5th December 2015Venue: Hyat Regency

9:00 am - 10:15am MINI SYMPOSIUM (REGIONAL/INTERNATIONAL COOPERATION AND LESSON LEARNING FOR THE ONGOING DEVELOPMENT OF EACH AREA)

Symposium 1: Preventon of SCI due to falls/carrying heavy loads on the head (Dr. Chhabra) Symposium 2: PMR development in associaton with the Nepalese Society for PMR(Dr Raju Dhakal)Symposium3: Surgical management in associaton with Associaton of Spine Surgeons NepalSymposium 4: SCI Consumers’ experience from the region; and development of consumer

elearn module (Shivjeet Singh, ShivaNepaune)Symposium 5: Assistve Technology in low-income countries (Nekram Upadhyay)

10:15am - 10:30 am REFRESHMENTS

10:30 am - 10:45 am POSTER PRESENTATIONSChairpersons: Dr Nazirah Hasnan, Chanda Rana2mins, 30 secs for each presenter followed by 1 queston

A brave journey of a litle girl with her mother in a rural area

Kamrunnher, FarjanaTaoheed, Bangladesh

Severity of injury and employment status were signifcant predictors of quality of life in people with spinal cord injury– a community based study in Bangladesh

Redwanulislam, Bangladesh

A prospectve study on efectveness of patent educaton in patents with SCI

Raveevan Jindameeirikuul, Apichana Kovindha, M.D. Thailand

Exercise programs for people with spinal cord injury – a keypart of community rehabilitaton

Leah Clarke, Australia

11:00 am - 11:30 am ABSTRACT WRITING (PETER WING/CLAIRE WEEKS)

11:30 am - 12:30 pm PAPER PRESENTATIONSChairpersons: Dr Byapak, Dr Luh Karunia Wahyuni

BREAKOUT ROOM 1

11:30 am -11:45am

Practcal pain management strategy in spinal cord injury Bum Suk Lee

11:45 am -11:55am

Robotcs and Exoskeletons in SCI Rehabilitaton Ronald K Reeves

11:55 am-12:02pm

A retrospectve study of the outcomes of three groups of complete traumatc tetraplegics who were managed either conservatvely or surgically, over a period spanning twenty-fve

Vernon Hill

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years, in the same spinal injuries unit.

12:02 pm -12:09pm

Successes and challenges with initatng sci-rehabilitaton in Botswana

Inka Lofvenmark

12:09 pm -12:16pm

Rapid Implementaton of Medical Rehabilitaton Team at Spinal Injury Rehabilitaton Centre, Nepal during earthquake 2015

Dhakal R, Gurung JB, Gyanwali S, Poudel MK

12:16 pm -12:23pm

Occurrence of multdrug resistance and ESBL producing uropathogens in SCI patents

Rajani Gautam

12:23 pm -12:30pm

The efcacy of the Tokuhashi outcome measure in identfying and predictng the prognosis and rehabilitaton potental of patents with Metastatc Spinal Cord Compression

Bernice Hayles

11:30 am - 12:30 pm PAPER PRESENTATIONSChairpersons: Dr Rohit Pokhrel, Dr Dirk van Kuppevelt

BREAKOUT ROOM 2

11:30 am -11:40 am

Understanding the needs and addressing the barriers through community based rehabilitaton service: an Irish epidemiologicalstudy of persons with sci and their caregivers

Katrina Collins

11:40 am -11:47 am

Psychological status of people living with spinal cord injury (plsci) following hospital discharge due to medical complicaton:a synthesis from literature

Roksana Hoque

11:47 am -11:54 am

The leveraged freedom chair: a history of human-centered design

Aaron Krupp

11:54 am -12:01pm

Inclusive Job Centre: A platorm for creatng livelihood

opportunites for person with Spinal Cord InjuryMd. Monjurul Karim

12:01 pm -12:08 pm

Employment for people with spinal cord injury – a key part of community rehabilitaton

Peter Murray

12:08 pm -12:15 pm

A person centred approach for people with spinal cord injury – akey part of community rehabilitaton

Peter Murray

12:15 pm -12:22 pm

Raise awareness about sports among Persons with Disability

Nepal Spinal Cord Injury Sports Associaton (NSCISA)

12:22 pm -12:30 pm

Update on Civic Project, Bangladesh Sohrab Hossain

12:30pm - 1:00pm VALEDICTORY CEREMONY Summary of 3 days proceedings Stephen MuldoonAward for best paper, best poster and best preventon posterHanding over the “ASCoN” baton for ASCoN 2016 Esha Thapa DhunganaClosing remarks by Arvind Das Joshi

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1:00pm - 2:00pm LUNCH

2:00pm - 5:00pm INTERNATIONAL SEMINAR ON INJURY AND REHABILITATION MANAGEMENT IN DISASTERS

Chairpersons: Peter Wing, Fiona StephensonEmergency management (EM) refers to the management of emergencies concerning allhazards, including all actvites and risk management measures related to preventon andmitgaton, preparedness, response and recovery. Following this management contnuumperspectve as a cycle of preventon, preparaton, emergency response and recovery, theworkshop aims to provide a platorm to share experiences, capture lessons and oferrecommendatons that will help ensure that in future disaster scenarios:

Natonal government and non government organisatons and internatonal agenciesand organisatons are prepared to respond to the challenges of providing largenumbers of injured people with appropriate health and rehabilitatve care;

There are systems in place to efectvely and efciently manage and coordinate aninjury/rehabilitaton post disaster response

Session Time Topic Speakers

Welcome 2:00 pm Kanak Mani Dixit

Survivor’s story2:05 pm -2:15 pm

TBC

SESSION 1PREVENTION/PREPARATION

2:15 pm -2:25 pm

Keynote Peter Wing

SESSION 2EMERGENCY RESPONSE

2:25 pm -2:35 pm

Acute/Surgical Management TBC

2:35 pm -2:45 pm

SIRC’s Early Response Q&A sessionPeter Wing and KeshabSitaula

SESSION 3: REHABILITATION & RECOVERY

2:45 pm -2:55 pm

Key Note Dr Pandey, MOHP

2:55 pm -3:02 pm

SIRC’s Response and lessons learned Esha Thapa Dhungana

3:02 pm -3:09 pm

Descriptve study of earthquake related spinal cord injury in Nepal

Thapa BPJ

3:09 pm -3:16 pm

Scope of occupatonal therapy and physiotherapy in disaster preparedness, response and recovery: tme to act

NishuTyagi, Pallavi Nair India

3:16 pm -3:23 pm

Psychological Care and Response Dr Stanley Ducharme

3:23 pm -3:30 pm

From preparedness to response and recovery: an experience of Handicap

Sunil Pokhrel

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Internatonal Nepal

Refreshments3:30 pm -3:45 pm

SESSION 4: NATIONAL COORDINATIONand REGIONAL/INTERNATIONAL COOPERATION

3:45 pm-3:55 pm

Key Note: The evoluton and operaton of the Nepal Injury Rehabilitaton Sub-cluster (IRSC)

Alice Harvey

3:55 pm -4:02 pm

Rapid implementaton of medical rehabilitaton team at SIRC, Nepal during earthquake 2015

Dhakal R, Gurung JB, Gyanwali S, Poudel MK

4:02 pm -4:09 pm

Rapid implementaton of telemedicine afer earthquake disaster 2015 at SIRC,Nepal

Dhakal R, Gurung JB, Gyanwali S, Poudel MK Nepal MBBS,

4:09 pm -4:16 pm

Overview of volunteer coordinaton Fiona Stephenson

4:16 pm -4:30 pm

ASCoN Foreign Medical Team (FMT) inputsWhat were the inputs? What were the impacts?What are the lessons and recommendatons

Thailand: Dr Apichana KovindhaMalaysia: Dr Nazirah HasnanBangladesh: Prof Taslim Uddin

4:30 pm -4:40 pm

Internatonal CooperatonMedicalTele-medical supportStrategy, funding, mgt Monitoring and Evaluaton Communicaton & info disseminaton

Renee Maschke Peter Wing/Claire WeeksStephen Muldoon Katrina Collins Kate Cofey

PANEL DISCUSSION

4:40 pm -5:00 pm

Recommendatons for future co-ordinaton of injury rehabilitaton in mass casualty emergencies globally as well as specifcally Nepal

Panel Members: Ganesh Kumar Jimee, Director of Disaster Preparedness and Emergency Response (DPER), Natonal Societyfor Earthquake Technology, Kanak ManiDixit, Pradeep Vaidya, Mohan Sharma, Alice Harvey, Kesh, Fiona Stephenson, Stephen Muldoon, Esha Thapa

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Photo Gallery

Registraton hour!! SIRC Tour

Workshop on Sexuality by Dr Stanley ASCoN Executve Commitee meetngSet for relay race! Nepali cultural dance by SIRC staf

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Prof. Wyndaele’s cultural performance losing ceremony

resentaton of ISCoS Text Book waitng the arrival of H.E President of Nepal

ports prize giving cientfc session

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