ABILITY Magazine - Def Leppard Issue
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DESCRIPTIONDef Leppard's Rick Allen Issue June/July 09
$4.99Volume 2009DEFLEPPARDSALLEN JUNE/JULY
MANAGING EDITORGillian Friedman, MD
EDITORSDiane ChappellDahvi FischerRenne GardnerSonnie GutierrezPamela K. JohnsonJosh PateDavid RadcliffDenise Riccobon, RNJane Wollman RusoffMaya Sabatello, PhD, JD Romney Snyder
MANAGING HEALTH EDITORE. Thomas Chappell, MD
HEALTH EDITORSLarry Goldstein, MDNatalia Ryndin, MD
CONTRIBUTING SENATORU.S. Sen. Tom Harkin (D-IA)
CONTRIBUTING WRITERSLinda Boone HuntGale Kamen, PhDLaurance Johnston, PhDAndrea KardonskyDeborah Max Myles Mellor - Crossword PuzzlePaula Pearlman, JD John PaizisRichard PimentelAllen RuckerKristen McCarthy ThomasBetsy Valnes
HUMOR WRITERSJeff CharleboisGeorge Covington, JDGene Feldman, JD
WEB EDITORJoy Cortes
GRAPHIC ART/ILLUSTRATIONScott JohnsonKeriann Martin Melissa Murphy - Medical Illustration
PHOTOGRAPHYNancy Villere -CrushPhotoStudios.com
The views expressed in this issue maynot be those of ABILITY MagazineLibrary of Congress Washington D.C. ISSN 1062-5321
Copyright 2009 ABILITY Magazine
DIRECTOR OF BUSINESS AFFAIRSJohn Noble, JD
MARKETING/PROMOTIONSJo-Anne BirdwellJacqueline MigellAndrew Spielberg
NEWSSTAND CIRCULATIONJohn Cappello
NON-PROFITSABILITY Awareness/Fuller CenterHabitat for Humanity
6 SENATOR HARKIN The Community Choice Act
8 HUMOR Blame Bin Laden
10 ASHLEYS COLUMN International Language of Pizza
12 ADVENTURE SKILLS More Than a Workshop
14 LISE COX The Blind Leading the Blind
16 HSIEN HAYWARD Volunteering, Travel and Bulls
18 KATRINA Stormy Stories
28 GEORGE COVINGTON A Brush With Andy
30 DRIVEN Beyond an Accessible RV
34 DEF LEPPARDS Rick Allen Tapping Drum Therapy
43 PERFECT CIRCLES One-of-Kind John Michael Stuart
46 OBAMA SIGNS Kennedys Act Expanding Community Service
50 TERRI CHENEY Bipolar or Mood Rainbow Disorder
58 HAWAII Wheels To Water
62 CROSSWORD PUZZLE Guess Your Best!
64 EVENTS & CONFERENCES
74 SUBSCRIBE TO ABILITY MAGAZINE
ABILITY Magazine is published bimonthly by C.R. Cooper, 8941 Atlanta Ave. HB, CA 92646(ISSN 1062-5321) All Rights Reserved.
Subscriptions: $29.70 per 1 year (6 issues). Periodicals postage rates at Irvine, CA and at additional mailing offices.POSTMASTER: Send address changes to ABILITY Magazine, Attention Subscriptions Manager,
PO Box 10878, Costa Mesa, CA 92627; Volume 2009 Def Leppards Rick Allen June/July
Printed in U.S.A.
Rick Allen and Lauren p. 34
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Edward M. Kennedy Serve America Act
Terri Cheney p. 50
International Volunteer p. 16
Volunteering Blind p. 14
Ashley Fiolek p. 10
ABILITY 5ABILITY 5
The ABILITY Build programoutreaches to volunteerswith disabilities to helpbuild accessible homes forlow income families. We arecurrently seeking corpora-tions, organizations andchurches to sponsor morehomes. This award-winningprogram builds homes andawareness, changing thelives of everyone involved.
program, the allowable expenses under the program areoften capped on a monthly or yearly basis. Sometimesthese capped amounts may not be sufficient for an individ-ual with a disability, due to the nature of the services andsupports that are necessary to live in the community. Orthe services may be capped in other ways, such as limitedenrollment, limited services, limited disabilities, limitedages, or de facto exclusion of particular conditions.
The vast majority of people prefer to remain in their com-munity and receive the assistance they need with dailyliving at home. This is true for people with physical dis-abilities, intellectual and developmental disabilities. Theability to choose to receive community based servicesand supports is critical to allowing people to lead inde-pendent lives, play an active role in day-to-day familylife, have jobs and participate in their communities.
My bill, the Community Choice Act, simply requires thatall Medicaid eligible individuals with disabilities have achoice between receiving care at home or in an institution.
The Community Choice Act requires that Medicaidrecipients with conditions serious enough to qualify foran institutional level of care must be given access topersonal care services in the community, even in statesthat do not currently offer these services or offer them toa limited population. Personal care services under theCommunity Choice Act include help with accomplish-ing the activities of daily living such as dressing,bathing, grooming and eating; and help with instrumen-tal activities including shopping, chores, meal prepara-tion, finances and health related functions. At the sametime, the combination of financial eligibility limitationsand requirements on the severity of the condition underMedicaid impose realistic limitations on these govern-ment funded services.
Studies show the cost of providing services at home orin the community is much lower than in an institutional-ized setting; that, because providing home and commu-nity based care services is less expensive than nursinghome care, it allows more people to be served; and thatuse of home and community based services can slowgrowth in Medicaid spending.
Addressing our vast unmet long term care needs in thenear future is critical. It needs to be a part of health carereform. The Community Choice Act has the potential notonly to genuinely reduce the numbers of people with dis-abilities living in institutionalized settings, but also toreduce or delay nursing home admissions and to allowmore individuals to receive needed personal care services,while providing Americans with disabilities choice aboutwhere to receive the services and supports they need.
Senator Tom Harkin
The Community Choice Act: Change We NeedIn 1990, Congress overwhelmingly passed the Ameri-cans with Disabilities Act (ADA). The ADA sets outfour goals to truly bring people with disabilities into themainstream of society: equal opportunity, full participa-tion in the community, independent living and economicself-sufficiency. Nine years later, the United StatesSupreme Court, in the Olmstead v. L.C. decision, madeclear that the ADA gives individuals with disabilitiesthe right to make the choice to receive their care in thecommunity rather than in an institutional setting (a nurs-ing home or intermediate care facility for the intellectu-ally disabled). This year marks the 10-year anniversaryof the Olmstead decision.
Unfortunately, 10 years later, federal law still onlyrequires that states cover nursing home care in theirMedicaid programs. There is no similar requirement thatstates provide eligible Medicaid recipients home andcommunity based care services. As a result, individualswith significant disabilities often face the untenablechoice of either receiving their necessary care in a nurs-ing home or other institution, or receiving no services atall. This is unacceptable.
The statistics are even more disproportionate for adultswith physical disabilities. In 2007, 69 percent of Medic-aid long-term care spending for adults with physical dis-abilities paid for institutional services. Only 6 statesspent 50 percent or more of their Medicaid long-termcare dollars on home and community-based services forolder people and adults with physical disabilities whilehalf of the states spent less than 25 percent. This imbal-ance continues even though, on average, it is estimatedthat Medicaid dollars can support nearly three adultswith physical disabilities in home and community-basedservices for every person in a nursing home.
Although every state has chosen to provide certain ser-vices under home and community-based waivers, theseservices are unevenly available within and across states,and reach a small percentage of eligible individuals. Indi-viduals with the most significant disabilities are usuallyafforded the least amount of choice, despite advances inmedical and assistive technologies and related areas. Inmany states there are significant waiting lists for thesewaivers, and this often results in the worsening of currentdisabling conditions or the exacerbation of secondary con-ditions. Even after one is deemed eligible for a waiver
There is a dying art in the world today. It is calledtaking responsibility for ones own actions. It usu-ally means that you were wrong doing something.But, come on, who wants to ever admit they were wrong?
I must admit, irresponsibility is a big peeve of mine. Thereason why is because, simply put, Im a responsibleguy. I make my bed. I do the dishes. I pay my taxes and,you know what? I dont want to, but unfortunately, thatspart of being a grown up. Im tired of cleaning up every-one elses sloppy life choices. I wouldnt mind going outevery night and getting hammered and sleeping all day. Iwould like to buy things I cant afford then file bankrupt-cy and let the tax payers take on my responsibility to payfor it. Is it my job to pay for your healthcare becausesome drug like heroine was calling your name? I havekids, and believe me its not always a day at the beach.But as much as I hate to admit (at times), Im responsiblefor them. Responsibility means playing by the rules andaccepting the consequences for your actions.
In the olden days, your name meant a lot, and peoplewould do everything they could not to tarnish it. If theyborrowed money, often over a handshake, they would dowhat they needed to alleviate the debt. Rather than belabeled a deadbeat they would sell the cow, buggy wagonor the plowing horse. Crazy, isnt it? Paying back adebtan often overlooked trait but responsibility helpedbuild this country. Back then, kids learned responsibilityearly in life. They had to do crazy things like chores, notso they could get money to buy something cool to playwith, but because it was expected of the household. Theygave whoopings back then. It was amazing how quickly achild learned responsibility. Today you cant spank yourkid, or youll be held responsible for trying to teach himhow to be responsible.
Its not just individuals who bear the burden of recklessbehavior but also society. When you live in an irrespon-sible world, anything goes. I know its hard to believebut when you toss a lit cigarette out the window it canstart a brush fire. Do us a favor and just swallow it. Asfor you litterbugs, I know you think the world looksprettier with your fast food wrappers decorating thelandscape, but youre no Renoir. Keep your art in thegarbage can where it belongs, otherwise it gets sweptinto our water systems. I dont like when a Burger King
wrapper touches my leg when Im swimming in theocean, I think its a jellyfish. I know its cumbersomebut walk those ten meters to a trash can. Who knows?You might even find something good to nibble on.
Im not seeing much responsibility in this generation.Society has provided outs for our detrimental actions.If you drink too much, youre considered to have anuncontrollable disease. If you cheat on your spouse, youcouldnt help it because youre a sex addict. Every otherradio commercial is a company offering to get sixty per-cent knocked off your credit card bill because you putyourself in debt. After all, why should you be responsi-ble for paying for your big screen television? Thats out-rageous! Its not your fault that the store let you slap iton your Visa.
We feel sorry for actors or sports figures that fall to thetemptations of stardom, whether it is drugs, booze, strip-pers or some incident with a hand gun. That poor super-model that blows up and throws her cell phone at somepoor assistants squirrely head because he forgot to fillthe bowl in the hotel room with just green M&Ms.Yeah, it wasnt her fault she was just having a badBotox day. If anyone should act responsibly, its thesecelebrities. They have been blessed with talents thatmake them a lot of money. But every day we hear aboutsome wacky behavior that brings them more publicitythan their last movie. Then we feel sorry for them, offerour forgiveness, cheer their climb back to the top, thenwatch them take a tumble again. If only the worldshowed us the compassion and forgiveness we give ourstars for their irresponsibility.
Why should we be responsible for our own actions?Personally, I dont like responsibility. It holds meaccountable for all the things I do. But when I screwupand I do a lotI take the experience and do mybest to learn from it. Instead of excuses, I try and makeamends. Its part of growing up. (I know, who wants todo that?) Responsibility makes you a better person. Youstart thinking of others instead of yourself. It is a pathtowards ones best. Winston Churchill once said theprice of greatness is responsibility. And we should allstrive to be great in our own way.
I have learned in life that the more responsible I am,the fewer headaches I have down the line. Anothergreat leader, Abraham Lincoln, stated, You cannotescape the responsibility of tomorrow by evading ittoday. That cat was right. With quotes like that, heshouldve been president.
So the next time you feel like mumbling that old stan-dard catch phrase of It wasnt my fault. Think aboutit. The world needs better people and you start becom-ing better by accepting responsibility for what you do.We cant always blame Bin Laden. If you think this arti-cle is a piece of junk, well, as much as I hate to admit toit, Im responsible for it.
by Jeff CharleboisHam on a Roll
Hello everyone, I just wanted to introduce myselfbefore I start on my first column for ABILITYMagazine. My name is Ashley Fiolek, I am 18years old, I was born deaf and I live in St. Augustine,Florida. I am a womens professional motocross racer,and I race the WMA (which is a series of races here inAmerica) and the FIM (which is a series of races inEurope).
Ive been riding since I was about 3 years old, but Ibecame really interested in racing and wanted to racewhen I was 7. I have been racing for over ten years now,and it is my life!
I want to say I am excited to get the chance to write acolumn for ABILITY Magazine; hopefully I can bring allof you into my race world and you will better under-stand the sport I love: motocross!
Last year I started going to Europe to race. I was racingwith girls from all over Europe. Some spoke French someItalian, German...various different languages. There wasnot really a common language, so for the first...