9 december 2013
DESCRIPTION
Age UK Positive Ageing Workshop. 9 December 2013. Bringing people and information together to improve care. Information and technology are just tools. Words the London Connect Patient Forum used to describe the world if information was used in the best way possible for delivering care. - PowerPoint PPT PresentationTRANSCRIPT
#londonconnect@londonconnect_
9 December 2013
Age UK Positive Ageing Workshop
#londonconnect@londonconnect_
Bringing people and information together to improve care
#londonconnect@londonconnect_
Information and technology are just tools
#londonconnect@londonconnect_
Words the London Connect Patient Forum used to describe the world if information was used in the best way possible for
delivering care
#londonconnect@londonconnect_
To focus our efforts, we’re working to improve culture in three areas:
Online recordsInformation governance
Benchmarking
#londonconnect@londonconnect_
Our Approach
#londonconnect@londonconnect_
Our ApproachPeople exist as they are
We work to increase: (3) Awareness (4) Understanding (5) Motivation (6) Action (7) Commitment
Potentially confused, fearful
#londonconnect@londonconnect_
Online record access: Jan 2013 survey• 318 people took part: 137 using paper
survey forms and 181 online.
said,they would look at their health and care records if they were available online.
#londonconnect@londonconnect_
Benefits• Feel more involved in care• Feel more in control• More aware of individual health issues• Able to make better decisions about care• Probably talk more about health• Would trust health professionals more
#londonconnect@londonconnect_
Biggest worries1. Security2. Confidentiality
However,
said,it would be acceptable to have their records online as long as there were secure systems and passwords in place, perhaps similar to online banking.
#londonconnect@londonconnect_
Most commonly identified solutionsPrivacy: ReassuranceUtility: No TLAs or jargon. Medical terms explainedSupport: an accessible telephone helpline Encouragement: from doctors and nurses
#londonconnect@londonconnect_
Online record access: March 2013 focus groups• Four 1.5 hour focus groups• The final sample included:– 16 participants living with HIV/AIDS
(mix of ages approx. 25 – 55)– 30 participants from Age UK
London (50+)Detailed discussions
Solutions
WorriesBenefits
#londonconnect@londonconnect_
Summary of findings• Many Age UK London participants enjoyed using
computers and were very competent • The level of security perceived to be appropriate by
participants is inversely proportional to their level of comfort with computers
• Potential issues: increasing discrimination and inequalities - computer access or more vulnerable groups
#londonconnect@londonconnect_
Next steps: online records access• Further focus groups and surveys:
patients with diabetes• Partnering with organisations
across London to raise awareness• Citizen events and roadshows
#londonconnect@londonconnect_
We’d love to have you involved in our work1. London Connect Patient Forum meetings2. Citizen events3. Surveys and focus groups4. Online Records Community meetings5. Information Governance Community meetings
#londonconnect@londonconnect_
Q&A and contact details
Samantha MeikleDirector, London Connect0207 099 6915 [email protected] www.londonconnect.org
Concentra, Thames House Level 1, 18 Park St, London SE1 9EQ