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Emerging Practices for Supporting Students on the Autism Spectrum in Higher Education:
A Guide for Higher Education
Professionals
LeadInstitution
RochesterInstituteofTechnology
CollaboratingInstitutions
EasternUniversity
MercyhurstUniversity
RutgersUniversity--NewBrunswick
TheUniversityofTennesseeatChattanooga
UniversityofWestFlorida
WesternKentuckyUniversity
Consultant
CollegeAutismSpectrum
GuideContributors
LaurieAckles,Director,SpectrumSupportProgram,RochesterInstituteofTechnology
MartyBoman,Director,KellyAutismProgram,WesternKentuckyUniversity
JaneThierfeldBrown,Co-founder,CollegeAutismSpectrum
DouglasCornman,Coordinator,CollegeSuccessProgram,EasternUniversity
PamelaLubbers,ProgramCoordinator,CollegeSupportProgram,RutgersUniversity–NewBrunswick
BradMcGarry,Director,AspergerInitiativeatMercyhurst,MercyhurstUniversity
MichelleRigler,Director,TheMosaicProgram,TheUniversityofTennesseeatChattanooga
OtherContributors
NicoleBoulais,RochesterInstituteofTechnology
JoshuaBauroth,RochesterInstituteofTechnology
LornaBusch,RochesterInstituteofTechnology
VanneeCao-Nguyen,Director,StudentDisabilityResourceCenter,UniversityofWestFlorida
Disclaimer;Theviewsandideasexpressedhereinarethoseofthecontributorsanddonot
necessarilyreflectthoseofAutismSpeaksoranyotherinstitution.
FundingforthispublicationprovidedbytheAutismSpeaksFamilyServicesCommunityGrant.
EmergingPracticesforSupportingStudentsontheAutismSpectruminHigherEducation:AGuideforHigherEducationProfessionals
TableofContents
WhatIsAutismSpectrumDisorder?............................................................................2
UniqueStrengthsandChallengesofCollegeStudentswithASD.................................3
ExecutiveFunctioning AcademicSkills Self-Care SocialCompetence Self-Advocacy CareerPreparation
UniqueOpportunitiesandChallengesintheCollegeEnvironment.............................5
RightsandResponsibilities IndependentFunctioning
TakingAction:MitigatingStudentandEnvironmentalChallenges................................7
IndirectSupport:CreatingaWelcomingandSupportiveCampusClimate RaisingAwarenessandAcceptance TrainingtheCampusCommunity DevelopingCampusExpertise EnhancingExistingProgramsandServices DirectSupport:DevelopingTargetedServicesforStudentswithASD CoachingandMentoring TargetedInstruction TransitionProgramming SupportedLiving SocialProgramming StudentEmpowerment
Identifying a Campus Response to Support Students with ASD..................................12
GettingStarted:AssemblingaTaskForce IssuesofDisclosure ProfessionalDisclosure StudentDisclosure ConsiderationsfortheDevelopmentofaComprehensiveProgramModel EstablishingProgramAdmissionCriteriaandIntakeProcess ProgramStaffing ProgramFunding EvaluatingProgramSuccess
SupportModelPlanningWorksheet...........................................................................18
References.................................................................................................................23
ExistingComprehensiveProgramModels...................................................................24
Currently,onlyalimitednumberofcollegesacrossthenationofferspecializedsupportsthataddresstheneedsoftheincreasingnumberofcollegestudentsontheautismspectrumpursuingpostsec-ondarydegrees.However,the1in125childrendiagnosedwithanautismspectrumdisorder(ASD)in1996arestartingtoarriveatcollegecampuses,andmorerecentnumbersindicatethediagnosisratehasrisento1in68,overhalfofwhomwillhaveaverageoraboveaverageintellectualabilityandbecollege-bound(CDC,2014).Thesedramaticallyincreasingnumberswithinhighereducationwillchangethena-tureofhowwesupportstudents,yetthereisalackofinformationavailableconcerningeffectivesupportmodels.Toaddressthescarcityofinformation,thisguideincorporatestheideasandsuccessfulpracticesofhighereducationprofessionalsatpostsecondaryinstitutionswhohaveworkedwiththeiruniversitiestoestablisheffectivesupportsforstudentswithASD.ItisthegoalofthiscollaborativeefforttofacilitatethedevelopmentofpostsecondaryinitiativestoensurethatstudentswithASDwillfindsupportincampuscommunitiesnationwide.ThisguidewillprovidehighereducationprofessionalswithasystematicandpracticalresourcetoguidetheminthedevelopmentofauniversityspecificsupportmodelforstudentswithASD.What is Autism Spectrum Disorder? Thetwomaindistinguishingfeaturesofautismspectrumdisorder(ASD)aredifficultywithsocialcommunication,andrestricted,repetitivebehaviorsorinterests(DiagnosticandStatisticalManualofMentalDisorders;DSM-V,2013).Characteristicscommoninautismspectrumdisordersincludeareli-anceonrigidroutines,heightenedsensitivitytosensorystimuli,anddifficultyregulatingandexpressingemotions.Thesetraits,whichareunderstoodtohaveaneurodevelopmentaletiology,varygreatlyinpre-sentationandintensity,makingthisahighlyheterogeneouspopulation.Thisheterogeneityisalsoreflect-edintermsandlabelsusedovertime.Forexample,thetermsAsperger’sSyndrome(AS)andhighfunc-tioningautism(HFA)havehistoricallybeenusedtoreferencethoseonthespectrumwithmildautistictraits.ASDwasofficiallyrecognizedasadiagnosisinthe1990s,afterwhichtheincidencehascontinuedtorisedramatically.Therecentsurgeindiagnoses(to1in68)maybeduetoarisingawarenessofASD,broaderdiagnosticcriteria,or,assomehavespeculated,possibleexposuretobiologicalandenviron-mentaletiologicalfactors(Boyd&Shaw,2010).Whatevertherootcause,thegrowingprevalenceofASDcoupledwithincreasesinK-12supportsforthispopulationhasresultedinrapidlyincreasingnumbersofstudentswithASDenteringpostsecondaryinstitutions.Whilethesestudentsareoftenintellectuallycapableofmasteringcollegelevelcoursematerial,thechallengeswhichstemfromthecommoncharac-teristicsofASDcanposesignificanthurdlestothesuccessfulcompletionofapostsecondarydegree.Inaddition,itisimportanttonotethatmanystudentswithASDenteringcollegealsofallinthetraditional18-25yearoldcollegecohortandbringwiththemthesamedevelopmentalchallengesfacedbytheirpeerswithoutASD(typicallydevelopingpeers).Theseincludeidentity,cognitiveandmoraldevelopmentchallenges.Therefore,itisessentialtokeepinmindthecommondevelopmentalneedsofthisagegroupwhileunderstandingthedistinctneedsofthispopulationinordertohelpthemsucceedinpostsecondaryeducation,pursuetheircareergoals,andcontributetothediverseandskilledworkforceofthefuture.
What Is Autism Spectrum Disorder?
It is the goal to ensure that students with ASD find support in campus
communities nationwide.
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Unique Strengths and Challenges of College Students with ASD IndividualswithASDpossessuniquestrengthsthatcanhelpthemexcelinacademicsaswellasotherliferealms.Thesecharacteristicsoftenincludeahighmotivationtolearnwithinfocusedareasofinterest,apropensityforvisuallearning,skilledrotememory,andsuperiormathskills.Inaddition,theybringadiverseperspectivetoproblem-solving,canbemeticulousaboutperfectingtheirwork,haveaneyefordetail,andoftenhaveauniquelylogicalwayofthinkingthataffordsthemtheabilitytoarriveatpracti-calsolutions.WhilestudentswithASDarriveatcollegewithmanyfavorablequalities,certainskillsetsaretypicallyunderdevelopedandthereforenegativelyimpactthetransitionintoandpersistencethoughcol-legeaswellastheirpost-collegeplacementintheworkforce.TheseskillsetshavebeencategorizedandgroupedintosixdomainsinordertohelpthereaderbetterunderstandtheprominentareasofchallengeandultimatelytoassisthighereducationpersonnelinchoosingpracticesthatmightmosteffectivelyhelpstudentswithASDreachtheirpotential.Thesixdomains,whichhavebeenidentifiedbyreviewingexistingliteratureandbyconsultingwithexpertsinthefield,include:ExecutiveFunctioning,AcademicSkills,Self-Care,SocialCompetence,Self-Advocacy,andCareerPreparation.
Executive Functioning Executivefunctioningreferstothecognitiveprocessesthatallowforgoal-directedactivity.Theseprefrontalcortexcapacitiesincludeorganization,workingmemory,complexproblemsolving,sustainedattention,andself-regulation(Parker,D.R.&Boutelle,K.,2009).Deficitsinexecutivefunction-ingcanmakedailytasks,suchasorganizingacademicwork,challengingandcanalsomakeitdifficulttocontrolemotionalandbehavioralimpulses. IndividualswithASDpossessvaryingdegreesofexecutivefunctioningdeficit,whichcanmakeitdifficulttoadapttotheorganizationalaspectsofindependentlivingandself-directedlearningrequiredforcollegesuccess.Whileoftenfullycapableofmasteringcoursecontent,thesestudentssometimesstruggletocarryouttheactions(e.g.,planning,prioritizing)necessarytoinitiateandcompleteacademicwork.Duringhighschool,consistentsupport,oversightandguidancefromfamilyand/orschoolpersonnelmayhavefacilitatedsuccess;however,inthepostsecondaryworld,theseexternalsupportsareoftenlimitedornolongerreadilyavailable.
Academic Skills Academicskillsrefertospecificstrategiesandtechniquesthatenablesuccessfullearningandaca-demicprogress.Examplesincludetestpreparation,note-taking,textbookreading,library/researchskills,writingcompetency,andworkingwithinone’slearningstyle. Foralltransitioningcollegestudents,aninitialadjustmenttotherigorofcollege-levelcourseworkiscommonandexpected.Typicallydevelopingstudentsadaptbymonitoringacademicprogressandapplyingnew studytacticswhennecessary.Ontheotherhand,studentswithASD,manyofwhomhavesuccessfullynavigatedhighschoolacademicswithrudimentaryacademicstrategies,canstrugglewitharigidtendencytostickwiththefamiliar.Thistendencycanlimittheflexibilityneededtochangelearningmethodsandapplynewstrategiesinresponsetovariedteachingstylesordiverseacademicdisciplines.Althoughtheyoftenpossessstronglanguageskills,collegestudentswithASDmaystrugglewithcollege-levelwritingduetoproblemswithorganization,abstractlanguage,andperspectivetaking,aswellaspracticallimitationsresultingfromunderdevelopedfinemotorcoordination.Withoutspecificinstructionintheseareas,studentswithASDcanstrugglewithlearningandapplyingthestrategiesnecessaryforaca-demicsuccess.
Self-Care Self-careinvolvesmaintainingone’spersonalwellness,includingsleep,hygiene,exercise,nutri-tion,sensoryintegration,stressmanagement,medicationmanagementandbudgeting.Inessence,thisdomaincorrespondstocultivatingoptimalwell-beingandtakingresponsibilityforone’shealth. Whilethetransitionfromchildhoodtoadulthoodrepresentsatimeinwhichindividualsgraduallytakeownershipofprovidingfortheirownneeds,studentswithASDmayneedadditionaltimetode-velopindependenceintheareaofself-care.StudentswithASDfrequentlystruggletomaintainconsistent
Unique Strengths and Challenges of College Students with ASD
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hygieneandsleeppatternsandmayhavedifficultyindependentlymanagingmedicationsnecessaryforfocusandstabilityofco-occurringconditionssuchasattentiondeficitdisorders,anxiety,anddepres-sion. Asaresult,studentswithASDmaystruggletofunctionadequatelyenoughtomeetexpandingacademicresponsibilities.Collegelifeisalsofullofnewandvariedstimuli(e.g.,firealarms,crowdeddininghalls,constantsocialization,etc.)thatmakeitparticularlydifficultforthosewithsensoryintegra-tionchallenges.Withouteffectivewaystohandlesensoryoverloadandotherstressors,studentswithASDcanbecomeoverwhelmedandmayresorttofamiliarself-soothingtendencies,suchasrockingorpacing.Thesetendenciescouldbeperceivedassociallyinappropriate,leadingstudentswithASDtobecomeincreasinglyisolatedfrompeers.
Social Competence Socialcompetencereferstotheabilitytorelatetoothersandisaffectedbyhowanindividualunderstandsandrespondstoverbalandnonverbalcommunication.Includedinthisdomainaretheinterpretationofothers’thoughtsandfeelings,socialreciprocity,andcomprehensionoflanguagepragmatics(Tager-Flusbert,1999).Inessence,socialcompetenceistheabilitytogetalongwithothers;acriticalskillforestablishingandmaintainingpersonalandprofessionalrelationshipsbothduringandafterthehighereducationexperience. Whilemostpeopledevelopmasteryoftheintuitivenatureofsocialinteractioninearlychild-hood,thoseontheautismspectrumoftendon’tformthesameunderstandingofsocialrelatednessorpossessthesamesocialskillset(Stichter,et.al,2010).ThisdeficitmakesnavigatingthesociallyladenatmosphereofcollegeparticularlydifficultforstudentswithASD.Challengeswithinitiatingconversa-tionsandtheinabilitytoreadsocialcuesleadstofailedattemptstoconnectwithpeersandultimatelycontributestoisolationandloneliness.StudentswithASDalsotendtointerpretcommunicationliter-ally,makingitdifficulttounderstandsarcasm,aswellassocialandclassroomnorms.Additionally,studentswithASDoftenpossessexcellentvocabulariesandcanappearhighlyarticulate,whichcanleadothers(peers,faculty,oradministrators)tomisinterpretsocialdifficultiesasdisrespectorindiffer-ence.
Self-Advocacy Self-advocacyreferstoknowingandcommunicatingone’sneedswhileunderstandingcorre-spondingrights,responsibilitiesandresources(Brinckerhoff,L.C.,1994).Paramounttosuccessinthisdomainareself-awareness,thecapacitytoanticipatechallenges,andtheabilitytoaccessappropriateresources. Throughouttheprimaryandsecondaryeducationalprocess,parentsand/orschoolpersonneloftenidentifyandplansupportsforstudentswithASD,providinglittleopportunityforthesestudentstodevelopandpracticetheself-advocacyskillsnecessaryatthecollegelevel.Thisbecomesachallengeinthecollegeenvironmentastheprocessforrequestingaccommodationsandaccessingsupportservicesrequiresassertiveindependentactiononthepartofthestudent.Additionally,difficultieswithplanning,personalflexibility,andsocialcommunication,makeithardforstudentswithASDtorecognizehowandwhentoaskforhelp,oftenresultinginafailuretoaccessadequateandtimelysupport.
Career Preparation Careerpreparationreferstovocationalexploration,thejobsearchandapplicationprocesses,aswellasgainingappropriateworkexperience.Includedinthisdomainaretheskillsofnetworking,resume-writing,interviewing,andnavigatingthesocialworldofwork.Theimportanceofcareerdevel-opmentduringthecollegeyearscannotbeunderestimatedgiventhatsecuringfulfillingemploymentisoneoftheultimategoalsofhighereducation. Whilepostsecondaryinstitutionsareintegratingcareerpreparationinitiativesatearlierstagesofthecollegeexperience,theseinitiativestypicallyfailtoaddressthespecificchallengesofindividu-alswithASD,whooftenfindthemselvesunderemployed(Wehmanetal.,2014).Collegeeducated
Unique Strengths and Challenges of College Students with ASD
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studentsontheautismspectrummaystruggletotransferknowledgeandskillstoemploymentsettings.Inaddition,theirsocialinteractionstylecanunderminetheirchancesofsuccessinaninterview,wherecan-didatefitisoftenbasedon“soft-skills”(e.g.,personalcharacteristicsandinterpersonalrelations)ratherthanmeasurableskillsoreducationalbackground.Oncehired,theindirectsocialcontextofworkcanbeconfusingandsensoryintegrationissuescanmakeitdifficulttofunctioninworkenvironmentswithoutappropriateaccommodationsandsupportivemanagement. EachindividualstudentwithASD,liketheirtypicallydevelopingpeers,enterscollegewitha uniquesetofstrengthsandchallenges.ThedomainsdescribedaboverepresentsomeofthemostprevalentareasofconcernasstudentswithASDtransitionintoandstrivetofindsuccessincollegeandbeyond.Additionally,it’simportanttoconsidertherealitiesofthecollegeenvironmentthatmaypresentfurtherchallenges,addingtothedifficultiesthatsomestudentshaveinearningapost-secondarydegree.Someofthesefactorsareaddressedinthefollowingsection.
Unique Opportunities and Challenges in the College Environment Institutionsofhighereducationhavedevelopedsupportstructuresandcommonpracticesinresponsetothevaryingneedsofcollegestudents.Forexample,manycollegeshavewritingcenterstoaidstudentsinthedraftingprocessforcourseassignments,tutorservicestoassiststudentsinmasteringcollegelevelcontent,andcounselingcenterstoaddressthementalhealthneedsofstudents.Campusdisabilitycentersensureequalaccessforstudentswithdisabilitiesandmulticulturalcentershelpenhancethecollegeexperienceforstudentsfromdiverseethnicandculturalbackgrounds.Evenwitharobustframeworkofservices,studentswithASDoftenstruggletoadjusttothecomplexitiesofnavigatingacol-legesystemandthereforedon’tbenefitfromthetraditionalsupportstructures.Addingtothechallengeforthispopulationisadjustingtothecomplexshiftfromhighschooltocollege.Thistransitionincludeschangesinlegalmandatesthatimpactastudent’srightsandresponsibilitiesaswellasadjustmentstoanewandincreasedlevelofindependentfunctioning.
Rights and Responsibilities Therightsandresponsibilitiesforstudentswithdisabilitieschangeconsiderablyuponenteringpostsecondaryeducation.Inhighschool,theIndividualswithDisabilitiesEducationAct(IDEA)empha-sizesstudentsuccess,andguaranteesafreeandappropriateeducationintheleastrestrictiveenviron-ment.Schooldistrictstakeresponsibilityforidentifyingstudents’needs,determiningmodificationsandimplementingaplanforsuccessbasedonastudent’sIndividualizedEducationPlan(IEP).Inhighschool,accommodationsmayincludesignificantmodificationstocurriculum,testingformatorgrading.Addi-tionally,schooldistrictscoverthecostofevaluationanddocumentationandparentsorcaregiversplayaprimaryroleasadvocates. Uponenteringcollege,IDEAisreplacedbysupportfromcivilrightsmandates,theAmericanswithDisabilitiesAct(ADA)of1990,ADAAmendmentsActof2008andSection504oftheRehabilitationActof1973,whichemphasizeaccesstoeducation.Postsecondarystudentsmustseekoutservicesbyself-identifyingasastudentwithadisabilitytotheappropriateoffice,providingdisabilitydocumentationandsubmittingarequestforaccommodations.Whileparentsplayanimportantroleinpreparingtheir
Unique Opportunities and Challenges in the College Environment
While students with ASD arrive at college with many favorable qualities, certain skill sets are underdeveloped.
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studentsforthecollegeexperience,studentsmustinitiatetheaccommodationsprocessandcommuni-catetheirownneeds,withlimitedparentalsupport.Accommodationsinthecollegeenvironmentdonotaltercourseworkordegreerequirementsandaremeantonlytoremovebarriersandensurethatanother-wisequalifiedstudenthasanequalopportunitytoparticipateinacademicprogramswithlittletailoringtoindividualneeds(Thomas,S.B.,2000). Inadditiontochangesinlegalmandates,theremayalsobepracticaldifferencesinthewayservicesareofferedinhighereducation.Whilesomesupportsmaybeofferedintheformofapprovedaccommodations,otherneedsarecommonlyaddressedthroughself-accommodationormaybecoveredbynoncompulsory,supplementalstudentservices.Forexample,astudentwhoreceivedanaccommoda-tionforpreferentialseatinginhighschoolmaybeexpectedtoarrivetoacollegeclassearlytosecureapreferredseatlocationontheirown.Forsomestudents,theaccommodationsreceivedaspartofahighschoolIEPmaynotbedeemedreasonableinthecollegesettingandmayinsteadbeaddressedbynon-mandated,supplementalsupportservicesinthepostsecondarysetting.Forexample,astudentwhoreceivedhomeworksupportorindividualizedinstructionfromaspecialeducationteacherorpersonalaidaspartofanIEPmaynotreceivesuchsupportasanaccommodationincollegebutinsteadwillbeexpectedtoseekoutthetutoringoracademicsupportservicesavailabletothegeneralcampuspopula-tion.WhileinstitutionsofhighereducationhavedevelopedpathwaysandsupportstomeetADArequire-mentsforstudentswithdisabilities,someoftheuniquesupportstypicallyneededbystudentswithASDareoftennotaddressedwithinatraditionalaccommodationsorcollegesupportservicesframework.Forexample,traditionalaccommodationsandservicesdonottypicallyaddressthesocialdeficitsorskilldevelopmentthatmighthelpenhancetheparticipationandperformanceforstudentswithASD. Notonlyaresupportslessenedanddecentralizedfromhighschooltocollege,butbehavioralexpectationsandconsequencesfornoncompliancealsodiffer.Forexample,IDEArequiresthatastu-dent’sdisabilitybetakenintoaccountwhenconsideringdisciplinaryactionresultingfromaviolationoftheschoolcodeofconduct.Thisisnotthecaseinhighereducation,wherestudentsfoundinviolationofconductrulesareheldfullyaccountablefortheirbehaviorregardlessofdisability.ThiscanbeespeciallyproblematicforstudentswithASDwhomayhavedifficultyrecognizingsocialnormsandunderstandingbehavioralexpectationsandmaystrugglewithfunctioningappropriatelyinlessstructuredcollegeenvi-ronments.
Independent Functioning Beyondissuesofdisabilitymandatesandexpectationsforsupportservices,studentswithASDstrugglewiththeincreasedneedforindependentfunctioningrequiredinacollegeenvironment.Whiletheindependentlivingrequirementsofcollegecanbeadifficultadjustmentforallstudents,studentswithASDmayfindthetransitionespeciallychallengingastheyfaceindependencefromcaregiversandeduca-tionalprofessionalswhohaveassistedtheminmeetingmanyoftheirdailyneeds.Collegestudents,work-ingtowardbecomingfullyfunctioningadults,areexpectedtotakemoreresponsibilityfornavigatingtheenvironmenttomeettheirownneeds.ForstudentswithASD,whoareaccustomedtoamorecentralizedhighschoolsupportstructure,independentlymaintainingpersonalcareroutines,managingmedications,organizingdailyschedulesandappointmentsandseekingoutneededresourcesinamoredecentralizedcollegeenvironmentcanbeoverwhelming. Collegeisasocially-ladenenvironmentandthereforedifficultforindividualswhohavebeende-pendentonadultstoassistwithpeerconnections.Laggingbehindtheirtypicallydevelopingcounterpartsinemotionalandsocialdevelopment,studentswithASDcanbeperceivedasnaïveandbevulnerabletobullying.Withminimaladultmonitoringofpeerinteractionswithinpostsecondarysettings,victimiza-tionofthosewithASDcanbecommon.Suchchallengesareespeciallyprominentinresidentialcollegeswherestudentsexperiencehighlevelsoffluidsocialinteractionandlargeamountsofunstructuredandunsupervisedtime.ForstudentswithASD,unanticipatedsocialandlivingchallengesdistractfromthelearningprocessandcannegativelyimpactsuccessintheclassroom. Therealitiespresentedasaresultofchangingrightsandresponsibilitiesandrequirementsforincreasedindependentfunctioning,makethetransitiontoandsuccessincollegeespeciallychallengingforstudentswithASD.Significantcollegeresourcesaredevotedtosupportingallstudentsthroughthe
Unique Opportunities and Challenges in the College Environment
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collegetransitionprocesswithstandardinitiativessuchasfirst-yearseminars,academicsupports,andcocurricularprogrammingopportunities.Whilethiscommitmenthasbecomeacommonfeatureacrosshighereducationandistheresultofmanyyearsofrepetitionandrefinement,thereisagrowingneedtomodifystandardpracticesorcreatespeciallydesignedsupportstomeettheuniqueneedsoftheincreas-ingpopulationofstudentswithASD.
Taking Action: Mitigating Student and Environmental Challenges Asoutlinedintheprevioussections,studentswithASDoncollegecampusestodayfaceamyriadofchallengesbasedondiscrepanciesbetweentheuniqueneedsoftheindividualandthecustomarycollegeenvironmentsupports.ThissectionoftheguideservestooutlinewaysinwhichcollegescanworktomitigatethebarrierstosuccessforstudentswithASD.NOTE: The specific recommendations and examples provided are based on the practical experience and successful outcomes from the collaborating institutions and contributors to this guide. Whetherstemmingfromindividualorinstitutionalrealities,thechallengesfacingstudentswithASDcanbecomplexandmostinstitutionslackadequateand/orintentionallydesignedassistance.ThescarcityoftargetedsupportserviceshasanegativeimpactontheoutcomesforstudentswithASDoncollegecampuses,makingitdifficultforthemtoreachtheirpotentialasindependentemployedadults(Gerhardt&Lainer,2011).EmergingpracticesdictatethatensuringthesuccessofstudentswithASDinhighereducationrequirestwotypesofsupports:thosethatindirectlyimpactstudentoutcomesbycre-atingawelcomingandsupportivecampusclimate;andthosethatdirectlyassistindividualswithASDthroughspecificservices.Buildingamoreinclusiveandacceptingcampuscommunitycanhaveasub-stantialimpactontheexperienceandsuccessofstudentswithASD.Furthermore,studentswithASDwillonlybenefitfromspecializeddirectsupportswhenimplementedwithinacampusculturethatembracesthemasimportantmembersofthecampuscommunity.
Indirect Support Creating a Welcoming and Supportive Campus Climate OneofthebestwaystoimprovetheexperienceandlearningoutcomesforstudentswithASDisthroughapositiveshiftinthecampusclimate,withafocusoninfluencingthebroadercommunity’sattitudesandunderstandingofwhatstudentswithASDbringtothecampuscommunity.Thisapproachbenefitsallstudents,includingstudentswhomaysharesomeofthecharacteristicsofthoseontheautismspectrum,orthosediagnosedwithASDwhochoosenottodiscloseoridentifythemselvesassuch.Shift-ingcampusculturecanbeanarduoustaskandrequiresalong-termandsustainedcommitment–butdevelopingafocusononeorallofthefollowingareashasbeenshowntoestablishafoundationforthischange.
Taking Action: Mitigating Student and Environmental Challenges
The scarcity of targeted support services has a negative impact on the outcomes for students with ASD on college campuses.
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Raising Awareness and Acceptance IndirectlysupportingstudentswithASDbycreatingasupportivecampusenvironmentcanbeginwithawareness-raisingeventsandintentionaleffortstoincreaseunderstandingandacceptance.Thereisanoverallmovementinhighereducationtobemoreproactiveinintegratingpopulationswhoaretradi-tionallyunderrepresentedoncampuses.Amovetowardsincludingpeoplewithdisabilitiesasaformofhumandiversitycanbeaplatformforincorporatingunderrepresentedgroupsintomulticulturalcelebra-tionsanddiversityappreciationevents.AutismAwarenessMonth(April)canbeavenueforeducatingthecampuscommunitythroughspecialevents,presentationsandthoughtfuldiscussionsledbyguestspeak-ers,students,orsiblingsofthoseontheautismspectrum.Campuscommunitymembersinterestedinpro-vidingsupporttostudentswithASDmayalsobenefitfromtheimplementationofallyorsupportgroups,creatingaplacewherememberscanshareexperiences,gaingreaterunderstandingandhelppromotepositivecultural change.MediaexposurehighlightingtheachievementsofindividualswithASDcanalsoenhancecommunityawarenessatlittleornocost.Campuslifeleadersandotherswhoplancommunityeventsshouldbeencouragedtoimproveinclusivityintheireventplanningbyconsideringtheneedsofthosewithsensoryandenvironmentalsensitivities,allowingstudentswithASDtobemorefullyincludedinbroadeducationalandsocialexperiences.
Training the Campus Community Anothereffectivemechanismthatservesasabasisforaninclusivecollegeenvironmentiscampus-widetraining,whichhasbeenusedinsupportofmanydiverseinitiativesacrossacademia.Suchtrainingcanbutneednotbemandatoryinnature.Toensurehigherleveladministrativesupportfortrain-ing,theseinitiativescanbeginwithdirectors,administrators,andmanagers;andworkdowntoincludeallwhoservestudents(e.g.,labinstructors,teachingassistants,tutors,academicadvisors,campuspoliceofficers,“front-line”officestaff,admissionsofficers,financialaidcounselors,campushealthprofession-als,etc.)Position-specifictraininghelpsstaffunderstandthetypesofsituationstheymayencounterwithintheirroles;writingtutorsmayneedtochangetheirapproachforstudentswhostruggletograspdiverseviewpoints;andcafeteriastaffcanbemoreawareofdietarysensitivitiesandfoodaversions. Ideally,campus-widetrainingwilloccurannuallyforsomegroups(e.g.,residencelifeandstu-dentorientationstafftraining),oronanas-neededbasisforothers(e.g.,departmentalrequestsanddivi-sionlevelmeetings),oritmaytaketheformofatrainingpacket,sharedelectronically,thatincludesitemssuchasfactsheets,trainingvideosandlinkstorelevantarticles.Providingongoingprofessionaldevelop-mentopportunitiesallowsfortheinclusionofnewemployeesandthosehiredonatemporarybasis(e.g.,adjunctfaculty),whomayhavelimitedaccesstouniversitytrainingresources. Therearemanyeffectivestrategiesforthedeliveryofsuchtraining,includinghelpingparticipantsconsidertheirownpersonalconnectionstoautism.IdentifyingpersonalconnectionsallowsparticipantstomoreeasilyrelatetothechallengesandrealitiesforcollegestudentswithASD,whichcanincreaseempathyandpositiveperceptions.Additionally,studentswithASDorthosewithsiblingsontheautismspectrumcanbebroughtintothetrainingprocesstosharefirst-handexperiences.Anopendialogueformat,managedwithappropriatesensitivity,encouragestraineeparticipationandisabeneficialmethodofemphasizingthestrengthsoftheASDpopulationinadditiontoaddressinganystigmasassociatedwithautism. Facultytraining,specifically,canalsoincorporatethebenefitsofstrongpedagogicalmethodolo-gyandeffective,inclusiveclassroommanagementthatwillpositivelyimpactallstudents.Trainingshouldfocusonassistingfacultyinunderstandingtheimportanceofdirectcommunication,includingtheuseof
Taking Action: Mitigating Student and Environmental Challenges
Some of the unique supports needed by students with ASD are not addressed within a traditional accomodations or support services framework.
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detailedsyllabi,concretelanguageandclearfeedbackwhenworkingwithstudentswithASD.Facultyshouldbetrainedtoconsiderthepotentialforsomeflexibilityinthedeliveryofassignedcoursework(e.g.,alternativestopublicspeaking),aswellasideasrelatedtothefacilitationofgroupwork(e.g.,designatingclearrolesandmonitoringprogress).Additionalrelevantpracticesmightincludeincorporat-ingastatementintothesyllabusthatreflectsarespectfordiversityandinclusiveness,utilizingavarietyofcontentpresentationmethodstoaddressavarietyoflearningstyles.Trainingmightincludeprovidingfacultywithtipsforstructuringclassroomdiscussions. Throughoutalltraining,facultyandstaffshouldbereassuredthatsupportingstudentswithASDdoesnotequatetoprovidingspecialprivileges.Nomodificationstotheeducationalstandardsorcourserequirementsarerequired;however,directandsupportivefeedbacksurroundingexpectations,includingthoseforappropriateclassroombehavior,cansignificantlyassiststudentswithASDtobecomecontribut-ingmembersoftheclassroom.
Developing Campus Expertise Anothermethodofindirectsupportinvolvesprovidingconsultativeresourcestocampuscom-munitymemberswhointeractwithstudentswithASD.TheavailabilityofdesignatedcampusexpertsfamiliarwiththeASDpopulationcanaidthecampuscommunity(faculty,staffandstudents)tobetterunderstandtheinteractionsorbehaviorsofstudentswithASDthataresometimesdifficulttointerpret.Aspecially-trainedgroupwouldideallyconsistofindividualsfromvariouskeydepartments(e.g.,disabilityservices,residencelife,campuspolice,etc.)whocouldserveasresourcestocolleaguesintheirrespec-tiveoffices.Campusesmightconsidertheestablishmentofadisabilityliaisonineachacademicdepart-mentwhocouldadvisefacultyoneffectivemethodsofinstructionaldesignandstrategiestoapproachvariousscenarios,promotingincreasedflexibilityinteaching.Aliaisonmayalsoassistfacultymembersininterpretingunusualbehaviorintheclassroom.Forexample,thebehaviorofastudentwhocontinu-allyapproachestheboardduringalecturemaybemisunderstoodasdisruptivebutmaysimplybethestudent’sresponsetoearlierdirectionto“writedowneverythingIputonthewhiteboard”.
Enhancing Existing Programs and Services Mostcollegeshaveexistingprograms,servicesandsupportnetworksinplaceforallstudents.Inmanycases,slightmodificationstotheseexistingeffortsmaymakethemmoreaccessibletostudentswithASD,whetherornottheyhavedisclosedtheirdiagnosis.Theappropriatedevelopmentoftheseresourcescanbeavitalcomponentinthesuccessofallstudents,includingthosewithASD.Anexampleofsuccessthroughthisstrategyinastandardtutoringcentermightbea shiftfromadrop-inappointmentmodeltoamodelthatincludesindividualizedrecurringappointments.ThisshiftmightbettermeettheneedsofallstudentsbutisparticularlybeneficialtostudentswithASDwhothriveonpredictabilityandroutine.Settingupsimilarregularlyscheduledappointmentswithuniversitysupportstaff(e.g.,advisorsoracademiccoaches)canprovideanincreasedlevelofoversightandsupportandprovidetherepetitionthatassiststhesestudents’inmasteringcompetenciesthatmightbemetinasinglemeetingfortypicallydevelopingstudents. ThisapproachalsocanbeexpandedasadirectsupportforthosestudentswhochosetodiscloseaASDdiagnosis.Forexample,atutoringcentermightbeabletoidentifyspecifictutoringstaffwithaddi-tionalexperienceinworkingspecificallywithstudentswhohaveneedsbeyondthosetypicallyaddressedbygeneraltutors.Otherexamplesoftargetedservicesforstudentswhoareformallyidentifiedasbeingontheautismspectrumareoutlinedinthefollowingsection.
Direct Support Developing Targeted Services for Students with ASD Inadditiontoindirectapproachesthatbroadlyaddressthedevelopmentofamoreinclusiveandsupportivecampusclimate,somecampusesmayconsiderthecreationoftargetedsupportservicestomoredirectlyimpactthesuccessofindividualstudentswithASD.BasedonthesizeofthepopulationofstudentswithASDand/orthecomplexitiesoftheirneeds,someinstitutionsmaychoosetoexplorethedevelopmentofacomprehensivesupportprogramwhileothersmayrelyuponamoreadhocapproach,
Taking Action: Mitigating Student and Environmental Challenges
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respondingasneedsarise.Asisthecaseformanyunderrepresentedbutgrowingpopulationsoncollegecampusestoday(race/ethnicgroups,firstgeneration,lowincome,veterans,returningadultlearners,andstudentswithdisabilities)targetedsupportservicescanbeverysuccessfulinincreasingpersistenceandgraduationrates.
The following section provides examples of direct supports drawn from the established, compre-hensive support programs of the collaborating institutions which contributed to this guide.
Coaching and Mentoring Ingeneral,coachingandmentoringallowforthedevelopmentofsupportive,nonjudgmentalre-lationshipsthatfacilitatetheidentificationandattainmentofgoals,aswellasthegrowthofcompetenciesthroughmodelingandguiding.Throughnon-directivecoachingrelationships,studentslearntocapitalizeontheirpositiveattributesandareassistedintheidentificationandprogressionofchosengoals.Duringtheinteractiveanditerativecoachingprocess,frequentfeedbackandsupporteddecision-makingleadstoa senseofmastery.Althoughoftencarriedoutinaone-on-oneformat,coachingandmentoringcanalsobeofferedintheformofsupportgroupsorsmallgroupseminars.Professionalsorpeerscanserveintheroleoflifecoach,socialmentor,etc.,andmeetingsmaybestructured,unstructuredorstudent-led.Peermentors,inparticular,canhelpwithself-acceptanceandthebolsteringofself-esteemthroughvicariouslearningopportunities.Observingandexperimentingwithnewbehaviorsamongstacceptingpeermen-torscanbuildconfidenceandpositivefeelingsforstudentswithASD.Withmasteryexperiencesinthese“safe”environments,studentswithASDaremorelikelytotrynewbehaviorsinothersettings,facilitatingsocialconnectednessandfurtheringacademicsuccess.
Targeted Instruction StudentswithASDoftenbenefitfromtargetedinstructioninthoseareaswhereappropriateskillsorknowledgearedeterminedtobelacking.Suchinstructioncanbedeliveredindividually(e.g.,tutoring)orinsmallgroups(e.g.,seminars,mandatorystudyperiods,orsemester-longcourses)eitherthroughanestablishedscheduleoronanas-neededbasis.Insomecasesitmaybepossibletomodifyexistingin-structionalmaterials.InthesecasescareshouldbetakentoensurethematerialismodifiedtoaddresstheskilldeficitsofstudentswithASD.Thefocusofinstructionislimitlessbutcanincludeexecutivefunction-ingtraining,studyskillsinstruction,socialthinkingskillbuilding,leadershipdevelopmentthroughcom-munityoutreach(e.g.,speakingatanautismawarenessevent),careerpreparationworkshops,sensoryintegrationcounseling,mindfulnessmeditation,socialanxietygroupsorrelationshipskillsgroups.
Transition Programming ForfirstyearstudentswithASD,theinitialintroductiontocollegeandthenewstudentorienta-tionexperiencecanbeanoverwhelmingandover-stimulatingexperience.ThosewithASDhavetheaddedburdenofattemptingtomitigatefunctionallimitations,suchasadaptingtounstructuredandsocially-embeddedenvironments.Pre-college,specializedorientationorsummerpreparationprogramscanequipstudentswithASDwithtoolstohelpthemacclimatetonewsurroundingsandbegintoestab-lishpeerrelationships,aswellasprovidethemwithtimetoproactivelyarrangeforappropriateaccom-modationsand/orsupportservicespriortothestartoftheacademicyear,whilecampusislesscrowded.Structuredtransitionprogrammingcanincludeguidanceinnavigatingthecollegecampus,introductionstokeypersonnel(e.g.,academicadvisingstaff),self-advocacytraining,independent-livinginstruction(e.g.,navigatingdininghallsorotherfacilities),appropriateprofessionalcommunicationpractices(e.g.,respondingtoemails)aswellastimemanagementandacademicskill-buildingsessions.Theseprogramscanrangeinlengthfromonedaytoseveralweeks,andthelattermayincorporatethecompletionofacredit-bearingclasstoestablisheffectiveacademichabitsandpracticestructuringschedules.Manyspe-cializedorientationprogramsalsoallowforearlymove-indates,affordingstudentsanopportunitytogetsettledintoroutinesandfamiliarizethemselveswiththecampusbeforethearrivalofpeers.
Taking Action: Mitigating Student and Environmental Challenges
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Taking Action: Mitigating Student and Environmental Challenges
Supported Living DesignatedhousingcommunitiesforstudentswithASDcanprovidethesenseofbelongingoftenlackinginthelivesofthosewithASD,whomayhavestruggledtobeacceptedbypeersthroughoutchild-hood.Livingincommunity(eg.specializedorthemedfloor)withpeerswithASDcanprovideopportuni-tiestobuildsocialconnectionswithinasafeandsupportiveenvironment;aswellasallowforincreasedoversightandearlyidentificationofproblems(e.g.,socialwithdrawalorpoorhygiene)forquickinterven-tion.Thesesupportedlivingcommunitiescanbesupervisedbyspeciallytrainedresidencelifestaff,whocanmorereadilyrecognizethesignsofastudentindistressandworkproactivelytomitigatechallenges. AssigningstudentswithASDtosingleorlimitedroommateplacementsprovidesanotherwaytocreatesupportivelivingenvironmentswithinastandardcampushousingsystem.Singledormroomsoftenprovidearefugefromthesensoryoverloadthatcanresultfrominteractingwithabusycollegeenvironmentonadailybasis.Additionally,somesensoryintegrationissuesmaymakeitimpossibletocohabitatewitharoommate,makingaprivateroomaccommodationnecessary.Forexample,astudentwithsensoryissuesmayrequireaprivateroominordertomaintainsleeporhygienehabits.Somestu-dentswithASDmayconsidertransitioningfromasingleaccommodationtoasharedlivingspaceoncetheyfeelmorecomfortablewiththeadditionalsocialaspectsofcollegelife.Itisimportanttorememberthateachstudent’ssituationisunique,andprovidingchoicesrelatedtolivingarrangementsrespectsastudent’sautonomyanddevelopsindependentdecision-makingskills.Tohelpstudentsinthisdecision-makingprocess,itmaybeusefultoprovideachecklistofindependentlivingcompetenciesandpossiblescenariosthatmightbeencounteredinaresidentiallivingsituation.Forthosewhopreferasharedspaceoption,residencelifestaffcanassiststudentsinstatingtheirneeds(e.g.,needforquiettimeandspace)topeersandhelpstudentsnavigatethecreationofroommatecontractswhichsetexpectationsforsharedlivingarrangementsandcanminimizeroommateconcerns. Residentadvisorsarechargedtodevelopcommunityandcanidentifysignsofdistresswithintheirassignedlivingenvironment.InthecaseofstudentswithASDwhoarecomfortablewithdisclosing,itmaybebeneficialtoencouragestudentstomeetwiththeresidentadvisortodiscussanysensitivitiesorconcernsaboutcommunityliving.WhenresidentadvisorsareawareoftheindividualneedsoftheirresidentswithASDtheyarebetterpreparedtofacilitateday-to-daysupportforthesestudents.
Social Programming PlannedsocialeventsthatincludementorsandotherknowledgeablestaffprovidestudentswithASDopportunitiesforconnection,modeling,andachancetotrynewbehaviorsandcommunicationskillsthatcanbuildsocialconfidence.Thesegatheringsmaytaketheformofcommunityoutings,mealgatheringsorgroupvolunteerexperiences.CampusesmayconsiderthepossibilityofcreatingadedicatedloungeorstudyspaceforstudentswithASDtogather.Toenhanceintegrationwiththelargeruniversitycommunity,socialeventscanbepostedandopentotheentirecampuscommunity,orstudentswithASDcanbeencouragedtoinvitefamiliarpeers.Additionally,integratedspringbreakprogrammingcanpromotesocialinteractionsamongstudentsbothonandoffthespectrumtofurtherenhancesocialcon-nectedness,acceptanceandunderstanding.StudentswithASDshouldbeencouragedandsupportedinparticipatingincampus-wideprogramming,clubsandevents.MentorscanassiststudentswithASDinidentifyinggroupsandspacesoncampuswheretheycanmeetotherswithsharedinterests.
Student Empowerment Methodsofsupportthatemphasizeempowermentandself-determination,suchasperson-cen-teredplanningandstrengths-basedapproaches,areidealforfosteringahealthyself-conceptforstudentswithASD.Developinghigherlevelsofcomfortwithmakingdecisions,andtakingresponsibilityfordeci-sionsmadearecentraltothegrowthanddevelopmentofallstudents.SuchdevelopmentwillnotonlyincreasetheabilityofstudentswithASDtohavesuccessinhighereducationbutwillalsoleadtogreatersuccessandconfidenceinallaspectsoftheirlives. Theself-esteemofstudentswithASDcanbenurturedthroughthesenseofbelongingthatspe-cializedsupportprogrammingaffords.Theestablishmentofcaringreciprocalrelationships,whichhave
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oftenbeenlackinginthesestudents’lives,iscriticaltobuildingtheself-worthandresiliencythatallowsforcopingwiththestressorsofcollegelifeandbeyond.However,itisalsoimportanttobeawareofpotentiallytransferringdependenciesfromparentstocollegefaculty,staff,orpeersasthiscanhindertheindependencestudentswithASDneedinordertosucceedinthelongrun. EmpoweringstudentswithASDoftenrequiresempoweringparents,avastmajorityofwhomhavehadalife-longroleastheirchild’sprimarysupportersandwhomaylackconnectionswithotherswhoarelaunchingachildwithuniquechallengesintoindependence.Thus,empatheticallyeducat-ingparentsonhowbesttosupporttheirchild’stransitiontoadulthoodiscrucialandrequiressettingclearboundaries.Parentsshouldbediscouragedfromcorrespondingwithfacultyorsupportpeopleonthestudent’sbehalfandshouldberemindedtoincludetheirstudentinallemailcorrespondencewhenoutreachisnecessary.Awell-meaningparentmightbetemptedtocompleteanonlinetestfortheirchildduringaparticularlystressfultimeinthesemester,notrealizingtheseriousnessofacademicdishonesty.Beingclearwithparentsabouthowtheycanempowertheirstudentwillhelpavoidover-involvementandensurethatstudentsmovetowardbecomingself-sufficientadults. CampusesseekingtomeettheneedsofstudentswithASD,mayutilizebothindirectanddirectsupports.Regardlessofthespecificservicesandprogramsoffered,thereareanumberofotherfactors(legal,logistical,ethical)whichmustbeconsideredinthedesignofasuccessfulmodel.Theseconsider-ationsareaddressedinthefollowingsection.
Identifying a Campus Response to Support Students with ASD AsupportmodelforstudentswithASDcanrangeinscopefrommakingexistingservicesmoreaccessiblebyenhancingcurrentstructuresandpolicies,todevelopingafullystaffedprogramwithspe-cializeddirectsupports.Whatevertheapproach,it’simportanttorememberthatanASDsupportmodelshoulduniquelyreflecttheuniversity’sstrengths,mission,andculture,andnotsimplyreplicateanexist-ingprogram.Itmaybehelpfultoconsideraprogressivedevelopmentofservices,startingwithafocusoninfluencingthecampuscultureandmodifyingexistingservicestomeettheuniqueneedsofstudentswithASDasfirststeps.Thisprocesscanbefollowedbythefurtherdevelopmentoftargetedorenhancedservicesorpossiblythedevelopmentofamorecomprehensiveprogrammodel,asdesiredandpractical. The following section and accompanying worksheet are designed to assist higher education pro-fessionals in considering the needs of their campus and the students they serve to determine the scope of services that can or should be offered.
Getting Started: Assembling a Task Force Whetherconsideringthedevelopmentofindirectordirectresources,itishelpfultoassembleanimplementationteamortaskforce.Thisallowsforcomprehensiveideas,awidereachofcampussupport,andtheformationofcollaborativerelationshipsthatwillbecriticaltosuccess.Thisteamcanalsobeben-
Identifying a Campus Response to Support Students with ASD
A support model can range from making existing services more accessible to developing a specialized program of support.
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Identifying a Campus Response to Support Students with ASD
eficialwhenmodifyinginitialplanstoaccommodatechangesincampusstructure,cultureoravailableresources.Taskforceteammembersmightincluderepresentativesfromstudentaffairs,academicdepart-ments,anddirectserviceandsupportstafffromacrosscampus.Ifappropriate,thosewhoareknowledge-ableandexperiencedwithsupportingthispopulation(e.g.,thosewithfamily/friendswithASD)canserveaspowerfulalliesandcanbeimportantadditionstothisteam.TaskforcescanalsoseektheexpertiseofprofessionalconsultantsfamiliarwithdevelopingcollegesupportprogramsforstudentswithASDorthosewithabackgroundinAppliedBehaviorAnalysis(ABA),anapproachusedtoimpactcommunica-tionandlearningchallengesforchildrenontheautismspectrum(Rosenwasser&Axelrod,2001). Ataskforcemayworktogetherforanextendedperiodoftimeduringwhichkeyplanningdeci-sionsaremade.Onekeydecisionistheintentionalplacementoftheprogramwithinthecampusstruc-ture,whichoftenhassignificantimplications.Forexample,aprogramoperatingwithinthedisabilityofficewillhaveampleresourceswhenitcomestoaccommodations,butmayhaveadifferentperspectiveonsupportservicesthanaprogramhousedunderacounselingcenteroranacademiclearningcenter.Whatevertheapproach,strategiesshouldmatchtheknownoranticipatedneed,theavailablecampusre-sourcesandexpertise,andshouldcomplementtheoverallcampusenvironment.Thetaskforcemayalsohelpshapethecampusprioritiesandensurethatsupports(eitherdedicatedorgeneral)alignwithstatedgoals,suchasenhancingthestudents’accesstoorincreaseduseofavailablecampusresources. Taskforcesarealsobeneficialforongoingoversightonceinitiativesaredetermined;ensuringsol-id,transparentdecisionswiththeinputofstudents,parents,andcommunitypartners.Regularmeetingsensureaccountabilityandallowforconsultationandoversightfrominitialplanningthroughevaluation,fosteringcontinuousimprovement.Additionally,anactivetaskforcemaybechargedwithestablishingpoliciesandprocedurestohelpaddresslegalandethicalconcernsandensurethatprogramobjectivesandstudentsuccessremainsapriority.Forexample,aprogramservingstudentswithASDmaybelookedatasanavailablesubjectpoolforresearchdepartments.Inthiscaseanestablishedpolicyfromthetaskforceregardingresearchmaybebeneficial.Anothersignificantpolicyarearelatestodisclosure,whichisexploredinthenextsection.
Issues of Disclosure TheissueofdisclosureimpactshowweservestudentswithASDintwodifferentways.Inthefirstcase,thedeterminationofwhenandhowhighereducationprofessionalsmayshareinformationaboutastudent’sconfidentialorprivateinformationisgovernedbylegalandethicalstandardsandmustbeman-aged.Inthesecondcase,itisimportanttomakeappropriateguidanceavailabletostudentsaboutthedecisionofwhenandtowhomastudentmightdiscloseinformationaboutadiagnosisofASD.Inbothcases,thedevelopmentofpolicyandprocedurestoguideday-to-daypracticewillbebeneficial.
Professional Disclosure ExtensivelyusingthecampusinfrastructuretosupportstudentswithASDrequirescontinualinteractionandcollaborationacrossthecampuscommunity.Sharingofstudentinformationthroughthesecollaborationsmustbedoneincompliancewithprivacyprotectionlawsaswellasinternalpoliciesandproceduresregardingthetreatmentofstudentrecords(Gilley,A.&Gilley,J.W.(2006).TheFamilyEducationalRightsandPrivacyAct(FERPA)protectseducationalrecords,whichincludesdocumentationsubmittedtoapostsecondarydisabilityoffice.Thisinformationcannotbesharedwithoutwrittenconsentfromthestudent.TheHealthInsurancePortabilityandAccountabilityActof1996(HIPAA)protectshealthinformation,suchasphysicalandmentalhealthconditions,andappliestoentitiesthatincludeuniversityhealthcareprovidersorclinics.Thus,thecollegecounselingcenterorstudenthealthservicescannotshareinformationwithanyonewithoutthestudent’swrittenpermission. Cross-campuscollaborationiseffectiveinsupportingthesuccessofstudentswithASD.Whenprofessionaljudgmentnecessitatesdisclosureofstudentinformation,signedconsentformsshouldbeonfileandspecifywho,what,andunderwhatcircumstancesstudentinformationwillbeshared.Separatereleaseformscanbeusedforinternalandexternalcollaborations.Decisionstodiscloseshouldalsocon-siderwhetherspecificidentifyinginformationisrequired.Forexample,theremaybeaneedto
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collaboratewithappropriateresidencelifestaff.Thedisclosuremaybegeneral(“youmayhaveastudentonyourfloorwithASD.”)orspecific(“Theresidentinroom24isastudentwithASD”).Beyondthecampuscommunity,parentscanbeintegralmembersofacollaborativeteamandareofteninagoodpositiontoprovidefeedbackabouthowbesttoassistthestudent,particularlyintimesofchal-lenge.However,theremustbecarefulattentionpaidtoastudent’srighttoprivacy.Furthermore,thereshouldbeafocusonsupportingthestudent’smovetowardindependentfunctioningwhilereducingthestudent’srelianceonparents.Thus,studentsandparentsmustbeprovidedwithclearguidelinesregardingwhenandwhatinformationwillbesharedandthefrequencyofinteractionparentscanexpecttohavewithcollegestaff.Ofcourse,thepolicyforparentalinvolvementandconsenttoshareinformationneedstoalignwithcampuscultureandpolicy.
Student Disclosure Thedecisiontodiscloseanon-apparentdisabilityisacomplicatedone.Itisimportanttore-memberthatsomestudentswithASDmaynotseethebenefitofdisclosureandmayhaveastrongdesiretoavoidbeinglabeled.Studentscanbeempoweredtomakedisclosuredecisionsbyunderstandingthedisclosureprocessandthepotentialbenefitsofdisclosure.Role-playingvariousscenariosandinitialas-sistanceincraftingdisclosureemailstoprofessorsisbeneficialandwillprovidementoringandguidancetothestudentonhowtoeffectivelyself-advocate.Itmayalsobehelpfultoprovidestudentswithatem-platedisclosureletterandfactsheetsthatmightbehelpfulinworkingwiththeirfaculty.ItisimportnattoconsiderthatsomestudentsmaylackanofficialdiagnosisofASDbutnonethelessexperiencechallengessimilartothoseontheautismspectrumthatdisrupteverydayactivities.
Considerations for the Development of a Comprehensive Program Model ProvidingdirectserviceandtargetedsupportstostudentswithASDbecomesproblematicwhenstudentsdon’tidentifytotheuniversityasastudentwithadisability.However,wherethereisanin-creasedpopulationofstudentswithASDwhochoosetodisclosetheirdiagnosisandconsequentlyanincreaseddemandforservices,theremaybeaneedtoconsiderthedevelopmentofacomprehensiveprogramdedicatedtoservingstudentswithASD.Inadditiontothefactorsalreadydiscussed,the follow-ing sections address areas that should be reviewed by campuses considering a comprehensive program model. Whenacampusbeginstoconsideracomprehensive program,it’simportanttobeawarethatsomefaculty,stafforadministratorsmayexpressapprehensionaboutthepossibilitythatspecializedsupportscouldattractstudentswithASDtothecampuscommunity.ItisimportanttorememberthatthepopulationofstudentswithASDwhoarequalifiedtoattendinstitutionsofhigherlearningwillcontinuetogrowandstudentswithASD,liketheirpeers,willcontinuetochoosecampusesbasedonoverallfit;weighingfactorssuchassize,fieldofstudy,academicreputation,cost,andlocation.Developingservicesinanintentionalandmeasuredmannerandtakingintoaccountagrowingneedmayhelptoalleviatecommonconcerns.ProvidingproactivesupportforstudentswithASDallowstheuniversitytousecam-pusresourcesinamoreintentionalwaybyanticipatingproblemsanddevelopingpreemptivemeasures.CarefullyconsideredsupportsforstudentswithASDcanalsohelpreducecrisissituationsthatcanariseforcollegeresidentialcommunities,counselingcentersandcampuspolicewhomaybeotherwiseunpre-paredtosupportthisuniquepopulationofstudents.
Establishing Program Admission Criteria and Intake Process Standardpracticedictatesthatstudentsmustfirstbefoundeligibleforadmissiontothecollegebeforeapplyingforsupplementalsupports.Aftersuccessfuladmission,carefullyselectedprogramadmis-sioncriteriaallowfortheinclusionofstudentswithASDwhomightmostbenefitfromtheprogram’smis-sionandavailableresources.Programadmissioncriteriamaytakeintoaccountbothformalandinformalassessments.Forexample,programsmayassessastudent’sreadinessbasedonsocial,emotional,behav-ioral,andindependentlivingfunctioning,allofwhichserveasimportantpredictorsofsuccessincollege.Theprogramapplicationprocessmightalsoincludeawritingsampletorevealthestudent’sabilityto
Identifying a Campus Response to Support Students with ASD
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Identifying a Campus Response to Support Students with ASD
synthesizeandorganizeinformation,oritmayrequireinterestedstudentsand/orparentstoparticipateinaninterviewprocess.Suchinterviews,whichcanbeconductedineitherindividualorgroupformats,canprovidevaluableinformationaboutthestudent’sleveloffunctioning,aswellasthefamily’sexpectation,andinteractivestyle.Someprogramapplicationsmayrequiresupplementalorthird-partydocumentation,suchasaprimarydiagnosisofASD,whileotherssimplyrequireself-reportedidentificationassomeonewhocanbenefitfromspecializedservicesforstudentswithASD.HighschoolIEP’smayalsobereviewedtounderstandthescopeofaccommodationsandsupportsthatmayberequiredforthestudenttobesuccessfulinthecollegeenvironment.Insomecases,thelevelofsupportthatisindicatedmayhavere-sourceimplicationsandbebeyondtheabilityoftheprogramtoaddress.Inthiscase,areferraltoalterna-tivesupportsmaybenecessary.Forexample,previoushistory,includingtheprovisionofaone-on-oneaideinhigh-school,out-of-districtoralternatehighschoolplacements,modifiedgradesorcourses,pastcriminalactivityorseriousmentalillness,maywarrantseriousconsiderationaboutprogramadmissionstatus.Reviewingsuchinformationhelpsensurethatstudentsareultimatelydirectedtothemostappro-priateprogramstobestmatchtheirneeds. Aspartoftheadmissionandintakeprocess,twochallengingscenariosmaydevelopanditisimportantforinstitutionstoconsider,inadvance,howtorespond.Inonecase,studentswithASDmayhaveneedsthatcannotbemet,evenwithsupportwithinthecurrenttraditionalcollegestructure.Thesestudentsmayconsiderparticipationinanintellectualdisabilityprogramormayneedtoseekoutprogramswithmoreintensiveorspecializedmentalhealthsupportspriortoenrollingincollege.Thus,itisrecommendedthatthesestudentsandtheirfamiliesbeinformedofpotentialalternatives.Alterna-tivesmay includereferraltomoresupport-intensiveprogramsinthecommunityandtheopportunitytoreapplyforprogramadmissionafteraddressingunderdevelopedskills.Insomecases,theuniversitymayallowstudentstodefercollegeenrollmentforuptooneyear,makingdeferralandreapplicationaviableoption. AnotherimportantconsiderationisforthosestudentswithASDwhoattendtheuniversitybutelectnottoparticipateinthesupportprogramofferedbythecollegeorthosewhoarenotacceptedtothespecializedprogrambasedonmatchorspacebutstillelecttoattendtheuniversity.Inthesecases,itisimportanttoensurethatthestudentandfamilyhaveanunderstandingofthesupportsthatwillbeavailable,includingaccommodationsandgeneralizedsupportservicesthatwouldotherwisebeavailabletoallstudentsatthecollege. Regardlessofadmissiontoandparticipationinacomprehensiveprogram,animportantmessagetofamilies,andonethatisoftendifficulttounderstand,isthatastrongacademicrecord,evencombinedwithcomprehensivesupports,doesnotguaranteecollegesuccess.Justasisthecasewithtypicallydevel-opingstudents,outcomesarenotpredictableandnotallstudentswillfindsuccess
Program Staffing StaffingmodelsforprogramsdedicatedtostudentswithASDvaryaccordingtomanyfactorsthatincludethelevelofresourcesandexistingsupportsaswellasthenumberofstudentsserved,andthelevelofindividualsupportprovided.ProgramsmaybestaffedbydisabilityservicepersonnelwhocommitacertainpercentageoftheirtimetoprovidingspecializedASDsupports,throughbothdirect-serviceandcollaborationswithotherdepartments.SomeprogramsutilizeaprimaryASDprogramcoordinatoralongwithastaffofgraduateassistantsorundergraduatestudentvolunteers,whileothersutilizespecially-trainedpermanentstaff.Inallcasesfundingor
One of the best ways to improve the experience for students with ASD is
through a shift in campus climate.
theallocationofresourcesnecessarytoprovidesupportforstudentswithASDneedstobeconsideredwithaneyeonefficiency.Itisimportanttokeepinmindthat,insomecases,existingcampusresourcesandstaffmayalreadyprovidefullyadequatesupportservicesandtheutilizationoftheseexistingservicesisnotonlyprudentbutalsoservestoempowerstudentswithASDtoutilizesupportconsistentwiththegeneralcampuspopulation. Staffingmodelsshouldalsoallowforvariance,asstudents’needsmaybemoreintensiveatdif-ferentstagesoftheircollegecareer(e.g.,theinitialtransitionintothecollegeenvironmentandprepara-tionforemploymentdesiredpost-graduation).Itisimportanttorememberthatprogramstaffwillneedtobeavailabletosupportfaculty/staffseekinginputandadvicethroughouttheacademicyear.Finally,itisimportanttoensurethatstaffhaveappropriateeducationalbackgroundsandexperience.Strongcandidatesmayhavepreviousworkinsocialwork,counseling,specialeducationorotherrelatedfields.Additionaltrainingspecifictocampusrequirements,services,andcampusandprogramphilosophieswillfurtherenhancestaffingsuccess.
Program Funding Asisthecaseformostsupportservices,allocatingsufficientresourcesistheresponsibilityofthecollege.Thefundingsourcesofexistingcollegeprogramsvaryandmayconsistofanycombina-tionoffederalorfoundationgrants,endowments,studentfees,andinstitutionalsupport.Programsmaybeinitiallysupportedbyagrantandlaterbecomeself-sufficientviaimplementationofprogramfeesorfundraisingefforts.Scholarshipscanbecreatedbysponsors,andotherfinancialresourceswhichcanhelpcoverprogramfees,suchasvocationalrehabilitationagencies,canberesearched.Studentscanbedirectedonhowtoapplyforadditionalfinancialsupport.Aslidingscalefeemayalsobeanimportantmeansofallowingaccesstoallsocioeconomicgroups. Inadditiontoidentifyingoverallprogramfundingsources,itisalsoimportanttoconsiderpoten-tialwaystomeetstaffingexpenses.Insomecases,oversightofservices,indirectordirect,maybeman-agedbystaffaspartoftheirexistingrole,eliminatingtheneedfordedicatedstaffatincrementalcosts.Asthescopeofservicesincreases,theneedfordedicatedand/orspeciallytrainedstaffmayalsoincrease.Inthesecases,theuseofgraduatestudentsfromappropriateprogramsofstudy(e.g.,schoolpsychology,socialwork,specialeducation)oradjunctprofessionalsmaybeeffectiveinservingsmallpopulationsofstudents.Largerinitiativesorcomprehensiveprogramswilllikelyrequirepermanent,dedicatedstafflinesandmatchedfunding.Shiftingtothislevelofinstitutionalsupportwillrequirecommitmentattheleader-shiplevelbydecision-makerswhoseethevalueoftheseprogramsandhavetheabilitytodesignatefund-ing.
Identifying a Campus Response to Support Students with ASD
Providing proactive supports to students with ASD allows the university to use resources in a more intentional way
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Evaluating Program Success Ongoingevaluationisimportantforcontinualimprovementandtoensureprogramgoalsarebeingmet.Additionally,students,parents,orotherfundersneedtoknowthattheservicesarebeneficial.Multiplesourcesoffeedbackallowfortheconsiderationofdifferentperspectives:students,parents,theuniversitycommunity,andotherstakeholders.Thiscanbehelpful,asstudentsaren’talwaysthebestself-reportersormaylackawarenessoftheimpactofsomesupports. Tomaintainadministrativesupportovertime,aswellastoprovideconcretefeedbacktostake-holders,quantitativefeedbackisessential.Changesinpersistencerates(numberofstudentswhousetheprogramandareeitherretainedorgraduate)inrelationtothoseoftheoverallstudentpopulation,canprovideaclearpictureofprogramsuccess,ascangraduationandemploymentrates.Othersuccessindi-catorsmayincludeincreasingscoresinmeasuresofstudentcompetencies,adjustment,andwellbeing. However,certainchallengescanarisewhenmeasuringsuccess.Thevalue-addedfromprogramsupportsisoftenrepresentedbyqualitativevariablesthataredifficulttoempiricallymeasure.Forex-ample,itisdifficulttoquantifyastudent’simprovementinmanagingsensoryintegrationissues.Also,graduationratesmaynotnecessarilyreflectasuccessfuloutcomeforthisgroupofstudents:somemaytransfertootherinstitutionsthatareabetterfit,somemayfindfulfillingemploymentbeforegraduating;whilestillothersmaygraduatewithoutbeingabletosecureemploymentduetolimitationsinsocialandemotionalfunctioning.Inotherwords,studentsuccessmaynotbeconsistentwiththeinstitutionstypicalmeasures ofsuccess.Thiscanbeproblematiciffundingisperceivedascomingattheexpenseofotherprogramming.Therefore,itisimportanttointentionallyalignprogramevaluationwithbothuniversityandstakeholderobjectives,particularlywhentaxpayerortuitiondollarsarebeingusedforfunding. Regardless of the current situation on your campus, this guide was developed to provide a basis for information and reflection about how to best serve students with ASD in your environment. We encourage you to utilize the Support Model Planning Worksheet in the next section and refer to the Existing Program summaries provided at the back of this guide as you apply this information to your specific campus community.
Identifying a Campus Response to Support Students with ASD
Changes in persistence, graduation or employment rates for students
with ASD can provide a picture of program success.
18
CampusProfile
• Whatisthesizeofyourcampus(totalenrollment)?
• WhatistheestimatedsizeofyourpopulationofstudentswithASD?
oIdentified
oNot-Identified(bestestimate)
• ArethereagrowingnumberofstudentswithASDonyourcampus?Whatistherateofgrowth?
ExistingServices
• WhatisthedistributionofgraduateversusundergraduatestudentswithASD?ExistingServices
• WhatservicescurrentlyexistonyourcampustosupportALLstudentsinthetransitiontocollege
(e.g.,orientation,firstyearprograms)?
• WhatservicescurrentlyexistonyourcampustosupportALLstudentsinpersistencetocollege
(e.g.,academically,socially,residentially)?
• WhatservicescurrentlyexistonyourcampustosupportALLstudentsinthetransitiontothe
workforce(e.g.,internships,careerpreparation,jobplacement)?
• WhatservicescurrentlyexistonyourcampusthatservestudentswithASDinanindirect
manner(e.g.,professionaldevelopment/training,awarenessprogramming,campusexperts)?
• WhatservicescurrentlyexistonyourcampusthatservestudentswithASDinadirect/targeted
manner(e.g.,coaching/mentoring,socialskillsgroupsincounselingservices,disabilityservices)?
• Whatisthecurrentlevelofexperienceamongyourprofessionalstaffinsupportingstudentswith
ASD(e.g.,academicadvisors,residentialstaff,counselingcenterstaff)?
• HowpreparedareyourfacultytosupportstudentswithASDintheclassroom?
• Howstrongisthesupportfromthegeneralcampuscommunityregardingtheneedfortargeted
supportsforstudentswithASD?Howmightadditionalsupportbegarneredpriortoadvancing
programmaticinitiatives?
• Howstrongisthepotentialbuy-infromdecisionmakersregardingtargetedsupportsforstudents
withASD?Howmightadditionalsupportbegarneredpriortoadvancingprogrammaticinitiatives?
PrevailingChallenges • Consideringtheprevailingchallengesorissuescurrentlybeingexperiencedwithoraroundstudents withASD,whatskillsets(ordomains)arepresentingthegreatestchallengeforstudentswithASD onyourcampus? oExecutiveFunctioning oAcademicSkills oSelf-Care oSocialCompetence oSelf-Advocacy oCareerPreparation oOther
Support Model Planning Worksheet
19
Support Model Planning Worksheet
ConsideringaCampusResponse •Whatlevelofresponseareyouseekingtoachieveatthistime? oAwarenessandacceptanceprogramming oFaculty/StaffprofessionaldevelopmentspecifictostudentswithASD oExtendexistingservicestomeetamorespecializedneed oDeveloptargetedservicesforstudentswithASD oDevelopacomprehensiveprogramservicemodelforstudentswithASDActionPlanning
Regardless of institutional goals, it is strongly recommended that planning begin with the establishment of a task force. Once formed, this work group may draw upon the campus profile, existing services and prevailing challenges sections above to determine short and long term goals for your campus. Based on these goals, the sections below will help guide the work group in decision-making related to priorities and implementation plans. These sections map to the earlier resource guide materials (as indicated). It may be helpful for the task force to review this material as they consider campus responses. Additionally, the task force may find it help-ful to refer the Existing Comprehensive Program Models (pg. )section of this guide as an additional reference.
Taskforcedevelopment • Whoarethepotentialchangeagentsonyourcampus? • Whocouldbeinvolvedinaninitialandongoingtaskforce? • Whatdepartment(s)orpersonnelmighttakealeadershiprole?
Issuesrelatedtodisclosure • Howwillyourcampushandleissuesofdisclosurerelatedtocampusprofessionals? • Howwillyourcampushandleissuesofdisclosurerelatedtostudents?
Opportunitiesforindirectimpact • WhatstepscouldyourcampustaketoincreaseAwarenessandAcceptance? • WhatstepscouldyourcampustakeinTrainingtheCampusCommunity? • WhatstepscouldyourcampustaketoDevelopCampusExpertise? • WhatstepscouldyourcampustaketoEnhanceExistingProgramsandServices?
Opportunitiesfordirectimpact • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldCoachingandMentoringservicesbeapriority?Ifso,whatresourcesareavailableor wouldberequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldTargetedSkillDevelopmentservicesbeapriority?Ifso,whatresourcesareavailable orwouldberequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldSummerTransitionProgrammingservicesbeapriority?Ifso,whatresourcesareavailable orwouldberequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldSupportiveLivingservicesbeapriority?Ifso,whatresourcesareavailableorwould berequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldStudentEmpowermenteffortsbeapriority?Ifso,whatresourcesareavailableorwould berequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldSocialProgrammingservicesbeapriority?Ifso,whatresourcesareavailableorwouldbe required?
20
Furtherconsiderationsforthedevelopmentofacomprehensiveprogram
If the needs and resources identified merit consideration of a comprehensive support program, the following areas will require serious discussion and development.
• Basedonthesizeandscopeoftheprogramyouareconsideringandtheresourceavailability,what policiesandproceduresmightyouconsiderforanAdmission Criteria and IntakeProcess? • Basedonthesizeandscopeoftheprogramyouareconsidering,whatresourcescanyou utilizeforProgram Staffingandwhattrainingandsupervisionwillberequiredtosupportthis model? • Basedonthesizeandscopeoftheprogramyouareconsidering,whatProgram Fundingsource canyoupursuetosupporttheinitiative? • Whatexternalresources(e.g.fundingagencies)mightbeavailabletosupportaprogramor it’sparticipants? • Basedonthemodelyoudevelopandthestakeholdersinyourprogram,howwillyouEvaluate Program Success?
Support Model Planning Worksheet
21
NOTES
NOTES
22
References
Boyd,B.A.,&Shaw,E.(2010).AutismintheClassroom:AGroupofStudentsChanginginPopulationandPresentation.Preventing School Failure, 54(4), 211-219.
Brinckerhoff,L.C.(1994).Developingeffectiveself-advocacyskillsincollege-boundstudentswithlearningdisabilities. Intervention In School & Clinic, 29(4), 229.
CentersforDiseaseControlandPrevention.(CDC;2014).10ThingstoKnowAboutNewAutismData.Retrievedfrom:http://www.cdc.gov/features/dsautismdata/.
Gerhardt,P.F.,&Lainer,I.(2011).Addressingtheneedsofadolescentsandadultswithautism:Acrisisonthehorizon. Journal of Contemporary Psychotherapy, 41(1), 37-45.
Gilley,A.&Gilley,J.W.(2009).“FERPA:WhatdoFacultyKnow?WhatcanUniversitiesdo?College and University 82 (1), 17-26.
Parker,D.R.,&Boutelle,K.(2009).ExecutiveFunctionCoachingforCollegeStudentswithLearningDisabilitiesandADHD:ANewApproachforFosteringSelf-Determination.Learning Disabilities Research & Practice, 24(4), 204-215.
Rosenwasser,B.,&Axelrod,S.(2001).Thecontributionofappliedbehavioranalysistotheeducationofpeoplewithautism.Behavior Modification, 25(5), 671-677.
Stichter,J.P.,Herzog,M.J.,Visovsky,K.,Schmidt,C.,Randolph,J.,Schultz,T.,&Gage.N.(2010).SocialCompetenceInterventionforYouthwithAspergerSyndromeandHigh-functioningAutism:AnInitialInvestigation.Journal of Autism and Developmental Disorders, 40 (9), 1067-1079
Tager-Flusberg,H.(1999).APsychologicalApproachtoUnderstandingtheSocialandLanguageImpairmentsinAutism.International Review of Psychiatry, 11(4), 325-34.
Thomas,S.B.(2000).Collegestudentsanddisabilitylaw. Journal of Special Education, 33, 248–257.
Wehman,P.,Schall,C.,Carr,S.,Targett,P.,West,M.,&Cifu,G.(2014).Transitionfromschooltoadulthoodforyouthwithautismspectrumdisorder:Whatweknowandwhatweneedtoknow.Journal of Disability Policy Studies, 25(1), 30-40.
23
Pleasenote:Institutionaldatareflectsdatafrom2013-14academicyear.
Eastern University Private/Public:PrivateUndergraduatePopulation:2541
GraduatePopulation:1463
AverageSATscoresfornewlyadmittedfreshmen:1044
AverageACTscoresfornewlyadmittedfreshmen:22
Highestenrolledundergraduatemajors:Psychology,EarlyChildhoodEducation,SocialWork,
YouthMinistry,andManagement
PercentofenrolledUGstudentslivingoncampus:92%enteringstudents,73%returningstudents
PercentofenrolledUGstudentseligibleforPellGrants:47%
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:100
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:9
ProgramName:CollegeSuccessProgram(CSP)
ProgramHousedUnder:CushingCenterforCounselingandAcademicSupport
ProgramMission:TheCollegeSuccessProgramforStudentsLivingwithAutismSpectrumDisorder
providestargetedsupport,practicalknowledge,andculturalawarenesstostudentslivingwithAutism
SpectrumDisorderandtothecommunityofEasternUniversity.Themissionisconfirmedandcelebrated
whenstudentslivingwithAutismSpectrumDisorderhaveequalaccesstoanundergraduateeducation
intheCollegeofArtsandSciences,cansuccessfullyparticipateintheacademic,residential,andsocial
realmsoftheUniversity,andcanfulfillthegreatermissionofEasternUniversity.
YearInitiated:2012
ProgramEnrollment:6
LimitedNewAdmitsperYear:12
SourcesofFunding:ParticipantFees
Staffing:Onefulltimecoordinatorandoneparttimeadministrativeassistant.Twograduatementors
whoreceiveagranttocovertuition,room,andboard.Fourundergraduatementorswhoreceivea
stipend.
ProgramWebsite:http://www.eastern.edu/student-life/academic-support-counseling-and-disability-
services/college-success-program
Existing Comprehensive Program Models
24
Mercyhurst University
Private/Public:Private
UndergraduatePopulation:2680
GraduatePopulation:331
AverageSATscoresfornewlyadmittedfreshmen:1604
AverageACTscoresfornewlyadmittedfreshmen:25
Highestenrolledundergraduatemajors:Business,IntelligenceStudies,SportsMedicine,CriminalJustice,
andEducation
PercentofenrolledUGstudentslivingoncampus:93%freshmen,68%ofallundergraduates
PercentofenrolledUGstudentseligibleforPellGrants:31%
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:175
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:27
ProgramName:AspergerInitiativeatMercyhurst(AIM)ProgramHousedUnder:LearningDifferences
ProgramProgramMission:ThemissionofAIMistoeducatecollegestudentslivingwithanAutism
SpectrumDisorderinaprogramthatequallyemphasizesacademicandsocialcompetencytobuild
skillsforacademicandvocationalsuccess.
YearProgramInitiated:2008
ProgramEnrollment2013:22(21liveoncampus)
LimitedNewAdmitsperYear:6-9students
SourcesofFunding:Participantfees,institutionalfundingandotherfunding.
Staffing:1fulltimedirector,2parttimeuniversityemployees,and2studentworkers(paidand/orreceive
collegecredit).
ProgramWebsite:
http://www.mercyhurst.edu/admissions/learning%20differences%20program/asperger%20initiative
Existing Comprehensive Program Models
25
Rochester Institute of Technology
Private/Public:Private
UndergraduatePopulation:15,410GraduatePopulation:2,882
AverageSATscoresfornewlyadmittedfreshmen:1784
AverageACTscoresfornewlyadmittedfreshmen:28
Highestenrolledundergraduatemajors:TwolargestcollegesbyenrollmentareGolisanoCollegeof
ComputingandKateGleasonCollegeofEngineering,whichofferavarietyofdegreesinfieldsof
ComputerandInformationSciences,aswellasEngineering
PercentofenrolledUGstudentslivingoncampus:95%offreshman,55%ofallundergraduates
PercentofenrolledUGstudentseligibleforPellGrants:30.6%(full-timefirst-timebachelordegree
seekingfreshmen)
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:777
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:85
ProgramName:SpectrumSupportProgram(SSP)
ProgramHousedUnder:StudentLearningSupportandAssessment
ProgramMission:ProvideservicetotheRITcommunityinordertosupportthesuccessofstudentson
theautismspectrum.Directsupportofstudentsontheautismspectrumacrossmajorsocialand
academicdomainsaswellasimpactcampusculturethroughtraining,advocacyandcollaboration
withcampuscommunity.
ProgramInitiated:2008
ProgramEnrollment2013:48
LimitedNewAdmitsperYear:NoLimit-Maylimitnewadmitsafterstartoffallterm
SourcesofFunding:ParticipantFeesandInstitutionalFunding
Staffing:1full-timedirector,graduatestudentsaspaidmentors,aswellascontractedadjunctsinthe
positionsofcasemanagers,EFcoaches,andseminarinstructors.
ProgramWebsite:http://www.rit.edu/studentaffairs/ssp/
Existing Comprehensive Program Models
26
Rutgers University—New Brunswick
Private/Public:Public
UndergraduatePopulation:33,901
GraduatePopulation:14,135
Verbal-581;Math-631;Writing-596
AverageSATscoresfornewlyadmittedfreshmen:Verbal:581;Math:631:Writing:596‘
AverageACTscoresfornewlyadmittedfreshmen:NotAvailable
Highestenrolledundergraduatemajors:BusinessManagement,Pharmacy,Nursing,Communications,
andBiologicalSciences.
PercentofenrolledUGstudentslivingoncampus:47.5%
PercentofenrolledUGstudentseligibleforPellGrants:9,810receivedPellgrantsinFall2013,30%
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:1200
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:
Notavailable
ProgramName:CollegeSupportProgram(CSP)ProgramHousedUnder:RutgersHealthServices-
Counseling,AlcoholandOtherDrugAssistanceProgram&PsychiatricServices(CAPS)
ProgramMission:TheCollegeSupportProgramforStudentsontheAutismSpectrum(CSP)isdedicated
tohelpingstudentsdevelopskillsandstrategiestosuccessfullyparticipateinallareasofUniversitylife.
TheCSPisanintegrativeandcollaborativeprogramthathelpsstudentstoestablishandpursue
individualized,behaviorallytargetedgoalstosuccessfullynavigatechallengesfacedattheUniversity
level.UnderthedirectionofRutgersUniversity-HealthServices-Counseling,Alcohol&OtherDrug
AssistanceandPsychiatricServices(CAPS),theCollegeSupportProgramprovidescommunityeducation
topromoteaUniversityenvironmentthatisbothsupportiveandinclusive.
ProgramInitiated:2009ProgramEnrollment2013:11
LimitedNewAdmitsperYear:Variesdependingonresources
SourcesofFunding:ParticipantFeesandInstitutionalFunding
Staffing:Onefull-timeprogramcoordinatorandundergraduatevolunteermentors
ProgramWebsite:http://rhscaps.rutgers.edu/services/autism-spectrum-college-support-program
Existing Comprehensive Program Models
27
Existing Comprehensive Program Models
University of Tennessee at Chattanooga
Private/Public:Public
UndergraduatePopulation:10,297
GraduatePopulation:1,377
AverageSATscoresfornewlyadmittedfreshmen:NotAvailable
AverageACTscoresfornewlyadmittedfreshmen:23.2
Highestenrolledundergraduatemajors:Chemistry,Engineering,Psychology,Health&Human
Performance,andEarlyChildhoodEducationPercentofenrolledUGstudentslivingoncampus:32%
PercentofenrolledUGstudentseligibleforPellGrants:NotAvailable
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:1246
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:49
ProgramName:MoSAIC
ProgramHousedUnder:DisabilityResourceCenter
ProgramMission:MosaicProgramisaholisticprogramdesignedtosupport,educateandchallengethe
personalandacademicdevelopmentofcollegestudentswithAutismSpectrumDisorders.Through
developingastrongandacceptingcommunityinwhichstudentsareofferedstructure,studentsareen
couragedtolearntogether,supporteachother,andtakerisks,inthehopesofdevelopinghighly
qualifiedgraduateswhoarereadytoenterthecompetitiveworkforce.
ProgramImitated:2009ProgramEnrollment2013:39
LimitedNewAdmitsperYear:10
SourcesofFunding:Participantfees,grantfunding,foundation/giftfunding,andfundraising
Staffing:Onefull-timedirectorofDisabilityServiceswhodevotespartialtimetotheprogram,
40studentworkers(receivecollegecredit/volunteer)
ProgramWebsite:http://www.utc.edu/disability-resource-center/mosaic.php
28
Existing Comprehensive Program Models
University of West Florida
Private/Public:Public
UndergraduatePopulation:10,158
GraduatePopulation:2,430
AverageSATscoresfornewlyadmittedfreshmen:1029
AverageACTscoresfornewlyadmittedfreshmen:23
Highestenrolledundergraduatemajors:NotAvailable
PercentofenrolledUGstudentslivingoncampus:20%
PercentofenrolledUGstudentseligibleforPellGrants:NotAvailable
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:450
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:27
ProgramName:AutismInclusionProgram(AIP)
ProgramHousedUnder:StudentDisabilityResourceCenter
ProgramMission:ToprovidethehighestlevelofsupporttocollegestudentswithAutisminaprogram
thatequallyemphasizesacademicandsocialcompetency.ThegoaloftheAIPistoenhancethecollege
experienceofUWFstudentswithAutismbyofferingprogramsthatsupportacademic,social,lifeskills,
andcareerpreparationwhilealsoservingasaplatformforsocialinvolvementinextracurricular
activities.
YearInitiated:2010
ProgramEnrollment2013:22(12residential)
LimitedNewAdmitsperYear:Nolimit
SourcesofFunding:Noofficialbudget
Staffing:DirectorofStudentDisabilityResourceCenterdenotesaportionoftimetoprogram,along
withagraduateassistant.
ProgramWebsite:http://uwf.edu/offices/case-management/autism-inclusion-program/autism-inclusion-program/
29
Existing Comprehensive Program Models
Western Kentucky University
Private/Public:Public
UndergraduatePopulation:18,115
GraduatePopulation:3,009
AverageSATscoresfornewlyadmittedfreshmen:NotAvailable
AverageACTscoresfornewlyadmittedfreshmen:22
Highestenrolledundergraduatemajors:ElementaryEducation,Nursing,Biology,Interdisciplinary
Studies,andManagement
PercentofenrolledUGstudentslivingoncampus:29%
PercentofenrolledUGstudentseligibleforPellGrants:43%
NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:473
NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:51
ProgramName:CollegeandCircleofSupport
ProgramHousedUnder:KellyAutismProgram
ProgramMission:TheKellyAutismProgram’smissionistoprovideaneducational,socialandsupportive
environmentsothatindividualsdiagnosedwithAutismSpectrumDisordercanachievetheirpotential
asproductive,independent,andemployablecommunitycitizens.
YearImitated:2005ProgramEnrollment2013:41(40inresidentialhousing;1athome)
LimitedNewAdmitsperYear:10
SourcesofFunding:Participantfees,grantfunding,andinstitutionalfunding.
Staffing:Threefull-timeemployees,threepart-timeemployees,and12studentworkers,whoare
paidand/orreceivecollegecredit.
ProgramWebsite:http://www.wku.edu/kellyautismprogram/collegeandcircleofsupport.php
30
RochesterInstituteofTechnology•OneLombMemorialDrive•Rochester,NewYork14623
SpectrumSupportProgram•CampusCenter,Suite2720
Phone:(585)475-6936•E-mail:[email protected]
December2014