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    ORGANISATION FOR ECONOMIC CO-OPERATIONAND DEVELOPMENT

    The OECD is a unique forum where the governments of 30 democracies work together to addressthe economic, social and environmental challenges of globalisation. The OECD is also at the forefrontof efforts to understand and to help governments respond to new developments and concerns, such ascorporate governance, the information economy and the challenges of an ageing population. TheOrganisation provides a setting where governments can compare policy experiences, seek answers tocommon problems, identify good practice and work to co-ordinate domestic and international policies.

    The OECD member countries are: Australia, Austria, Belgium, Canada, the Czech Republic,Denmark, Finland, France, Germany, Greece, Hungary, Iceland, Ireland, Italy, Japan, Korea,Luxembourg, Mexico, the Netherlands, New Zealand, Norway, Poland, Portugal, the Slovak Republic,Spain, Sweden, Switzerland, Turkey, the United Kingdom and the United States. The Commission ofthe European Communities takes part in the work of the OECD.

    OECD Publishing disseminates widely the results of the Organisations statistics gathering andresearch on economic, social and environmental issues, as well as the conventions, guidelines andstandards agreed by its members.

    This work is published on the responsibility of the Secretary-General of the OECD. The opinions

    expressed and arguments employed herein do not necessarily reflect the official views of the

    Organisation or of the governments of its member countries.

    This project was co-financed by a grant provided by the Directorate General for Health and

    Consumers of the European Commission. Nonetheless, the views expressed in this report should not be

    taken to necessarily reflect the official position of the European Union.

    Forthcoming in French under the title:La ralisation de gains defficience dans le secteur de la santau moyen des technologies de linformation et de la communication

    OECD 2010

    ___________________________________________________________________________

    You can copy, download or print OECD content for your own use, and you can include excerpts fromOECD publications, databases and multimedia products in your own documents, presentations, blogs,websites and teaching materials, provided that suitable acknowledgment of OECD as source andcopyright owner is given. All requests for public or commercial use and translation rights should besubmitted to [email protected]. Requests for permission to photocopy portions of this material for

    public or commercial use shall be addressed directly to the Copyright Clearance Center (CCC) [email protected] or the Centre franais dexploitation du droit de copie (CFC) [email protected].

    ___________________________________________________________________________

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    FOREWORD

    This report presents an analysis of OECD countries efforts to implement information andcommunication technologies (ICTs) in health care systems. It provides advice on the range of policyoptions, conditions and practices that policy makers can adapt to their own national circumstances toaccelerate adoption and effective use of these technologies. The analysis draws upon a considerable

    body of recent literature and in, particular, lessons learned from case studies in six OECD countries(Australia, Canada, the Netherlands, Spain, Sweden, and the United States), all of which reportedvarying degrees of success deploying health ICT solutions. These ranged from foundationalcommunication infrastructures to sophisticated electronic health record (EHR) systems.

    Within the OECD Secretariat, this report was developed by Elettra Ronchi who acted as projectmanager and principal author, and by M. Saad Khan who provided key contributions. The report, inits various iterations, benefited from comments and suggestions from Martine Durand, MarkPearson, Gaetan LaFortune, Howard Oxley, Francesca Colombo, Elizabeth Docteur, Peter Scherer,Graham Vickery and the projects Expert Group, which included representatives from OECDmember countries , the European Commission , the World Health Organisation, and the Businessand Industry Advisory Committee to the OECD (BIAC). The Expert Group provided technical inputand feedback on the work at three meetings convened during the course of the project. An additionalexpert meeting was organised by the BIAC at OECD Headquarters in 2007 under the OECD LabourManagement Programme.

    The authors would like to express particular thanks to country experts who aided in the

    implementation of case studies, and those members of national administrations who took the time to helpthe Secretariat. In particular, special thanks go to Hans Haveman and Barend Hofman (Netherlands);Christine Labaty, Nancy Milroy-Swainson, Joseph Mendez and Liz Waldner (Canada); Kerry Burdenand David Glance (Australia); Ashish Jha, Blackford Middleton, Micky Tripathi, David Bates, CharlesFriedman, Yael Harris, Rachel Nelson, Jenny Harvell (United States); Javier Carnicaero, Oscar Ezinmo,Luis Alegre Latorre, Luis Manzanero Organero and Josep Pomar Reyns (Spain); Daniel Forslund,Enock Ongwae, Gunnel Bridell, and Bengt strand (Sweden); Paivi Hamalainen (Finland); KristianSkauli (Norway); Erwin Bartels (Germany). Bill Pattinson (Australia) assisted the Secretariat as outsideexpert consultant on background work for the part on monitoring and benchmarking. Secretarial andadministrative support was received from Aidan Curran, Heike-Daniela Herzog, Elma Lopes andIsabelle Vallard.

    Thanks are also due to those member countries who supported this project with voluntarycontributions: Australia, Canada, Finland, Germany, the Netherlands, and Spain.

    This project was co-financed by a grant provided by the Directorate General for Health andConsumers of the European Commission.

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    TABLE OF CONTENTS

    Executive summary .................................................................................................................. 9

    Synthse .................................................................................................................................. 19

    Introduction............................................................................................................................ 31Significant problems arise because of the fragmentation of the care delivery process

    and information failures ............................................................................................... 32Information is essential to achieve a high-quality, value-for-money health care system ........ 32The objectives of this report .................................................................................................. 33Structure of the report ........................................................................................................... 33

    PART 1. GENERATING VALUE FROM HEALTH ICTSHealth information technology can drive improvements in quality and efficiency

    in health care................................................................................................................ 35Reducing operating costs of clinical services ........................................................................ 39Reports on cost-savings tend to be anecdotal in nature .......................................................... 39Health care organisations can reap non-financial gains from ICTs ........................................ 40Administrative processes such as billing represent in most countries a prime opportunity

    for savings ................................................................................................................... 41Achieving transformation through ICTs ............................................................................ 41

    PART 2. WHAT PREVENTS COUNTRIES FROM ACHIEVINGEFFICIENCY IMPROVEMENTS THROUGH ICTS?

    Are there any financial gains to be made - and if so, by whom? ............................................ 45Purchase and implementation costs for EMRs can be significant .......................................... 46Physician incentives differ under different payment systems ................................................ 48Cross-system link-ups remain a serious problem ................................................................... 51Lack of commonly defined and consistently implemented standards plagues

    interoperability............................................................................................................. 52Privacy and security are crucial............................................................................................. 55

    PART 3. ALIGNING INCENTIVES WITH HEALTH SYSTEM PRIORITIESA range of financial incentive programmes have emerged to accelerate ICT adoption .......... 57Grants and subsidies ............................................................................................................. 58Payment differentials ............................................................................................................ 59Long-term sustainability and financing ................................................................................. 66

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    PART 4. ENABLING SECURE EXCHANGE OF INFORMATIONGovernments role in the adoption of standards .................................................................... 72Certification of products ....................................................................................................... 73Setting vendor conformance usability requirements .............................................................. 75Addressing the challenges with the implementation of privacy and security requirements .... 76

    PART 5. BENCHMARKING TO SUPPORT CONTINUOUS IMPROVEMENTBuilding a common understanding of what needs to be measured ......................................... 79Countries have adopted a range of different approaches to monitor ICT adoption ................. 82Common information needs are reflected in a core set of widely used indicators .................. 84Improving comparability of data on ICT in health: What options? ........................................ 86

    References ................................................................................................................................ 89Annex 1. Country case studies .................................................................................................. 97

    The Great Southern Managed Health Network (GSMHN) in Western Australia ................... 97Physician Connect and the Chronic Disease Management Toolkit

    in British Columbia (Canada) .................................................................................... 101The Massachusetts eHealth Collaborative in the United States ............................................ 104Telestroke in the Baleares (Spain) ....................................................................................... 107e-Prescription in Sweden .................................................................................................... 110Implementation of a Patient Summary Record System in Twente (the Netherlands) ........... 113

    Annex 2. Project background and methodology...................................................................... 117

    Boxes

    Box 1.1. Integrated medication management solutions ......................................................... 36Box 1.2. Improving compliance with clinical guidelines in British Columbia ....................... 37Box 1.3. Benefits of investments in picture archiving and communication systems .............. 38Box 1.4. Report on the costs and benefits of health information technologies

    in the United States (US Congressional Budget Office) .................................................. 40Box 1.5. Improving access to emergency stroke care in the Balearic islands

    through telemedicine ...................................................................................................... 43

    Box 1.6. Real-time tracking of the quality of clinical care delivery ....................................... 44Box 2.1. Functional characteristics of an electronic health record ......................................... 47Box 2.2. Physicians willingness to pay for electronic medical records in Ontario, Canada .. 51Box 2.3. Dealing with legacy systems: the Dutch approach .................................................. 52Box 2.4. Open source health ICTs ......................................................................................... 54Box 2.5. The progressive introduction of interoperability provides a continuum

    of added value ................................................................................................................ 54Box 3.1. The UK National Quality and Outcomes Framework .............................................. 60Box 3.2. Incentives to encourage the adoption and use of ICTs in British Columbia ............. 63Box 3.3. Delayed benefit realisation ..................................................................................... 67Box 4.1. Compliance with standards: lessons learned from the MAeHC ............................... 73Box 4.2. Health care IT product certification in the United States ......................................... 74

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    Box 4.3. Physician Office System Programme (POSP) ......................................................... 76Box 4.4. MAeHC turned consent to demand ......................................................................... 78Box 5.1. Implementation efforts provide a picture of significant public investment .............. 80Box 5.2. Criteria for the selection of indicators ..................................................................... 84 Box 5.3. Adoption of basic and fully functional EHRs .......................................................... 85Box 5.4. Improving comparability of data on ICT in health: working towards

    an OECD model survey? ............................................................................................. 87Figures

    Figure 1. Total health expenditure as share of GDP, 2007 ..................................................... 31Figure 1.1. Decrease in report turnaround time following PACS implementation ................. 38Figure 1.2. Thoracic surgery patients seen at outreach clinics per six-month period,

    1998-2005 ...................................................................................................................... 43Figure 2.1. Willingness to pay .............................................................................................. 51

    Figure 3.1. Western Australian practices using IM/IT ........................................................... 62Figure 3.2. EHR/EMR cost vs. incentive gap per physician in Canada andthe United States ............................................................................................................ 65

    Figure 4.1. Use of EHRs and of electronic discharge and referrals by Primary CareCentres in Finland (left) and Norwegian Health Trusts, 2007 (right) .............................. 71

    Figure 5.1. Principal information needs................................................................................. 81Figure 5.2. Rates of adoption of electronic health records y physicians in the

    United States, 2007 ....................................................................................................... 85

    Tables

    Table 2.1. EMR/EHR costs in the United States and Canada ............................................... 47

    Table 2.2. Functions qualifying EHRs as basic or fully functional systems .......................... 47Table 2.3. Payment schemes in primary and specialist care, 2008 ......................................... 50Table 2.4. Healthcare information exchange and interoperability taxonomy ......................... 55Table 3.1. Most common financial incentives in six OECD countries. .................................. 58Table 3.2. Attitudes about payoffs according to main stakeholders ....................................... 68Table 3.3. Attitudes about HIE in the United States according to main stakeholders ............. 70Table 4.1. Measures to address lack of interoperability by country ...................................... 72Table 5.1. Current budget for ICT initiatives in three OECD countries ................................ 80Table 5.2. Total budget allocated by national government in two OECD countries ............... 81Table 5.3. Overview of main data collections reported by countries ...................................... 83

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    EXECUTIVE SUMMARY

    Today the range of possible applications of information and communication technologies (ICT)in the health sector is enormous. The technology has progressed significantly and many estimate thatICT implementation can result in care that is both higher in quality, safer, and more responsive to

    patients needs and, at the same time, more efficient (appropriate, available, and less wasteful).Advocates, in particular, point to the potential reduction in medication errors as a critical advantage.

    In the past few years, however, there has been a significant and growing debate internationallyabout whether or not these much touted benefits and savings can be gained or, indeed, even measured.Despite the promise they hold out, implementing ICTs in clinical care has proven to be a difficultundertaking. More than a decade of efforts provide a picture of significant public investments, notablesuccesses and some highly publicised costly delays and failures. This is accompanied by a failure toachieve widespread understanding of the benefits of electronic record keeping and informationexchange.

    With consistent cross-country information on these issues largely absent, the OECD has usedlessons learned from case studies in six OECD countries (Australia, Canada, the Netherlands, Spain,Sweden, and the United States) to identify the opportunities offered by ICTs and to analyse underwhat conditions these technologies are most likely to result in efficiency and quality-of-careimprovements.

    The analysis takes account of the distinctive features of the participating countries health caresystems and other relevant documentation and contextual information. This information is necessaryto understand the similarities and differences in the approaches employed, and helps to establish the

    potential benefits and drawbacks of policies and frameworks affecting the structure, design,implementation and outcomes of the different programmes and projects. The working documentsdeveloped as part of this project provide greater details on many of these issues.

    Findings illustrate the potential benefits that can result from ICT implementation according tofour broad, inter-related categories of objectives:

    Increasing quality of care and efficiency. Reducing operating costs of clinical services.

    Reducing administrative costs.

    Enabling entirely new modes of care.

    Increasing quality of care and efficiency

    A widely recognised source of inefficiencies in health care systems is the fragmentation of thecare delivery process and the poor transfer of information. The efficient sharing of health informationis, however, indispensable for the effective delivery of care. This is particularly important for elderly

    people and those with chronic conditions, who often have several physicians, and are shuttled to and

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    from multiple care settings. The centrality of information in health systems and the diversity of uses towhich it can be put, means that ICTs that ensure the timely and accurate collection and exchange ofhealth data are likely to foster better care co-ordination, and the more efficient use of resources.

    ICTs can also make important fundamental contributions toward improving aspects of patientsafety. Critical elements for providing safe care to patients include ready availability of individual

    patient medical information, online access to clinical guidelines or drug databases, monitoring theeffects of disease and therapies on the patient over time, and detecting and preventing medicationerrors that could harm the patients.

    Although no formal evaluations are available, it is clear from the case studies in this report thatthese tools are perceived as substantially increasing the safety of medical care by generating a cultureof safety, improving clinical staff actions and workflows, by facilitating tasks such as medicationreconciliation, and by bringing evidence-based, patient-centred decision support to the point of care.To maximise the safety benefits from the use of ICTs, most countries have also established special

    programmes and initiatives to increase provider awareness, including through the promotion ofadverse event reporting.

    Chronic disease is the biggest obstacle to the sustainability of many public health-care systems.The use of ICTs to increase compliance with guideline- or protocol-based care, particularly for themanagement of highly prevalent chronic diseases such as diabetes or heart failure, which are stronglyassociated with preventable hospitalisations, provides, therefore, an opportunity for significant quickwins. This was the case in Canada, where through the combined implementation of new approachesto care delivery, guidelines and the use of a web-based chronic disease management toolkit, the

    province of British Columbia achieved significant improvements in diabetes care at a nominal cost andin a very short time. Between 2002 and 2005, i.e. within the first three years of the programme, the

    proportion of people with diabetes who were receiving care that complied with the Canadian Diabetes

    Association guidelines had more than doubled, while the annual cost of diabetes care dropped over thesame period from an average of CAD 4 400 (Canadian dollars) to CAD 3 966 per patient.

    Reducing operating costs of clinical services

    ICTs can contribute to the reduction of operating costs of clinical services through improvementin the way tasks are performed, by saving time with data processing, and by reducing multiplehandling of documents. Experience in other sectors shows that these functional improvements canhave a positive effect on staff productivity. The evidence in the health sector is, however, generallymixed depending on the context and the technology used.

    In the six case studies presented in this report, GPs reported improved access to patients medical

    records, guidelines and medication lists, but generally felt ambivalent about the effects on workload asa result of using electronic medical records (EMRs) or electronic health records (EHRs). OnlySwedish physicians mentioned savings of approximately thirty minutes a day as a result of using e-

    prescription, which indicates that specific components or functionalities of EHRs are likely to havemore positive effects than others and depending on context. The findings also indicate that integrationof these electronic patient management tools into clinical workflows is not always easy and the needfor support and training must be taken into consideration in the early phases of implementation inorder to optimise provider adoption.

    There was less ambivalence about Picture Archiving and Communication Systems (PACS),which are considered an indispensablepart of the drive towards a fully functional EHR and for thedelivery of high-standard remote care through telemedicine. PACS are recognised as providing a

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    useful way to improve the processing time (or overall throughput) of medical images and acost-effective electronic alternative to conventional methods of storing images. Increasing throughputmeans that turnaround time is shorter, and that there is less waiting around for both tests and results,which also means that there is less delay before treatment can be started. Data from 22 sites in BritishColumbia show that report turnaround time was reduced by 41% following the implementation ofPACS. This may lead to increased capacity, more effective healthcare, and more satisfied consumers.

    Reducing administrative costs

    Administrative processes associated with health care such as billing represent a prime opportunityfor savings. Among the case studies reviewed here, experts in Massachusetts (United States) reportedhuge administrative cost savings as a result of introducing electronic claim processing through the

    New England Healthcare Electronic Data Interchange Network (NEHEN), a consortium of providersand payers established in 1997.

    After the introduction of NEHEN, insurance claims that previously would cost on averageUSD 5.00 per paper transaction were processed electronically at 25 cents per transaction. By 2006, thenetwork was processing more than 4.5 million claims submissions every month, representing 80% ofall transactions in the State of Massachusetts. Through this intensive use, NEHEN has been able tosignificantly reduce the cumulative annual administrative costs for its members. For example, thehealth care provider Baystate Health was able to save more than USD 1.5 million through loweredtransaction fees in less than three years, between September 2006 and April 2009. Savings are drivenin large part by achieving administrative simplification and by slashing the time taken to process

    billing and claims-related information manually.

    Despite the evidence of a reduction in costs, by 2009, an estimated 35% to 40% of US physiciansstill relied on paper claims submissions. Neither of the two major technologies used in electronic

    payment, electronic data interchange (EDI) and electronic funds transfer (EFT), have been widelyimplemented in other States. Barriers ranging from lack of nationwide standards, to infrastructure costand inconsistencies in requirements from the different payers have hindered widespread adoption ofthese technologies.

    Although the level of savings observed in the United States may not be a good predictor of thegains to be expected in other OECD countries, particularly in single payers health care systems,streamlining claims and payment processing through ITs is today widely recognised as a cost-effectiveway to realise considerable administrative efficiencies and reduce the time and risks associated withmanual claims processing.

    In Australia, for example, electronic claiming over the internet has been available since 2002when Medicare Online was introduced. Similarly to the United States, uptake by physicians has been

    slow. In order to accelerate adoption and use by physicians, in 2007 the Australian Governmentintroduced a range of incentives. In May and June 2009, Medicare Australia also ran a targetedcommunication campaign to promote Medicare electronic claiming to the Australian public.

    Enabling entirely new modes of care

    ICTs can also generate value by enabling innovation and a wide range of changes in the processof care delivery, which may (or may not) improve cost-efficiency ( i.e. reduce net expenditures). Asevidence for these effects has accumulated over the past decade, ICTs have also been defined astechnologies with a transformative potential, in that they can open up the possibility of entirely newways of delivering care. The case studies in this report provide good evidence that governments havesignificantly leveraged this potential while pursuing three broad health reform agendas:

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    1. Primary care renewal: in the six countries covered by the case studies considered here, ICTsare central to efforts to renew primary care, generally by targeting three areas of considerableneed: improving chronic care, encouraging broad-based general practice or multipurposeservice delivery and better care co-ordination. These objectives are not necessarily mutuallyexclusive, and are indeed closely linked. In rural Western Australia, remoteness hasincreased the need to develop more integrated and comprehensive primary health services,and electronic messaging and telemedicine can facilitate this. In the Netherlands, electronicaccess to patient summary care records (which are a subset of the full patient medical record)constitute the basis of efficient and safe delivery of care in after-hours primary care centres.

    2. Improved access to care: ICTs, specifically telemedicine combined with PACS, are alsoused to great effect in areas with large rural or remote populations to reduce the impact of theshortage of physicians and improve access to care. This was the case in Australia, Canada,Spain and Sweden. In Spain, the Balearic health authority established a telestroke

    programme in 2006 to deliver specialised care and life-saving treatments to remote areas in

    the region. Results on outcomes show that efficacy and safety of telestroke is comparablewith those achieved with face-to-face care.

    3. Improved quality of care measurement and performance monitoring: all six countries areaiming to use ICTs also to enhance their health information systems. Electronic datacollection and processing can provide data in an accessible form that facilitates reporting ondifferent quality metrics, benchmarking and identification of quality improvementopportunities. In the United States, the Massachusetts eHealth Collaborative (MaeHC)improved the electronic capture of laboratory, pharmacy and other subset of data necessaryfor quality reporting and expanded the measurement of outcomes at GP practice level.

    What prevents countries from achieving efficiency improvements through ICTs?

    The evidence to date suggests that successful implementation and widespread adoption areclosely linked to the ability to address three main issues:

    Alignment of incentives and fair allocation of benefits and costs: with a payment system thatvery often does not reward providers for improving quality of care or support them inmaking investments in ICT systems, limited resources can deter from pursuing thesesystems. In particular since the costs and benefits associated with adopting new technologiesare not shared equitably among stakeholders, investments which are cost-effective from the

    point of view of the system as a whole are not automatically going to be undertaken.

    Lack of commonly defined and consistently implemented standards: health care providers

    struggle with inconsistent medical terminology, clinical records and data storage, as well as amultiplicity of schemes introduced to facilitate interconnection and communication betweenspecific ICT systems. Because of fragmentation in the market and the rapidly evolvingnature of technological solutions, in the absence of agreed industry-wide standards andcompliance with existing rules, providers investing in technological infrastructure face highrisks of failure and poor returns. The ability to share information (interoperability) is alsoentirely dependent on the adoption of common standards and compliance with them.

    Concernsaboutprivacy and confidentiality:because of the sensitivity of health information,and the generalised uncertainty on how existing legal frameworks apply to health ICTsystems, privacy concerns constitute one of the most difficult barriers to overcome ifwidespread implementation of ICTs is to be achieved.

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    Case studies indicate that there are a number of actions that governments can take to addressthese issues. Governments can provide motivation for high-performing projects through targetedincentives. In the case studies, government-funded initiatives were generally aimed at unambiguous

    public health priorities with clear benefits and that would not have been achievable without ICTs. Thisensured that projects that could have otherwise drifted and become technology for the sake oftechnology in fact had a discernable health focus. Implementation of ICTs to improve chronic care inBritish Columbia was clearly a motivating factor and an essential component in the successful rate ofadoption of EMRs by primary care physicians in the region.

    Governments also occupied a central position as initiator, funding provider, project facilitator,and neutral convener. Governments, therefore, may be the only source of leadership to enable theeffective use of ICTs to implement new directions for health system change and redesign.Governments can also engage vendors and encourage them to comply with standards to reach acommon goal.

    Aligning incentives with health system priorities and the fair allocation of benefits and costsA range of incentives were critical in promoting the implementation and effective use of ICTs.

    Given the upfront cost entailed in the purchase of EHRs (which may range from USD 15 000 toUSD 40 000 depending on the technology, the level of system functionalities, and how prices have beennegotiated with vendors), physicians, particularly those whose levels of income are mainly based on theirown individual productivity, such as in a fee-for-service (FFS) payment system, may find it difficult toafford to adopt EHRs.

    Reducing the financial barriers, shifting or sharing the financial risk, and providing much morerobust evidence on the advantages of health ICT can, therefore, be expected to accelerate its adoption.

    Not surprisingly, in all six case studies, we found that government is intervening to promote the

    adoption of ICTs either through direct regulation, economic instruments (mainly direct financialincentives) or persuasive measures (including support measures such as providing education andtraining for change management). OECD governments are evidently using their leverage as purchasersand payers to drive ICT adoption, which reflects the growing consensus about the vital public goodto be expected from improved health information exchange.

    Grants and subsidies are the most common form of financial incentives. Bonuses or add-onpayments that reward providers for adopting and diffusing ICTs are also often used, particularly incountries where physicians are remunerated on the basis of fee-for-service.

    Case studies indicate that subsidies are best suited to a situation where there is a clearlyidentifiable capital or fixed assets investment. In the Balearic Islands (Spain), local government

    subsidies were used, for example, to support the entire cost of developing the ICT infrastructure in theregion, including broadband development. This form of financial support is very flexible, and usuallydoes not require complex institutional arrangements. Grants, on the other hand, are rarely assignedunconditionally. There are usually many requirements that have to be met before a grant will beawarded, and this can turn into an onerous and time-consuming process which may limit take-up.

    OECD findings tend to suggest that one-off subsidies or grants, while essential to start-upinitiatives, may do little to support ongoing ICT use and will not have a lasting impact unless other

    potentially conflicting incentives (e.g. through payment schemes such as FFS) are modified orremoved, and the business case for the initiative is clearly defined. However, for many ICT projects,the most significant challenge is precisely the development of a sustainable business model. In otherwords, once the initial investment has been made, what steps need to be taken to ensure that the

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    ongoing costs of maintaining the system will be met? For example, who will compensate general practitioners for the costs of maintaining electronic health records, when many of the economic benefits are going to be felt by payors and purchasers of health services? These long-termsustainability and financing issues appear to be the most challenging and, in most cases, unknownaspects of the ICT initiatives reviewed in this report.

    In the case studies reviewed in this report, policy approaches that link financial incentives(e.g. bonus payments) to the adoption and use of ICTs for specific tasks or conditions where the publichealth benefit is recognised from the very start have proven particularly successful. The evidencecollected in Australia, British Columbia, the United Kingdom and the United States indicates that

    payers willingness to differentially reward improved quality of care through the use of ICTs is keynot only to future sustainability but central to shared reaping of benefits from the investments made.The financial incentive packages in these countries are designed to insulate physicians from

    potential productivity and upfront financial losses from adoption of ICTs. At the same time, theyoperate to maximise social benefit and act as catalyst of change by requiring (or promoting) electronic

    data collection and reporting on quality improvement activities. There is a growing body of practicalexperience across OECD countries that could be further analysed in a more systematic way andmodelled to indicate/demonstrate which practices work best to enhance the efficiency andeffectiveness of future programmes and reduce the likelihood of mistakes in their design andimplementation.

    Achieving commonly defined and consistently implemented standards

    While health care organisations have access to an ever-increasing number of informationtechnology products, linkages remain a serious problem. EHR systems must be interoperable,clinical information must still be meaningful and easy to decipher once transferred, whether betweensystems or between versions of the same software. It must also be gathered consistently if it is to

    permit effective secondary analysis of health data. Electronic capture of data through EHRs canfacilitate clinical research, as well as improve evidence-based care delivery.

    The development of standards to enable interoperability continues to be a political and logisticalchallenge and a barrier to seamless exchange of information. The problem of lack of interoperabilityis, however, not one that will be easily solved by the natural operation of market forces. Nor can it besolved by the intervention of health authorities alone: joint industry and government commitment isnecessary.

    To move the interoperability agenda forward, many governments have set up specific bodies oragencies to co-ordinate standard-setting and have developed strategies at the national level. Under

    pressure, vendors and users, as well as international standards organisations, have also started to

    collaborate more openly in the development and progression of standards. This collaboration hasresulted in some level of success. However, even when standards are available, they are often appliedin different ways by different institutions. Additional mechanisms are needed to promote theirconsistent implementation in a manner that achieves interoperability. Besides technologicalspecifications, appropriate incentives, consensus-building and other enabling policies all have to be in

    place.

    Four of the case study countries (Netherlands, Spain, Sweden, and the United States) have,therefore, established formal health care ICT product certification processes. In several of thesecountries, health care payers, ranging from governments to the private sector, are now also offering, orsetting out to offer, financial incentives for the adoption of certified EHRs.

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    A variant to this approach, implemented at present only in Canada in a few provinces, has been toestablish a certification process that targets vendors products and services, and includes a number ofusability requirements such as service levels, technical support responsiveness, financial viability, etc.This process is a targeted effort, within the context of a specific incentive programme to promoteEMR/EHR adoption, rather than a broad product certification scheme, as envisaged in the othercountries.

    Although these initiatives all appear very promising, there is still limited evidence that they havesignificantly improved interoperability.

    Enabling robust and reliable privacy and security frameworks

    Health information can be extremely sensitive and professional ethics in health care demands astrict adherence to confidentiality. A view held by many physicians in nearly all the case studies wasthat sharing identifiable patient data among different providers in a network raises the question of who

    should be allowed access to the file and how such access is to be regulated and by whom. Thereappears to be a generalised need for clear and enforceable rules on these sensitive issues.

    Patient consent was also often identified as the main road block to creating a co-ordinatedinformation system for patient care. Some of the case study countries require that patients be informedat the time of data collection of all the purposes for which their data may be used. Others, operate onthe basis of an implied consent model for disclosure of health information for treatment purposes,coupled with the individual's right to object to disclosure (opt out).

    The implementation of privacy and security requirements is proving particularly challenging in thecase of EHRs and constitutes a main barrier to system-wide exchange of information in many countries.

    In Sweden, which enjoys virtually countrywide e-prescribing, GPs are currently unable to accessthe full list of medications that their patients have been prescribed due to legal restrictions. As a result,though the technology is available, privacy regulations act as barriers to fully harnessing the health

    benefits from the e-prescription system.

    In Canada, well-intentioned privacy laws have created barriers to data access. In BritishColumbia, an unintended consequence of this commitment to privacy protection is that privacy isoften cited as the reason that government cannot access critical health data and carry out the necessaryassociative studies to improve services for citizens.

    In addition, in most of the case study countries, compliance is complicated by multiple layers ofregulations from central to local. This is a particularly difficult problem in Australia, Canada, and theUnited States where rules for the protection of personal information have been established at both the

    national and local (state or province) levels. This made it especially difficult, for example, to implementa locally developed web-based electronic messaging and patient management system in WesternAustralia which cut across several jurisdictions. This is largely because rules for the protection of

    personal information have been established at both federal as well as State and Territory levels inAustralia. All regimes are similar but not identical. There are separate regimes for public sector and

    private sector organisations and specific legislation applicable to entities which hold health records.

    The case studies clearly indicate that appropriate privacy protection must be incorporated into thedesign of new health ICT systems and policies from the outset, because it is often difficult orimpossible to introduce effective privacy protections retroactively. There are a variety of technicalsolutions already available to protect patients, but if privacy policies are unclear, technology will be oflittle help. Lack of clarity in the purpose and scope of privacy protection may also have unintended

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    perverse consequences. Although health care organisations have a strong interest in maintainingprivacy and security, they also have to balance this interest against the need to ensure that informationcan be retrieved easily when required for care, particularly in an emergency.

    Restoring public trust that has been significantly undermined is much more difficult than buildingit from the outset. Many OECD countries are in the early stages of health ICT adoption, and this

    provides a critical window to address privacy and security issues.

    Conclusions

    The findings discussed in this report point to a number of practices or approaches that couldusefully be employed in efforts to improve and accelerate the adoption and use of health ICTs. Asthese typically imply trade-offs with competing goals, policy makers must determine whether theexpected benefits from these practices are likely to outweigh the costs in a particular situation. Thisstudy, however, highlights an absence, in general, of independent, robust monitoring and evaluation of

    programmes and projects. While most of the case studies had included some sort of formal evaluationto justify initial budgets, few had conducted a formal post-implementation evaluation to determine theactual payoff from the adoption and use of ICTs.

    Measuring the impacts of ICTs is difficult for a number of reasons. ICT implementation mayhave effects that are multidimensional and often uncertain in their reach and scope, and difficult tocontrol. In addition, the realisation of benefits from ICT implementation strongly depends oncontextual conditions. For example, moving to an EHR in its fullest form is not just a technicalinnovation; it is a cultural transformation. Change management is vital for successful uptake, andfailure to build in processes for effecting the necessary organisational transformations will reduce bothuptake and impact. Coupled with this, are inherent difficulties in defining what constitutes healthICTs, the extent of its use and adoption, and the fact that in many cases health institutions may use

    both ICT and more traditional practices simultaneously. Benefits of new ICT systems may, therefore,only become apparent after working practices have changed or adapted to take advantage of the newresource and this process could take several months or years, presenting a particular problem for thoselooking to evaluate projects.

    The challenges described above place health ICT investments in a space that is quite different fromother capital investments in the health sector, for example a hospital building or medical equipment. Buthealth ICT projects are still often evaluated using traditional appraisal techniques, limiting evaluation tothe objectives of sound financial management. However, providing decision makers with direct cost-analysis cash-flow projections, financial figures etc., is not enough, since the ultimate strategic objectiveis to improve the efficiency and quality of clinical care through health ICTs.

    These methodological difficulties are further exacerbated by data limitations, definitional problems and the lack of appropriate sets of indicators on adoption and use of ICTs which can becompared over time, within and across countries. For many of the hypothesized modes by which ICTsmight effect efficiency in health care systems, there is little or no available data which would allowmeasurement. Despite a plethora of anecdotal information, the hard evidence available today on theimpact of health ICTs is, therefore, inconsistent, which makes it difficult to synthesise and interpret.

    The scale of most ICT projects and the huge sums of taxpayers money that have been and arebeing spent on them, make it crucial for governments to address the issues of benchmarking and ofaccountability so that lessons can be learned. Failure to collect the data necessary to evaluate theimpact of ICTs is one of the core challenges to achieving widespread adoption of high-performing ICTinitiatives.

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    Notwithstanding the difficulties entailed, the case studies cast no doubt on the potential ability ofcountries to make major progress toward key policy goals such as improving access to care in remoteareas or better care co-ordination for chronic diseases through implementing ICTs. In particular, they

    prove that cost-effective solutions for remote and rural areas are possible. The Northern Health Authorityin British Columbia was able, for example, to provide a secure, high-speed wireless communicationsnetwork for over 97% of the regions rural private physicians offices through a CAD 1.2 million(~USD 1.14 million) grant from the federal Primary Health Care Transition Fund. In Australia, the GreatSouthern Managed Health Network developed a secure web-based electronic messaging system that is

    being now rolled out in the most remote areas of the region with start-up funding of AUD 1.8 million(~USD 1.3 million) from the governments Managed Health Network Grant programme.

    One shared characteristic of the programmes reviewed here is that they were all embedded inwider reform projects, and required the support of all stakeholders to achieve their goals. Successfuladoption and use generally depended on the simultaneous implementation of new service deliverymodels, organisational partnerships, changes in GP compensation, clear and dedicated leadership.

    Notable facilitators included dedicated managers and physician leaders who envisioned the specificchanges needed, and were able to overcome organisational barriers and unforeseen technicalchallenges at implementation. All initiatives had dedicated funding, including for support and trainingof health professionals, which was widely recognised as a key factor in winning user acceptance.

    Although there are limits to the generalisation of results, the case studies covered here illustratethe interdependence between various policy dimensions, which are difficult to disentangle, but must

    be addressed if countries are to achieve the intended efficiency gains from ICT implementation. Thefollowing points summarise the main findings:

    Establish robust and coherent privacy protection: a robust and balanced approach to privacyand security is essential to establish the high degree of public confidence and trust needed to

    encourage widespread adoption of health ICTs and particularly EHRs. Government action isneeded to help establish reliable and coherent privacy and security frameworks andaccountability mechanisms that both encourage and respond to innovation.

    Align incentives with health system priorities: to achieve the intended benefits from ICTtechnology, governments and payers need to set targets associated with unambiguous publichealth gains such as improved management of highly prevalent chronic diseases which arestrongly associated with preventable hospitalisations, and better align resources, processes,and physician compensation formulae to match the nature of the gains to be achieved. To dothis it is necessary to address the fixed costs associated with setting up the system. Moreimportant, and more difficult, it is also necessary to ensure that health ICTs are used effectively to deliver evidence-based care leading to better outcomes. This requires what has

    been termed, for want of a better phrase, a sustainable business model which either adapts,or takes into account, the payment systems in place for health care services more generally.

    Accelerate and steer interoperability efforts: agreement on and implementation ofstandardised EHRs remains a challenge, one that must be solved if the improvements in

    patient safety and integrated shared care are to occur. The effective and consistent collectionof data from the patients primary care record can facilitate greater efficiency and safety aswell as contribute to future research. Resolving interoperability issues will requiregovernment leadership and the collaboration of the relevant stakeholders to establishstandards and develop innovative solutions.

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    Strengthen monitoring and evaluation: high-quality evidence represents a fundamentalsource for the decision-making processes. It is a vital tool for assessing where countriesstand and where they want to go. Governments have, therefore, much to gain in supporting

    the development of reliable and internationally comparable indicators to benchmark ICTadoption and ensuring that systems for monitoring ICTs are sufficient to assist in meeting theimprovement goals. Risk, delay and cost can be minimised by learning from goodinternational practices.

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    SYNTHSE

    Les technologies de linformation et des communications (TIC) peuvent aujourdhui se prter de multiples applications dans le secteur de la sant. Elles ont considrablement progress et lonsaccorde largement penser quelles peuvent contribuer amliorer la qualit et la scurit des soinsainsi que leur adquation aux besoins des patients, tout en renforant lefficience (des services plusadapts, une meilleure disponibilit et moins de gaspillage). Les partisans de lutilisation des TIC dansle secteur de la sant font valoir notamment quelle contribuera rduire le nombre derreurs de

    prescription de mdicaments.

    Depuis quelques annes toutefois, la possibilit de concrtiser, ou mme de mesurer cesavantages et conomies tant vants fait de plus en plus dbat dans le monde. Malgr les perspectivesquelle laisse entrevoir, la mise en oeuvre des TIC dans le domaine des soins cliniques sest en effetrvle difficile. Des investissements publics considrables, des succs notables, mais galement desretards et des checs dont on a beaucoup parl : voil le bilan qui se dgage de plus dune dizainedannes defforts. Il a en outre manqu une prise de conscience gnrale des avantages quoffrent lesTIC pour la tenue des dossiers mdicaux et lchange dinformations.

    Faute dinformations suffisantes sur ces questions au plan international, lOCDE sest inspiredes conclusions dtudes de cas ralises dans six de ses pays membres (Australie, Canada, Espagne,tats-Unis, Pays-Bas et Sude) pour recenser les possibilits dapplication des TIC et analyser les

    conditions dans lesquelles ces technologies sont les plus mme de favoriser lamlioration delefficience et de la qualit des soins.

    Lanalyse tient compte des caractristiques des systmes de sant des pays participants ainsi quedautres lments de documentation et dinformation pertinents, qui sont ncessaires pour comprendreles similitudes et les diffrences dans les stratgies menes, et pour valuer les ventuels avantages etinconvnients des mesures et des cadres daction influant sur la structure, la conception, la mise enuvre et les rsultats des diffrents programmes et projets. Les documents de travail labors dans lecadre de ce projet fournissent une information plus dtaille sur bon nombre de ces questions.

    Les conclusions illustrent les avantages que lon peut attendre de la mise en uvre des TIC parrapport quatre grandes catgories dobjectifs, qui sont interdpendantes :

    Amliorer la qualit des soins et renforcer lefficience.

    Rduire les cots de prestation des services cliniques.

    Rduire les cots administratifs.

    Permettre la mise en place de modes de soins entirement nouveaux.

    Amliorer la qualit des soins et renforcer lefficience

    On saccorde largement reconnatre que lune des causes dinefficacit des systmes de santest le morcellement du processus de prestation des soins et linsuffisance du transfert dinformations.Or, le partage efficace dinformations mdicales est indispensable lefficacit des soins, surtout ceux

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    qui concernent les personnes ges et les patients atteints de maladies chroniques, qui sont souventsuivis par plusieurs mdecins et doivent se dplacer entre diffrents tablissements de soins. Comptetenu de la centralit de linformation dans les systmes de sant et de la diversit des usages qui ensont faits, les TIC, en permettant aux diffrents intervenants de recueillir et dchanger en temps vouluet avec prcision les donnes mdicales ncessaires, sont mme de favoriser une meilleurecoordination des soins et une utilisation plus efficiente des ressources.

    Les TIC peuvent aussi tre extrmement utiles pour amliorer certains aspects fondamentaux dela scurit des soins dispenss aux patients : disponibilit de linformation mdicale individuelle, accslectronique aux lignes directrices cliniques ou aux bases de donnes pharmaceutiques, suivi des effetsde la maladie et des thrapeutiques sur le patient dans le temps, dtection et prvention des erreurs de

    prescription, qui peuvent tre nuisibles aux patients.

    Bien que lon ne dispose pas dvaluations en bonne et due forme, les tudes de cas prises encompte dans le prsent rapport indiquent lvidence que lon attribue ces outils une amlioration

    sensible de la scurit des soins mdicaux. Les TIC contribuent dvelopper une culture de lascurit et amliorer les actes et lorganisation du travail du personnel clinique, facilitentlassociation de mdicaments, informe la dcision par des donnes concrtes et centres sur le patient,au lieu de prestation des soins. Pour maximiser les avantages que lon peut attendre de lutilisation desTIC sur le plan de la scurit, la plupart des pays ont galement mis en place des initiatives et

    programmes spciaux pour sensibiliser les prestataires des soins, notamment en encourageant laproduction de rapports deffets indsirables.

    La maladie chronique constitue le plus important obstacle la prennit de bon nombre desystmes publics de sant. Lutilisation des TIC en vue damliorer la conformit des soins aux lignesdirectrices ou aux protocoles, en particulier en ce qui concerne la gestion des maladies chroniques taux de prvalence lev, comme le diabte ou linsuffisance cardiaque, qui sont troitement associes

    des hospitalisations vitables, permet donc de raliser des gains rapides . Tel a t le cas auCanada, o la province de la Colombie-Britannique, en associant de nouvelles stratgies de prestationdes soins, lapplication de lignes directrices et lutilisation dune bote outils lectronique pour lagestion des maladies chroniques, a considrablement amlior la prestation des soins aux diabtiques,

    pour un cot minime et en trs peu de temps. Ainsi entre 2002 et 2005, cest--dire au cours des troispremires annes du programme, la proportion de personnes atteintes de diabte qui bnficiaient desoins conformes aux lignes directrices de lAssociation canadienne du diabte a plus que doubl,tandis que le cot annuel moyen des soins aux diabtiques est tomb de 4 400 CAD (dollarscanadiens) 3 966 CAD par patient.

    Rduire les cots de prestation des services cliniques

    Les TIC peuvent contribuer rduire les cots de prestation des services cliniques en amliorantles modalits dexcution des tches, en acclrant le traitement des donnes, et en rduisant letraitement multiple des documents. Lexprience acquise dans dautres secteurs montre que cesamliorations fonctionnelles peuvent avoir un effet favorable sur la productivit du personnel. Lesdonnes dont on dispose pour le secteur de la sant sont toutefois en gnral disparates et varient selonle contexte et la technologie utilise.

    Dans les six tudes de cas prsentes ici, les mdecins gnralistes ont indiqu une amliorationde laccs aux dossiers mdicaux des patients, aux lignes directrices et aux listes de mdicaments,mais les opinions varient en gnral davantage quant aux effets de lutilisation des dossiers mdicauxlectroniques (DME) ou dossiers de sant lectroniques (DSE) sur la charge de travail. Seuls lesmdecins sudois ont mentionn que la prescription lectronique leur faisait gagner environ

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    trente minutes par jour, ce qui indique que des composantes ou des fonctionnalits spcifiques desDSE ont vraisemblablement davantage deffets favorables que dautres selon le contexte. Les rsultatsindiquent galement que lintgration de ces outils de gestion lectronique des patients au droulementdes tches cliniques nest pas toujours facile et quil faut prvoir des services de soutien et deformation ds les premires phases de mise en uvre afin doptimiser ladhsion des prestataires.

    Les systmes darchivage et de transmission dimages font davantage lunanimit. Ils sontconsidrs comme indispensables la mise en place de DSE entirement fonctionnels et la prestationde soins de grande qualit distance (tlmdecine). On saccorde reconnatre que ces systmesamliorent le temps de traitement (ou le dbit global) des images mdicales et constitue unsubstitut lectronique rentable des mthodes classiques de stockage des images. Cette amlioration dudbit va de pair avec une acclration de la cadence et donc une rduction du temps dattente la fois

    pour les tests et pour les rsultats, ce qui permet galement de raccourcir le dlai avant le dbut dutraitement. Les donnes recueillies auprs de 22 sites en Colombie-Britannique indiquent que le tempsde dpt des comptes rendus a t rduit de 41 % aprs la mise en uvre des systmes darchivage et

    de transmission dimages. Cette amlioration devrait permettre daccrotre la capacit, damliorerlefficacit des soins de sant et, partant, le degr de satisfaction des patients.

    Rduire les cots administratifs

    Les processus administratifs associs aux soins de sant, comme la facturation, constituent unimportant gisement dconomies. Parmi les tudes de cas examines ici, des experts du Massachusetts(tats-Unis) ont constat que lintroduction du traitement informatis des demandes deremboursement dans le cadre du New England Healthcare Electronic Data Interchange Network(NEHEN), un consortium de prestataires et de payeurs tabli en 1997, avait permis deconsidrablement rduire les cots administratifs.

    Aprs la mise en uvre du NEHEN, les demandes de remboursement, qui cotaient auparavanten moyenne 5 USD sur support papier, taient traites lectroniquement au cot de 25 cents pardemande. En 2006, le rseau traitait plus de 4.5 millions de demandes chaque mois, soit 80 % delensemble des demandes de remboursement de ltat du Massachusetts. Grce cette utilisationintensive, le NEHEN a t en mesure de rduire sensiblement les cots administratifs annuelscumulatifs de ses membres. Baystate Health, par exemple, a pu conomiser plus de 1.5 million USDen cots de transaction, entre septembre 2006 et avril 2009, cest--dire en moins de trois ans. Cesconomies sexpliquent dans une large mesure par la simplification administrative et lnorme gain detemps ralis par rapport au traitement manuel de la facturation et de linformation lie aux demandesde remboursement.

    Malgr ces donnes probantes, on estimait en 2009 que 35 40 % des mdecins amricains

    taient encore tributaires du support papier pour les demandes de remboursement. En effet, aucune desdeux grandes technologies utilises pour le paiement lectronique change de donnesinformatises (EDI) et paiement lectronique ne sest gnralise dans dautres tats, pour desraisons diverses : absence de normes nationales, cot dinfrastructure et disparits des exigences des

    payeurs.

    Bien que le niveau dconomies observ aux tats-Unis ne prfigure peut-tre pas vraiment desgains attendre dans dautres pays de lOCDE, en particulier dans les systmes de sant o il nexistequun seul payeur, on saccorde aujourdhui largement reconnatre quen utilisant les technologies delinformation pour rationaliser le traitement des demandes de remboursement et des paiements, on

    peut, de faon rentable, amliorer considrablement lefficacit administrative et rduire le temps etles risques associs au traitement manuel des demandes.

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    En Australie, par exemple, les demandes de remboursement via lInternet sont possibles depuis lelancement de Medicare Online, en 2002. Comme aux tats-Unis, ladoption de ce systme par lesmdecins a t lente. Afin de lacclrer, le gouvernement australien a introduit en 2007 un certainnombre dincitations. En mai et juin 2009, Medicare Australia a galement lanc une campagne decommunication cible destine promouvoir les demandes de remboursement lectroniques auprs dela population australienne.

    Permettre la mise en place de modes de soins entirement nouveaux

    Les TIC peuvent galement favoriser linnovation et elles ouvrent un large ventail depossibilits de transformation du processus de prestation des soins, susceptibles (ou non) damliorerla rentabilit (cest--dire de rduire les dpenses nettes). Les donnes dmontrant la ralit de ceseffets se sont accumules depuis une dizaine dannes, de sorte que lon attribue aussi aux TIC un

    potentiel transformateur car elles laissent entrevoir la possibilit de modalits entirement nouvelles deprestation des soins. Les tudes de cas examines dans le prsent rapport montrent laide de donnes

    concrtes que les pouvoirs publics ont fortement mobilis ce potentiel en visant trois grands objectifsde rforme de la sant :

    4. Moderniser les soins primaires : dans les six pays ayant fait lobjet des tudes de casexamines ici, les TIC sont au cur des efforts de modernisation des soins primaires et sonten gnral axes sur trois domaines o les besoins sont considrables : amlioration dessoins aux malades chroniques, encouragement une large pratique gnrale ou la

    prestation de services polyvalents, et amlioration de la coordination des soins. Ces objectifsne sexcluent pas ncessairement lun lautre mais sont en fait troitement lis. Dans largion rurale de lAustralie occidentale, lloignement a accentu la ncessit de dvelopperdes services de sant primaires plus intgrs et complets, ce que la messagerie lectroniqueet la tlmdecine peuvent faciliter. Aux Pays-Bas, laccs lectronique au dossier mdical

    abrg du patient (qui est extrait du dossier mdical intgral) permet dassurer la prestationefficace et sre de soins primaires en dehors des heures normales de travail du praticien.

    5. Amliorer laccs aux soins: les TIC, et plus prcisment la tlmdecine associe auxsystmes darchivage et de transmission dimages, donnent galement de trs bons rsultatsauprs des populations rurales ou loignes, en rduisant limpact de la pnurie de mdecinset en amliorant laccs aux soins. Tel a t le cas en Australie, au Canada, en Espagne et enSude. En Espagne, les autorits sanitaires des Balares ont ainsi mis en place en 2006 un

    programme telestroke pour fournir des soins spcialiss et des traitements qui peuventsauver des vies dans les zones recules de larchipel. Du point de vue de lefficacit et de lascurit, le programme telestroke est comparable aux soins fournis en personne.

    6. Amliorer la qualit de la mesure des soins et du suivi des performances : les six paysconsidrs ont lintention dutiliser les TIC galement pour amliorer leurs systmesdinformation sanitaire. La collecte et le traitement lectroniques des donnes permettent dedisposer de donnes sous une forme accessible qui facilite la communication de diffrentesmesures de qualit, la comparaison et lidentification de possibilits damlioration. Auxtats-Unis, le Massachusetts eHealth Collaborative (MaeHC) a amlior la collectelectronique de donnes de laboratoire et de pharmacie ainsi que dautres sous-ensemblesncessaires ltablissement de rapports sur la qualit et a largi la mesure des rsultats auniveau des gnralistes.

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    Quest-ce qui empche les pays damliorer lefficience de leur systme de sant en misant surles TIC ?

    Les donnes dont on dispose ce jour tendent montrer que le succs de la mise en uvre et lagnralisation de lutilisation des TIC sont troitement lies la capacit de rpondre trois grandes

    proccupations :

    Harmonisation des incitations et juste rpartition des avantages et des cots : dans le cadredun systme de paiement qui, trs souvent, ne rcompense pas les prestataires quiamliorent la qualit des soins ni ne les aide investir dans les TIC, le caractre limit desressources de ces prestataires risque de dissuader ces derniers de se doter des systmessouhaitables. Plus prcisment, et tant donn que les cots et avantages lis ladoption denouvelles technologies ne sont pas quitablement rpartis entre les parties prenantes, desinvestissements qui seraient rentables du point de vue du systme dans son ensemble ne sont

    pas engags demble.

    Absence de normes dfinies dun commun accord et faisant lobjet dune applicationuniforme : les prestataires de soins de sant sont confronts un manque duniformit de laterminologie mdicale, des dossiers mdicaux et du stockage de donnes ainsi qu unemultiplicit de dispositifs mis en place pour faciliter linterconnexion et la communicationentre certains systmes TIC. En raison du morcellement du march et de lvolution rapidedes solutions technologiques, et faute de normes convenues lchelle du secteur etdapplication des rgles existantes, les prestataires qui investissent dans une infrastructuretechnologique sont exposs des risques levs dchec et de rendement mdiocre. Lacapacit de mettre en commun linformation (interoprabilit) dpend aussi entirement deladoption et de lapplication de normes communes.

    Protection de la vie prive et confidentialit: en raison de la sensibilit de linformationmdicale et de lincertitude gnralise qui pse sur lapplicabilit des cadres juridiquesactuels aux systmes TIC du secteur de la sant, les proccupations relatives la protectionde la vie prive constituent lun des obstacles les plus difficiles surmonter pour gnraliserlutilisation des TIC.

    Les tudes de cas indiquent que les pouvoirs publics peuvent agir lgard de ces questions deplusieurs faons. Ils peuvent prendre des mesures dincitation cibles en faveur de projets rendementlev. Dans les tudes de cas, on constate par exemple que les initiatives finances sur fonds publicsconcernaient en gnral des priorits de sant publique sans ambigut, que leurs avantages nefaisaient aucun doute et quelles nauraient pas pu tre menes bien sans faire appel aux TIC. Il aainsi t possible de centrer clairement sur la sant des projets qui auraient pu autrement driver et

    faire de la technologie une fin en soi. lvidence, lutilisation des TIC pour amliorer les soins auxmalades chroniques en Colombie-Britannique a t un facteur de motivation essentiel dans ladoptiondes DME par les mdecins dispensant des soins primaires dans la rgion.

    Les pouvoirs publics ont galement jou un rle central dinitiateur, de financeur et de facilitateurde projets et de rassembleur impartial. Cest pourquoi eux seuls sont peut-tre en mesure de donnerlimpulsion ncessaire pour mobiliser efficacement les ressources des TIC en vue dexplorer denouvelles pistes de rforme des systmes de sant. Les pouvoirs publics peuvent galement encouragerles fournisseurs dont ils retiennent les services se conformer des normes axes sur la ralisationdun objectif commun.

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    Harmonisation des incitations avec les priorits des systmes de sant et juste rpartition desavantages et des cots

    Un certain nombre dincitations ont t dterminantes pour encourager la mise en uvre etlutilisation efficace des TIC. tant donn les cots initiaux assumer lors de lachat de systmes DSE(qui peut varier de 15 000 40 000 USD selon la technologie, le niveau de fonctionnalit du systmeet la ngociation avec le fournisseur), les mdecins, en particulier ceux dont les revenus dpendentessentiellement de leur propre productivit, par exemple dans le cadre dun systme de paiement lacte, ne pourront pas facilement se permettre dadopter le DSE.

    Il y a par consquent lieu de croire quil est possible dacclrer ladoption des TIC dans lesecteur de la sant en rduisant les obstacles financiers, en dplaant ou en mutualisant le risquefinancier et en produisant des donnes beaucoup plus probantes sur les avantages de ces technologies.Comme on pouvait sy attendre, nous avons constat dans les six tudes de cas que les pouvoirs

    publics intervenaient pour promouvoir ladoption des TIC, soit dans le cadre dune rglementation

    directe, soit par des instruments conomiques (essentiellement des incitations financires directes) oudes mesures de persuasion (notamment sensibilisation et formation la gestion du changement). Dansles pays de lOCDE, les pouvoirs publics usent lvidence de leur levier en tant quacheteurs et

    payeurs pour stimuler ladoption des TIC, ce qui va dans le sens du consensus de plus en plus largequant au caractre de bien public essentiel que revt lamlioration de lchange dinformations surla sant.

    Les subventions sont les mesures dincitations financires les plus courantes. Les primes oucomplments de rmunration qui rcompensent les fournisseurs pour avoir adopt et diffus les TICsont galement souvent utiliss, en particulier dans les pays o les mdecins sont rmunrs lacte.

    Les tudes de cas indiquent que les subventions sont mieux adaptes une situation o

    linvestissement en capital fixe est clairement identifiable. Aux Balares (Espagne), ce sont parexemple des subventions de ladministration locale qui ont financ lintgralit des cots dedveloppement de linfrastructure TIC de la rgion, y compris le haut dbit. Cette forme daidefinancire est trs souple et ne ncessite en gnral pas de modalits institutionnelles complexes. Enrevanche, les subventions sont rarement attribues sans conditions, mais en gnral assorties denombreuses exigences pralables, ce qui peut entraner un processus long et pnible qui risquefinalement de limiter ladoption des TIC.

    Les conclusions de lOCDE tendent montrer que des subventions ponctuelles, si elles sontessentielles pour lancer des initiatives, ne sont en revanche peut-tre gure utiles pour financerlutilisation continue des TIC et nauront pas dimpact durable, moins que soient modifies ousupprimes des incitations susceptibles de leur tre contradictoires (par exemple, dans le cadre dun

    rgime de rmunration lacte) et que le bien-fond de linitiative en question soit clairementdmontr. Cependant, pour de nombreux projets concernant les TIC, la principale difficult consiste

    prcisment laborer un modle conomique viable. Autrement dit, une fois ralis linvestissementinitial, quelles mesures doivent tre prises pour couvrir les cots permanents de lentretien dusystme ? Par exemple, qui indemnisera les gnralistes pour les cots de tenue des dossiers mdicauxinformatiss, alors que bon nombre des avantages conomiques lis linformatisation profiteront aux

    payeurs et aux acheteurs de services de sant ? Ces questions concernant la viabilit et le financement long terme semblent les plus difficiles rsoudre et constituent la plupart du temps une zone grisedans les initiatives concernant les TIC qui sont examines dans le prsent rapport.

    Les stratgies qui associent des incitations financires (par exemple, le versement de primes) ladoption et lutilisation des TIC dans le cadre de tches ou de conditions spcifiques o lavantage

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    du point de vue de la sant publique est reconnu demble se sont rvles particulirement efficaces.Les donnes recueillies en Australie, en Colombie-Britannique, aux tats-Unis et au Royaume-Uniindiquent que le consentement des payeurs rcompenser de faon diffrencie lamlioration de laqualit des soins par lutilisation des TIC revt une importance primordiale non seulement pour la

    prennit du systme, mais galement pour la rpartition des avantages dcoulant des investissementsconsacrs aux TIC. Les programmes dincitations financires mis en uvre dans ces pays visent isoler les mdecins dune ventuelle baisse de productivit et des pertes financires initiales lies ladoption des TIC. Dans le mme temps, ils visent maximiser les avantages pour la socit etagissent comme catalyseur du changement en rendant obligatoire (ou en encourageant) la collectelectronique de donnes et la notification dactivits damlioration de la qualit. Il se dgage delexprience pratique des pays de lOCDE une masse de donnes de plus en plus importante qui

    pourrait faire lobjet dune analyse plus approfondie et dune modlisation en vue dindiquer et/ou dedmontrer les pratiques qui permettent le mieux damliorer lefficience et lefficacit des

    programmes futurs et de rduire la probabilit derreurs dans leur conception et leur mise en uvre.

    Pour une application uniforme de normes dfinies dun commun accordBien que les organisations de sant aient accs des produits informatiques toujours plus

    nombreux, les liens entre ces diffrents produits continuent de poser un srieux problme. Lessystmes DSE doivent tre interoprables, linformation clinique doit demeurer pertinente et facile dchiffrer lorsquelle est transmise, que ce soit entre systmes diffrents ou entre diffrentes versionsdun mme logiciel. Linformation doit galement tre collecte de faon systmatique pour pouvoirse prter une analyse secondaire efficace. La saisie lectronique de donnes grce aux DSE peutfaciliter la recherche clinique et amliorer la prestation de soins mdicaux fonds sur des preuves.

    Llaboration de normes destines assurer linteroprabilit des systmes demeure un enjeu lafois politique et logistique ainsi quun obstacle lchange transparent dinformations. Le problme de

    linteroprabilit ne sera toutefois pas facilement rsolu par le fonctionnement naturel des forces dumarch, pas plus que par la seule intervention des autorits sanitaires : il ncessite lengagementconjoint du secteur priv impliqu et des pouvoirs publics.

    Pour faire progresser linteroprabilit, les pouvoirs publics ont souvent cr des organismes ouagences spcifiques chargs de coordonner llaboration de normes et ont formul des stratgies auniveau national. Sous la pression, les fournisseurs et les utilisateurs ainsi que les organisationsinternationales de normalisation ont galement commenc collaborer plus ouvertement llaboration et lavancement des normes, non sans un certain succs. Mais mme lorsquil existedes normes, celles-ci sont souvent appliques diffremment selon les institutions. Des mcanismescomplmentaires sont ncessaires pour promouvoir leur application uniforme, de faon favoriserlinteroprabilit. Au-del des spcifications techniques, il faudra galement mettre en place des

    incitations appropries, faire merger un consensus et formuler dautres politiques de nature favoriser le processus.

    Quatre des pays examins dans les tudes de cas (Espagne, tats-Unis, Pays-Bas et Sude) ontpar consquent mis en place des procdures officielles dhomologation des produits TIC pour les soinsde sant. Dans plusieurs de ces pays, les payeurs des soins de sant, quil sagisse des pouvoirs publicsou du secteur priv, ont mis en place des incitations financires en faveur de ladoption des DSEhomologus ou se proposent de le faire.

    Une variante de cette mthode, actuellement mise en uvre seulement dans quelques provincescanadiennes, a consist tablir une procdure dhomologation axe sur le fournisseur et assortie duncertain nombre de critres d utilisabilit tels que les niveaux de service, la ractivit du support

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    technique, la viabilit financire, etc. Cette procdure est cible et sinscrit dans un programmedincitations spcifiques destines promouvoir ladoption des DME/DSE, la diffrence de

    programmes dhomologation plus gnraux envisags par dautres pays.

    Bien que ces initiatives semblent toutes trs prometteuses, on ne peut gure encore en conclurequelles aient sensiblement amlior linteroprabilit.

    Pour des cadres robustes et fiables de protection de la vie prive et de la scurit

    Linformation sanitaire peut tre extrmement sensible et la dontologie de la sant exige donc unscrupuleux respect de la confidentialit. Dans pratiquement toutes les tudes de cas, les mdecins sontnombreux penser que la mise en commun de donnes nominatives concernant les patients entrediffrents prestataires lintrieur dun rseau soulve la question de savoir qui doit tre autoris accder aux dossiers et comment cet accs doit tre rglement et par qui. Ces questions dlicatessemblent susciter un besoin gnralis de rgles clairement dfinies et dont lapplication puisse tre

    contrle.Le consentement du patient est souvent mentionn comme le principal blocage la cration

    dun systme dinformation coordonn pour les soins. Certains des pays examins exigent que les patients soient informs, au moment de la collecte des donnes, de toutes ses finalits possibles.Dautres ont opt pour le modle du consentement tacite la communication dinformations mdicalesaux fins de traitement, ce consentement tant assorti du droit du patient de refuser la divulgation desinformations.

    La mise en uvre des normes de protection de la vie prive et de scurit se rvleparticulirement difficile dans le cas des DME et constitue dans de nombreux pays lun des principauxobstacles lchange dinformations lchelle du systme.

    En Sude, o la prescription lectronique est pratiquement gnralise, des restrictions lgalesempchent actuellement les mdecins gnralistes davoir accs la liste complte des mdicamentsqui ont t prescrits leurs patients. Autrement dit, bien que la technologie ncessaire soit disponible,la rglementation relative la protection de la vie prive empche de tirer pleinement parti desavantages du systme de prescription lectronique.

    Au Canada, les lois de protection de la vie prive, dont lintention tait louable, ont cr desobstacles laccs aux donnes. En Colombie-Britannique, une consquence indsirable de cettefarouche dfense de la vie prive est que celle-ci est souvent mentionne comme la raison quiempche les pouvoirs publics davoir accs des donnes mdicales essentielles et de raliser lestudes associatives ncessaires pour amliorer les services aux citoyens.

    Par ailleurs, dans la plupart des pays tudis, lapplication des rgles est complique par lamultiplicit des niveaux de rglementation, qui schelonnent de ladministration centrale jusquauniveau local. Le problme est particulirement aigu en Australie, au Canada et aux tats-Unis, o lesrgles de protection de linformation personnelle ont t tablies la fois au niveau national et local(tat ou province). Cest ce qui a rendu particulirement difficile, par exemple, la mise en uvre dunsystme de messagerie lectronique et de gestion des patients sur le web qui a t loriginedvelopp localement en Australie occidentale. Les rgles de protection de linformation personnelleont en effet t tablies en Australie la fois au niveau fdral et au niveau des tats ou desTerritoires. Tous les rgimes sont semblables mais non identiques. Il existe en outre des rgimesdistincts pour le secteur public et le secteur priv, et une lgislation sappliquant expressment auxentits qui dtiennent des dossiers mdicaux.

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    Les tudes de cas indiquent clairement quune protection adquate de la vie prive doit treintgre demble aux nouveaux systmes et politiques des TIC pour le secteur de la sant, car il estsouvent difficile, voire impossible dintroduire rtroactivement des mesures efficaces de protection dela vie prive. Il existe dj diverses solutions techniques pour protger les patients, mais si les

    politiques de protection de la vie prive ne sont pas clairement dfinies, la technologie ne sera gureutile. Le manque de clart dans la finalit et la porte de la protection de la vie prive peut galementavoir des effets pervers. Bien que les organismes de sant aient grand intrt assurer laconfidentialit et la scurit des dossiers, ils doivent galement mettre en balance cet impratif avec lancessit de veiller ce que linformation puisse tre facilement accessible lorsque elle est requise

    pour la prestation des soins, en particulier en cas durgence.

    Il est beaucoup plus difficile de regagner la confiance du public une fois quelle a t branleque de la construire ds le dpart. De nombreux pays de lOCDE commencent seulement adopter lesTIC dans le secteur de la sant, ce qui leur ouvre une fentre dopportunit dcisive pour prendre encompte les questions de vie prive et de scurit.

    Conclusions

    Les conclusions examines dans le prsent rapport rvlent un certain nombre de pratiques ou destratgies qui pourraient tre utiles pour amliorer et acclrer ladoption et lutilisation des TIC dans lesecteur de la sant. Comme des arbitrages simposent en gnral avec des objectifs concurrents, lesdcideurs doivent dterminer si les avantages attendus de ces pratiques seront vraisemblablement plusimportants que les cots dans une situation donne. La prsente analyse indique toutefois que les

    programmes et projets ne font en gnral pas lobjet dun suivi et dune valuation indpendants etrobustes. La plupart des tudes de cas rvlent bien une valuation officielle, sous une forme ou uneautre, destine justifier les budgets initiaux, mais rares sont les valuations rigoureuses ralises aprsla mise en uvre afin de dterminer le rendement vritable de ladoption et de lutilisation des TIC.

    Il est difficile de mesurer limpact des TIC, pour plusieurs raisons. Les effets de la mise en uvredes TIC peuvent avoir des dimensions diverses, ils sont souvent incertains dans leur porte et leurampleur, et difficiles matriser. En outre, la concrtisation des avantages dcoulant de la mise enuvre des TIC est troitement lie au contexte dans lequel elle sinscrit. Par exemple, ladoption dunsystme de DSE en bonne et due forme ne constitue pas seulement une innovation technique maisgalement une mutation culturelle. La gestion du changement est dune importance capitale pourladoption des TIC, laquelle sera limite, tout comme limpact des TIC proprement dites, si lon neveille pas intgrer des processus permettant doprer les transformations organisationnellesncessaires. cela sajoutent les difficults inhrentes la dfinition de ce que constituent les TICdans le secteur de la sant, leur degr dutilisation et dadoption, et le fait que les tablissements desant peuvent souvent utiliser la fois les TIC et des moyens plus classiques. Les avantages des

    nouveaux systmes ne deviendront peut-tre donc apparents quune fois que les mthodes de travailauront chang ou se seront adaptes pour tirer parti de la nouvelle ressource. Ce processus pourraitschelonner sur plusieurs mois, voire plusieurs annes, et poser un problme particulier pour ceux quicherchent valuer les projets.

    Les caractristiques et difficults dcrites ci-dessus distinguent nettement les investissementsdans les TIC des autres investissements du secteur de la sant, par exemple ceux consacrs laconstruction dhpitaux ou au matriel mdical. Mais les projets de TIC axs sur la sant sont encoresouvent valus par des mthodes classiques, qui limitent lvaluation aux objectifs dune sainegestion financire. Or, il ne suffit pas de fournir aux dcideurs des analyses des cots directs et des

    prvisions de trsorerie, des donnes financires, etc., car lobjectif stratgique est en bout de lignedamliorer lefficience et la qualit des soins cliniques grce lutilisation des TIC dans le secteur de

    la sant.

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