A new Italian A new Italian information resource information resource

on Bioethicson Bioethicsand its integration and its integration

with other European with other European systemssystems

Maurella Della Seta and Scilla Maurella Della Seta and Scilla PizzarelliPizzarelli

Documentation Service Documentation Service

Italian National Institute of HealthItalian National Institute of Health

IntroductionIntroduction

Developments in science, medicine Developments in science, medicine and technologyand technology

Ethical dilemmasEthical dilemmas

Information tools can ensure the Information tools can ensure the exchange of knowledge and ideas exchange of knowledge and ideas and encourage moral reflectionand encourage moral reflection

Definition of BioethicsDefinition of Bioethics

A field of study concerned with value A field of study concerned with value questions that arise in health care, in the questions that arise in health care, in the professional patient relationship and in professional patient relationship and in biomedical research biomedical research

Medical ethics (including rights and Medical ethics (including rights and duties of health professionals and duties of health professionals and patients) patients)

Social impact of biomedical, behavioural, Social impact of biomedical, behavioural, genetic research and technology.genetic research and technology.

Where can I find information Where can I find information on Bioethics?on Bioethics?

Bioethics has an interdisciplinary Bioethics has an interdisciplinary nature, involving science, law and nature, involving science, law and philosophyphilosophy

Updated and reliable information is Updated and reliable information is required not only by scientists, but required not only by scientists, but also by citizens and patientsalso by citizens and patients

Information is scattered through a Information is scattered through a variety of sourcesvariety of sources

Our ProjectOur Project

Started in 2001Started in 2001Aim: implementing an integrated system Aim: implementing an integrated system

for data collection and exchange of for data collection and exchange of documents related to bioethics documents related to bioethics

Survey through a questionnaire sent to Survey through a questionnaire sent to about 200 institutions, assessing the state about 200 institutions, assessing the state of the art of Italian information resourcesof the art of Italian information resources

Analysis of available Italian Web resourcesAnalysis of available Italian Web resources

SIBIL: the web siteSIBIL: the web sitewww.sibil.iss.itwww.sibil.iss.it

SIBIL collects data from printed and SIBIL collects data from printed and electronic sourceselectronic sources

Information on courses, educational Information on courses, educational programs events and congressesprograms events and congresses

News section on the national ethical News section on the national ethical debatedebate

Links to other relevant web sitesLinks to other relevant web sites

SIBIL home pageSIBIL home page

The SIBIL DatabaseThe SIBIL Database Almost 5,000 records Almost 5,000 records References fromReferences from

Journal articlesJournal articles (from 84 journal titles) (from 84 journal titles)

Books and book chaptersBooks and book chapters

Laws and regulationsLaws and regulations (some of them in full (some of them in full text) text)

Selection of international legislationSelection of international legislation

Electronic resourcesElectronic resources

Ethical committee opinionsEthical committee opinions

Ethical guidelinesEthical guidelines

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Journalarticles

Book chapters Books Serial titles Laws Electronicresources

Information sources in the SIBIL database

The SIBIL database home The SIBIL database home pagepage

Record sample – Journal Record sample – Journal articlearticle

The Refine Search formThe Refine Search form

Monograph recordMonograph record

Book ChapterBook Chapter

An indexing tool:An indexing tool:the Italian Bioethics the Italian Bioethics

ThesaurusThesaurusDeveloped by a team of bioethicists, Developed by a team of bioethicists,

physicians and information physicians and information professionals professionals

Derived from Bioethics Thesaurus - US Derived from Bioethics Thesaurus - US Kennedy Institute of Ethics (originally Kennedy Institute of Ethics (originally including about 800 terms)including about 800 terms)

It includes now over 1600 descriptors It includes now over 1600 descriptors linked by semantic and hierarchical linked by semantic and hierarchical relationships relationships

Scope notes in ItalianScope notes in Italian

Italian – English versionItalian – English version

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DEATH ANDDYING

REPRODUCTION ASSISTEDREPRODUCTIVETECHNOLOGIES

ENVIRONMENTALETHICS

HEALTH CAREAND PUBLIC

HEALTH

PROFESSIONALPATIENT

RELATIONSHIP

BIOETHICS -CLINICAL ETHICS- PROFESSIONAL

ETHICS

MAIN AREAS OF CONCERN IN THE BIOETHICS DEBATE IN ITALY, AS REFLECTED IN THE SIBIL DATABASE

Bioethics debate in Italy Bioethics debate in Italy

Assisted reproductive technologiesAssisted reproductive technologiesArtificial Insemination, Cloning, In Vitro Artificial Insemination, Cloning, In Vitro

Fertilization and Surrogate MothersFertilization and Surrogate MothersDeath and dyingDeath and dying

Euthanasia, Advance directives, Euthanasia, Advance directives, Resuscitation ordersResuscitation orders

Environmental EthicsEnvironmental EthicsEmerging topic in ItalyEmerging topic in Italy

SIBIL and its possibleSIBIL and its possibleEuropean integration - 1European integration - 1

EURETHNET (European Information EURETHNET (European Information Network Ethics in Medicine and Network Ethics in Medicine and Biotechnology) – 2002-2004 Biotechnology) – 2002-2004

Development of an information Development of an information network integrating databases and network integrating databases and other information resources in the other information resources in the field of European ethics in medicine field of European ethics in medicine and biotechnology.and biotechnology.

Internet portal, database network, Internet portal, database network, multilingual thesaurusmultilingual thesaurus

SIBIL and its possibleSIBIL and its possibleEuropean integration -2European integration -2

2004 - FASTER2004 - FASTER - - Feasibility study for Feasibility study for an Advanced Systematic an Advanced Systematic documentation, information and documentation, information and communication Tool in the field of communication Tool in the field of Ethical issues in science, Research Ethical issues in science, Research and technologyand technology

Infrastructure for a European Infrastructure for a European networknetwork

SIBIL in the framework of aSIBIL in the framework of aEuropean NetworkEuropean Network

With a view to European integration, With a view to European integration, the SIBIL database has been the SIBIL database has been conceived as a flexible tool for conceived as a flexible tool for international cooperationinternational cooperation

Important steps in this direction:Important steps in this direction:choice of a software allowing data choice of a software allowing data

exchangeexchangeEnglish translation of the web site English translation of the web site

and of the thesaurus and of the thesaurus

The SIBIL teamThe SIBIL team