a road map to involving patients in your research - university of bath...
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WELCOME AND INTRODUCTION
A ROAD MAP TO INVOLVING PATIENTS
IN YOUR RESEARCH
Tony Miles
Department of Mechanical Engineering
PPI
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CENTRE FOR ORTHOPAEDIC
BIOMECHANICS
RESEARCH FOCUS
ENGINEERING SCIENCE - CLINICAL ORTHOPAEDICS
To address the physical interface between engineering design, mechanics and materials
with the biological materials and structures of the musculo-skeletal system
University of Bath and University of Bristol
Affiliated to:
Institute of Orthopaedics and Musculo-Skeletal Science, UCL
Princess Elizabeth Orthopaedic Centre, Exeter
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PATIENT PUBLIC INVOLVEMENT IN
HEALTHCARE
“patient and public involvement in healthcare”
19,300,000 hits!!
BMJ. 2004 January 17; 328(7432): 159–161
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PATIENT AND PUBLIC INVOLVEMENT
What is patient and public involvement?
• Gives people the chance to:
– Influence their own care and treatment
– Have a say in the way services are planned and run
– Help bring about improvements to the way care is provided
Who are patients and the public?
• People who use, or have used, health or social care services.
• Carers and families.
• Healthcare professionals.
• Members of the general public.
• Organisations which represent users of NHS services and
community groups.
http://www.bma.org.uk/patients_public/toolkitforpatientandpublicinvolvement.jsp
We are all actual (or potential) patients!
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PATIENT AND PUBLIC INVOLVEMENT
Why should patients be involved?
•Patients are central to everything we do
•To improve clinical care and the overall experience patients
receive
•Listening to patients will help deliver a better service
•Involving patients in their own care will help to reduce health
inequalities
•Patients and the public should be involved in the planning,
monitoring and development of health services
http://www.bma.org.uk/patients_public/toolkitforpatientandpublicinvolvement.jsp
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HEALTHCARE SPENDING/CAPITA
The rise in costs of healthcare delivery is unrelenting and…….
unsustainable in its present form!
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ECONOMICS OF HEALTHCARE
• Healthcare is worlds largest industry
• USA 16.2% GDP, Germany 11.6% UK 9.6%
• Increasing aging population: – In 2000, estimated 180,000 centenarians
in world by 2050 projected number is 3.2 million!
• Increasing expectations on quality of life
Three ages of man
Youth Middle age Gosh you’re looking well!!
1950
1990
2030
80+
45-50
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Millennium patient
longevity activity profile
MILLENIUM CHALLENGE
Increasing expectations!
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• Patient demographics are changing
• Today’s patients are:
– 20% heavier
– More physically active
– More likely to be female
– 25% longer life expectancy
– Web based educated rather than
peer review
• Expectations are different
NEW PATIENTS : NEW CHALLENGES
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FUTURE DIRECTIONS
PATIENTS
• More personal responsibility
• Life style
• Diet
• Personal care - maintenance
PUBLIC
• Provide adequate healthcare
resources
• Health monitoring
• Provide appropriate
education
Team Approach
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FUTURE DIRECTIONS
RESEARCH OPPORTUNITIES
• New and smart technologies
• Early diagnosis (and early
intervention?)
• Provide responsible information
• Involve clinicians in research
• Educate patients and healthcare
providers
• Demonstrate cost benefits
• Influence government and
healthcare providers
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PUBLIC LECTURE
“Replacement Joints
History and Research”
OCTOBER 2004
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EXAMPLE OF GROWTH IN JOINT
REPLACEMENT 2005-2030 USA
Primary Joint Replacement Revision Joint Replacement
Kurtz et al JBJS: 89A:780-785, (2007)
• Steady growth in primary hip replacement and exponential (sevenfold)
growth in knee replacement
• Significant increases predicted in revision hip and knee replacement
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VICTORIA’S STORY
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CHOOSE YOUR SURGEON!
Ultimately the quality of the surgery is the biggest determinant of the outcome!
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PROFESSOR IAN LEARMONTH
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BEFORE SURGERY
What I looked like before my surgery my hip joints were near my waist!
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AFTER SURGERY!
QUOTE FROM PROF IAN LEARMONTH
“Surgery contributes only in part to a successful outcome. The contribution of
nurses, physiotherapists and occupational therapists cannot be underestimated.
Probably the most important factor determining a good outcome is the mental
strength, resilience, determination and commitment of the patient. Victoria has all
of these.
It is with humility that I reflect on what a great privilege it is to contribute to relieving pain and restoring function in a young woman in
the prime of her life”. 2 inches taller!
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SUMMARY
CHALLENGES
• Unsustainable growth in healthcare expenditure – taxation, private health insurance
• Changing demographics of patients – fitter,bigger, increased life expectancy
• Political and Company led agendas – performance targets, league tables, misleading advertising etc
• Dramatic rise in patient demands/expectations – lifestyle choices, activity levels, lifespan etc
OPPORTUNITIES Patient Public Involvement
Team approach
• Education and information
• Better informed research agendas
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ENJOY THE DAY!