A Promotoras Training Model

Michael V. Maloney Executive Director Organization for Autism Research www.researchautism.org

Organization for Autism Research Founded in 2001

Mission:

Research - Quality of life

Information – Evidence-based/consumer friendly

Education – State of the science/translational

One of four original CDC autism partners

Learn the Signs. Act Early. Campaign

Latino Outreach – Initial Concepts October 2006 – Board discussion

Make OAR’s resources accessible to Latinos

Translate English to Spanish

Life Journey through Autism resource guides

Web site

No $$$$

Develop concept, raise funds, implement

Learn the Signs. Act Early. December 2006 grant opportunity

A different entry point

Developmental milestones pre-autism

Three challenges

Culture

Language

Approach

OAR’s Team KDH Research & Consulting

Kristen Holtz, PhD

Autism/LSAE program design experience

Atlanta based

Fusión mc

Ana Maria Boitel

Language and culture

Community insight/research

Dia de la Mujer Latina – Venus Ginés

Initial Planning Objectives Target young parents in Latino community

Develop a model for community support

Adapt materials to language and culture

Adapt approach to existing systems

Examine communication networks

Develop a strategy and plan of action

The Plan Comes Together Promotoras – lay health workers

Trusted community members

Established healthcare role

Speak the language

Georgia

3rd fastest growing Latino population in the U.S.

Location of KDHRC and CDC

Dia de la Mujer Latina – Venus Ginés

Empowering Promotoras Educate on developmental milestones and warning

signs of autism

Train for outreach

Provide clear, easy to use materials

Test in community-based setting

Training Program Five hour syllabus

Spanish-speaking trainer

Pre- and post- tests

Introduction of materials/tool kit

Practice outreach

Recognition

Promotora Training Guide

Information for the Facilitator Goals and objectives

Use of promotoras in health promotion programs

Recruiting promotoras

Scheduling the training event

Preparing for the training event

Know your material

Facilitation tips

Training Syllabus Welcome/training overview

Introduction to developmental milestones

Developmental milestones and autism

Conducting outreach during a health fair (brief encounter)

Conducting outreach during clinic visits (longer encounter)

Referral information and review

Supporting Tabs Flipchart templates Agenda and Objectives Handout/La Agenda y los Objetivos Autism Spectrum Disorders Fact Sheet/ Hoja informativa sobre los

trastornos del espectro autista Milestone Matching Worksheet and answer key/ Identificación de

Indicadores Outreach Approach Handout/Manual de cómo Atraer la Comunidad Health Fair Scenarios Handout/ Guión con Escenas de las Ferias de

Salud Clinic Visit Scenarios Handout/Manual de Escenas sobre Visitas

Clínicas Referral Information Handout/Manual de Referencia de Información Ethical Pledge/Manual de Compromiso de Comportamiento Certificate of Completion

Flip chart - Spanish

Flip Chart English

Refrigerator Magnet

Community Outreach Feria de la Familia – Cobb County, Ga.

Community health focused

2,000 – 3,000 people

Festival atmosphere

Partnered with Dia de la Mujer Latina

14/18 Promotoras - 500 direct contacts

Feria de la Familia – Washington, DC, Dec.

Exámenes de Dientes

Dental Exam

Exámenes de Diabetes

Diabetes Test

Vacunas para niños

Immunizations for Children

Colesterol/cholesterol

Charlas y Talleres sobre

temas de salud/health

education

Exámenes de la Vista

Vision Test

Sábado- Saturday

4 de Agosto

9:00 AM - 1:00 PM

Cobb Civic Center

528 South Marietta Parkway. Marietta, GA 30060

Ven y disfruta de este día lleno de valiosa información y

servicios de salud totalmente GRATIS

para toda la familia.

!Habrá mucha diversión, música y regalos!

Exámenes de Seno

Breast Exam

Mamogramas

Mammograms

Papanicolau

Pap Smear

Presión Arterial

Blood Pressure

Pruebas VIH/ HIV Tests

Exámenes de la

Columna

Spinal Test

Presented by:

Univision 34 y Día de la

Mujer Latina

For more information please contact Paola Salazar at (404) 926-2304

or pasalazar@univision.net.

Results/Conclusions Latino community is very receptive

Training package was effective

Health fairs work for the broad message

The Promotoras model has significant potential and some limits

OAR’s program will support broader outreach

Lessons Learned Spanish translation is not enough

Information and message must be adapted to culture and the local/target Latino community

Many countries and cultures represented

Beware of stereotypes

Outreach requires a multi-faceted approach

Success through community partnerships

Need to know more

Next Steps Obtain funds for program expansion

Increase capacity of language/culturally adapted resources

Life Journey through Autism guides – Autism Speaks grant

Informational brochure

Flip charts and magnets

OAR Web site

Next Steps (Cont.) Secondary research on cultural biases, barriers, and

stigma

Develop and test new resources

Expand Promotora Training program

Expand community outreach in DC and GA

Fin Preguntas?