a community designing the future

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Post on 28-Jul-2015

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1. Joyce Lee, MD, MPH Nightscout Community @NightscoutProj @joyclee #wearenotwaiting Nightscout: A Community Designing the Future of Healthcare 2. Social Media Editor, JAMA Pediatrics Healthdesignby.us 3. @joyclee 4. 75% of children fail to achieve recommended blood sugar goals in Type 1 Diabetes 5. Healthcare: Fax us your numbers! Kid: Mom, whats a fax? Is it compatible with Snapchat? 6. Some people wonder why almost no one uploads their pump data I think I know why: because getting it to work can be like CRAWLING. THROUGH. BROKEN. GLASS. @HowardLook 7. 75% of providers/healthcare systems fail to help children achieve recommended blood sugar goals in Type 1 Diabetes 8. Patient problems are really design problems Joyce Lee, MD Medical Designer 9. Fix the design, and its no longer the patients problem Joyce Lee, MD Medical Designer 10. Let patients and caregivers design, and they will fix the problem! The Nightscout Project 11. Patient as expert maker collaborator #thefutureofdiabetestechnology 12. Patient as expert 13. http://bit.ly/10IUyph 14. Patient as maker 15. Patient as collaborator 16. We continued to work on our apps and tools, more folks on twitter began to notice and it became very clear that people really wanted this tool. It was life changing for us, and other parents immediately saw the value, the hope for a less complex, safer, healthier life it can bring. Freedom! 17. We continued to work on our apps and tools, more folks on twitter began to notice and it became very clear that people really wanted this tool. It was life changing for us, and other parents immediately saw the value, the hope for a less complex, safer, healthier life it can bring. Freedom! -John Costik 18. 12,500+ members 19. #diyps OpenAPS.org 20. Upcoming Nightscout Studies Descriptive Survey Ethnography (Health communities/ Makers) Facebook Mining Patient-driven Research Network? 21. Take the survey! www.nightscoutsurvey.info 22. # of completed surveys 1 day after release! 23. MD to Patient Passive Solitary Closed 24. Patient to Patient Active Collaborative Open 25. THANK YOU The CGM in the Cloud community Emily Hirschfeld, Preciosa Choi, Weston Nordgren, Ben West, Dana Lewis, Scott Leibrand, Jason Adams, John Costik, James Wedding, Nightscout Foundation Twitter: @NightscoutProj FB: CGM in the Cloud #wearenotwaiting

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